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PENDING TO SURGERY

xraydiazjj123
xraydiazjj123 Member Posts: 23

hello every one, my name is jorge I'm 43 years old, I had I disconfort for about a month in the left flank of my abdomen i went to ultrasound and I find out I have a RRC ON my left kidney , i work in the medical field as a radilogy tegnologyst I'm squedule for robotic surgery next month on august 15 but I have to confese I'M SCARED PLEASE HELP me with your experience than youCry

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Comments

  • icemantoo
    icemantoo Member Posts: 3,358 **
    We were all scared

    jorge,

    None of us were thrilled being told you have Kidney Cancer and the first thing they want to do is take out your kidney. That was me 16 years ago. It will be a relief once that little bugger is out. How big is it?

     

    icemantoo

  • xraydiazjj123
    xraydiazjj123 Member Posts: 23
    icemantoo said:

    We were all scared

    jorge,

    None of us were thrilled being told you have Kidney Cancer and the first thing they want to do is take out your kidney. That was me 16 years ago. It will be a relief once that little bugger is out. How big is it?

     

    icemantoo

    thank you for response

    thank you for respond,I have 3 kids and a beautiful wife I'm terrifiend man they told me i have 3 cm rrc and is 50 & 50 chance to be partial or total 

     

  • icemantoo
    icemantoo Member Posts: 3,358 **

    thank you for response

    thank you for respond,I have 3 kids and a beautiful wife I'm terrifiend man they told me i have 3 cm rrc and is 50 & 50 chance to be partial or total 

     

    Mine was total

    jorge,

    Sixteen years ago they were not doing partials. My spare has been working fine. The important thing is that at 3 cm it is small and the chance for a full and complete recovery are cloe to 100%.

     

     

    icemantoo

  • xraydiazjj123
    xraydiazjj123 Member Posts: 23
    edited July 2018 #5
    than you for your support ,i

    than you for your support ,i'm glad I found this page I bein reading all the post from different people thank you icemantoo

  • Supersum
    Supersum Member Posts: 109
    Good to be prepared

    It is a fairly routine operation now but it must be worrying not knowing if you are going to have a partial or a full nephrectomy. The best approach might be to have a positive attitude and focus on preparing for the operation and recovery.

    You can read the followng thread for some tips about how to prepare for the operation and recovery:

    https://csn.cancer.org/node/312552

  • xraydiazjj123
    xraydiazjj123 Member Posts: 23
    edited July 2018 #7
    thank you for the information

    thank you for the information supersum

  • APny
    APny Member Posts: 1,995
    edited July 2018 #8
    It's very scary facing

    It's very scary facing surgery. I too was told that there are no guarantees whether it's partial and they won't know until they're in there. I had to sign that they may have to convert to a full nephrectomy. Fortunately it ended up partial. All the best to you. It's still very small so it was caught early. It's not fun but it won't be anywhere near as bad as you fear. Mine was open surgery and it still wasn't that bad. Robotic is supposed to be even easier on you.

  • Bay Area Guy
    Bay Area Guy Member Posts: 522 **
    I saw on another thread that

    I saw on another thread that you had read my story.  No surgery is fun, but the robotic surgery, at least in my case, is a lot less painful than open surgery.  You'll be in the hospital at least overnight.  They'll let you leave when you've shown that you can pee and when any pain you might experience is under control, with or without medication.  You'll be taking it slow and easy for a while.  In my case, I walked a lot because that's what I do all the time anyway, and because walking is a good way to help the body recover and to get all your systems back up and running.  Count on about two to three months minimum for recovery.

    It's really terrifying to hear the words, "You have cancer", but the survival rate for kidney cancer these days, particularly for something as relatively small as your mass, is very, very good.  My urologic oncologist and surgeon told me that, in my case, surgery had a 99% chance of taking care of the lesion I had.  You'll be around to annoy your family and friends for a long time to come.

  • xraydiazjj123
    xraydiazjj123 Member Posts: 23
    edited July 2018 #10
    thank you APny and Bay Area Guy

    thank you guys for all your support an sharing your stories, Ihave to try to be strong on this bump in my live is not ease dealing wit somethin this magnitud and yes I'm glag i dicovery in the early stage, I have a friend whish is a radiology he told me is well encapsulated an from 3 to 4 cm any way have to be positive on this Laughing

  • todd121
    todd121 Member Posts: 1,448
    Uncertainty

    Welcome to the group nobody wants to join! Sorry you will have to face this. I remember how stressful it was. It's going to be a difficult ordeal both in terms of the physical issues you will face (which are actually somewhat minor from my current perspective). The biggest struggle is the stress. It's incredibly stressful. It took me quite a long time to accept the issue. I remember for months waking up in the middle of the night or in the morning and my very first thought was "Damn. I have cancer." with a really dreadful and even resentful feeling at having to deal with this and even wondering if I could do it or if I wanted to do it.

    You can do it!

    We've done it. So can you.

    For me I learned over time that things aren't at all different than they were before. I was living in uncertainty before and after cancer I'm living in uncertainty. Even before cancer I really didn't know if my next breath was coming or not. Before cancer I'd been living in a state of denial about the uncertainty of my life. The gift cancer brought me is the consciousness of just how uncertain life is and how I have a choice to live in gratitude and peace or fear, resentment and loathing.

    You will have this removed and get the pathology report back and then you'll find out what to do next. Just do the next indicated step. My advice is not to live in a fearful state of the future. I know it might be easier said than done, but you really don't want that fear destroying your current happy life. Accept you don't know what will come and that you didn't know that before this happened. Deal with what is immediately in front of you. Breathe. It's going to be ok.

    Best to you and your family,

    Todd

  • Retcenturion
    Retcenturion Member Posts: 240
    Planning begins now

    The diagnosis is awful. Being in the medical field should help navigate the stress of the procedure. The wait was worse than the surgery. Read posts from people who had the surgery. Many questions you have should be answered on those posts. If something comes up that you need info on ask,  it will be answered. Start prepping for the operation and post op. Your going to need help, if someone asks if they can help use them. Sending calming and positive thoughts to you and your loved ones.

  • JoeyZ
    JoeyZ Member Posts: 210
    You're in the right place for

    You're in the right place for answers and support. If you click on people's picture, you can then read their stories. I should probably already be dead but I survived and still here 4 months out. Doing ok, considering.

    Take a day at a time, learn all you can, ask all the questions you can, and take a lot of deep breaths.

    Yes, all the waiting around is by far the worst part.

  • JerzyGrrl
    JerzyGrrl Member Posts: 760
    The worst and best things are...

    Jorge,

    The worst thing is the waiting for answers and the action. You may know your way around the hospital pretty well, but when it's YOU? Well, it's hard to try to hold yourself out at arm's length to get a little perspective. Along with the deep breaths and asking questions (make a list where you jot them down as you think of them), also having someone go with you to your appointments ('cause two sets of ears are better than one).

    The best thing is, as you're going through this and when you're at the other end of your treatment, you'll still have three kids and a beautiful wife. Plus, 3 cm is small and getting on task with it now is very good.

    Keep us posted -- !

  • xraydiazjj123
    xraydiazjj123 Member Posts: 23
    edited July 2018 #15
    todd121 said:

    Uncertainty

    Welcome to the group nobody wants to join! Sorry you will have to face this. I remember how stressful it was. It's going to be a difficult ordeal both in terms of the physical issues you will face (which are actually somewhat minor from my current perspective). The biggest struggle is the stress. It's incredibly stressful. It took me quite a long time to accept the issue. I remember for months waking up in the middle of the night or in the morning and my very first thought was "Damn. I have cancer." with a really dreadful and even resentful feeling at having to deal with this and even wondering if I could do it or if I wanted to do it.

    You can do it!

    We've done it. So can you.

    For me I learned over time that things aren't at all different than they were before. I was living in uncertainty before and after cancer I'm living in uncertainty. Even before cancer I really didn't know if my next breath was coming or not. Before cancer I'd been living in a state of denial about the uncertainty of my life. The gift cancer brought me is the consciousness of just how uncertain life is and how I have a choice to live in gratitude and peace or fear, resentment and loathing.

    You will have this removed and get the pathology report back and then you'll find out what to do next. Just do the next indicated step. My advice is not to live in a fearful state of the future. I know it might be easier said than done, but you really don't want that fear destroying your current happy life. Accept you don't know what will come and that you didn't know that before this happened. Deal with what is immediately in front of you. Breathe. It's going to be ok.

    Best to you and your family,

    Todd

    thank you too121

     

    thanks that's exactly what I'm going through at this time ,this weekend I've been crying and your words have made me crying to , I have no words to describe what I'm going through but your words give me a lot of encouragement, and read on the internet given me notion the point that I am ,and I think that in the end I have a hope to see my children grow but it is not easy thanks again for your support man

  • xraydiazjj123
    xraydiazjj123 Member Posts: 23
    edited July 2018 #16

    Planning begins now

    The diagnosis is awful. Being in the medical field should help navigate the stress of the procedure. The wait was worse than the surgery. Read posts from people who had the surgery. Many questions you have should be answered on those posts. If something comes up that you need info on ask,  it will be answered. Start prepping for the operation and post op. Your going to need help, if someone asks if they can help use them. Sending calming and positive thoughts to you and your loved ones.

    thank you Retcenturion

     

    You are right, being in this field is not pleasant and I see many good and bad things,

    this weekend was horrible, I can not stop thinking, what a horrible thing now I know what the perzonas are going through with this thingabout the surgery it terrifies me but I have to be well for my family that needs me thanks for the support

  • xraydiazjj123
    xraydiazjj123 Member Posts: 23
    edited July 2018 #17
    JoeyZ said:

    You're in the right place for

    You're in the right place for answers and support. If you click on people's picture, you can then read their stories. I should probably already be dead but I survived and still here 4 months out. Doing ok, considering.

    Take a day at a time, learn all you can, ask all the questions you can, and take a lot of deep breaths.

    Yes, all the waiting around is by far the worst part.

    thank you joeyZ

     

    I've read everyone's story, what an unpleasant thing we have to go through, and you're right, the wait is killing me, I want to get out of this, I know it sounds easy but it's not for me at least, pretend that everything it is fine is not easy , special when my body is 100% I do not feel anything, but my mind does not, what a horrible experience thanks for the support

  • xraydiazjj123
    xraydiazjj123 Member Posts: 23
    edited July 2018 #18
    JerzyGrrl said:

    The worst and best things are...

    Jorge,

    The worst thing is the waiting for answers and the action. You may know your way around the hospital pretty well, but when it's YOU? Well, it's hard to try to hold yourself out at arm's length to get a little perspective. Along with the deep breaths and asking questions (make a list where you jot them down as you think of them), also having someone go with you to your appointments ('cause two sets of ears are better than one).

    The best thing is, as you're going through this and when you're at the other end of your treatment, you'll still have three kids and a beautiful wife. Plus, 3 cm is small and getting on task with it now is very good.

    Keep us posted -- !

    thank you for response

    Hi JerzyGrrl thank you for the support,you are totally right, being in this field is even more frustrating, and as I said in other comments the wait is killing me and on top of that  I had a vacation already scheduled for Cancun  mexico just the week before the operation,  tell me? how I'm supposed to enjoy them y have read a cuple websites and is a light at the end of the tunel but is very distant but is there ,thank you for the support i really needed  ill keep posting for sure i have to support people to 

  • Brock1969
    Brock1969 Member Posts: 80

    thank you for response

    Hi JerzyGrrl thank you for the support,you are totally right, being in this field is even more frustrating, and as I said in other comments the wait is killing me and on top of that  I had a vacation already scheduled for Cancun  mexico just the week before the operation,  tell me? how I'm supposed to enjoy them y have read a cuple websites and is a light at the end of the tunel but is very distant but is there ,thank you for the support i really needed  ill keep posting for sure i have to support people to 

    Cancun trip....

    Because worrying and fretting while on vacation will do absolutely nothing to change things, my advice is to have the time of your life in Cancun! Worry won't speed up the surgery nor will it change anything. It's hard to do, but can be done. I went on vacation the week before my surgery and rarely thought about it until I got back. You are going to be just fine...cherish every moment oif that trip with the family 

  • xraydiazjj123
    xraydiazjj123 Member Posts: 23
    Brock1969 said:

    Cancun trip....

    Because worrying and fretting while on vacation will do absolutely nothing to change things, my advice is to have the time of your life in Cancun! Worry won't speed up the surgery nor will it change anything. It's hard to do, but can be done. I went on vacation the week before my surgery and rarely thought about it until I got back. You are going to be just fine...cherish every moment oif that trip with the family 

    completely right

    i know , is no easy ,thanks for your advice, and you are right in everything you say, it is not easy but I have to do it, and let time decide thank you very much for your support

  • xraydiazjj123
    xraydiazjj123 Member Posts: 23
    CT REPORT
    Exam: CT ABDOMEN PELVIS W PLUS WO CONTRAST

     

    Indication:Left renal mass possibly AML (seen on MRI)

     

    Comparison:Prior MRI performed at an outside facility dated June 26, 2018 is not available for comparison at time of dictation due to technical issues.

     

    Technique:Multiplanar CT of the abdomen and pelvis was performed before and after the administration of intravenous contrast, utilizing renal mass protocol.

     

    Findings:

    1 mm hyperdensity in the left renal superior pole, image 27 series 4, possible tiny calculus.

    Arterially enhancing mass in the left renal superior pole extending into the hilum measuring 3.5 x 3.5 x 3.9 cm.

    Tiny cortical hypoattenuating lesion in the left renal superior pole, too small to characterize.

    Retroaortic left renal vein.

    Right kidney is unremarkable.

    Both kidneys enhance and excrete contrast symmetrically.

    Bladder is unremarkable.

    3-D MIPS reformats redemonstrate left renal superior pole mass causing mass effect on adjacent calyces.

    Prostate gland is not enlarged.

    Liver is normal in size and contour.

    Punctate hypoattenuating focus in the dome of the liver, too small to characterize, image 45 series 12.

    Portal system is patent.

    Spleen, pancreas, and adrenal glands are unremarkable.

    Stomach is unremarkable. Small bowel and appendix are unremarkable.

    Colon is unremarkable.

    Abdominal aorta is normal in caliber.

    Right hepatic artery arises directly from the aorta.

    No significant lymphadenopathy.

    Osseous structures are unremarkable.

     

    .

    Impression:

    Arterially enhancing left renal superior pole mass measuring 2.5 x 3.5 x 2.9 cm, suspicious for renal cell carcinoma.

    Please review report above for complete details and additional findings.
  • Brock1969
    Brock1969 Member Posts: 80

    CT REPORT

    Exam: CT ABDOMEN PELVIS W PLUS WO CONTRAST

     

    Indication:Left renal mass possibly AML (seen on MRI)

     

    Comparison:Prior MRI performed at an outside facility dated June 26, 2018 is not available for comparison at time of dictation due to technical issues.

     

    Technique:Multiplanar CT of the abdomen and pelvis was performed before and after the administration of intravenous contrast, utilizing renal mass protocol.

     

    Findings:

    1 mm hyperdensity in the left renal superior pole, image 27 series 4, possible tiny calculus.

    Arterially enhancing mass in the left renal superior pole extending into the hilum measuring 3.5 x 3.5 x 3.9 cm.

    Tiny cortical hypoattenuating lesion in the left renal superior pole, too small to characterize.

    Retroaortic left renal vein.

    Right kidney is unremarkable.

    Both kidneys enhance and excrete contrast symmetrically.

    Bladder is unremarkable.

    3-D MIPS reformats redemonstrate left renal superior pole mass causing mass effect on adjacent calyces.

    Prostate gland is not enlarged.

    Liver is normal in size and contour.

    Punctate hypoattenuating focus in the dome of the liver, too small to characterize, image 45 series 12.

    Portal system is patent.

    Spleen, pancreas, and adrenal glands are unremarkable.

    Stomach is unremarkable. Small bowel and appendix are unremarkable.

    Colon is unremarkable.

    Abdominal aorta is normal in caliber.

    Right hepatic artery arises directly from the aorta.

    No significant lymphadenopathy.

    Osseous structures are unremarkable.

     

    .

    Impression:

    Arterially enhancing left renal superior pole mass measuring 2.5 x 3.5 x 2.9 cm, suspicious for renal cell carcinoma.

    Please review report above for complete details and additional findings.
    It's small...

    They are going to tell you that you will have a mid 90% chance of this never coming back once it is taken out. Enjoy Cancun!

  • Gtngbtr58 @aol.com
    Gtngbtr58 @aol.com Member Posts: 206
    Jorge

    It's good that you got your report and are able to look at something concrete as far as you're diagnosis.  My mass was very close in size to yours.  It might even be smaller once they get in my report said 3.7 but was really 2.5.  As far as I understand that is pretty small and a good thing.  As far as the other parts of the report I really can't help you but I'm sure other people here can.  Keep positive and OFF GOOGLE, I drove myself crazy trying to figure things out-best of luck -June

  • APny
    APny Member Posts: 1,995
    edited July 2018 #24
    I'm a little confused. They

    I'm a little confused. They mention a possible AML on left kidney. I have one on each and that's not cancer. Then they mention a 3.5 x 3.5 x 2.9 cm mass, and later at the end a 2.5 x 3.5 x 3.9 cm mass. Are they three different things? Are the last two the same and just mistyped as to size?

  • Tapman63
    Tapman63 Member Posts: 137
    Try Not To Worry

    Your situation sounds a good bit like mine - tumor was about the same size on the left kidney.  The only big difference is that I had to have a full neph because of the location.  I had my surgery in mid-February and all is well.   Your first two weeks may be a little disconcerting, but you'll find that you will recover pretty quickly after that and be good to go.  I'm five months out now and really the only issue I have is getting tired every now and then.  I'd say my energy is back to 95+% of what it was before.  The worst part about all of this is the waiting and the uncertainty - we all understand that here.  Visit this forum often and you'll find yourself a bit more at peace - it helped me immensely in the days right after my diagnosis when I would have the crying spells out of the blue and wasn't able to sleep.  Between us all, we've been throuogh just about every scenario imaginable and will be more than happy to talk you through this.

    Best of luck with your surgery and keep positive!  Your RCC was found early and you should have a very positive prognosis!

    Best Wishes,

    Jiim

  • Manufred
    Manufred Member Posts: 241
    Keep cool

    It's never nice to be told you've got cancer.  However it is not as fatal as it used to be.  Many people with worse diagnoses than yours have survived and continue to enjoy life. 

    You can't help but reflect on your own mortality at times like this, but don't be too despondent - chances are you'll get through this.  Make the most of life in the meantime.

    Best wishes.

  • xraydiazjj123
    xraydiazjj123 Member Posts: 23
    I KNOW

    I know APny, I know it is also very confusing. I got an MRI the week before and the radiologist who dictated it suggests that it is an AML but the CT shows another suspicion of RCC but anyway I have to go to surgery, because It can bring other consequences,

  • xraydiazjj123
    xraydiazjj123 Member Posts: 23
    Tapman63 said:

    Try Not To Worry

    Your situation sounds a good bit like mine - tumor was about the same size on the left kidney.  The only big difference is that I had to have a full neph because of the location.  I had my surgery in mid-February and all is well.   Your first two weeks may be a little disconcerting, but you'll find that you will recover pretty quickly after that and be good to go.  I'm five months out now and really the only issue I have is getting tired every now and then.  I'd say my energy is back to 95+% of what it was before.  The worst part about all of this is the waiting and the uncertainty - we all understand that here.  Visit this forum often and you'll find yourself a bit more at peace - it helped me immensely in the days right after my diagnosis when I would have the crying spells out of the blue and wasn't able to sleep.  Between us all, we've been throuogh just about every scenario imaginable and will be more than happy to talk you through this.

    Best of luck with your surgery and keep positive!  Your RCC was found early and you should have a very positive prognosis!

    Best Wishes,

    Jiim

    thank you tapman63

    You're right I'm going through very difficult times I can hardly sleep I have to take benadrylline to sleep a little not much, I only think of my children I've cried a lot I come here makes me feel good thank you 

  • xraydiazjj123
    xraydiazjj123 Member Posts: 23
    Manufred said:

    Keep cool

    It's never nice to be told you've got cancer.  However it is not as fatal as it used to be.  Many people with worse diagnoses than yours have survived and continue to enjoy life. 

    You can't help but reflect on your own mortality at times like this, but don't be too despondent - chances are you'll get through this.  Make the most of life in the meantime.

    Best wishes.

    thank you Manufred

    NO is nothing compared, I think this news is unparalleled, it is the most horrible thing for what a human being can go  through , but well I did not choose this path that I am going through, I hope all this ends soon. And that the pathology report gives me good news its hard to pretend every thing is  fine but I'm trying my best thankyou man 

  • lakotagirl
    lakotagirl Member Posts: 2
    edited August 2018 #30
    I went in march to orthopedic

    I went in march to orthopedic doctor. cause I need a new hip. ct scan showed a suspicious mass on my left kidney. second ct scan with contrast revealed a 10cm tumor. so july 20th I had surgery. robotic was planned but dr had to go back to classic method and cut me open even remove one rib to get kidney and tumor out. the pathology report said it was stage 2 cancer with no signs of spreading tumor still confined to kidney

  • stub1969
    stub1969 Member Posts: 933 **
    Welcome, Lakotagirl

    Welcome to our little part of the cancer world.  Can you let us know where you are being treated?  I'm hopeful your recovery is going well and you are getting your strength back. With a 10 cm stage 2 mass I'm sure you will be on a pretty regular scan schedule. 

    Best of luck!

    Stub