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Oligodendroglioma

Sybille
Posts: 2
Joined: Feb 2004

Hallo

I am intrested in people who are deal with the same brain cancer. My husband had surgery (about 90 % resection) in october 03 (oligo grade II/III) and than he had radiation therapy (36 x , tot. 60 gray) and now he is under chemo (Temodal). Fortunately he is very well, without any handycaps and pains. He can go to work and is all the time in a good mood... We live in Europe and I ask you if there is some hope for a long survival time?

Thank you for your answer and kindest regards and good luck for all.

Sybille

Maybel1980
Posts: 5
Joined: Dec 2013

Hi,

We had the same case (grade 3) and it has been 4 years - 2 of treatment and 2 of piece :)

So yes, there is hope.

Make sure that you keep your medical records in place for the future and so that you feel in control. I use a great ipad app called Hello Doctor http://goo.gl/WJDh8K

Try it and gool luck!

Vlynn84
Posts: 1
Joined: Apr 2018

I'm feeling so lost. I was told by my family physician on a Monday that I had a brain tumor and needed surgery to remove it. On Thursday, the neurosurgeon told me that it was most likely a grade 2 oligodendroglioma and that for now I will have another MRI in three months. He said it can't be technically diagnosed until they have tested a sample, which can't really happen without the surgery. As of now, I'm supposed to live life as normal. I'm left wondering, do I have a tumor? What now? Do people really live with these inside their brains and nothing ever happens and they live a long life into their 80s with nothing ever happening?

Deana Rae
Posts: 3
Joined: May 2018

I understand where you’re coming from. in November i was told i have tumor on brain December was biopsy January was surgery radiation and chemo. Every thing moved so quick and that was probably the best for me. Honestly i finished treatments February 26th and returned to work march 5th.  I take my chemo pills 5 days a month and things seem to be going very well.    I think things depend on size location ...     stay strong and positive   

 

 

aechristian
Posts: 2
Joined: Mar 2019

I'm 45.  I received a glioma diagnosis 8 years ago.  It was asymptomatic so it was watched yearly until last year when I began to have seizures. 

I just had a biopsy last month and received the official diagnosis.  Unfortunately I cannot be operated on due to the location of the tumor, unless as a later resort.  (I'm likely to have stroke symptoms and other motor issues)

I'm about to start radiation and temodar next week for six weeks, probably with monthly maintenance temodar.  I've been on seizure meds with varying success.

I'm happy to hear so many long term survivors. I know it won't be easy but it gives me hope I may live to see other things in my life.  I know the thoughts of shortened life can be depressing, but years of survival still sounds good when currently fighting for days.  Remember... everyone goes there eventually... this is *not* a failure, but our nature.  I'm happy to discuss.

Best wishes and lots of love,

Amy

aechristian
Posts: 2
Joined: Mar 2019

I'm 45.  I received a glioma diagnosis 8 years ago.  It was asymptomatic so it was watched yearly until last year when I began to have seizures. 

I just had a biopsy last month and received the official diagnosis.  Unfortunately I cannot be operated on due to the location of the tumor, unless as a later resort.  (I'm likely to have stroke symptoms and other motor issues)

I'm about to start radiation and temodar next week for six weeks, probably with monthly maintenance temodar.  I've been on seizure meds with varying success.

I'm happy to hear so many long term survivors. I know it won't be easy but it gives me hope I may live to see other things in my life.  I know the thoughts of shortened life can be depressing, but years of survival still sounds good when currently fighting for days.  Remember... everyone goes there eventually... this is *not* a failure, but our nature.

Best wishes and lots of love,

Amy

 

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