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First chemo treatment

WHIZZER78
Posts: 51
Joined: Mar 2019

Tuesday the 19th will be my first treatment.   Does anyone have any tips or tricks to make my treatments and days after as smooth as possible?   Thanks in advance.   

MAbound
Posts: 854
Joined: Jun 2016

Since you have so little time to prepare, I'd say the number one thing to do is to have some way to ice your hands and feet during chemo to prevent neuropathy. It's no joke. I'm having a hard time typeing, so type into search engine for suggestions on how to do this. There's been a lot of threads on it.

WHIZZER78
Posts: 51
Joined: Mar 2019

thank you !

janaes
Posts: 752
Joined: May 2016

Im sure there will be others with lots of help. This is what im remembering. Make sure you have lots os water to stay hydrated and to flush the chemo out. I had contapation problems my first chemo and so i would recomend taking someting for that starting the day before and the first few days after. I did that on my second chemo and there after. It help alot. Its been over 2 years now so i dont remember too much buy like i said im sure others will share too. Oh bring things to do diring treatment if you want. I did end up sleeping alot buy its nice to have something just in case.

I wish you well

Remember you can come here for suport after treatment as well.

WHIZZER78
Posts: 51
Joined: Mar 2019

thank You !

zsazsa1
Posts: 314
Joined: Oct 2018

Welcome, Whizzer.  I just finished 6 rounds of carbo/taxol recently.  Here's what I recommend, in excruciating and way too much detail.

I don't know what subtype of cancer you have, but I'm assuming you're going to have carbo/taxol.  If you have a subtype that might benefit from Herceptin, DO consider having the testing done for her2/neu receptor, depending upon what FIGO stage you are.  I was told I wouldn't qualify for it, and that my insurance wouldn't pay for it, but they were WRONG.  I did qualify, my insurance paid for it without any appeal.

I had a port put in.  I only used it for infusions, never for lab draws, because I wanted to minimize the chance of introducing infection through the port.  The chemo agents chemically burn the tissue if they leak out of the vein, which is far more possible with a peripheral IV than with a port.

Have a good friend/relative come with you for the entire treatment, every treatment, because you will need their help.  In my opinion, icing your hands and feet is absolutely crucial, to minimize neuropathy.  People on this board have related that this has been a persistent and painful side effect of the chemo.  The first round, I tried putting on thin socks/thin lab gloves and putting my hands and feet into ice, but it was too painfully cold, plus the barrier of the socks and gloves, no matter how thin, kept the hands and feet too warm!  What I settled on was this: Bring a picnic freezer chest.  Get a 16 lb bag of ice cubes in the freezer chest - you will use almost all of it.  I got plastic shoe box sized containers (get at least four, maybe 2 extra in case one cracks) and quart-sized take out soup containers.  I also recommend getting four large sized or 8 small sized freezer "blue ice" reusable freezer packs.  My hands and feet were bare (remove all rings because your hands will swell from the cold water).  You will first be given IV and oral pretreatments - Pepcid, Benadryl, and Decadron, in addition to oral ondansetron and an IV push of another anti-emetic.  Get ready to ice 30 minutes before they start the Taxol - your nurse will warn you.  You want your hands and feet COLD from 15 minutes before the infusion, until you leave the infusion center (keep icing right through the Carboplatin infusion which is done after the Taxol).

Nest the plastic boxes for your feet, with a layer of ice packs between the two boxes (or I suppose you could just fill the bottom box with a layer of ice cubes, and replace it as needed).  This is because when your feet rest on the bottom of the box, if you don't do this, the soles of your feet will be in contact with the warm floor, and not be cold enough.  Put your feet in the boxes nested into the boxes with a layer of ice or coldpacks in between.  Add cold tap water to upper box to cover your feet.  Once your feet are comfortable in the cold water, have your "attendant" add ice cubes to the water as tolerated, and draw off warmed water as needed.  Wiggle your feet and toes often to get cold water moving around your feet.  The reason that your feet are in the nested boxes is that you WILL fall asleep from the Benadryl - I usually slept for about an hour, and I can NEVER fall asleep anywhere!  Your attendant will need to keep putting in more ice while you're asleep, too.  They'll also need to help dry your feet and escort you to the bathroom, which you will need to do every couple of hours, because you'll be drinking so much!

Do the same thing for your hands, by putting the quart-sized containers by your sides in the infusion chair.  I put a folded towel between the containers and my outer thighs, so that I wouldn't be icing my thighs, which could have decreased chemo penetration to outer thighs.

Keep wiggling your fingers and toes and moving your feet, to circulate the ice cold water next to your hands and feet.  Have your attendant keep adding ice and removing water.

I brought a heating pad and put it onto my mid section, over the pelvic/abdominal area, to keep warm.  If I hadn't done this, I would never have been able to ice my hands and feet - I would have been shaking with cold, and would have had to stop.

I set up a laptop, running whatever series or movies I wanted.  Familiar comedies helped - my husband and I laughed our way through the chemo sessions.  If you're not in a semi-private area, don't forget headphones or earbuds.

Drink tons of water from right before the chemo starts, right through it, and for a few days afterwards.  I think that possibly the reason that my first round was so difficult was that I hadn't drunk enough water, and became dehydrated.  You need to wash the chemo out of your system.  This is REALLY important, so if you start to get nauseated, you've got to take something so that you can keep on drinking.  On the other hand, many women have related that the first round of chemo was the hardest, and not because they didn't know what to expect, and not because they got dehydrated.

Make sure to have 8 mg ondansetron on hand at home before you start chemo.  My oncologist refused it to me, despite my having asked, and gave me only prochlorperazine, which for me did NOTHING.  They say that if you had bad pregnancy nausea, it's a predictor for bad chemo nausea.  I had very bad nausea by about 36 hrs after the chemo, needed to obtain ondansetron in the middle of the night.  Just insist on having it on hand, even if you're likely to never use it.  And if you get so nauseated that you can't drink, USE it!  For me, I went from being on the verge of vomiting, to no nausea at all, within 15 minutes of taking it.

My experience was that I was wired from the steroids and up until 4 AM the day I had chemo.  I felt okay the next day. But on the second day, I got sick.  That first round, I was in bed with nausea and body aches from the second to about the 5th day, then started to gradually improve, was much better by the 7th day.  Bingewatching helped me get through those days.  No subsequent round was as bad as the first, but I was always sick from at least days 2-4, usually okay the day right after chemo.  And I didn't have Herceptin that first round.

Hair fell out about 2.5 weeks after chemo.  I decided against icing my scalp, because I heard it caused a bad headache, and I just didn't need that extra pain.  It'll grow back.  A lot of people have complained of scalp tenderness when the hair is falling out.

I asked the oncologist to reduce the Decadron dose after the second round with no allergic reaction.  Others have told me that this is routine - but I don't think that my oncologist would have.  I had 20 mg rounds one and two, 15 mg round 3, I think 10 mg round 4, possibly only 5 mg round 5.  Steroids cause cataracts and bone density loss.  So I wanted it decreased, once it appeared unlikely that I was allergic to Taxol.  Round 6 I declined Taxol (because I was beginning to have neuropathy in my feet, and I felt that there was only marginal benefit of a 6th round of Taxol, vs the near certainty that the neuropathy would worsen with that last dose of Taxol), so I had no Decadron pretreatment.  I have NO neuropathy in my hands, and at this point, only some numbness of my left foot on the ball and toes of the foot.  No pain.  Compared to what a lot of the women have reported for neuropathy, I think that the icing really helped, and I think that if I had known to nest the foot boxes in ice, I might have completely avoided neuropathy altogether and been able to have that last round of Taxol.

I found that clear broth soups helped me to get down fluids, when I couldn't drink.  I grew unable to stand the taste of water - moved to seltzer and juice, which I also came to abhor.  The last round, all I could drink was fresh-squeezed orange juice!  But finally, I can drink water again, now that I'm two weeks out from the (hopefully) last round of chemo.  Honestly, except for the baldness, here I am just 2.5 weeks after chemo, and I feel GREAT, as if it never happened!

You can get through this!  It is nowhere near as bad as I had feared it would be.  It is totally do-able.  Don't be embarrassed to ask friends and family for help when you need it.  And there is a lot of support right here from women who have been through it, or are going through it, and understand.

 

WHIZZER78
Posts: 51
Joined: Mar 2019

thank you so much........I can't wait to read this........I truly appreciate your time and advice !!!!

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Ribbons
Posts: 73
Joined: Jan 2019

I am now 1 month from my last chemo!  Going for the second brachytherapy treatment this week.(stage 1A, grade 3 for clear cell, and serous) Everyone reacts a little differently to chemo, so take all the information you can and then sift through to find what works for you. Also, the treatment centers differ. At my cancer center there is a snack station, and a fridge with juice and things, also they want you to eat lunch if you are there that long, it is important to not get too hungry. (I was always there for at least 6 hours)The nurses offered me ice paks for my hands and feet. I didn't have much neuropathy, and the ice paks seemed like enough for me. I have slight numbness in 3 toes on one foot. The steroids I was given were pills, I had to take 20mg 12 hours before treatment and another 20 mgs 6 hours before, I was able to decrease this dose for the last 2 treatments. I was given anti nausea things in the IV, one short acting and one long acting. I could not take ondansetron for 48 hours after treatment because it and the IV one would cancel each other out. I did take the prochlorper(Compazine) a couple of times, but as soon as I could start the ondansetron that worked the best, I never threw up, just felt icky. Although I did not feel like eating, it did not seem to make me feel sicker to eat, and it actually helps you, so eat whatever appeals to you, I liked soup, and salty things, even had lasagna! The day after treatment was always fine, till the last one then I felt bad right away. I could not drink water for a couple of days after because it tasted like rusty nails, but I drank lots of apple juice, cider, and I liked V8 juice, and ginger ale. You could get an irratated mouth, ask them about that if they don't tell you. I did only once and you can mix baking soda and salt for a mouth wash which helps a lot. I was constipated for a couple of days followed by diarrhea for a day! I had to have Neulasta because my white blood count went too low. Claritan helps with that. Right now I am feeling pretty good except I have some fibromyalgia and the chemo has made it flare up I think, so I am having a lot of aching leg pains in the evening, but I think that will soon pass. Also the steroids or something gave me migraine type headaches for about 1 day and night each time, tylenol helped with that. And yes, if you don't have a port yet, you may need one. I only used mine for the chemo. I was nervous to get it put in but it wasn't a big deal and I can't imagine having the chemo without a port. Don't know if you are alone or have family but I scheduled my treatments on Friday, my husband was with me on the weekend and Monday then our oldest daughter came on Tuesdays. I just really wanted some company those first few days when I felt so sickish. Generally you start feeling better after a few days so by the next treatment you are feeling pretty good. Mine were 3 weeks apart. Also make yourself move around, you will feel better with a little exercise! When you look back, it isn't really all that long, but when you are in the middle of it, it does seem like forever. You get through it though and all in all it isn't unbearable. Good luck to you.

WHIZZER78
Posts: 51
Joined: Mar 2019

thank you !

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DM_K
Posts: 50
Joined: Mar 2018

Stool softners is a biggy, got to keep everything moving.  Claritin helped with bone pain I got in my shins.  I also combined narco and flexeril when the pain got really bad.  I ended up with restless legs and Klonopin really helped me with that. 

 

 

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BluebirdOne
Posts: 194
Joined: Jul 2018

I had four rounds of chemo last year. My center provided ice mittens and booties so I did not worry about that. I have minimal neuropathy  in my feet, so I feel it worked well for me. Rejected the cold cap. My hair fell out 6 weeks after 1st chemo, during the 2nd round. After surgery I was almost incontinent,which is better now, but still a problem for me today. Luckily we had chemo suites some with attached toilets, as the bags of liquid made me totally incontinent and I wet myself (yuck). I had a change of clothes. No one told me that might happen. I slept through most of my treatments as I had to have bloodwork very early, 6:20 am, so I was up at 5:00 am. hardly needed any other entertainment. I did not have a port. Patient education  pre chemo warned us to try and drink 64 oz of water daily, in addition to tea, juice, etc. to flush the chemo. I continued to drink this amount of water daily from one treatment to another, stopping 6 weeks after my last chemo. This helped tremendously with constipation, and replaced liquid lost through diarrhea. Unfortunately, it exacerbated my incontinence but I just had to get used to my new normal rather than risk my already compromised kidneys. I took the anti nausea meds as needed and they were a great help. I have serious osteoarthritis in many of my joints so the bone pain was terrible, but short lived. I slept 10 hours a day which was a lot for me. Things with meat or meat smells were off limits but fine now. Now 5 months after chemo I feel pretty good. Still have minor pee problems leftover from the surgery, bowels work well, even though I will be on stool softeners probably for life, hair is coming back, and I have lost 22 lbs. mostly because I could not eat much. Food still doesn’t taste the same and I have little appetite, hopefully that will resolve. I feel my time doing chemo was pretty easy compared to some, just something to endure and get through, and I look to feeling better as the months go by. Good luck!

Denise

evolo58
Posts: 293
Joined: Dec 2017

If your center does not supply them, you can get them off Amazon. They're not too terribly expensive. Good for tired feet in the future as well. I opted to just do the plunge with my hands. My hands are more sensitized to cold; my feet are not, and was agonizing doing the plunge with them. (No, I did not walk five miles to school barefoot when I was a kid!) I would actually follow the directions (oops) and leave one set of the ice packs in the booties, then freeze the booties and extra packs. It saves a lot of trouble trying to get the ice packs into the booties during treatment.

I opted not to cold-cap as well, but that is a decision you need to make for yourself. Many ladies are glad they did. My hair fell out right around the second treatment, though I started getting more-obvious bald spots the week before.

I wear adult diapers to chemo and until the "chemo cootie" period is over. (Many doctors recommend using precautions such as flushing the toilet twice and washing any clothes and bedding used during a certain time period separately. For me, it was 48 hours. I've heard some centers tell their patients five days. Since I have other famliy members in my house, I bag my waste separately and double-bag it before taking it out after the cootie period is over.

You can either go loose and runny or pass walnuts after treatment. Stool softener at least a day or so before and the first week after was a must for me. I got the passing walnuts option. 

Claritin ... I'm sure someone mentioned that already. It's really helpful to take it at least a day before and a couple of days after. I know you already had your first treatment, but I wasn't told ANYTHING at my first treatment, and boy oh boy was it wretched. I remembered it for the second treatment and beyond, though!

I had the opposite reaction concerning food, by the way ... I wanted to eat the wallpaper. The nurses told me steroids can do that. Be careful if you wind up getting amped-up munchies. You can actually gain weight from chemo!

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LisaPizza
Posts: 208
Joined: Feb 2018

Amazing how much different doctors / centers vary. I had no precautions at all about waste or laundry.

SF73
Posts: 257
Joined: Oct 2017

Excellent suggestions from other laides. I would also recommend staying away from crowds. Your blood count would be low during your treatment . A cold is the last thing you need. If you have the energy for it walking in the nature was so good for my mental health. I would highly recommend that. If you live in a sunny place, make sure to protect your skin. Chemo makes the skin more sensitive to sunlight. I also tried to follow a ketogenic diet during chemo. Some cancer patients have such big issues with their appetite that they eat whatever they can. I was one of the lucky ones and made sure to follow a healthy diet.

zsazsa1
Posts: 314
Joined: Oct 2018

Very good point, SF73.  I was very compulsive about avoiding risks of infection, the way one protects a newborn.  I wore a mask and gloves anytime I was indoors in a place other than my home.  I avoided stores, restaurants, theaters.  If people were coming to my home, I asked if they had any cold symptoms, and if they did, asked them not to come.  My husband and son were compulsive about handwashing - and my 15 yr old son even managed to stop biting his nails, to reduce his risk of picking up a cold and bringing it home to me.

It helped that I had girlfriends who would come over to take me out for walks in the neighborhood, in weeks two and three after chemo.  They also would bring me healthy foods to stock my fridge one week after chemo, when I began to eat again.

The ketogenic diet is still being researched, as to whether it helps.  Certainly, it makes sense that cells that are growing fast would require more energy, and want glucose to grow.  Starving them by putting your body into a state of ketosis, forcing them to use ketones instead of glucose - it seems logical that it would put fast-growing cells at a disadvantage, and make them more vulnerable to the chemo.  Ketogenic diet has been shown to favorably alter growth factors that seem to affect cancer cell growth.  I was told by two oncologists that it had been studied and didn't seem to make a difference.  But there is currently another trial at MSK that I believe is enrolling - they never called me back when I called about it, when I was first diagnosed.

https://www.mskcc.org/cancer-care/clinical-trials/17-396

I myself was so nauseated during chemo, that I ate whatever I thought would calm my stomach - and I had such bad diarrhea at times, that I couldn't eat any roughage.  One round, all I could eat was a bite or two of Fettucine Alfredo for days.  Another round, it was a bite or two of flounder Francese-style.  Weird.  Now that I'm done with chemo, I'd like to try dietary changes that might disourage the growth of cancer cells, but there is really no strong evidence for ketogenic, or low-glycemic index, or any other particular diet.  Perhaps just vegetables and a little lean protein?  Hard to tell.  I could certainly afford to lose 20 % of my body weight - just if I were successful in doing it with dietary changes, I'd be so worried that it was due to a recurrence!

SF73
Posts: 257
Joined: Oct 2017

Hi Zsazsa

You are absolutely right. There is no concrete evidence that ketogenic diet makes the chemo treatment more effective or keeps cancer away. What I followed was not a pure ketogenic diet. It was mostly plant with some fish avoiding sugar, flour, alcohol etc. During the treatment I was avoiding fruits and complex carbohydrates also but since I have allowed them back in my diet. This is something I did because I wanted to feel like I was in charge. I wanted to feel like it is not just my doctors who are fighting but I was playing an active role as well. I wish we knew more about how our diets affect our chances of getting cancer in the first place and to avoid recurrences once we have them. There are still so many unknowns. 

 

zsazsa1
Posts: 314
Joined: Oct 2018

Somehow, I think that dietarily you were doing the right thing, that would starve the cancer cells of ready glucose to feed growth.  I am going to try to do this, too.

WHIZZER78
Posts: 51
Joined: Mar 2019

A big thanks to all of you that took time to respond and share.  I’m ready to tackle this beast !!!  

zsazsa1
Posts: 314
Joined: Oct 2018

Thinking of you today.  Let us know how it went.

WHIZZER78
Posts: 51
Joined: Mar 2019

Well, I made it thru my first chemo.   I did have the allergic reaction.  Very scary but they were right on top of it in seconds.  I was able to continue without further incident after more Benedryl.  Other than being tired, I’m doing great this evending.  

 

My sincere thanks for your, tips, well wishes and concerns.  

 

Whizz 

LisaPizza's picture
LisaPizza
Posts: 208
Joined: Feb 2018

I had a reaction too, and it *is* scary. But if it makes you feel better, the 2nd and all subsequent cycles had no reaction, and apparently that's pretty typical. 

WHIZZER78
Posts: 51
Joined: Mar 2019

That is good to hear.  I know I will be anxious at my next treatment.   They did say I would get more Benedryl to start with next time.  

zsazsa1
Posts: 314
Joined: Oct 2018

That's too bad about the allergic reaction.  Do they plan to try it again next round?  I hope you can rest well tonight. 

WHIZZER78
Posts: 51
Joined: Mar 2019

Next round they will give my Benedryl thru my IV.  Guess that’s helps too.  

LisaPizza's picture
LisaPizza
Posts: 208
Joined: Feb 2018

Just be ready to be a little "drunk " :) Also dry mouth, and sometimes some restless legs.

zsazsa1
Posts: 314
Joined: Oct 2018

Hmmmm.  For every round, they gave me Benadryl, Pepcid, and Decadron, all IV, to try to prevent allergic reaction.  They never talked about doing the premeds orally, except for the 16 mg of ondansetron.  They also gave me an IV anti-emetic.

WHIZZER78
Posts: 51
Joined: Mar 2019

The Benedryl I got orally, the others thru IV.   Next time Benedryl thru IV.  Hope that solves the issue.  

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LisaPizza
Posts: 208
Joined: Feb 2018

I usually had both. I took Pepcid, Zyrtec, and Decadron orally (thw Decadron both the night before and in the morning), and then got Pepcid, Benadryl, and Decadron IV. Oddy enough I never really had any steroid side effects, which amazed me.

 

Did need some magnesium once, that hurt, but at least they gave the potassium orally (I didn't have a port).

zsazsa1
Posts: 314
Joined: Oct 2018

How are you doing today?

WHIZZER78
Posts: 51
Joined: Mar 2019

I’ve felt great today.  Got my Neulasta shot this afternoon.   Hoping the good continues.  Thanks for askIng.  

zsazsa1
Posts: 314
Joined: Oct 2018

That's good!   Really good!   I think you are going to tolerate the chemo well.  This is excellent news.

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Ribbons
Posts: 73
Joined: Jan 2019

happy you have the first one done. My Benedryl was always oral but I was really loaded up on the steroid ahead of time. I do think it is pretty common to have an allergic reaction the first time only. I’m curious about your Neulasta shot. Did you get that as a precaution? They didn’t start mine till the second round. They waited for my weekly blood tests to show how far my neutrophils had dropped. Mine dropped a lot and even tho they came back up a bit in between treatments, I had to have the Neulasta every time after that just as a precaution.

WHIZZER78
Posts: 51
Joined: Mar 2019

I’m not sure to be honest why I had it first round.  Doesn’t seem to always be the case.  I should have researched it more, I guess.  The pain has been terrible today.   Neulasta is not my friend, I’m afraid.  

evolo58
Posts: 293
Joined: Dec 2017

Rejected my Neulasta. Since my white blood cells tanked last time, MAYBE they'll give the OK this time? Maybe?

zsazsa1
Posts: 314
Joined: Oct 2018

Yeah, me too, they were worried that I would need Neulasta because my ANC dropped to close to 500 with first round, but it never went lower than that, never had it.

WHIZZER78
Posts: 51
Joined: Mar 2019

I will be talking to my dr about this.  Not sure I can tolerate this pain Every time.  

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LisaPizza
Posts: 208
Joined: Feb 2018

It's pretty common with this particular chemo regimen to wait to see if you need the Neulasta or Xarxio, I think the breast cancer gals are not as lucky in that regard. For example, my ANC dropped more and more with each cycle, and eventually got to 450. That crossed their threshold and prompted a call from the ER nurse to make sure I was fine (it was on the weekend), but I was, and I never had the Xarxio. The only time I got sick was influenza B 3 weeks after my last chemo, hard to say if that had anything to do with chemo or not.

zsazsa1
Posts: 314
Joined: Oct 2018

Everyone says that Claritin helps with the bone pain.

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Tamlen
Posts: 192
Joined: Jan 2018

I also didn't have Neulasta, though my ANC dropped below 500. I was already having so much bone pain from the carbo/taxol (and I'm allergic to all the good painkillers) that I think my onc figured the Neulasta might really be excruciating. She told me to stay in my house when my ANC was so low, until it shot back up again each cycle. My husband was also fastidious about serious handwashing and hand sanitizer when he came home or after playing with our dog. I never got sick during chemo.

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CheeseQueen57
Posts: 797
Joined: Feb 2016

I didn’t have Neulasta either. Was really careful and never got sick. 

WHIZZER78
Posts: 51
Joined: Mar 2019

Thank you all for responding.   It’s comforting hearing that some have the same issues.   I’m hopeful that it won’t be as bad next time also.   I’m so glad I found this page.  

zsazsa1
Posts: 314
Joined: Oct 2018

I was very careful, never got sick.  I wore gloves, and often a mask, when I went into buildings other than my home, all through the chemo. 

evolo58
Posts: 293
Joined: Dec 2017

I found that using a mask was an excellent idea when my mother insisted that she needed to go to the ER. (She was fine. I was a wreck. Even the paramedic strongly advised her to wait and not go to the ER because both she and I could have some serious problems, but she refused to listen. I got one awful case of the Bowels from Hell after that experience.) Since she doesn't like masks and won't wear one, I had to play Keep-Away for a few hours in a room full of sick people. I didn't even go to the bathroom since it seemed that the ones who were sickest appeared to have the weakest bladders. Nope. I wasn't worried at all! Smile

One benefit of your wearing a mask is that people think YOU'RE sick and they try to stay away. No, sweeties. YOU'RE the ones I'm worried about with your coughing, sneezing and hacking, but please keep believing that. 

I try to avoid crowds in the first place. I still have to shop, do errands and take care of my mother, so it's not that I can avoid people. I food shop at night, when there aren't as many people around, for instance. I don't always wear a mask, since my blood counts weren't that bad until the last treatment, but ALWAYS carry them on me, ready to don one if lucky me sees the hacking person who seems to want to share the love. Now that my counts are lower, I mask much more often as a precaution. (When I was on Carbo/Taxol, though, I masked much more diligently, since my counts plummeted a lot sooner.) My hand-washing procedures after dealing with the public would make the most diligent surgeon envious!

I can't wait until the end of cold and flu season. That is only about a month or two away! 

WHIZZER78
Posts: 51
Joined: Mar 2019

I agree with cold and flu season nearly being over.  Guess that’s a positive to the timing of this adventure.   I have enough support that I don’t have to even leave the house.  But I will go crazy if I don’t get out.  I’m hoping to work when able but that’s yet to be seen.  

LisaPizza's picture
LisaPizza
Posts: 208
Joined: Feb 2018

Just still be careful. Last year I got influenza (test proven) in the 3rd week of April and it was miserable. And I was vaccinated.  Flu season is definitely not over yet, especially for *you.*

zsazsa1
Posts: 314
Joined: Oct 2018

It's never over.  I've seen people get influenza in June some years, and cold viruses and stomach viruses are present year-round.  We just have to ALWAYS be careful.  I don't shake hands at all.  I don't touch surfaces that other people touch - I'll use my shirt tail to open door knobs, or wear gloves (those stretchy fabric ones with the thumb and finger that work on screens are very useful).  And if I'm out in public and someone coughs or sneezes, I move as far away as I can.

WHIZZER78
Posts: 51
Joined: Mar 2019

Good advice.   I think I’ll stay in a plastic bubble....lol

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Lulu7582
Posts: 112
Joined: Jun 2018

Glad you made it thru the first chemo session. Now you will have a better idea of what it will be like next time other than the reaction to Taxol. I too had that awful reaction to Taxol but mine happened during cycle 2. Not fun like you said! But they treated it and slowed the infusion and next cycle they upped the decadron and benadryl and no further reactions. 

The neulasta I declined because of the side effect of bone pain. With my bone mets I already have enough pain so didn't want to compound the problem. Thankfully my ANC always came back to an acceptable level before the next chemo session. 

Each day you will feel stronger and feel better and by week 3 almost back to normal. So all the best and keep us posted. 

zsazsa1
Posts: 314
Joined: Oct 2018

Whizzer, if you're anything like I was, you're past the worst of the feeling sick after chemo now.  It only gets better now, and hopefully you'll be feeling pretty normal soon.  It was my experience that the first round was by far the worst in terms of nausea and body aches.  No subsequent round was as bad for me.

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