I'm here. The only thing I think I "lost" is my profile picture. I've tried to find out where to upload one again, but I don't seem to have the "upload" icon in my profile page. I'll keep searching.
Except for this snow here in Iowa. We've been pounded the past few weeks with extremely cold weather and a few active weather systems. Thanks for your help with the picture. You all know my fall/early winter hobbie of upland hunting. My picture is of my dog, Riley, after a good afternoon of hunting this year.
Kat, if I remember correctly, didn't you start a new job recently? Hope that is going well for you. Again, it is really good to see you. Your knowledge is such an asset here, plus I smile each time I see your picture. You've got that devious, "I've been up to something" look.:)
Good luck with your upcoming scans. I'll be sending positive thoughts.
Still here!! Super anxious about next week as my husband has his 6 mo. scans on Monday. This is the 2 year mark. So please keep extra fingers crossed for him as well.
One week from today, I get that single left lower lobe lung met cut out, then get to start the clock ticking on how long I go NED this time, trying to beat the two year mark this time. Good luck to all.
I'm here! Physically, I don't know about mentally! I don't remember if I posted but I'm NED as of last month. I had an MRI done on my low back because of weird back hip and leg aches.. Waiting for results but, I'm sure its not mets or anything. I just might be a 33 yr old with arthritis? Maybe.. Anyway, life is good and my next CT scan will be in December. Hope everyone is doing well!
Present and accounted for, as BoondockSaint says... My profile info all looks the same - I need to update it as someone suggested in a previous post. Profile photo is different for a while - a much colder climate than the one with the trumpet. Glad to see the faces appearing as folks check in.
I'm here and doing fine. Cycling at about 70% steady effort for 90 minutes at this point. Post-op follow up is Thursday and my big ask is clearance to ride at race intensity, but without sprinting for the finish. Back to work Monday.. sigh...
3 weeks out and except for a bit of fatigue during the day I feel like myself.
...and doing well! Last scans in December were NED. Work is keeping me very busy. I try and check the site as frequently as possible.
Cruddy weather currently here in Syracuse, NY...not helping my desire to want to get back out there for a jog. Next 5k is slated for May and I'm hoping to be ready.
Great to see so many familiar names/faces checking in. Glad we're working to rebuild the page...it's so important.
never have been that active, but follow regularly... this is the third time my details were lost... have to find the drive to update again. Best of luck all.
Still here and still dealing with GI side effects from Votrient. I suppose that's a small price to pay for being alive with no new growth or progression so far.
Trip was amazing! I saw more people than I realized I know! It was humbling and emotional at times. I am so fortunate to have so many wonderful people in my life. It was truly a huge silver lining to the dark cloud of cancer. I can't put into words how touched I was by the warmth, caring, and love I felt from so many friends and family members. It's six months later, and I'm still blown away. And overall I held up pretty well. There were a couple of days where I felt crappy, but overall, it was an amazing trip. One of the highlights of my 54 years on this planet.
Still here havent log in as much, sad to hear about Fox. Still dealing with ongoing pain. Doctor has me on annual scans. Not so sure about that since had surgery in 10/2017. But trying to keep busy with life.
New here from Los Angeles , CA Just puting my hello's out there in hopes to spark a few conversations to get the ball rolling. Look forward to meeting some of you.
Welcome to our little group which no one in their right nind would look forward to joining. Start a new forum post and tell us about your journey so we can welcome and help you.
I haven't logged on in a while. Been so busy with school and work. It'll be one year this month since I had my surgery and I found out this week I'm pregnant with my first child at 41! I'm nervous and excited and figured if I can make it through a nephrectomy I can do anything :) Glad to see so many familiar names still on here too. Hope everyone is doing well!
Joined: Jan 2019
I’m locked out again
I’m locked out again
Joined: Jan 2016
Here
I didn't lose my bio and not locked out.
Joined: Jan 2010
Still here
Moved to Floida 3 1/2 years ago to get away from the ice.
iceemantoo
Joined: Feb 2016
Still here just super busy
Still here just super busy with life! I do check in on everyone regularly. I have my yearly scan next week and the nerves are starting to kick in.
Joined: Jun 2016
Nothing got lost on my bio
Nothing got lost on my bio page.
Joined: Jul 2016
Here
I'm here. The only thing I think I "lost" is my profile picture. I've tried to find out where to upload one again, but I don't seem to have the "upload" icon in my profile page. I'll keep searching.
Kat!! It is so good to see you again!!
Stub
Joined: Feb 2016
Hey Stub! Yep, I’m still here
Hey Stub! Yep, I’m still here, and still keeping up, just not as much time to post and respond as I’d like! How are you?
Oh, I had to upload my picture too. When I clicked on my profile, along the top there was an “edit” tab, that’s where that picture upload was.
Joined: Jul 2016
All is great!
Except for this snow here in Iowa. We've been pounded the past few weeks with extremely cold weather and a few active weather systems. Thanks for your help with the picture. You all know my fall/early winter hobbie of upland hunting. My picture is of my dog, Riley, after a good afternoon of hunting this year.
Kat, if I remember correctly, didn't you start a new job recently? Hope that is going well for you. Again, it is really good to see you. Your knowledge is such an asset here, plus I smile each time I see your picture. You've got that devious, "I've been up to something" look.:)
Good luck with your upcoming scans. I'll be sending positive thoughts.
Stub
Joined: Mar 2017
Present and accounted for.;-)
Present and accounted for.;-)
bio still intact and profile pic still there.
Kat.....good to see you. Best of the best wishes to you next week.
be sure to get back on and tell us the good news when u get it.
Joined: Feb 2016
Fingers crossed it’s good
Fingers crossed it’s good news! How’s your wife?!
Joined: Mar 2017
Fingers crossed here too my
Fingers crossed here too my friend.
Thanks for asking and she is doing well. She’s the “Straw that stirs the drink” in this outfit and does a pretty good job keeping me in line.
Had our 3rd 6mo. scans right before Thanksging and it was NED.
Joined: Jan 2017
Still here!! Super anxious
Still here!! Super anxious about next week as my husband has his 6 mo. scans on Monday. This is the 2 year mark. So please keep extra fingers crossed for him as well.
Joined: Apr 2016
Here and didnt lose anything.....
One week from today, I get that single left lower lobe lung met cut out, then get to start the clock ticking on how long I go NED this time, trying to beat the two year mark this time. Good luck to all.
Joined: Jan 2016
Good luck!
HD, Good luck with your surgery
Joined: Jul 2017
Reporting in
Mine 98% data OK...... only the image is missing.....
Joined: Nov 2014
Hd67xlch, good luck with
Hd67xlch, good luck with surgery! Kat, good luck with follow-up :-)
Joined: Mar 2017
Thanks Crasher
Thanks Crasher, good to see a filling line up. Sending some positive thoughts on a snow day, with no snow!
Joined: Feb 2018
I'm here! Physically, I don
I'm here! Physically, I don't know about mentally! I don't remember if I posted but I'm NED as of last month. I had an MRI done on my low back because of weird back hip and leg aches.. Waiting for results but, I'm sure its not mets or anything. I just might be a 33 yr old with arthritis? Maybe.. Anyway, life is good and my next CT scan will be in December. Hope everyone is doing well!
Take care and hugs to all of you!
Stephanie
Joined: Nov 2017
I'm here too
Present and accounted for, as BoondockSaint says... My profile info all looks the same - I need to update it as someone suggested in a previous post. Profile photo is different for a while - a much colder climate than the one with the trumpet. Glad to see the faces appearing as folks check in.
Joined: Jan 2018
Still here
Just been busy so glad to see you all.
Joined: Feb 2018
Still here just haven't
Still here just haven't chimed in in awhile. My bio still intact. I do pray for y'all when I see any of you encountering anything negative.
Joined: Jan 2019
still here - never left :)
You gang are the best.
Joined: May 2017
Checking in
Still here.
Took the opportunity to update my avatar.
Fred
Joined: Jan 2019
Present and doing well
I'm here and doing fine. Cycling at about 70% steady effort for 90 minutes at this point. Post-op follow up is Thursday and my big ask is clearance to ride at race intensity, but without sprinting for the finish. Back to work Monday.. sigh...
3 weeks out and except for a bit of fatigue during the day I feel like myself.
Joined: Jul 2016
Still here.....only profile
Still here.....only profile picture left for awhile.
Joined: Mar 2018
Still here and very happy to
Still here and very happy to wake up each day. Still on the right side of the daisies. So far.
Great to see you all chime in! Thanks, CRashter for starting this.
Joined: Oct 2017
I'm Here...
...and doing well! Last scans in December were NED. Work is keeping me very busy. I try and check the site as frequently as possible.
Cruddy weather currently here in Syracuse, NY...not helping my desire to want to get back out there for a jog. Next 5k is slated for May and I'm hoping to be ready.
Great to see so many familiar names/faces checking in. Glad we're working to rebuild the page...it's so important.
Cheers for now!
Ryan
Joined: Oct 2013
Present and accounted for
Stub, Still here and I did not lose any data, although I didnt have all that much.
Jack
Joined: Dec 2017
here
never have been that active, but follow regularly... this is the third time my details were lost... have to find the drive to update again. Best of luck all.
Joined: Feb 2019
Here!!
Was removed, but registered. Stage 4 renal cell, going in for lymphnode removal in March.
Joined: Feb 2009
It took my picture away
But that was all. It was time to put up a new one, anyway.
donna_lee
Joined: Apr 2017
Still here and still dealing
Still here and still dealing with GI side effects from Votrient. I suppose that's a small price to pay for being alive with no new growth or progression so far.
Joined: Mar 2017
How
how was your trip?
Joined: Apr 2017
Thanks for asking
Trip was amazing! I saw more people than I realized I know! It was humbling and emotional at times. I am so fortunate to have so many wonderful people in my life. It was truly a huge silver lining to the dark cloud of cancer. I can't put into words how touched I was by the warmth, caring, and love I felt from so many friends and family members. It's six months later, and I'm still blown away. And overall I held up pretty well. There were a couple of days where I felt crappy, but overall, it was an amazing trip. One of the highlights of my 54 years on this planet.
Joined: Oct 2017
Thank g-d
Very present-June
Joined: Sep 2015
I am here too
Sad about Fox and pissed about the loss of content, but I am still here.
Joined: Aug 2017
Still here
Still here havent log in as much, sad to hear about Fox. Still dealing with ongoing pain. Doctor has me on annual scans. Not so sure about that since had surgery in 10/2017. But trying to keep busy with life.
Joined: Sep 2016
Still here
Still here, it will be 2.5 years for me in March!
Good health to all of you!
Joined: Jul 2014
Still standing. Visit less
Still standing. Visit less frequently. July will be my 5 year anniversary of being a member of this esteemed group.
Joined: Sep 2017
I'm here :)
I'm here :)
Joined: Oct 2013
HI folks, I am jan!
HI folks, I am jan!
Still here after 5 years NED.
Nothing has changed as far as I can see.
Joined: Sep 2016
Still here
I'm still here. I have been receiving Immuno therapy treatment and havenot posted much. Glad there are many folks doing well.
Joined: Feb 2019
Hi Everyone New Here!
Hey Everyone,
New here from Los Angeles , CA Just puting my hello's out there in hopes to spark a few conversations to get the ball rolling. Look forward to meeting some of you.
Joined: Jan 2010
polish
Welcome to our little group which no one in their right nind would look forward to joining. Start a new forum post and tell us about your journey so we can welcome and help you.
icemantoo
Joined: Mar 2015
I am here !
I am here !
Joined: Sep 2017
Hanging around!
Trucker still on the scene! 1.5 year scans on Tuesday--wish me NED!!!
Joined: Aug 2018
Hello
I am here...mostly a lurker since August of 2018 but I check in almost daily! I check in at smartpatients.com also.
Joined: Nov 2017
I'm here. :)
I'm here. :)
Joined: Feb 2018
Still here!
I haven't logged on in a while. Been so busy with school and work. It'll be one year this month since I had my surgery and I found out this week I'm pregnant with my first child at 41! I'm nervous and excited and figured if I can make it through a nephrectomy I can do anything :) Glad to see so many familiar names still on here too.
Hope everyone is doing well!
Jenn
Joined: Jan 2019
CONGRATULATIONS!
Yay mom-to-be!
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