CSN Login
Members Online: 7

You are here

CSN Home › Discussion boards › Cancer specific › Kidney Cancer

Responding to treatment

Amy_Jo's picture
Amy_Jo
Posts: 70
Joined: Apr 2018
Aug 13, 2018 - 5:38 pm

I recently had scans to see if my treatment opdivo/yervoy is working. Prior to treatment I had nodules in both lungs lesion in groin liver and two large lesions on T spine and L spine. My scan showed my lungs were all clear and my groin was clear of metastatic disease. Lesions remain in my liver however they are smaller and the lesions on my spine show no change or growth. Thank you all for all your thoughts and prayers. 
Steph85's picture
Steph85
Posts: 166
 Joined: Feb 2018
Aug 13, 2018 - 5:44 pm

That is amazing news!!! I couldn't be happier for you Amy jo!! I hope you feel up to celebrate! Thank you for keeping us updated. You are an inspiration. Take care, 

 

Steph
MarkDavid18
Posts: 61
 Joined: May 2018
Aug 13, 2018 - 11:54 pm

I am so happy for you!! Praise the Lord. So do you now move to Opdivo every other week?
Amy_Jo's picture
Amy_Jo
Posts: 70
 Joined: Apr 2018
Aug 16, 2018 - 11:08 am

Mark from what I understand I will continue on Opdivo every three weeks. I had a treatment on Monday of just the Opdivo. I have been feeling pretty rough. I had scans last week I was given IV and oral contrast. Also injected with nuclear medicine for bone scan. I wonder if my body is just reacting to all the junk it's been injected with. 
MarkDavid18
Posts: 61
 Joined: May 2018
Aug 17, 2018 - 2:34 pm

I hope that is the case. It is rough to get all of those things injected in your body - hopefully you start feeling better soon. I just got my final combo infusion. Scans end of August. 
Amy_Jo's picture
Amy_Jo
Posts: 70
 Joined: Apr 2018
Aug 17, 2018 - 8:17 pm

I contacted my oncologist because I haven't felt to great since my last treatment. She explained that I'm getting a higher dose of the Opdivo so that could be why I was having increased side effects. She said I can get the higher dose every three weeks. I haven't had much of an appetite however I'm feeling better today. My body took time to adjust to my first combo treatments hopefully this will pass as well. I will keep you in my prayers hoping your scans show good results. 
stub1969's picture
stub1969
Posts: 888
 Joined: Jul 2016
Aug 13, 2018 - 10:45 pm

I'm hopeful you have a long ride on the opdivo/yervoy treatment.  Enjoy this great news!

Thanks for sharing.

Stub 
Canadian Sandy's picture
Canadian Sandy
Posts: 689
 Joined: Jul 2016
Aug 14, 2018 - 3:37 am

Wonderful newS Amy! 
Tapman63's picture
Tapman63
Posts: 137
 Joined: Dec 2017
Aug 14, 2018 - 7:22 am

Great news!  Keep on getting better!

Jim
APny's picture
APny
Posts: 1997
 Joined: Mar 2014
Aug 14, 2018 - 10:24 am

I am so happy for you! That's fantastic news.
Gtngbtr58 @aol.com's picture
Gtngbtr58 @aol.com
Posts: 206
 Joined: Oct 2017
Aug 14, 2018 - 11:49 am

Hope it's the beginning of only good news-June
paintergrl's picture
paintergrl
Posts: 47
 Joined: May 2018
Aug 14, 2018 - 1:15 pm

I'm so happy for you!!
Cinnamongirl's picture
Cinnamongirl
Posts: 199
 Joined: Jan 2018
Aug 14, 2018 - 6:37 pm

So happy for you! Fingers crossed for continued success!

Cin
HDPete
Posts: 16
 Joined: May 2017
Aug 14, 2018 - 8:22 pm

Great news Amy!! I’m really happy for you!!
daisybud's picture
daisybud
Posts: 506
 Joined: Jan 2016
Aug 14, 2018 - 9:37 pm

Wonderful, wonderful news!
Allochka's picture
Allochka
Posts: 946
 Joined: Nov 2014
Aug 15, 2018 - 7:41 am

This is so wonderful! Keep going!

Hugs,

Alla
MelBlessed's picture
MelBlessed
Posts: 71
 Joined: Aug 2017
Aug 15, 2018 - 9:57 am

So happy for you, stay strong!
LeeAllen's picture
LeeAllen
Posts: 40
 Joined: Jun 2018
Aug 15, 2018 - 4:54 pm

This rules Amy Jo! So excited for you! 
AnnissaP's picture
AnnissaP
Posts: 632
 Joined: Sep 2017
Aug 15, 2018 - 5:17 pm

Wow! This is great news! I am so happy for you!
Amy_Jo's picture
Amy_Jo
Posts: 70
 Joined: Apr 2018
Aug 16, 2018 - 11:04 am

I just wanted to say thank you for all your thoughts and prayers. I'm hoping this is the beginning of good news and renewed life. So thankful for all the support and guidance you guys have given.  
lobbyist0724's picture
lobbyist0724
Posts: 444
 Joined: Sep 2016
Aug 16, 2018 - 1:21 pm

So happy for you! Stay healthy and look forward for more good news.
Jeffris1
Posts: 41
 Joined: May 2018
Aug 17, 2018 - 3:59 pm

You are an inspriation.  My husband is getting his second treatment of opdivo/yervoy on Monday.  We won't have a scan for another month or two.  Hoping it works as good as you.
JoeyZ's picture
JoeyZ
Posts: 210
 Joined: Mar 2018
Aug 17, 2018 - 7:02 pm

I am so happy to hear this news! I have been so worried about you. This must be a huge relief. Are there other ways they can treat the liver? I hope so. 

 

SO GLAD to hear this!!
Amy_Jo's picture
Amy_Jo
Posts: 70
 Joined: Apr 2018
Aug 17, 2018 - 8:24 pm

As of now they are only advising the Opdivo/yervoy treatment. I pray that eventually my scans would show NED but for now I'm pleased with my results so far. I'm happy knowing my situation is improving. Hoping my next scans show even more improvement. JoeyZ thank you for thinking of me. All the support and prayers are so appreciated. 
Wehavenotimeatall
Posts: 489
 Joined: Aug 2017
Aug 18, 2018 - 3:34 pm

I pray for you every day

sending you strength and very best wishes

Annie
Amy_Jo's picture
Amy_Jo
Posts: 70
 Joined: Apr 2018
Aug 18, 2018 - 11:29 pm

Annie your prayers are so appreciated. I will be thinking of you as well. 
marosa's picture
marosa
Posts: 333
 Joined: Feb 2015
Aug 18, 2018 - 4:58 pm

Wishing you a continued succes in your treatment!
Manufred's picture
Manufred
Posts: 241
 Joined: May 2017
Aug 19, 2018 - 1:53 am

Amy-Jo,

Excellent news that the immunotherapy seems to be helping.  It takes time, and the liver lessions may just need a little longer than the lung nodules to fully respond.

I am delighted that we can be having discussions like this about the efficacy of these new drugs.

Hope you get to full CR in coming months.

Best wishes,

Fred
Subscribe to Comments for "Responding to treatment "

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2019 © Cancer Survivors Network