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feeling hopeful

Ribbons's picture
Ribbons
Posts: 73
Joined: Jan 2019

Sharing a hopeful thing. I finished my last round of chemo this past Friday. Still recovering from that, but this time I can keep on recovering, my treatments were 3 weeks apart. Funny that the thing I am most excited about right now is that I do not have to go for weekly blood tests anymore! WooHoo! I have a check up in 3 weeks and they said I can just have a blood test then. Still have to decide if I am going to have the 3 brachytherapy treatments they recommend. I was staged at 1A but I had clear cell so the are being agressive with my treatment. I wouldn't mind other's opinions about this, I am getting a lot of mixed advice from family and friends.

Lulu7582's picture
Lulu7582
Posts: 112
Joined: Jun 2018

That is an acomplishment so celebrate!! Congratulations!!! As far as the brachytherapy....well I don't have experience with that but personally after my journey of being stage 1A and supposedly cured after the surgery.....I would do everything possible to prevent any little beasts from returning! But it's your body and your decision. All the best! xo

Forherself's picture
Forherself
Posts: 180
Joined: Jan 2019

I am happy for you.   I guess my thought on reading your post...your doctors advice versus your friends and family advice.   No contest there for me.   Take your doctors advice.  Your future prognosis will be very good.

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1529
Joined: Jun 2015

Major milestone. Congrats on finishing chemo. Now, give yourself plenty of time to heal. It took me about 18 months to get back to an almost normal level. I am 3 years out now and feel great most of the time. I did do brachy - 5 lower doses instead of the 3 higher ones to prevent damage. I stopped using my dialator about 6 months ago and am still sexually active a few times a month. So far, no problems. For me, doing everything possible to prevent a recurrence was the right decision. I do have some vaginal itching at times and use a vitamin E suppository that takes care of it. That has been my only issue and is truly mild and easy to resolve. I consider myself lucky. 

There is a thread titled 'Let's talk about radiation' that I think will help you in your decision making. I hope you take the time to read through it.

Love and Hugs,

Cindi

janaes
Posts: 758
Joined: May 2016

Congradulations on finishing chemo.  I does feel good to know you can keep recovering. I remember some of the things i really enjoyed after chemo was slowly but surely i was able to clean things i hadnt been able to like my fridge. I enjoyed eating again. I still remember enjoying sloppy joe.

Be easy on yourself as you go forward but enjoy it also

I did bracytherapy. It was a hard desision though. People i remember telling me that i had to live with my desision and i thought that was good advice. I feel good about what i did and want you to feel good about what you do.

Janae

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2582
Joined: Mar 2013

Here is the "Let's talk about radiation" thread:  https://csn.cancer.org/node/296985

Lots of good stuff there. 

BluebirdOne's picture
BluebirdOne
Posts: 194
Joined: Jul 2018

The new NCCN guidelines recommend for stage 1a High grade serous is for chemo and brachytherapy after a study showed that the combo was more effective for overall survival. However, I was still torn especially after reading the stories here about people's struggles with radiation and it's after effects years later. Brachytherapy today is very targeted and is appropriate for Stage 1, but it still scared the crap out of me. After reading what I could I decided to go forward because the vagina is one of the first areas to recur. And in my case my idiot gyne instead of just biopsying my tumor, decided to remove it and the polyps because he was convinced it was just a fibroid issue.  He removed the tumor without knowing what he was removing and then proclaimed that I had no cancer despite the fact that he had no pathology report. When the pathology came back USPC, I realized that he (a surgeon but not an gyne oncologist surgeon) may have spread cells, tissue during the hysteroscopy, into the vagina. My oncologist said not to worry because any residual cells would be killed by chemo and radiation. Sorry this is a round about way of saying that if there are any remaining cells, hopefully the brachy would zap them. The other alternative they said is to not have brachy, and hope you do not recur in the vagina. I had a very long discussion with the radiation oncologist about this so I would suggest that you ask them about each alternative so you can make your own informed opinion. My take is that for me, I trust my docs, but I need full disclosure and options. No one wants to distrust the advice and treatment they receive. 

 

Congrats for finishing chemo. I fininshed in late October 2018, and am feeling pretty good now that four months have passed. Hair started regrowing around Christrmas. You have completed a really difficult step.

 

xxoo

Denise 

zsazsa1
Posts: 321
Joined: Oct 2018

ribbons, I too am having the same dilemma.  I'm supposedly Ia UPSC/clear cell, but I had isolated tumor cells in one sentinel node, and they inspected, but did not remove any other nodes because they didn't see gross evidence of disease, plus the pelvic wash was negative.  I just had a consult yesterday with the radiation oncologist. I have decided to definitely do at least the brachytherapy, and I may be even more aggressive and ask them to do additional whole pelvic radiation trying to spare further radiation to the area that got the brachytherapy.  From everything I've read, and I've read everything, it definitely makes sense to do the brachytherapy.  One thing that the radiation oncologist offered was dividing treatment into 5 doses rather than 3 doses.  He said the efficacy is the same, but less risk of vaginal narrowing.  I will probably go with the 5 treatments instead of 3.

Ribbons's picture
Ribbons
Posts: 73
Joined: Jan 2019

Thanks for all the feedback. I have a consult with the radiation  Dr on the 28th. I am pretty sure I will have brachytherapy but I know I am not having anything else. the external radiation has never been mentioned to me at this point and I know if it is I will not agree to having that.

Forherself's picture
Forherself
Posts: 180
Joined: Jan 2019

I am pretty certain I read that clear cell does not seem to recur in the abdomen like serous.   That may be why they haven't mentioned pelvic radiation.

Donna Faye's picture
Donna Faye
Posts: 238
Joined: Jan 2017

I was a 1a- no lymph so doc had me do 3 carbo/toxol and 4 bracky. One year later, had lesions on vaginal wall and had to do 25 external, chemo and 4 bracky!  Granted, the 8 bracky has scarred me badly, but so far, NED now a year out. I think I should have had external rads the first go round or the 5 carbo/toxol. I think my doctor was considering my age and stage, so less the 1st round.  Get a second opinion and make the right choice for you.

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