Inlyta (axititib) is working

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rhominator
rhominator CSN Member Posts: 233 Member
in Kidney Cancer #1

I got my PET/CT scan results after two months on axititib as a 3rd-line treatment: bone mets have decreased in size and soft tissue mets have resolved.

Praise God!

Comments

  • BoondockSaint
    BoondockSaint Member Posts: 242 Member
    #2
    Great news.......great news

    Great news.......great news indeed!

  • APny
    APny CSN Member Posts: 1,995 Member
    #3
    Super good news! So happy for

    Super good news! So happy for you.

  • stub1969
    stub1969 CSN Member Posts: 987 Member
    #4
    Happy

    This is great news, Rhom.  May this ride last a looonnnggg time!  How are the SE?

    Stub

  • lobbyist0724
    lobbyist0724 Member Posts: 516 Member
    #5
    That is great, seems very

    That is great, seems very effective for just 2 months!

  • rhominator
    rhominator CSN Member Posts: 233 Member
    #6
    stub1969 said:

    Happy

    This is great news, Rhom.  May this ride last a looonnnggg time!  How are the SE?

    Stub

    Fatigue not as bad a Votrient

    Side Effects:

    • Fatigue, but not too bad.
    • Hand and Foot syndrome: fingertips sore, had to give up playing lead guitar--will try playing slide guitar; bottom's of feet sore, mitigated by thick wool socks and shoes.
    • Tongue is sensitive and dry mouth: a great weight loss plan--I put on weight with Opdivo, now I'm losing it. :)
    • Stiff and sore joints
  • Gtngbtr58 @aol.com
    Gtngbtr58 @aol.com CSN Member Posts: 206 Member
    #7
    Happy to hear

    I hope it's the beginning of only good results always-June

  • LeeAllen
    LeeAllen Member Posts: 40
    edited August 2018 #8
    Such good news my man! Bless

    Such good news my man! Bless you! 

  • daisybud
    daisybud Member Posts: 541 Member
    #9
    Fantastic news

    So happy for yoy!

  • Wehavenotimeatall
    Wehavenotimeatall CSN Member Posts: 488 Member
    #10
    You are amazing

    well done

    happy face

    hugs

    Annie

  • marosa
    marosa Member Posts: 334 Member
    #11
    This is good news Rhom! Wishing for a

    continued good results.  Keep it up!

  • sandy23
    sandy23 Member Posts: 143 Member
    #12
    That's so good to hear!!  You

    That's so good to hear!!  You're definitely doing something right!!

  • Amy_Jo
    Amy_Jo Member Posts: 70 Member
    #13
    rhominator

    I have two large Mets to L- spine and T spine. Did the Opdivo ever slow or shrink your bone Mets? I'm currently on Opdivo only now my first scans showed they were stable and no growth. I'm wondering if I should use another med to battle my spinal Mets. I had kyphoplasty earlier this year. I'm having back pain again so I know I need to be proactive with my treatment. So happy for your good news that is amazing. 

  • paintergrl
    paintergrl Member Posts: 47
    #14
    Great news!

    Great news!

  • Jojo61
    Jojo61 CSN Member Posts: 1,310 Member
    #15
    Wonderful news!

    Wishing you continued success!

     

    Hugs

    Jojo

  • rhominator
    rhominator CSN Member Posts: 233 Member
    #16
    Amy_Jo said:

    rhominator

    I have two large Mets to L- spine and T spine. Did the Opdivo ever slow or shrink your bone Mets? I'm currently on Opdivo only now my first scans showed they were stable and no growth. I'm wondering if I should use another med to battle my spinal Mets. I had kyphoplasty earlier this year. I'm having back pain again so I know I need to be proactive with my treatment. So happy for your good news that is amazing. 

    Amy Jo

    By itself, Opdivo didn't seem to have much impact on my L-spine and T-spine mets. But after radation treatment (while on Opdivo) they improved and now have completely resolved.

  • Amy_Jo
    Amy_Jo Member Posts: 70 Member
    #17
    rhominator said:

    Amy Jo

    By itself, Opdivo didn't seem to have much impact on my L-spine and T-spine mets. But after radation treatment (while on Opdivo) they improved and now have completely resolved.

    rhominator

    Thank you for the insight. my oncologist offered radiation for my back due to increased pain. I had radiation prior to being on Opdivo/yervoy and it wasn't very successful. My spinal Mets are large. However maybe radiation along with Opdivo I might have some success. 

    I appreciate your sharing. I'm so happy your treatment has been so successful. 

  • JoeyZ
    JoeyZ Member Posts: 210 Member
    #18
    So happy for your good news,

    So happy for your good news, Rhom. May it long continue!!

  • todd121
    todd121 CSN Member Posts: 1,448 Member
    #19
    So glad to hear this news!

    Hope it continues to work for you! Also glad SE are tolerable.

    Todd

  • Positive_Mental_Attitude
    Positive_Mental_Attitude CSN Member Posts: 454
    #20
    Great news.  Hope you have

    Great news.  Hope you have continued success.

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