Survey

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Annabelle41415
Annabelle41415 Member Posts: 6,742 Member
in Colorectal Cancer #1

Has anyone been approached by CSN for a survey done by a research company wanting to know about our involvement with the boards.  I've been selected to do a survey and said "yes" but now I'm wondering if this is for real.  Let me know.

Thanks!  Kim

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  • tanstaafl
    tanstaafl Member Posts: 1,313 Member
    #2
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    survey v interviews?

    The Pitt-CMU interview invites thru CSN or this latest grad student at U Albany ?

  • lizard44
    lizard44 Member Posts: 409 Member
    #3
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    I was

    contacted  by CSN via e-mail about the Carnegie Mellon  survey, but  decided to opt out.  I don't like the idea of installing software  allowing  someone remote access to my computer, no matter for how short a time nor how reputable the  requesting entity seems to be.

     I did  take the survey, which  didn't seem to  require any personal information other than age, ethnicity and gender posted by the Univ of Albany graduate student and contacted  him with some questions about his survey via e-mail but haven't yet heard back. I notice  his request has  been removed.

    Grace/lizard44

  • Trubrit
    Trubrit Member Posts: 5,796 Member
    #4
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    Like Grace

    I also chose not to participate and for the same reason. 

    So yes, I do believe it is on the up and up, but no, I am not going to participate. 

    Tru

  • lizard44
    lizard44 Member Posts: 409 Member
    #5
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    I just heard back

    I just heard back from Michael Verile, the Univeristy of Albany grad student.  He has contacted the CSN  forum admins and they are reviewing all his IRB information so maybe they will allow his survey back in at some point.

     Grace/lizard44

  • plsletitrain
    plsletitrain Member Posts: 252 Member
    #6
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    Yes the CSN team sent me an

    Yes the CSN team sent me an email.  I think they did that to all of us.  I decided not to join because I wasn't familiar with how it will work (don't know how to use those technology).  That survey from the grad student from Albany--I took it.  It was harmless.  Just age and ethnicity required of personal data.  The questions are all purely based on emotional stability.

  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    edited August 2018 #7
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    Thanks

    I've decided to do it because they said they would interview me by phone.  If they require downloading software then I'll decline the rest of the interview.  I'll let you know how it goes.

    Kim

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