My complete lack of both time and sense of direction was in full swing yesterday. Up at 4 AM for a 10:45 appointment at Yale New Haven which I had somehow convinced myself was at least an hour away with traffic - so off we went with my bag of bottled water and note books full of questions and fears for our "Thelma & Louise" style road trip. Our road trip took exactly 21 minutes - we had three hours to kill. I need another colonoscopy but this time between my ears.
The surgeon was more than I could have hoped for, gentle, kind and reassuring. I liked him immediately as did Sean - who ended up hugging him when the consult was over.
So here's the skinny. The entire sigmoid colon comes out this scar tissue I have from a past surgery is going to make a Laparoscopic approach a challenge but he's going to try, if he can't it'll be an open procedure. My high AIC which is 12 (A1C basically means an overall average of your blood sugar levels) so my A1C translates to an average of 300 which isn't good. He wants me to get it down to at least an 8.5 which is easier said then done. Diabetes means a longer healing process and an increased risk for complications like my internal neuropathy making attachment and or re section problematic.
If he can make a new attachment to the rectum and avoid an ostomy there's a good chance the nerve damage would make this procedure impossible - and even if it does take, chances are I would be incontinent. But I should note that he told us there's only a 10% chance I would need a bag so at least that's encouraging - and if I do it would be temporary and could be reversed but again this doesn't mean I would be free of complications (see above)
Those of you who have checked my past posts about my terror when it comes to catheters know this is a huge issue for me and it was a major relief to hear him promise me that when it's removed I'll be given morphine or dilaudid and the same should they need to re-catheterize me, which trust me they will. Anyway that gives me tremendous piece of mind.
Surgery should take 4-7 hours and I can expect a 4-6 day hospital stay but longer if he does an open surgery. The date I go in is November 14th and I have a bunch of tests to take care of and the anesthesiologist to meet with prior.
I had forgotten to ask him a few questions and he was good enough to call me back last night. I wanted to know what to expect if I didn't have the surgery - not a pretty picture of which I'll spare you the gory details because you already know what they are. So I have no choice and am in for a world of hurt but at least it's with a remarkable talented guy at the helm. Between you and me, I would rather do anything and I mean anything else.