I got my PET/CT scan results after two months on axititib as a 3rd-line treatment: bone mets have decreased in size and soft tissue mets have resolved.
Hand and Foot syndrome: fingertips sore, had to give up playing lead guitar--will try playing slide guitar; bottom's of feet sore, mitigated by thick wool socks and shoes.
Tongue is sensitive and dry mouth: a great weight loss plan--I put on weight with Opdivo, now I'm losing it. :)
I have two large Mets to L- spine and T spine. Did the Opdivo ever slow or shrink your bone Mets? I'm currently on Opdivo only now my first scans showed they were stable and no growth. I'm wondering if I should use another med to battle my spinal Mets. I had kyphoplasty earlier this year. I'm having back pain again so I know I need to be proactive with my treatment. So happy for your good news that is amazing.
By itself, Opdivo didn't seem to have much impact on my L-spine and T-spine mets. But after radation treatment (while on Opdivo) they improved and now have completely resolved.
Thank you for the insight. my oncologist offered radiation for my back due to increased pain. I had radiation prior to being on Opdivo/yervoy and it wasn't very successful. My spinal Mets are large. However maybe radiation along with Opdivo I might have some success.
I appreciate your sharing. I'm so happy your treatment has been so successful.
Joined: Mar 2017
Great news.......great news
Great news.......great news indeed!
Joined: Mar 2014
Super good news! So happy for
Super good news! So happy for you.
Joined: Jul 2016
Happy
This is great news, Rhom. May this ride last a looonnnggg time! How are the SE?
Stub
Joined: Nov 2015
Fatigue not as bad a Votrient
Side Effects:
Joined: Sep 2016
That is great, seems very
That is great, seems very effective for just 2 months!
Joined: Oct 2017
Happy to hear
I hope it's the beginning of only good results always-June
Joined: Jun 2018
Such good news my man! Bless
Such good news my man! Bless you!
Joined: Jan 2016
Fantastic news
So happy for yoy!
Joined: Aug 2017
You are amazing
well done
happy face
hugs
Annie
Joined: Feb 2015
This is good news Rhom! Wishing for a
continued good results. Keep it up!
Joined: Jan 2017
That's so good to hear!! You
That's so good to hear!! You're definitely doing something right!!
Joined: Apr 2018
rhominator
I have two large Mets to L- spine and T spine. Did the Opdivo ever slow or shrink your bone Mets? I'm currently on Opdivo only now my first scans showed they were stable and no growth. I'm wondering if I should use another med to battle my spinal Mets. I had kyphoplasty earlier this year. I'm having back pain again so I know I need to be proactive with my treatment. So happy for your good news that is amazing.
Joined: Nov 2015
Amy Jo
By itself, Opdivo didn't seem to have much impact on my L-spine and T-spine mets. But after radation treatment (while on Opdivo) they improved and now have completely resolved.
Joined: Apr 2018
rhominator
Thank you for the insight. my oncologist offered radiation for my back due to increased pain. I had radiation prior to being on Opdivo/yervoy and it wasn't very successful. My spinal Mets are large. However maybe radiation along with Opdivo I might have some success.
I appreciate your sharing. I'm so happy your treatment has been so successful.
Joined: May 2018
Great news!
Great news!
Joined: Oct 2013
Wonderful news!
Wishing you continued success!
Hugs
Jojo
Joined: Mar 2018
So happy for your good news,
So happy for your good news, Rhom. May it long continue!!
Joined: Dec 2012
So glad to hear this news!
Hope it continues to work for you! Also glad SE are tolerable.
Todd
Joined: Jul 2014
Great news. Hope you have
Great news. Hope you have continued success.