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Roll call

CRashster's picture
CRashster
Posts: 228
Joined: Mar 2017

since the crash, things are real confusing. If you’re still here, type here or something.

Dominick0711's picture
Dominick0711
Posts: 87
Joined: Jan 2019

I’m locked out again 

daisybud's picture
daisybud
Posts: 452
Joined: Jan 2016

I didn't lose my bio and not locked out.

icemantoo's picture
icemantoo
Posts: 3193
Joined: Jan 2010

Moved to Floida 3 1/2 years ago to get away from the ice.

 

 

iceemantoo

Kat23502's picture
Kat23502
Posts: 179
Joined: Feb 2016

Still here just super busy with life! I do check in on everyone regularly. I have my yearly scan next week and the nerves are starting to kick in.

Bay Area Guy's picture
Bay Area Guy
Posts: 377
Joined: Jun 2016

Nothing got lost on my bio page.

stub1969's picture
stub1969
Posts: 776
Joined: Jul 2016

I'm here.  The only thing I think I "lost" is my profile picture.  I've tried to find out where to upload one again, but I don't seem to have the "upload" icon in my profile page.  I'll keep searching.

Kat!!  It is so good to see you again!!  

Stub

Kat23502's picture
Kat23502
Posts: 179
Joined: Feb 2016

Hey Stub! Yep, I’m still here, and still keeping up, just not as much time to post and respond as I’d like! How are you? 

 

Oh, I had to upload my picture too. When I clicked on my profile, along the top there was an “edit” tab, that’s where that picture upload was. 

stub1969's picture
stub1969
Posts: 776
Joined: Jul 2016

Except for this snow here in Iowa.  We've been pounded the past few weeks with extremely cold weather and a few active weather systems.  Thanks for your help with the picture.  You all know my fall/early winter hobbie of upland hunting.  My picture is of my dog, Riley, after a good afternoon of hunting this year.  

Kat, if I remember correctly, didn't you start a new job recently?  Hope that is going well for you.  Again, it is really good to see you.  Your knowledge is such an asset here, plus I smile each time I see your picture.  You've got that devious, "I've been up to something" look.:)

Good luck with your upcoming scans.  I'll be sending positive thoughts.

Stub

BoondockSaint's picture
BoondockSaint
Posts: 240
Joined: Mar 2017

Present and accounted for.;-)

bio still intact and profile pic still there.

Kat.....good to see you. Best of the best wishes to you next week.

be sure to get back on and tell us the good news when u get it.

 

Kat23502's picture
Kat23502
Posts: 179
Joined: Feb 2016

Fingers crossed it’s good news! How’s your wife?!

BoondockSaint's picture
BoondockSaint
Posts: 240
Joined: Mar 2017

Fingers crossed here too my friend. 

Thanks for asking and she is doing well. She’s the “Straw that stirs the drink” in this outfit and does a pretty good job keeping me in line. 

Had our 3rd 6mo. scans right before Thanksging and it was NED.

 

sandy23
Posts: 137
Joined: Jan 2017

Still here!!  Super anxious about next week as my husband has his 6 mo. scans on Monday.  This is the 2 year mark.  So please keep extra fingers crossed for him as well.

Hd67xlch's picture
Hd67xlch
Posts: 143
Joined: Apr 2016

One week from today, I get that single left lower lobe lung met cut out, then get to start the clock ticking on how long I go NED this time, trying to beat the two year mark this time. Good luck to all.

daisybud's picture
daisybud
Posts: 452
Joined: Jan 2016

HD, Good luck with your surgery

Mighty Frog's picture
Mighty Frog
Posts: 130
Joined: Jul 2017

Mine 98% data OK...... only the image is missing.....

Allochka's picture
Allochka
Posts: 853
Joined: Nov 2014

Hd67xlch, good luck with surgery! Kat, good luck with follow-up :-)

Retcenturion's picture
Retcenturion
Posts: 240
Joined: Mar 2017

Thanks Crasher, good to see a filling line up. Sending some positive thoughts on a snow day, with no snow!

Steph85's picture
Steph85
Posts: 157
Joined: Feb 2018

I'm here! Physically,  I don't know about mentally! I don't remember if I posted but I'm NED as of last month. I had an MRI done on my low back because of weird back hip and leg aches.. Waiting for results but, I'm sure its not mets or anything. I just might be a 33 yr old with arthritis? Maybe.. Anyway, life is good and my next CT scan will be in December. Hope everyone is doing well! 

Take care and hugs to all of you!

Stephanie

jazzgirl's picture
jazzgirl
Posts: 125
Joined: Nov 2017

Present and accounted for, as BoondockSaint says...  My profile info all looks the same - I need to update it as someone suggested in a previous post.  Profile photo is different for a while - a much colder climate than the one with the trumpet.  Glad to see the faces appearing as folks check in.

Cinnamongirl's picture
Cinnamongirl
Posts: 199
Joined: Jan 2018

Just been busy so glad to see you all.

yellow lotus's picture
yellow lotus
Posts: 15
Joined: Feb 2018

Still here just haven't chimed in in awhile. My bio still intact. I do pray for y'all when I see any of you encountering anything negative. 

eug91's picture
eug91
Posts: 120
Joined: Jan 2019

You gang are the best.

 

Manufred's picture
Manufred
Posts: 225
Joined: May 2017

Still here.

Took the opportunity to update my avatar.

Fred

JeffreyLaw
Posts: 7
Joined: Jan 2019

I'm here and doing fine.  Cycling at about 70% steady effort for 90 minutes at this point.  Post-op follow up is Thursday and my big ask is clearance to ride at race intensity, but without sprinting for the finish.  Back to work Monday..  sigh...

 

3 weeks out and except for a bit of fatigue during the day I feel like myself.

Canadian Sandy's picture
Canadian Sandy
Posts: 484
Joined: Jul 2016

Still here.....only profile picture left for awhile.

JoeyZ's picture
JoeyZ
Posts: 193
Joined: Mar 2018

Still here and very happy to wake up each day. Still on the right side of the daisies. So far.

Great to see you all chime in! Thanks, CRashter for starting this.

LMCRJB13's picture
LMCRJB13
Posts: 82
Joined: Oct 2017

...and doing well!  Last scans in December were NED.  Work is keeping me very busy.  I try and check the site as frequently as possible. 

Cruddy weather currently here in Syracuse, NY...not helping my desire to want to get back out there for a jog.  Next 5k is slated for May and I'm hoping to be ready. 

Great to see so many familiar names/faces checking in.  Glad we're working to rebuild the page...it's so important.

Cheers for now!

Ryan 

Skagway Jack's picture
Skagway Jack
Posts: 221
Joined: Oct 2013

Stub,  Still here and I did not lose any data, although I didnt have all that much. 

 

Jack

 

en8236
Posts: 28
Joined: Dec 2017

never have been that active, but follow regularly... this is the third time my details were lost... have to find the drive to update again. Best of luck all.

bensmaw's picture
bensmaw
Posts: 1
Joined: Feb 2019

Was removed, but registered.   Stage 4 renal cell, going in for lymphnode removal in March.  

donna_lee's picture
donna_lee
Posts: 885
Joined: Feb 2009

But that was all.  It was time to put up a new one, anyway.

donna_lee

ImNotDeadYet's picture
ImNotDeadYet
Posts: 241
Joined: Apr 2017

Still here and still dealing with GI side effects from Votrient. I suppose that's a small price to pay for being alive with no new growth or progression so far. 

CRashster's picture
CRashster
Posts: 228
Joined: Mar 2017

how was your trip?

ImNotDeadYet's picture
ImNotDeadYet
Posts: 241
Joined: Apr 2017

Trip was amazing! I saw more people than I realized I know! It was humbling and emotional at times. I am so fortunate to have so many wonderful people in my life. It was truly a huge silver lining to the dark cloud of cancer. I can't put into words how touched I was by the warmth, caring, and love I felt from so many friends and family members. It's six months later, and I'm still blown away. And overall  I held up pretty well. There were a couple of days where I felt crappy,  but overall, it was an amazing trip. One of the highlights of my 54 years on this planet. 

Gtngbtr58 @aol.com's picture
Gtngbtr58 @aol.com
Posts: 204
Joined: Oct 2017

Very present-June

medic1971's picture
medic1971
Posts: 189
Joined: Sep 2015

Sad about Fox and pissed about the loss of content, but I am still here.  

Angiebby75's picture
Angiebby75
Posts: 184
Joined: Aug 2017

Still here havent log in as much, sad to hear about Fox. Still dealing with ongoing pain. Doctor has me on annual scans. Not so sure about that since had surgery in 10/2017. But trying to keep busy with life.

lobbyist0724's picture
lobbyist0724
Posts: 379
Joined: Sep 2016

Still here, it will be 2.5 years for me in March! 

Good health to all of you! 

Positive_Mental_Attitude's picture
Positive_Mental...
Posts: 454
Joined: Jul 2014

Still standing.  Visit less frequently.  July will be my 5 year anniversary of being a member of this esteemed group.

AnnissaP's picture
AnnissaP
Posts: 617
Joined: Sep 2017

I'm here :)

Jan4you's picture
Jan4you
Posts: 1310
Joined: Oct 2013

HI folks, I am jan! 

Still here after 5 years NED.

Nothing has changed as far as I can see.

Iggyrip
Posts: 43
Joined: Sep 2016

I'm still here. I have been receiving Immuno therapy treatment and havenot posted much. Glad there are many folks doing well. 

polishpipes10's picture
polishpipes10
Posts: 2
Joined: Feb 2019

Hey Everyone,

 

New here from Los Angeles , CA Just puting my hello's out there in hopes to spark a few conversations to get the ball rolling. Look forward to meeting some of you.

 

 

icemantoo's picture
icemantoo
Posts: 3193
Joined: Jan 2010

Welcome to our little group which no one in their right nind would look forward to joining. Start a new forum post and tell us about your journey so we can welcome and help you.

 

 

 

icemantoo

Max57's picture
Max57
Posts: 154
Joined: Mar 2015

I am here !

Trucker1's picture
Trucker1
Posts: 82
Joined: Sep 2017

Trucker still on the scene! 1.5 year scans on Tuesday--wish me NED!!!

ChristineCD's picture
ChristineCD
Posts: 9
Joined: Aug 2018

I am here...mostly a lurker since August of 2018 but I check in almost daily! I check in at smartpatients.com also.

Cybball
Posts: 111
Joined: Nov 2017

I'm here.  :)

 

Glidergal365's picture
Glidergal365
Posts: 93
Joined: Feb 2018

I haven't logged on in a while. Been so busy with school and work. It'll be one year this month since I had my surgery and I found out this week I'm pregnant with my first child at 41! I'm nervous and excited and figured if I can make it through a nephrectomy I can do anything :) Glad to see so many familiar names still on here too. Kiss Hope everyone is doing well! 

Jenn

eug91's picture
eug91
Posts: 120
Joined: Jan 2019

Yay mom-to-be! 

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