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Inlyta (axititib) is working

rhominator's picture
rhominator
Posts: 233
Joined: Nov 2015
Aug 17, 2018 - 8:43 am

I got my PET/CT scan results after two months on axititib as a 3rd-line treatment: bone mets have decreased in size and soft tissue mets have resolved.

Praise God!
BoondockSaint's picture
BoondockSaint
Posts: 242
 Joined: Mar 2017
Aug 17, 2018 - 9:19 am

Great news.......great news indeed!
APny's picture
APny
Posts: 1972
 Joined: Mar 2014
Aug 17, 2018 - 10:35 am

Super good news! So happy for you.
stub1969's picture
stub1969
Posts: 822
 Joined: Jul 2016
Aug 17, 2018 - 12:44 pm

This is great news, Rhom.  May this ride last a looonnnggg time!  How are the SE?

Stub
rhominator's picture
rhominator
Posts: 233
 Joined: Nov 2015
Aug 17, 2018 - 2:33 pm

Side Effects:

  • Fatigue, but not too bad.
  • Hand and Foot syndrome: fingertips sore, had to give up playing lead guitar--will try playing slide guitar; bottom's of feet sore, mitigated by thick wool socks and shoes.
  • Tongue is sensitive and dry mouth: a great weight loss plan--I put on weight with Opdivo, now I'm losing it. :)
  • Stiff and sore joints
lobbyist0724's picture
lobbyist0724
Posts: 401
 Joined: Sep 2016
Aug 17, 2018 - 1:22 pm

That is great, seems very effective for just 2 months!
Gtngbtr58 @aol.com's picture
Gtngbtr58 @aol.com
Posts: 204
 Joined: Oct 2017
Aug 17, 2018 - 2:53 pm

I hope it's the beginning of only good results always-June
LeeAllen's picture
LeeAllen
Posts: 40
 Joined: Jun 2018
Aug 17, 2018 - 3:45 pm

Such good news my man! Bless you! 
daisybud's picture
daisybud
Posts: 470
 Joined: Jan 2016
Aug 17, 2018 - 8:35 pm

So happy for yoy!
Wehavenotimeatall
Posts: 479
 Joined: Aug 2017
Aug 18, 2018 - 3:32 pm

well done

happy face

hugs

Annie
marosa's picture
marosa
Posts: 333
 Joined: Feb 2015
Aug 18, 2018 - 5:02 pm

continued good results.  Keep it up!
sandy23
Posts: 143
 Joined: Jan 2017
Aug 18, 2018 - 7:05 pm

That's so good to hear!!  You're definitely doing something right!!
Amy_Jo's picture
Amy_Jo
Posts: 69
 Joined: Apr 2018
Aug 18, 2018 - 11:40 pm

I have two large Mets to L- spine and T spine. Did the Opdivo ever slow or shrink your bone Mets? I'm currently on Opdivo only now my first scans showed they were stable and no growth. I'm wondering if I should use another med to battle my spinal Mets. I had kyphoplasty earlier this year. I'm having back pain again so I know I need to be proactive with my treatment. So happy for your good news that is amazing. 
rhominator's picture
rhominator
Posts: 233
 Joined: Nov 2015
Aug 20, 2018 - 12:33 pm

By itself, Opdivo didn't seem to have much impact on my L-spine and T-spine mets. But after radation treatment (while on Opdivo) they improved and now have completely resolved.
Amy_Jo's picture
Amy_Jo
Posts: 69
 Joined: Apr 2018
Aug 20, 2018 - 1:59 pm

Thank you for the insight. my oncologist offered radiation for my back due to increased pain. I had radiation prior to being on Opdivo/yervoy and it wasn't very successful. My spinal Mets are large. However maybe radiation along with Opdivo I might have some success. 

I appreciate your sharing. I'm so happy your treatment has been so successful. 
paintergrl's picture
paintergrl
Posts: 47
 Joined: May 2018
Aug 19, 2018 - 5:09 pm

Great news!
Jojo61's picture
Jojo61
Posts: 1310
 Joined: Oct 2013
Aug 19, 2018 - 9:33 pm

Wishing you continued success!

 

Hugs

Jojo
JoeyZ's picture
JoeyZ
Posts: 207
 Joined: Mar 2018
Aug 20, 2018 - 3:31 pm

So happy for your good news, Rhom. May it long continue!!
todd121's picture
todd121
Posts: 1425
 Joined: Dec 2012
Aug 20, 2018 - 3:46 pm

Hope it continues to work for you! Also glad SE are tolerable.

Todd
Positive_Mental_Attitude's picture
Positive_Mental...
Posts: 454
 Joined: Jul 2014
Aug 20, 2018 - 10:33 pm

Great news.  Hope you have continued success.
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