Looks like mets for me

paintergrl said:

Thanks

Thanks for your support! I got a call at 8pm tonight from the Renal Onocologist at UCHealth in Denver. She offered to enroll me in a study where I would get a combo of cabozantinib and pembrolizumab. I have an appointment on Monday at 9am! No messing around. No biopsy is required and we could start in about 2 weeks, maybe less. It sounds promising. I need to do more research and will check out Smart Patients. Its been a rough day for sure but I feel some hope. 

Another Uchealther

My thoughts are with you and your family. It is never easy.  

Big hugs and prayers

Lifting you and your family up everyday in my prayers.  

Keep painting

Hi Paintergrl,

I like the idea of the painted rocks.  A couple of times I have left little surprises for people knowing there was really no chance that anyone would ever find them. But if someone ever does they will at least get a laugh out of it.

Rocks are forever so they might be found decades or even centuries in the future.

Wishing you well,

Steve.

Amy_Jo said:

I was diagnosed in February

I was diagnosed in February had my left kidney removed March 8 2018. I was told my pathology was clear and I was cancer free. Two months later I have Mets in my liver lungs and spine. It is devastating I have 4 children 2,5,13,16. I have shared with my oldest what's going on and my Oncology office offers a social worker to help with the stress of it all. My oncologist started me on a combination of yervoy / opdivo. I recently had a second opinion and have decided to change care providers. My new oncologist offer a genetic testing and physician which was never offered by my first oncologist. I know it's hard stay positive I will keep you in my prayers. 

Oh dear, this is a challenge

Oh dear, this is a challenge to say the least! Know that we will walk beside you and be there for you on this journey~

Please take advantage of therapy if you can fit in your busy lifestyle. You need the validation, the guidance and understanding!

You deserve health and wellnes!

Sending you and yours a healing HUG!

Jan

Radiation oncology consult?

I wish I knew in the beginning of my husbands treatment what we know now.  He was diagnosed Stage 4 Jan 2012.  He is doing well.  The best thing you can do for yourself is be a member of SmartPatients.  There is an impressive knowledge base there, and I guarantee you will be impressed.  I agree with what Todd said.  I think you should pursue an appointment with a radiation oncologist.  My husband has had radiation for mets and they have been destroyed.  It's a good option to at least check out if it is another treatment option for you to consider.  Information is power.  Second opinions are invaluable.  Every RCC patient is unique and it would be good for you to at least talk to an expert in radiation oncology.  I wish you the very best.  Another thing about smart patients is that most people are Stage 4, and it gives you alot of hope to know that there are many of them doing well.

paintergrl said:

Thanks

I am on Smart Patients and its great! I will definitely look into the radiation. Thank you!!

Great

I am so glad you became a member.  Dont hesitate to introduce yourself and ask for advice.  Susan P is an expert and knows everything about radiation therapy.  Stay a member here too, because both boards are awesome.  Csn is very supportive and I think more casual.  You will see the difference.  Both sites have very friendly helpful people.  

Paintergrl

Hope and pray for wisdom for the next steps.