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To Fozhd

Abunai
Abunai Member Posts: 173

Hey Fox, how have you been? I've been able to figure out that you appear to be logging in daily. But I don't see a lot of posts from you. I'm thinking you're probably in the same predicament as I am, and your comprehension isn't allowing you to get around this discussion board as easliy as you used to. My brain mets are really messing with me and it's hard to figure out how to get around anymore. Anything you see on this forun is likely typed by my wife now. But the sentiment is mine. Hopefully you have someone who can help you out as well. Somehow let me and everyone else on the board know that you're doing okay. You've been the strength on this discussion board for a lot of people including me. You're a real wordsmith and you've been able to verbalize a lot of what were all going through, and has helped us all find strength. Thank you.

Dave and Cathy

(Abunai and wife)

Comments

  • Brock1969
    Brock1969 Member Posts: 80
    To both you and Fox...

    All the best in terms of strength and detrmination. Wishing you both the best 

  • icemantoo
    icemantoo Member Posts: 3,357 **
    edited July 2018 #3
    Sending good karma to Dave and Fox

    Sending good karma to Dave and Fox

     

     

    icemantoo

  • lobbyist0724
    lobbyist0724 Member Posts: 471 **
    Guys, keep the strength. In

    Guys, keep the strength. In our Canadian forum, one of the member just posted. She is a stage 4 CCRCC survivor since 1991!

    All the best!

  • foxhd
    foxhd Member Posts: 3,181
    Dear Dave and Kathy

    What a strange course we are experiencing. I'm not aware of anyone else with the neurological issues we have. I see no easy way. The intensity is overwhelming. I intend to have injections next week to halt the pain. However add in brain, lungs, and chest mets and maybe the plan is not so clear.

    I have little reserve left. Staying alive is much different than experiencing recovery. I realize that  I need to focus on QOL and comfort. Karma must be used for good. Not to be wasted. We are stronger together. What I do know is we have a lot of support behind us. So we have to maintain our committment. Hold on to that goal Dave. Kathy is your angel.

    FLY

     

     

     

  • Abunai
    Abunai Member Posts: 173
    foxhd said:

    Dear Dave and Kathy

    What a strange course we are experiencing. I'm not aware of anyone else with the neurological issues we have. I see no easy way. The intensity is overwhelming. I intend to have injections next week to halt the pain. However add in brain, lungs, and chest mets and maybe the plan is not so clear.

    I have little reserve left. Staying alive is much different than experiencing recovery. I realize that  I need to focus on QOL and comfort. Karma must be used for good. Not to be wasted. We are stronger together. What I do know is we have a lot of support behind us. So we have to maintain our committment. Hold on to that goal Dave. Kathy is your angel.

    FLY

     

     

     

    fox!

    Great to see those boots still kickin'!

    You are absolutely correct, Cathy is my angel.

    What treatment are you receiving for your brain mets?

    As far as QOL goes, I'm convinced that for me, it's a combination of radiation treatment on my brain mets in conjunction with the steroid dexamethazone to keep the swelling in my brain down. As far as the pain caused by the mets in my joints, lungs, spine, and elsewhere, I'm lucky enough that I'm allowed palliative care. My specialist has me on a well tuned regimen of fentanyl patches, Oxycontin, Neuropathic pain controllers, steroids and anti-seizure medication that allows me to answer "two" or "three" when asked what my pain level is. My cognition has improved quite a bit over the past week since the steroid level has been raised to compensate for the brain radiation treatments.

    Best of luck and hang tuff

    Abunai

    P.S. I improved enough today to type this myself. :)

  • foroughsh
    foroughsh Member Posts: 779
    All the best for you both

    All the best for you both

  • APny
    APny Member Posts: 1,995
    You are both in my thoughts.

    You are both in my thoughts. So glad to see you are typing your own post.

  • todd121
    todd121 Member Posts: 1,448
    edited July 2018 #9
    Holding you both in my good wishes

    Glad to see you both posting and to hear how you are doing. Wishing you both peace and happiness in the midst of this incredibly difficult ordeal. I so much appreciate your posts.

    Todd

     

  • marosa
    marosa Member Posts: 333
    Thank you Fox and Abunai

    For being so incredibly generous.  To log in and post in such difficult times.  A gift of love and courage. Keeping you both in my heart and thoughts.

  • JoeyZ
    JoeyZ Member Posts: 210
    Fox and Dave are truly our

    Fox and Dave are truly our heroes. I admire you both so much. 

  • Brock1969
    Brock1969 Member Posts: 80
    So great to hear from you both...

    Keep on fighting on men

  • Jan4you
    Jan4you Member Posts: 1,327
    Dave *& Kathy, I just love

    Dave *& Kathy, I just love you more and more!

    What a test, what a trial. lessons learned Universe, so lay off these folks okay??

    Sending you healing hugs with HOPE for a transformation!

    LuvUmore!

    Jan

  • Cinnamongirl
    Cinnamongirl Member Posts: 199
    Love

    So glad to hear from you both. You are both such inspirations and have offered me support and advice along this journey we are all on. Sending you both love and strength.

    Keep up the good fight guys!

    Cin

  • Jojo61
    Jojo61 Member Posts: 1,309
    Thinking of both of you! 

    Thinking of both of you! 

    Sending big hugs your way!

    Jojo

  • JerzyGrrl
    JerzyGrrl Member Posts: 760
    edited July 2018 #16
    Hugs...

    Hugs, positive energy, focus, and extra-special thoughts of you and your support teams (at home and outside your home)...

  • Allochka
    Allochka Member Posts: 974
    Fox, and Dave, and Cathy -

    Fox, and Dave, and Cathy - hugs... Thinking of you, and sorry I can't do more than simply wish you strength and admire you

  • angec
    angec Member Posts: 924
    Two very strong and brave men

    Two very strong and brave men and their Angels. Good karma and strength going out to you. Hugs!

  • Steve.Adam
    Steve.Adam Member Posts: 463
    Down the long road

    I just don't know what to say to anyone in your situation(s). Even though we're all on the same road the journey is different for everyone. Some otherwise healthy people are depressed and miserable every day. Others are sick and in pain yet happy.

    I can only offer you all my wish that your days have love and meaning and some nice views of the scenery down the road. Life is awesome, beautiful and terrifying. 

    Steve.

  • AnnissaP
    AnnissaP Member Posts: 632
    You both are so sweet, caring

    You both are so sweet, caring and giving!! To think of each other and others as you go through this is just amazing to witness. We are all along side you with all the love and support we can give xoxo

  • Manufred
    Manufred Member Posts: 241
    Yes mate

    All three of you have got all of our support, no question.  You are now experiencing things I can't even imagine, but no doubt I will learn from what you share with us.

    This road goes all the way to the end - safe journey.

    Fred

     

  • amandac2018
    amandac2018 Member Posts: 26
    You are both in my thoughts I too ended up with a brain met

     I also just wanted to share there is a guy on SP who in the past year has had 43 brain mets killed or destroyed with WBR, SBR etc and is now into his 7th or 8th treatment of IL2.  I am so sorry you are going through this. On the 14th of June they found one in my brain too and I have just had 5 gy of sbr to remove it as it was causing seizures and had to go to ER. This is such a crazy road, this RCC. The mets through my body that are unseen and do not effect daily life are so much easier to handle than the ones that actually cause us physical symptoms. My heart is with you both, and I hope that relief and treatments can help you throgh this.

  • gregslovey
    gregslovey Member Posts: 33
    Peace to you Fox. I don't

    Peace to you Fox. I don't post much, but do read. You have fought long and hard with insight, hope and wisdom for many of those here. Let your wife take care of you as I'm sure she does, and enjoy what you can.

    Hugs

    Toni