Neulasta

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WHIZZER78
WHIZZER78 Member Posts: 54 Member
edited March 2022 in Uterine/Endometrial Cancer #1

I’m curious if anyone is taking the Neulasta shot.   Thoughts, experience, complaint, etc.   Thanks. 

Comments

  • Luckyluke
    Luckyluke Member Posts: 55 Member
    #2
    Hi WHIZZLER hope you are

    Hi WHIZZLER hope you are doing well after your first round. I am going to have my 2nd round on Tuesday.  I was suppose  to have Neulasta  but insurance  didn't  want to pay. They gave me Zarxio instead.instead of 1 shot after chemo I had to have a shot everyday for 5 days. The shot did cause some bone pain in my knees legs and back. By the 3rd shot I complained  about the pain and the nurse told me to try clariton I don't  know how it helps with the pain but it does. I took the clariton along with ibuprofen. Hope this information  helps and I am sure other ladies  will  be responding to your question.  Have a blessed  day 

     

  • EZLiving66
    EZLiving66 CSN Member Posts: 1,483 Member
    #3
    Neulasta and I did not get

    Neulasta and I did not get along! My pelvis was vibrating in pain and nothing would stop it. I took the Clariton and the Oxycodone but after that pain, I refused to have it again. Luckily, I could stay home and work from there. I know some other ladies said they got through it just fine. Good luck!

    Love,

    Eldri

  • Ribbons
    Ribbons Member Posts: 154
    #4
    Neulasta

    I had to have neulasta for 5 of my 6 treatments. I live a long way from my treatment center, so I was able to have the on-pro thing. They stuck it to my belly instead of my arm (like in the tv commercials) It was pretty funny because I startle really easily and that thing gives you a snap like if you snapped your arm with a big rubber band. So even tho I knew it was coming, when that snap hit me I would throw my arms up and go Ohh! It has to stay on for 27 hours and it was hard to remember not to bump it or knock it loose with your waistband, but all in all not teribly unpleasant. Yes you must take Claritan for several days to help with any bone pain, they don't know why it helps, but it does. I didn't have too much pain, just some quick sharp stabs in my shin bones and feet, but it didn' last too long. I also have a heating pad I use in the evenings while watching TV.

  • TeddyandBears_Mom
    TeddyandBears_Mom CSN Member Posts: 1,814 Member
    #5
    I had a hard time with

    I had a hard time with Neulasta. I only let them give it to me one time. Like Eldri, the bone pain was excruciating for me. It also messed up my stomach big time.  I refused to take it much to my Oncologist's disagreement. I was able to stay home most of the time and kept germs away. Many women going through chemo at the same time as I did, were able to use it with less issues. So, it may not be an issue for you either!

    I wanted to mention to you that you will most likely have a really low energy day when you come off the steriods. Just rest!

    Good luck with your treatments! You got this!

    There is a thread that may help you:  "Ladies going through chemo"

    Love and Hugs,

    Cindi

  • WHIZZER78
    WHIZZER78 Member Posts: 54 Member
    #6
    Thanks

    thank you all for your responses.  Last night was rough.  Today is better.  I’ve taken the Claritin and some Tylenol, so hoping the worst has passed.  

  • barnyardgal
    barnyardgal CSN Member Posts: 272 Member
    #7
    I didn't have any issues. I

    I didn't have any issues. I didn't need it til chemo#4 and since it was almost spring by then, normally I would have used zyrtec. Instead I switched to claritin and just used that everyday.

  • ConnieSW
    ConnieSW CSN Member Posts: 1,688 Member
    #8
    I had

    awful bone pain with the first neulasta but nothing at all with the next 5. 

  • carolina_girl11863
    carolina_girl11863 Member Posts: 3
    #9
    Neulasta No fun

    Just to clarify I took Neulasta after each chemo I had for breast cancer.  Too long to go into why I am here on this sight for uterine cancer.  Neulasta is a mean devil but it does the job it is supposed to.  It gave me very bad bone pain that the claritin did not help.  I still took it and it kept my white blood count up and I never got any secondary infections during chemo.  I know it's hard but if you can push through it definitely does it's job.

     

  • derMaus
    derMaus Member Posts: 558 Member
    #10
    I had 3 rounds of Neulasta

    I had 3 rounds of Neulasta and took the Claritin as recommended. I had no side effects. 

  • WHIZZER78
    WHIZZER78 Member Posts: 54 Member
    #11
    I’ll start the Claritin ahead

    I’ll start the Claritin ahead of time next round.  Hopefully that will help.  This time has been awful. 

    thanks to everyone that took time to respond.   Your feedback is so appreciated.   

  • LisaPizza
    LisaPizza CSN Member Posts: 358 Member
    #12
    derMaus said:

    I had 3 rounds of Neulasta

    I had 3 rounds of Neulasta and took the Claritin as recommended. I had no side effects. 

    Awesome, I've never heard

    Awesome, I've never heard anyone say that. Seems almost as rare as not losing your hair with taxol and carbo ... every once in a while I aee a statistic on that that is less than 100%, blows my mind :)

  • Casey1100
    Casey1100 Member Posts: 1
    edited May 2019 #13
    Neulasta

    I had 3 rounds of Neulasta.  The first 2 were fairly mild....a few aches and pains......but could live with it without meds. 

    Then, the 3rd one! Wow! On the 3rd day after the shot, I thought I was having a heart attack!  If I moved around....doing chores, etc....nothing hurt; however, when I would then sit down to rest, after about 10 seconds, my body would be overcome with intense pain, every muscle would scream and I would just have to freeze in place. 

    I went to the Heart Hospital and tried to explain the situation.  The doctor would not listen....he thought he already knew what I was going to say and he said hurting during activity was normal.  I repeated several times, that I was fine during activity; however, it was when I rested that I was overwhelmed with pain.  He rather fluffied me off. 

    Now, I had walked into the hospital and stood to talk to him, then I sat on the bed while they hooked me up to a bunch of machines.  Then he told me to lie down on the bed; as I begin to lie down, I told the staff, "Here it comes! Here it comes! It's coming, it's coming!".  Then the pain overwhelmed me!  I heard the Doctor say, "Oh, my God!"; because he could actually read all the monitors I was hooked up to.  He said, "That's a lot of pain!"  Then, after about 20 seconds, I said, "It's going, it's going" and the pain left. I could tell the Doctor was rather fascinated by it all.

    They couldn't explain it, but said it had to be the Neulasta....muscle spasms they guessed.  I went home, and each time I rested, it happened.  Then slowly stopped occurring later that night.  I hate the stuff!  Hang in there....!

  • cmb
    cmb CSN Member Posts: 1,001 Member
    #14
    derMaus said:

    I had 3 rounds of Neulasta

    I had 3 rounds of Neulasta and took the Claritin as recommended. I had no side effects. 

    Neulasta

    I gave myself a Neulasta shot after each of my four "phase 2" chemo treatments. I also took Claritin. Although I did get pretty sick from those chemo treatments, I didn't have any side effects like bone pain that could be attributed to Neulasta.

  • HFTG61
    HFTG61 Member Posts: 31 Member
    #15

    I have just had the Neulasta Onpro put on my arm yesterday after my 2nd taxol treatment. Now, today just waiting a few hours for the big boom to drop. I bought a small pk of Claritin just in case & since I am not comfortable with all the listed side effects that go w/neulasta I figure it's best if I stay with a relative tonight instead of alone. All the posts about the neulasta are really helpful. Though it seems to affect some w/out the bone pain & some only the first dose. I will know the answer in about 3 hours. Keep me in your prayers. Thanks.

  • Fridays Child
    Fridays Child Member Posts: 284
    #16

    Neulasta did cause bone pain for me, more intense in areas that had previously been injured, like the wrist I'd broken 50 years earlier. Claritin did not help me but Benadryl (used with permission from oncologist) did help.

    What they told me is that the Neulasta and similar drugs stimulate your bone marrow to produce more blood cells and the byproduct of that process is histamines, which is why antihistamines may help. They told me to start taking the antihistamine a few days prior to chemo so it would already be in my system.

    Good luck to you, and I hope you're among those with no problems!

  • Lyn70
    Lyn70 CSN Member Posts: 214 Member
    #17
    https://csn.cancer.org/discussion/319095/neulasta

    Hi, Whizzer,

    I had a Neulasta 'on board' shot after every treatment. I was sent home with a time release device. Learned about Claritin on this board and it worked well for me. I took it for 4-5 days,after shot engaged, for leg pains.

    Neulasta paid off in my blood work. My counts always recovered enough to proceed on to next treatment.

    ((Hugs))

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