Now dealing with leukemia

survivingsu
survivingsu CSN Member Posts: 134 Member
in Uterine/Endometrial Cancer #1

Hi uterine cancer discussion board buddies,

I was recently diagnosed with leukemia, which probably resulted from the treatments I had 9 years ago that saved my life.  I'm in the hospital right now, trying to get my blood numbers stable enough to begin chemo.  Another tough road ahead, but I'll do my best, and like before I have good support and good medical staff.

 

But I really wish I didn't have this disease!

 

Susan

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Comments

  • CheeseQueen57
    CheeseQueen57 CSN Member Posts: 933 Member
    #2
    Oh no!

    It never stops, does it?  Prayers and hugs as you embark on this new journey. 

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  • SF73
    SF73 CSN Member Posts: 317 Member
    #3
    I am so sorry to hear about

    I am so sorry to hear about your news, SurvivingSu. This is not fair at all. I am confident that you and your doctors will put together a plan to beat this monster for the second time. Sending you much love! 

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  • Harmony09
    Harmony09 CSN Member Posts: 79
    #4
    I'm so sorry to hear about

    I'm so sorry to hear about the latest developments with you, Survivingsu! I'm glad you're happy with the treatment team. That makes a world of difference. I hope your counts go up soon and your chemo goes smoothly.

    Sincerely,

    Stacey

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  • EZLiving66
    EZLiving66 CSN Member Posts: 1,483 Member
    #5
    What treatment did you have

    What treatment did you have nine years ago?  Standard chemo and radiation or something else?  I have UPSC and my doctor didn't recommend radiation because of all the side effects (like the chemo isn't enough??) including cancer.  He also stays away from CT scans unless there are other symptoms.

    I am so sorry you are having to deal with this again!!  This d*mn cancer - there has to be a cure that we're just not seeing!!!

    All my best and please let us know how it's going and if there is anything we can do to help you.

    Love,

    Eldri

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  • NoTimeForCancer
    NoTimeForCancer CSN Member Posts: 3,601 Member
    #6
    Susan, while I know there is

    Susan, while I know there is a leukemia board and I am sure they will be helpful as well, please know your sisters over here would like to know how you are doing.  Prayers are headed your way!

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  • survivingsu
    survivingsu CSN Member Posts: 134 Member
    #7
    Thanks everyone!

    Thank you for all the inspiring good wishes!  That definitely helps -i know I'm not alone.  Here's a few answers to some questions re my past cancer treatments...I went through chemo and radiation from July 2009 to October 2009, then surgery, then follow-up chemo.   I also had lots of ct scans, 1pet scan, and the CT scans post-treatment diminished over time, first every few months, then every 6, months, then yearly, then none unless a symptom arose to merit one.  Facing another completely different cancer is pretty intimidating, and like my first cancer, this one is also quite aggressive and deadly.  But I'm a tough old bird with good medical experts in a time and location where new technology is in my favor.  So I will really try to beat this cancer too.  

    Cheers,

    Susan

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  • survivingsu
    survivingsu CSN Member Posts: 134 Member
    #8
    And yes, I hold my uterine board family in my heart!

    I'll let you know how things are going from time to time.

    Cheers,

    Susan

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  • Northwoodsgirl
    Northwoodsgirl CSN Member Posts: 571
    #9
    Leukemia

    Hi Survivingsu, I too am sorry to hear you have cancer again. That is my biggest fear. I also was treated back in 2009. I will keep you in my prayers. ((Hug))

    Lori

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  • barnyardgal
    barnyardgal CSN Member Posts: 272 Member
    #10
    I'm so sorry. It's hard to

    I'm so sorry. It's hard to beat one cancer and then have to deal with another. Sending good thoughts and prayers as you beat this new cancer.

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  • Soup52
    Soup52 CSN Member Posts: 908 Member
    #11
    Im so sorry surviving su! So

    Im so sorry surviving su! So hopeful that your treatment will be successful. Yes keep us posted. We will all be cheering you on!

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  • evolo58
    evolo58 CSN Member Posts: 293 Member
    #12
    Geez ... like you didn't have

    Geez ... like you didn't have enough to deal with. Hope the treatments work, and you can get back to your life again for many, many years to come.

     

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  • survivingsu
    survivingsu CSN Member Posts: 134 Member
    #13
    Beginning day 4 chemo

    Hi you guys,

    I'm doing my baby steps in this long journey.  Tonight I will be starting day 4 chemo, then thursday day 5.  I will probably be released from the hospital on Friday.  I then go home and do outpatient appts every other day.  After a week or two the chemo would have taken out all my white blood cells, the drs told me patients typically return to the hospital to deal with fever/ infection.  Eventually people can get a new series of chemo, or all over radiation to help erase the slate for the stem cell transplant.  There's a lot to this, and it's all new to me, diagnosed may 17.  It's a long road, but woo-whooo!  I've begun my baby steps!!!

    Cheers,

    Susan

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  • NoTimeForCancer
    NoTimeForCancer CSN Member Posts: 3,601 Member
    #14
    Susan, we are cheering you on

    Susan, we are cheering you on!

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  • SF73
    SF73 CSN Member Posts: 317 Member
    #15
    Starting is half the battle.

    Starting is half the battle. You definitely have the right attitude and I am sure it will pay off. Best of luck with your remaining treatments. Sending much love!

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  • Northwoodsgirl
    Northwoodsgirl CSN Member Posts: 571
    #16
    Battling on

    Hey Susan, You have such a positive attitude. As we know we try to stay positive because it is so important. It amazes me that you can have your body’s immune system zapped to the ground and send you home but then home has germs your body is use to versus the hospital that has more germs you are not use to. Anyway please know we are praying for the treatment to work and wish you all the strength possible to get through the days ahead. ((Hug))

    Lori

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  • LisaPizza
    LisaPizza CSN Member Posts: 358 Member
    #17
    So sorry you have to face

    So sorry you have to face this too, but glad treatment is underway. I feel like a little kid , "not fair!" I agree with NoTme, this board is here for you :) Baby steps are the way to go, even for a tough old bird, lol. Hope you're back home soon.

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  • rcdeman
    rcdeman CSN Member Posts: 263 Member
    #18
    Dear Susan,

    Dear Susan,

    So sorry to hear you have to go through this again! It just doesn't end! Do you know what type of leukemia you have? Praying for your health and that you will pull through this! You've beaten this before!

    Please keep us updated!
    Rebecca

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  • janaes
    janaes CSN Member Posts: 799 Member
    #19
    Survivingsu, you are doing

    Survivingsu, you are doing such a great job with this knew news. Your attitude is great. Its okay that your still hear on this board for support. 

    I know how it feels to get a second cancer because of the treatments of another.  I was told by my doctor that i got utetine cancer because of the radiation i recieved from hogkins desease i had 23 years earlier.

    You sound like such a fighter and your doing it. I hope you are proud of yourself. Cancer stinks and its not fair that the treatments for cancer accually cause cancer but you are doing what needs to ne done.

    I wish you the best as you go forward. If you have tough feeling please feel free to share them. Its okay.

    Janae

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  • Cass83
    Cass83 CSN Member Posts: 151 Member
    #20
    so sorry!

    So sorry to hear, but you sound like you have a positive attitude, and you know how well that will help! Praying this one gets defeated like your first one was! 

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  • TAyers
    TAyers CSN Member Posts: 86
    edited June 2018 #21
    Lynparza

    hello did you have Lynparza at all?

    Tami

     

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