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Adenocarcinoma late diagnosis

grace_of_god's picture
grace_of_god
Posts: 31
Joined: May 2018

Hi fellow patients.  Glad to find this here to ask questions and talk about this without feeling like I am wearing my friends and family out talking about it.  My symtoms started almost 4 years ago with right abdominal pain and a little bleeding when I was very active.  Thought it felt like where an ovary would be.  Went to have it checked and did pelvic, sonogram to the right groin and an mri.  No results.  Gyno said everything is the right size and in the right place.   I have some chronic health problems and said well I guess this is just another old age wear and tear thing.   Put up with it till 6 months ago pain suddenly spread across my whole abdomen and I had a fairly significant bleed.  Back I went and did a pelvic, a vaginal sonogram, an inconclusive biopsy (which hurt like the dickens!) then a d&c with the photo shoot.  Result was grade 2.  I'm scheduled on 5/17 for a robotic assisted hysterectomy and the doc was up in the air about removing the lymph nodes.  My biggest concern is knowing this has been there over 3 years and with the discomfort I've had these last six months well you know where I'm going.  Afraid it's had awhile to take hold.  Talk to me ladies!  and thanks :) 

LisaPizza's picture
LisaPizza
Posts: 238
Joined: Feb 2018

YAAAAAYYYYYYY!

MugsBugs
Posts: 110
Joined: Jan 2018

I am so happy for you!  The best outcome ever!  i am praying your recovery goes well!  

 

 

 

 

grace_of_god's picture
grace_of_god
Posts: 31
Joined: May 2018

Don't know how I got so lucky but I'm very very thankful for it!

Jairoldi's picture
Jairoldi
Posts: 217
Joined: May 2017

What welcome news to hear. 

grace_of_god's picture
grace_of_god
Posts: 31
Joined: May 2018

Thanks Jeroldi ...this sure has given me a humble heart and I hope to never take it for granted.  

Harmony09's picture
Harmony09
Posts: 75
Joined: Aug 2017

I'm REALLY happy for you grace_of_god! What wonderful news! I hope you continue to heal well :)

grace_of_god's picture
grace_of_god
Posts: 31
Joined: May 2018

I guess I'm feeling a little guilty ...like survivor's guilt when I see all you lovely ladies in the battle.  But I know that's bad thinking and I just need to be grateful.  And I will be hopeful that you all get great news too at whatever point.  Hugs!

grace_of_god's picture
grace_of_god
Posts: 31
Joined: May 2018

Thanks Lisa!  still seems like a dream and as if I was on trial and got set free.  I have had some incontinence of urine which is like only a nuisance at this point.  I understand it's not uncommon and things are still settling down. (2 1/2 weeks post op now)  I'm going to see how it is as I continue to heal.  Although I am in the clear I just can't exit stage left from here.  It's my intention to pop in and read and pray for folks from time to time.  I'm pretty much in awe of how well I see people dealing with the illness and uncertainty.  My heart sends love  and encouragement to you all. If you ever have a special prayer request just let me know... I have lots of peeps who like to pray!   

grace_of_god's picture
grace_of_god
Posts: 31
Joined: May 2018

After being sick off and on post surgery (I am a month out) I returned to the ER 2 days ago with vomiting, alternating sweats and chills, abdominal pain and what had become a foul vaginal discharge.  Quickly learned through CT and all indications that I was septic, white cell count 18,000 plus.  I was told I have many abcesses throughout my insides.  I was admitted, put on IV antibiotics and so far am responding well to what they are giving me.  But I am in a lot of fear as they've explained they will be putting a catheter inserted through the belly skin into the inner abdomen to drain the abcess(s).  I understand this is the best approach to treat this problem.  However, they are doing it with me awake with a local.  I'm terrified.  My pain receptions are off the charts (I have fibromyalgis) and with all the difficult physical and emotional demands (I am also MH) I'm a cowardly crybaby at this point.  I've been crying about this and docs still says a xanax before and a skin local is it.  I haven't met the radiologist specist who will do this but tomorrow I'm going to tell him where I'm at in fear and that I've read about the procedure online being done with or without sedation.  I want to have it done but am terrified of a repeat horror show like I had a few months back having an endometrial biopsy.  No anesthtic but did have a xanax before.  I was terrified but determined and bravely got situated on the table that day.  I was coaching myself... relax, breathe, breathe.  I could feel the catheter going through my cervix and was nicely surprised it didn't hurt a bit when BAM it was like all the stars exploded and I was screaming uncontrollably.  I almost broke one of the stirrups and was automatically tucking into a fetal position and sliding off the table with the speculum still in me.  Unreal.  The doctor disappeared and the nurse was quiet.  Nothing was really said except he thought the sample looked normal not to worry.  It wasn't.  So here comes another tube being thrust into an inner area that is abcessed and already hurting.  I won't let them do it to me awake I just can't face it.  So I fight this battle again tomorrow.

 

Armywife's picture
Armywife
Posts: 327
Joined: Feb 2018

I'm sure this has already happened, but I just had to ask if they would give you Versed - you won't remember a thing but it's not general anesthesia.  I hope it went ok - you have been through a lot.

grace_of_god's picture
grace_of_god
Posts: 31
Joined: May 2018

I had a drainage tube inserted in my abdomen 10 days ago for multiple abscesses and although it hasn't been doing anything since the 3rd or 4th day I am having to wait till this coming monday for removal or relocation.  Keeping my hopes up that it will be just a simple removal.  I am so worn down that I'm finding it hard to climb my stairs.  I just keep reminding myself I will be done with this before long and am one of the lucky ones not facing the challenges of further treatment once the infection is eliminated.  It was staph aureus btw and thankfully not a resistant variety.  I had reported in my last post that the white count was 18,000 in the ER and it was actually 28,000.  By the next day it was down around 10,000.  Astonishing how fast the IV antibiotics worked!  I was in the hospital for 5 days.  While I understand that a certain percentage of patients develop an infection from surgery I am overall disturbed that the nurses and PA that I spoke to on the phone or saw at follow up visits did not realize or even consider I was infected.  I was telling them that I had repeating bouts of chills and sweats along with dry heaves.  My last call to the surgeon's office to once again report this I was simply told to check the temp and follow up with my primary.  The day I was scheduled with him I ended up in the ER.  Very scary... they said another couple of days and it may have been too late!  So anyone else dealt with post surgical abscess?  

Gildedrose's picture
Gildedrose
Posts: 17
Joined: May 2018

I wanted to reply to your post just so you know you aren’t alone.  I have had three adominal abcesss, each went into sepsis.  1st and 3rd time were caught early enough a 3 wk and a 3 day hosp respectively resolved them.  The 3rd was from surgery (bowel resection) but did not occur for weeks later.  The 2nd one almost killed me, w/ 6 weeks in hosp including time in icu and a lengthy recovery including therapy to walk again.  I agree medical staff should have caught the symptoms, as they are standard for infection and sepsis. The reason 3rd time was caught so fast is i knew the symptoms by then.

 

Drains are no fun, but necessary.  Removal is much easier than insertion ... essentially a long slow pull and itks out ..snip of stitches first if you have them holding it in place. I even ended up with a drain after my hysterectomy 2 weeks ago - i suspect as a cautionary measure due to previous infection history, but it was removed on day 9.

 

hope you heal quickly, and congrats on the good dx.

grace_of_god's picture
grace_of_god
Posts: 31
Joined: May 2018

You have really been through it and I'm so sorry for all your pain and suffering.  You've spent a lot of time in the hospital!  You and many others on here are amazing role models in courage and determination.  I hope things are going well for you now and I appreciate your response.  Prayers for you Lady! 

grace_of_god's picture
grace_of_god
Posts: 31
Joined: May 2018

Don't know why except maybe I double clicked but I didn't mean for this to go up twice.   :/   oh great I see it's a triple post.  yikes

 

Fayard's picture
Fayard
Posts: 436
Joined: May 2011

Hola,

I have read all your post, and I am happy to hear your cancer was stage 1, grade 1. I was also diagnoed with Adenocarcinoma, but stage 2, grade 3, 7 years ago. I am cured now. 

God bless us all!

grace_of_god's picture
grace_of_god
Posts: 31
Joined: May 2018

That is an awesome example of hope and I'm so glad for you that you are all clear!  I had a fortune cookie the other day that said "It can't rain all the time".   It was a real lift and a good laugh!   Smile

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