The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Thank you for being a part of the Cancer Survivor Network community. Survivors and caregivers like you have played a unique role in fostering an online environment that encourages connection among those needing support, community, and education. On May 28, the Network will be discontinued. More details are available here . If you have any questions, contact CSNSupportTeam@cancer.org. Thanks again for the support you’ve provided each other over the years. We remain committed to supporting you in other ways throughout your cancer journey.

Genetic Testing

AnnissaP
AnnissaP CSN Member Posts: 632 Member

Hey all! I went for genetic testing 4 weeks ago and just got the results. The kidney cancer was not a genetic thing, but they did find a change in one of my genes. They called it a change of unknown variance or something. They only know that it could just be us being individuals and what makes us unique. She said at this point she does not know why I got the cancer at such a young age. I am relieved that it was not genetic and so on to the next! I have a 9 month scan coming up this Tuesday. Always something going on with this right?

I see a lot of new people on here. You are definitely in the right place. Please stay active and keep communicating. It helps you along with everyone else!!!!

Comments

  • icemantoo
    icemantoo CSN Member Posts: 3,362 Member
    No rhyme or reason

    Annissa,

     

     

    For most of us including myself, there is no rhyme or reason we got Kidney Cancer. And like you we can't blame it on bad genes.

     

     

    icemantoo

  • CRashster
    CRashster CSN Member Posts: 241 Member
    I’ve wondered.

    alot. The thing that gets me is not knowing how long I’ve had it. How long was the tumor growing inside me. I’ll, of course, never know.

  • Manufred
    Manufred CSN Member Posts: 241 Member
    Better to know

    Annissa,

    I am glad you had this done. You must be relieved to know it is not genetic.

    Happy for you,

    Best Wishes,

    Fred