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Mixed Response Taxol & Avastin

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Comments

  • LisaPizza
    LisaPizza Member Posts: 343 **
    paris11 said:

    Apologies for taking so long to respond

    I have had problems resetting my password.

    Long and winding road:

    2007. DX with EC Stage 1:  I had sub optimal debunking surgery at Northwestern.  Chemo was not offered.

     

    2008:  Mets to liver, abdomen and lymph nodes.  TX was Carbo/Taxol.  18 month remission.

    2010: surgery to remove lymph nodes and resection diaphragm.  TX was 6 rounds IP/IV Carbo/Taxol.  31 month remission.

    2013:  Splenectomy and removal of lymph nodes. 6 weeks of radiation to lymph nodes. TX Carbo/Taxol 18 month remission.

    2014:  Tumor growing like a vine around aorta.  I enrolled in hospice.  I requested Tamoxifin/Megace.

    2015:  CT scan showed NED.  43 month remission.

    i am humbled.  I live with gratitude.  I will try to keep up with conversation.

    Connie

    Thank you so much for sharing

    Thank you so much for sharing, so encouraging. 

  • derMaus
    derMaus Member Posts: 558
    paris11 said:

    Apologies for taking so long to respond

    I have had problems resetting my password.

    Long and winding road:

    2007. DX with EC Stage 1:  I had sub optimal debunking surgery at Northwestern.  Chemo was not offered.

     

    2008:  Mets to liver, abdomen and lymph nodes.  TX was Carbo/Taxol.  18 month remission.

    2010: surgery to remove lymph nodes and resection diaphragm.  TX was 6 rounds IP/IV Carbo/Taxol.  31 month remission.

    2013:  Splenectomy and removal of lymph nodes. 6 weeks of radiation to lymph nodes. TX Carbo/Taxol 18 month remission.

    2014:  Tumor growing like a vine around aorta.  I enrolled in hospice.  I requested Tamoxifin/Megace.

    2015:  CT scan showed NED.  43 month remission.

    i am humbled.  I live with gratitude.  I will try to keep up with conversation.

    Connie

    Connie, this is great; it's

    Connie, this is great; it's beyond encouraging! Might I beg you to cut and paste the info onto your About Me page? I'm sorry to be a pest, I'm bugging everyone to do this. Laughing Your story is a wonderful one, thank you again for sharing it. Best always, B

  • paris11
    paris11 Member Posts: 159
    Will continue to update

    I had tumor testing in 2010 and again in 2014.  Both tests showed Carbo/Taxol recommendation and 98% estroge positive.  I also had an extremely aggressive oncologis.  If CT scan showed a growth, doc would remove it.

  • NoTimeForCancer
    NoTimeForCancer Member Posts: 2,928 **
    Thank you, Connie.  We all

    Thank you, Connie.  We all need to hear these things.  I would agree with B that everyone take a moment to update their "about me" page.  I think we tend to set it up when we first join, but I have clicked on people's names hoping to learn more about what they did for treatments, etc.  Some people just stop coming here and stories like this are important for people to see. 

  • linmk
    linmk Member Posts: 58
    Thanks for continuing conversation

    Connie, You have been through a lot. I see that you've had a lot of carbo/taxol treatments and episodes of NED in between. Carbo/Taxol initially worked well for me for maybe one or two months,  but I only had that combination the first time. This last time it was Carbo/Avastin--mixed results. I don't think that I was tested to see what would work best for my tumors. It was standard Carbo/Taxol, then after that, whatever the Tumor Board recommended. I don't think the Tumor Board recommended the megace/taxmoxifen treatment. The gyneconologist oncologist just told me that that was what I was going to get, given the fact that I wasn't NED but I still wasn't ready for hospice. Good Health to you. Glad to hear from you.

  • paris11
    paris11 Member Posts: 159
    linmk I requested the Tamoxifen/Megace

    The oncologist pushed hard for another TX of Carbo/Taxol.  I had a long recovery after the previous Regime of Carbo/Taxol and I said NO MORE.   The oncologist Reluctantly agreed to try Tamoxifen/Megace.  Now, he twirls around the exam room when he sees me. He seems to think the Tamoxifen/Megace was his recommendation.  I say nothing.

  • Armywife
    Armywife Member Posts: 449
    paris11 said:

    Apologies for taking so long to respond

    I have had problems resetting my password.

    Long and winding road:

    2007. DX with EC Stage 1:  I had sub optimal debunking surgery at Northwestern.  Chemo was not offered.

     

    2008:  Mets to liver, abdomen and lymph nodes.  TX was Carbo/Taxol.  18 month remission.

    2010: surgery to remove lymph nodes and resection diaphragm.  TX was 6 rounds IP/IV Carbo/Taxol.  31 month remission.

    2013:  Splenectomy and removal of lymph nodes. 6 weeks of radiation to lymph nodes. TX Carbo/Taxol 18 month remission.

    2014:  Tumor growing like a vine around aorta.  I enrolled in hospice.  I requested Tamoxifin/Megace.

    2015:  CT scan showed NED.  43 month remission.

    i am humbled.  I live with gratitude.  I will try to keep up with conversation.

    Connie

    Wow!

    You are a WARRIOR PRINCESS.  I'm in awe.

  • SF73
    SF73 Member Posts: 316 **
    paris11 said:

    Apologies for taking so long to respond

    I have had problems resetting my password.

    Long and winding road:

    2007. DX with EC Stage 1:  I had sub optimal debunking surgery at Northwestern.  Chemo was not offered.

     

    2008:  Mets to liver, abdomen and lymph nodes.  TX was Carbo/Taxol.  18 month remission.

    2010: surgery to remove lymph nodes and resection diaphragm.  TX was 6 rounds IP/IV Carbo/Taxol.  31 month remission.

    2013:  Splenectomy and removal of lymph nodes. 6 weeks of radiation to lymph nodes. TX Carbo/Taxol 18 month remission.

    2014:  Tumor growing like a vine around aorta.  I enrolled in hospice.  I requested Tamoxifin/Megace.

    2015:  CT scan showed NED.  43 month remission.

    i am humbled.  I live with gratitude.  I will try to keep up with conversation.

    Connie

    What a journey! I am also in

    What a journey! I am also in awe. Thank you so much for sharing. May I ask if you are still on Megace?

  • SF73
    SF73 Member Posts: 316 **
    linmk said:

    Thank you for all your good wishes

    Paris11, I'm glad to hear that you're doing so well. Many more enjoyable swims. I have two questions: How many different types of treatment did you endure before your oncologist put you on megace and tamoxifen? Were you presented with other choices besides those?

    derMaus, the glutamine does work when I remember to take it. At least it seems to lessen the amount of pain medicine I take. Lately, I've been fighting fatigue, perhaps because of the megace. I seem to need more sleep lately.

    I hope everyone is doing well. Again thank you for your support.

    So glad to read about Paris's

    So glad to read about Paris's story. I hope that tamoxifen and megace would be the answer for you as well, linmk. Sorry about your fatigue. Hope it gets better. Keeping you in my thoughts. 

  • paris11
    paris11 Member Posts: 159
    SF73. Still on Megace

    Yes, I take Megace for three weeks then I take Tamoxifen for three weeks.  It is my understanding that the Megace strengths the activity of the Tamoxifen.  I also take Eliquis to prevent blood clots.

    I am having trouble cutting and pasting.  But I will work on it.

    Connie