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Still NED but---

icemantoo's picture
icemantoo
Posts: 3198
Joined: Jan 2010
Feb 28, 2019 - 4:18 pm

Had my Kidney US last week and saw URO today. Same small sub cm cyst in other kidney wh1ch they have been watching for years. Officially NED for almost 17 years.

 

But PSA is higher and retest in 90 days. Then maybe Prostate biopssy. Trying to get discharged from URO.

 

 

 

icemantoo
Bay Area Guy's picture
Bay Area Guy
Posts: 377
 Joined: Jun 2016
Feb 28, 2019 - 4:43 pm

My dad, who never was diagnosed with any kind of cancer, had an elevated PSA level from about 65 years of age on.  He was referred to a urologist and various tests were done,  it did show an enlarged prostate.  As he got older, he did have an episode or two of difficulty urinating, but those passed (pardon the pun) with some medication and, once, with a catheter.  He passed away at 90, and the stated cause was complications from COPD, but the real reason, in my opinion, is that my mom passed away the year before and he missed her terribly.  I don’t think it was a coincidence that he passed away the night before what would have been her birthday.  I think he just wanted to be with her again.

Congrats on another year of NED, ice.  May you have many more, and continue with your cheesy humor (that I love) and continue being an inspiration to everyone on this board.
jroby55
Posts: 36
 Joined: Feb 2019
Feb 28, 2019 - 4:49 pm

Congrats Iceman! Good luck with the PSA! 
Hoss79's picture
Hoss79
Posts: 78
 Joined: Nov 2017
Feb 28, 2019 - 5:09 pm

Congrats on the NED!!!
Dominick0711's picture
Dominick0711
Posts: 87
 Joined: Jan 2019
Feb 28, 2019 - 5:25 pm

icemantoo, your 17 years NED gives me great hope! And your comments always give me an opportunity to laugh! So happy you are NED!  Best of luck with the retest in 90 days, I'm hoping no biopsy for you!
Gtngbtr58 @aol.com's picture
Gtngbtr58 @aol.com
Posts: 204
 Joined: Oct 2017
Feb 28, 2019 - 11:04 pm

Keep it up-we need you here-June
Manufred's picture
Manufred
Posts: 231
 Joined: May 2017
Mar 01, 2019 - 12:56 am

Somewhat ironic, but success in defeating cancer (well, I mean our cancer, RCC) is that there will then be something else that takes us out eventually.

Prostate is being managed very well these days as I expect you already know, and they say most men die with it (as your father may have done), not from it.

And this might open up a whole new community on the Prostate survivors discussion board who can then benefit from your wisdom and wit.

Hope it all goes away, but life goes on.

Best wishes, Fred
Bay Area Guy's picture
Bay Area Guy
Posts: 377
 Joined: Jun 2016
Mar 01, 2019 - 8:11 am

In regard to my dad, that’s exactly what his urologist told him.....you’ll die with prostate cancer, but not from it.
eug91's picture
eug91
Posts: 125
 Joined: Jan 2019
Mar 01, 2019 - 1:59 am

NED! Here's to at least another 17 years! 
Canadian Sandy's picture
Canadian Sandy
Posts: 486
 Joined: Jul 2016
Mar 01, 2019 - 3:41 am

Congrats on your Ned status!

 
Allochka's picture
Allochka
Posts: 853
 Joined: Nov 2014
Mar 01, 2019 - 5:32 am

Congrats on NED, and good luck with PSA thing! 
Cybball
Posts: 111
 Joined: Nov 2017
Mar 01, 2019 - 9:42 am

That is fantastic.   Keep it up.   Gives me lots of long term goals.
APny's picture
APny
Posts: 1919
 Joined: Mar 2014
Mar 01, 2019 - 12:34 pm

Great news, Iceman, and good luck with the PSA!
donna_lee's picture
donna_lee
Posts: 885
 Joined: Feb 2009
Mar 01, 2019 - 5:02 pm

Congrats, Iceman.  I'm hoping for a good report within a couple of weeks.

donna_lee
adman's picture
adman
Posts: 338
 Joined: Jul 2012
Mar 01, 2019 - 7:10 pm

Great News; congrats. Continued great health and wishing you well.

God Bless. 
Jan4you's picture
Jan4you
Posts: 1310
 Joined: Oct 2013
Mar 01, 2019 - 10:02 pm

Let's celebrate YOU, Iceman!! Look at ALL you bring us at this forum. 

AND you offer us HOPE as you are Kidney cancer free for 17 friggin years!!

So now its time to practice what Fox always said, NOt to worry, life is too precious.

Sending you healing hugs,

Jan
daisybud's picture
daisybud
Posts: 452
 Joined: Jan 2016
Mar 01, 2019 - 10:14 pm

Very happy for you! Happy dance time!
Retcenturion's picture
Retcenturion
Posts: 240
 Joined: Mar 2017
Mar 02, 2019 - 8:18 am

Thank you for sharing Iceman.  You do so much for all of us here. Wishing you many more good reports.
Bart1978
Posts: 25
 Joined: Aug 2018
Mar 03, 2019 - 1:23 pm

Congrats on NED and good luck with the prostrate.
stub1969's picture
stub1969
Posts: 782
 Joined: Jul 2016
Mar 03, 2019 - 5:01 pm

You continue to set the standard, Iceman.  Keep us posted on your recheck on your PSA numbers.

Stub
Steph85's picture
Steph85
Posts: 157
 Joined: Feb 2018
Mar 05, 2019 - 2:45 pm

Congrats on the NED icemantoo! You are an inspiration to us all.

Take care,

Steph
Mighty Frog's picture
Mighty Frog
Posts: 130
 Joined: Jul 2017
Mar 05, 2019 - 8:08 pm

Congratulation Iceman! and NED forever.....
Apaugh's picture
Apaugh
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 Joined: Aug 2016
Mar 05, 2019 - 10:47 pm

Wonderful news for you Iceman.  Prayers that NED continue.

Hugs
lobbyist0724's picture
lobbyist0724
Posts: 379
 Joined: Sep 2016
Mar 06, 2019 - 1:26 am

Congrats Iceman, 17 years! Time flies isn't it!
Brock1969
Posts: 80
 Joined: Jan 2018
Mar 06, 2019 - 2:33 pm

hereth to stay. Congrats 
Angiebby75's picture
Angiebby75
Posts: 184
 Joined: Aug 2017
Mar 07, 2019 - 12:27 am

Congratulations to you what an beautiful blessing to share with this forum.
ImNotDeadYet's picture
ImNotDeadYet
Posts: 241
 Joined: Apr 2017
Mar 07, 2019 - 12:59 am

I hope everything goes well with the PSA stuff. 
MelBlessed's picture
MelBlessed
Posts: 71
 Joined: Aug 2017
Mar 10, 2019 - 3:17 pm

You are a blessing and an inspiration for all of us here in this club!
Bellafelice
Posts: 57
 Joined: Sep 2008
Mar 11, 2019 - 11:33 pm

Dear Iceman,

  Please ask your urologist about you getting a 4K test before doing a prostate biopsy. It is a fairly new blood test that is said to be extremely accurate (more so than a biopsy) for detecting prostate cancer.

  Good luck with all to follow and major congrats on the NED!!
Truly-Marilyn

 
icemantoo's picture
icemantoo
Posts: 3198
 Joined: Jan 2010
Mar 11, 2019 - 11:48 pm

Had the 4K instead of a biopsy 2  years ago. Low risk per 4K but PSA keeps climbing.

 

 

 

icemantoo
Tapman63's picture
Tapman63
Posts: 135
 Joined: Dec 2017
Mar 12, 2019 - 11:37 am

Here's to many more!!!
xraydiazjj123
Posts: 23
 Joined: Jul 2018
Mar 12, 2019 - 4:08 pm

Congrats on your Ned status!! wonderful news for you Iceman
JerzyGrrl's picture
JerzyGrrl
Posts: 760
 Joined: Jun 2016
Mar 29, 2019 - 2:17 am

On the 17 years hanging out with Uncle Ned. It's the other stuff that tries to drive us crazy. Good thoughts for your follow up appointment, Iceman.
Deanie0916
Posts: 241
 Joined: Nov 2016
Apr 16, 2019 - 9:05 pm

On 17 years NED! Hope that the psa levels resolve.
Bellafelice
Posts: 57
 Joined: Sep 2008
Apr 18, 2019 - 7:46 am

Dear Iceman-There is an incredibly accurate new blood test for aggressive cancer. It is called the 4K test -that can help avoid a biopsy. Also an MRI is another indicator if its just an enlarged prostate causing the elevation. Two specialists told my hubby not to even get the PSA taken as it causes undue worry, and that it goes up and down for many reasons (including constipation, having sex not too long before the test, etc).
  Avoid having a biopsy if at all possible because it can cause a slew of possible problems-check it out on the net. And if you do ask your dr. for an antibiotic a few weeks in advance.

Hope this info helps..

 
mukhopadhyay.arka01
Posts: 32
 Joined: May 2019
May 05, 2019 - 3:33 pm

Hey Iceman

what is the size of the lesion in your kidney they are observing?
icemantoo's picture
icemantoo
Posts: 3198
 Joined: Jan 2010
May 05, 2019 - 5:12 pm

9mm, Doc really isn'i worried/ It has been there for years/

 

 

 

icemantoo
mukhopadhyay.arka01
Posts: 32
 Joined: May 2019
May 06, 2019 - 12:14 am

That’s nothing...9mm and not growing!!

Mine is 2.7 cm and maybe waiting won’t be recommended 
Max57's picture
Max57
Posts: 154
 Joined: Mar 2015
May 05, 2019 - 10:38 pm

May NED keep visiting you every year and good luck with PSA
Skagway Jack's picture
Skagway Jack
Posts: 221
 Joined: Oct 2013
May 06, 2019 - 9:39 am

Iceman,   Good for you, and here's hoping that the PSA elevation is temporary.  Im sure manymore NEDs coming your way.

Jack
Lexleigh3
Posts: 13
 Joined: Apr 2019
May 08, 2019 - 2:04 pm

Congrats AND good luck!  Keep us updated!
Percy_STL
Posts: 14
 Joined: Apr 2019
May 10, 2019 - 10:49 am

Iceman,

Congrats and may long it continue. Are these annual ultrasounds part of an active surveillance plan recommended by your surgeon/oncologist or are you doing it for personal reasons? I'm curious to know at what point do doctors release you if they do not see a sign of remission. 
icemantoo's picture
icemantoo
Posts: 3198
 Joined: Jan 2010
May 10, 2019 - 3:10 pm

I probably would have been released, but for the cyst on the other Kidney. On second Uro because I moved To Florida 4 years ago.. Wants to change to 2 year scans. Still 6 months on PSA.  Its like a 1 stop shop.

 

 

 

icemantoo
thingone
Posts: 24
 Joined: Feb 2019
May 11, 2019 - 11:16 am

Dear Iceman, congratulation for your 17th NED, which gives me more hope and confidence fighting for life. Good luck with the PSA!
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