Fast Relapse. Going to Sarah Cannon for stem cell trans. ISO like for info

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  • po18guy
    po18guy Member Posts: 1,465 Member
    #22
    Not to steal you away...

    But there is a dedicated transplant forum at www.cancerforums.net. Even though my transplant was far different from that planned for you, there are many overlapping concerns.

  • lindary
    lindary Member Posts: 711 Member
    #23
    almost SCT

    My treatment for follicular lymphoma started in 2015 with 6 cycles of R-CHOP. When that did not get me into remission I was sent to Rush in Chgo with the goal of having SCT. I went through 3 cycles of RICE. Then was monitored for about 3 months, blood test and scans. During that time I made my list of stuff to bring with for the stay. Main things were books (paper & eBooks) plus my electronics. That was my laptop & tablet plus my work laptop. (Of course the cell phone.)  When it came time to harvest the cells  I did not do well. We didn't get even the minimum amount in 2 days and my platelets kept dropping. On the third day they had just got me hooked up when the Dr stopped. The platelets had gotten too low to continue. It took a everal weeks for them to get to the minimum level. By then they put SCT on hold and 2 months later cancelled it completely. The SCT DR told me that since it took so long for the platlets to recover and that I was doing well they decided that for me it would be safer to not do SCT. She added that if it came back, depending on when, there would likely be new chemo treatments to use first.   Part of me was kind of sad it was cancelled and another part was glad.

    So far so good. My oncologist retired in Aug 2017. My new oncologist is from Rush and I will be seeing her in about 10 days. If all looks good I will go on the 6 months plan for visits.

     

    CritterMamaLori

    I send you good thoughts for your SCT.  It seems so much of cancer treatment is a Hurry up and Wait situation. 

  • CritterMamaLori
    CritterMamaLori Member Posts: 42
    #24
    So I'm here...

    My new oncologist and I were discussing options and a clinical study came up. Unfortunately, as with the first biopsy my neck started to swell and we decided that we shouldn't wait to begin treatment again. I am now on a RICE chemo treatment.  I will be headed home soon to continue the treatment. When I start to head towards remission they will start making plans for me to come back and harvest cells. This is going to be a much longer treatment than anticipated. I'm to that point of just wanting to get going and knock this beast out. Hurry up and wait is the hardest.

    I'm still trying to comprehend why it has taken so long to get this far. One says they didn't want to mess up what the other was going to do and that one says anything that the first one could do wouldn't have messed anything up.....again, as usual the right hand doesnt know what the left is doing. My new oncologists seems very compasionate and personable. I'm glad he's the one in charge now.

  • CritterMamaLori
    CritterMamaLori Member Posts: 42
    #25
    lindary said:

    almost SCT

    My treatment for follicular lymphoma started in 2015 with 6 cycles of R-CHOP. When that did not get me into remission I was sent to Rush in Chgo with the goal of having SCT. I went through 3 cycles of RICE. Then was monitored for about 3 months, blood test and scans. During that time I made my list of stuff to bring with for the stay. Main things were books (paper & eBooks) plus my electronics. That was my laptop & tablet plus my work laptop. (Of course the cell phone.)  When it came time to harvest the cells  I did not do well. We didn't get even the minimum amount in 2 days and my platelets kept dropping. On the third day they had just got me hooked up when the Dr stopped. The platelets had gotten too low to continue. It took a everal weeks for them to get to the minimum level. By then they put SCT on hold and 2 months later cancelled it completely. The SCT DR told me that since it took so long for the platlets to recover and that I was doing well they decided that for me it would be safer to not do SCT. She added that if it came back, depending on when, there would likely be new chemo treatments to use first.   Part of me was kind of sad it was cancelled and another part was glad.

    So far so good. My oncologist retired in Aug 2017. My new oncologist is from Rush and I will be seeing her in about 10 days. If all looks good I will go on the 6 months plan for visits.

     

    CritterMamaLori

    I send you good thoughts for your SCT.  It seems so much of cancer treatment is a Hurry up and Wait situation. 

    Oh wow.... never even considered all that!

    Thanks so much for the info. Chemo is kicking my butt again. Hope you continue on your positive journey and your new Onco is the best.

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