CSN Login
Members Online: 6

You are here

Adenocarcinoma late diagnosis

grace_of_god's picture
grace_of_god
Posts: 31
Joined: May 2018

Hi fellow patients.  Glad to find this here to ask questions and talk about this without feeling like I am wearing my friends and family out talking about it.  My symtoms started almost 4 years ago with right abdominal pain and a little bleeding when I was very active.  Thought it felt like where an ovary would be.  Went to have it checked and did pelvic, sonogram to the right groin and an mri.  No results.  Gyno said everything is the right size and in the right place.   I have some chronic health problems and said well I guess this is just another old age wear and tear thing.   Put up with it till 6 months ago pain suddenly spread across my whole abdomen and I had a fairly significant bleed.  Back I went and did a pelvic, a vaginal sonogram, an inconclusive biopsy (which hurt like the dickens!) then a d&c with the photo shoot.  Result was grade 2.  I'm scheduled on 5/17 for a robotic assisted hysterectomy and the doc was up in the air about removing the lymph nodes.  My biggest concern is knowing this has been there over 3 years and with the discomfort I've had these last six months well you know where I'm going.  Afraid it's had awhile to take hold.  Talk to me ladies!  and thanks :) 

CheeseQueen57's picture
CheeseQueen57
Posts: 820
Joined: Feb 2016

My advice is if you don’t already have a gyn/onc doing your surgery run as fast as you can to find one to do your surgery.  Preferably one at a major cancer Center. Staging really can’t be done until after surgery. Welcome to the group nobody wants to belong to.  You’ll find great sisters here to support you all along your journey  

 

grace_of_god's picture
grace_of_god
Posts: 31
Joined: May 2018

Thanks CheeseQueen.  Yes,my surgeon is a specialist ....he's the director for the gynecology onconlogy program at Commonwealth Health in the Scranton, Pa. area.  He specializes in minimaly invasive and advanced robotic surgery.  Seems like a good guy to have helping me!

Kathy G.'s picture
Kathy G.
Posts: 212
Joined: Dec 2012

Hi & welcome!

 

I agree 100% w/Cheese as you want a specialist for this as well as the best you can get.

 

I was fortunate having had an early stage & grade cancer, but I had symptoms for a couple years before diagnosis. Thankfully mine was the slow growing type of cancer!

 

You have taken the right steps. Waiting is the hardest part...just produces so much anxiety!

 

Let us know how you make out!

grace_of_god's picture
grace_of_god
Posts: 31
Joined: May 2018

Thanks for your response Kathy G.  and the waiting IS really hard.  I'm glad yours was a slow growing type!  Hoping against hope. 

MugsBugs
Posts: 110
Joined: Jan 2018

Sorry you are here!

If you don't have a Gyn/Onc - find one - you want someone who deals with our kind of cancer.  Also ask your doctor for a CT scan with Contrast (Upper and Lower).  The CT scan provides a baseline before treatment!  My doctor told me the CT scan was to ensure nothing else was affected and if it was it was better to take care of it in one surgery rather than 2.  Also, the baseline can be used in case of suspected recurrence. Another test, if you haven't already gotten one is the CA125 blood test.  This also acts as a baseline tumor marker.  It is not accurate for everyone but it is important to have a baseline before you have surgery.

Again I am sorry you are here and let us know how you are doing!

grace_of_god's picture
grace_of_god
Posts: 31
Joined: May 2018

Hey there MugsBugs!  Hmmm I've wondered about a CT scan.  I'm going to call the office tomorrow and ask.  Also will ask about the CA125.  Having the baseline for comparison makes sense.  Thanks for the tips!

Tamlen's picture
Tamlen
Posts: 207
Joined: Jan 2018

I was surgically staged at Stage 2 after my hysterectomy. After pushing repeatedly for a CT scan (my gyn onc doesn't routinely do them before surgery), and it finally getting done due to my radiation onc, I turned out to be Stage 4B. So the entire treatment protocol changed and I was very late to be starting chemo post-surgery. Get those results as early as you can so you have a full picture of what you're dealing with and a treatment plan that goes with it.

grace_of_god's picture
grace_of_god
Posts: 31
Joined: May 2018

Wow Tamlen, that's a pretty powerful story.  Sounds like they should have done it earlier!  I hope you've done well with treatment.  

 

Northwoodsgirl
Posts: 559
Joined: Oct 2009

The more lymph nodes removed including the para aortic node will increase the likelihood of knowing weather or not the cancer has spread. It is not uncommon to remove 20 + nodes and removal of the omentum (the web like structure that keeps your organs all in place).  Years ago they use to take out just a few nodes and declare the cancer hadn’ t spread. Praying everything goes well! 

grace_of_god's picture
grace_of_god
Posts: 31
Joined: May 2018

It sounds like removing the nodes is extremely important and I'm going to have this discussion with my surgeon.  

 

derMaus's picture
derMaus
Posts: 561
Joined: Nov 2016

Let me second that. I have an agressive cancer - Grade 3 - which my surgeon knew going in. There was a slight possibility of a robotic surgery but after she got in there it was a TAH (as I'd expected). She took 37 lymph nodes and only one in the pelvic region showed cancer, tipping me into Stage III. HOWEVER, when my mets arose less than 6 months after surgery, they were in the lymph nodes right above the cutoff point for those that had already been taken out. I'm a fan of lymph node removal, myself, but then I haven't had any side effects either so it's easy for me to say that. 

Northwoodsgirl
Posts: 559
Joined: Oct 2009

derMaus, I worry about the women who are staged Stage/Grade 1 and they don’ t have many nodes removed for pathology and then a year later they experience mets to other parts of their bodies. Your Gyn/Onc was very smart to check your nodes extensively. I have lymphedema but it is manageable with compression hosiery. I will never complain about the number of lymph nodes my Gyn/Onc surgeon removed! I also worry about women that don’ t get their omentum removed as that is another area where cancer seeds itself. 

Lori

Armywife's picture
Armywife
Posts: 325
Joined: Feb 2018

My cancer was thought to be Stage I Grade I, and after surgery/pathology it was Stage IVB, Grade 2.  I only had two sentinel lymph nodes removed - one pelvic and one para-aortic.  Both were clear, as were my cervix and ovaries.  I had a "very unusual presentation" so who can know?  My scan was clear after chemo in October, but I'm going to ask for another scan soon.  It's really hard to look back and wonder what should have been done.

grace_of_god's picture
grace_of_god
Posts: 31
Joined: May 2018

Wow that must be an unpleasant shock to have your perceived grade/stage be more serious than first thought.  I'm realizing I need to be prepared that what I hear post sursery could be quite different than what I know now which is simply grade 2.  My best wishes to you for continued clear scans!

 

Kera
Posts: 3
Joined: May 2018

Hello! I am a 43 year old and I was recently diagnosed this week with the exact type of cancer. My doctor is hopeful that theyve caught this early and they will be able to get it all with surgery. I have the endemetrial adercarcinoma (msp.) and of course, they won’t know until they do my surgery where I am with this. I am trying to stay positive that I can beat this. My doctor was very hopeful, but I’ve read so many stories about of where the hysterectomy is performed and they find it is worse than they thought. So, it’s a tough place waiting and waiting. I should get my surgery closer to June 10th. I think. i will meet my oncologist on Thursday May 10. I hope I can come Back and read this thread and keep up with your story. I only use my phone to read and do this site. I don’t have internet at home but I do where I work.  Praising God that they truly believe they’ve caught it early but yet nervous, too. They are shocked by my age. Most women are way older. Very thankful for these boards and the chat room. Seems like many on here become family. When they lose one of their online survivors, they all mourn the loss. That is very uplifting and heartwarming to see. 

Take care  

Kera 

 

 

 

 

 

EZLiving66's picture
EZLiving66
Posts: 1363
Joined: Oct 2015

I'm so sorry you have to go through this, Kera, but please don't get ahead of yourself.  Many, many women come here looking for hope, answers, and camaraderie and we welcome them all.  But a LOT of them find out, especially if they're younger like you, that they have a low stage, low-grade cancer and it is removed with the hysterectomy.  Usually, they bid us adieu and they go on with their lives.  The ones that tend to stay here have high grade, late stage or a recurrence so it skews the numbers and makes it look like everyone has those - they don't!!  

Keep us posted on your progress!!

Love,

Eldri

PS. You're right, we do become a family of sorts and it hurts like hell to see someone fight so long and hard and then not make it. Cry

MugsBugs
Posts: 110
Joined: Jan 2018

Kera - chances are that your cancer is treatable with surgery.  Try not to think about the 'whats' right now.  My cancer was caught very early so I am one of the lucky ones.  Statistics are on your side.  43 is really young but none of us really knows when our cancers actually started. We probably all had symptoms and just ignored them (I know I did).  I recommend you read the thread "What do you wish someone had told you?" (https://csn.cancer.org/node/314593).  This thread started after I was diagnosed and had surgery but I still found it enlightening and very helpful.

Good luck to you and let us know how you are doing!

Kera
Posts: 3
Joined: May 2018

Thanks EZ Living! I just was uncertain when I read NorthWoodsGirl’s response. Like about not removing the lymphnodes! And the Omentum (whatever that is). I dont want to be fearful, I am hopeful they’ve probably caught it early. I just concerned about it coming back in Other forms. When I see the oncologist, I have lots of questions. I hope he can answer. He is in Evansville indiana at Deaconess Hospital, but is affiliated with MD Anderson through Texas (cancer research). So, I am blessed that I am seeing the cream of the crop! 

Kera 

grace_of_god's picture
grace_of_god
Posts: 31
Joined: May 2018

Hey, Kera!   I'm thinking of you with your appointment coming tomorrow and hope you get lots of answers and reassurance.  I'm a week out from surgery and feeling like I'm on a runaway rollercoaster!  Not the ride I'd prefer to be taking right now but not much choice eh?

 

 

grace_of_god's picture
grace_of_god
Posts: 31
Joined: May 2018

So I called my doc's office with 2 questions and got a no go on having a CT scan prior to surgery.  Simply stated "they don't do them".   My other question was about lymph nodes and they said they won't know about that till they get in there.  My surgeon is a big cheese, head of stuff so I'm trusting his judgement and taking this to mean that he doesn't find it necessary.  I'm very comfortable with him and rhe hospital plus his experience so I'm going to accept their game plan.  I admit I'm not feeling like insisting on them changing their routine for me.  I admit to feeling beat down and depressed.  I do have support though and I'm booked with a counselor for 1 week post surgery.

 

LisaPizza's picture
LisaPizza
Posts: 238
Joined: Feb 2018

I only had a CT before surgery because i had lost 30 pounds. I don't think a pre-op CT is in the guidelines unless there are special reasons to get one. On the other hand, as the patient it's hard to understand how it's not standard. If it helps, CT is likely to pick up some random abnormality and generate some worry and testing that maybe wasn't really necessary. For example, mine picked up a renal cyst that I now have to get a special follow up CT on this fall.

grace_of_god's picture
grace_of_god
Posts: 31
Joined: May 2018

I don't get it Lisa!  Seems like such a helpful tool that it's hard to understand why they wouldn't want to use it.  I'm going to ask while I'm there on thursday why my doc skips it.  Was your weight loss from being ill or were you trying?  I see it's pretty common to lose weight from cancer.  Hope that cyst is nothing bad.

LisaPizza's picture
LisaPizza
Posts: 238
Joined: Feb 2018

II hear you about the CT, for sure.

 

My weight loss was because I was having gallbladder attacks and could hardly eat without triggering them. Fortunately I got my gallbladder removed at the same time, and it fixed the problem!

derMaus's picture
derMaus
Posts: 561
Joined: Nov 2016

Pre-surgical CT is standard for some grades of cancer. They knew mine was a grade 3 going in, so I had the CT scan. Since yours is a grade 2, perhaps that the justification for not doing one...but I still think it should be done for anything above a grade 1. Glad your doc is a big cheese and glad you're comfortable with him but, honestly, those were reasonable questions for you to ask. Best wishes, B

It happened to Me's picture
It happened to Me
Posts: 206
Joined: Apr 2014

Apparently, depending on where you live depends on whether you get a pre-op CT scan or not.  When I was diagnosed, I asked my ob/gyn if there were any tests we could do in my hometown before I headed 45 minutes away to the gyn onc at the University of Iowa.  They said that  Uof I would want a CT scan.  So, that's what I did, the local ob/gyn ordered a CT scan and it was sent up to my gyn onc before my initial visit with him.  Interesting to see how different doctors do different things in different orders.

pinky104
Posts: 574
Joined: Feb 2013

I was scheduled to have robotic surgery and was asked to get a CT scan before surgery, which I had at a different hospital, the one where I worked.  My GYN/onc., a very busy man, didn't look at it until the day of surgery. He came into the room where I was being prepped and told me that he couldn't do robotic surgery because my cancer had spread too far.  I had it in both ovaries, the omentum, and the small intestine.  I had printed out a copy of my report at work and had noticed that it also said I had gallstones.  My sister, an LPN, came with me to the hospital and suggested to my GYN/onc that my gallbladder should also be removed during surgery so that I didn't have to have a second surgery for that.  My GYN/onc. agreed.  He said he'd try to get a general surgeon to help out, and if he couldn't get help, he'd do it himself.  Fortunately, a general surgeon worked on the same floor as he did and was able to come and do that.  He also removed my appendix, for good measure.  If I hadn't had the CT scan, God knows how much of my cancer would have been found, and I probably would have had to have the gallbladder surgery at another time.  I think your doctor should order one.

MAbound
Posts: 888
Joined: Jun 2016

I'm concerned about you being told "they don't do them" when it comes to pre-op CT's and they won't know about removing lymph nodes  for testing until they're in there. I had both an MRI and PET scan pre-op so that my surgeon would have an idea going in how far he needed to go taking things out for pathology. It just seems odd that they'd have a blanket policy of not doing some testing to have the information they need to do the surgery and it seems really important in your circumstances since you've had symptoms of something brewing for as long as you've had. I really think a second opinion would be a good idea before you proceed.

grace_of_god's picture
grace_of_god
Posts: 31
Joined: May 2018

Thanks for your response MA.  I'd like to know why they have this routine and am going to ask!  I am too late for scheduling a second onpinion at this point as surgery is coming up in less than a week now.  And my surgery was already delayed once when I was cancelled a few weeks ago on 4/26.  I'm pretty uncomfortable... lot of pain that comes and goes so I'm anxious to go asap.  I'm also an MH patient and have been having a hard time holding on mentally since this last delay.  Plus it's supposedly the best guy in the area and it is at the hospital I prefer (about an hour away) which all seemed like a miracle coming together.  So I can't see not going ahead now!  I feel as if I am kind of waving a flag of surrender to let go and let God at this point.  Yikes!  Kind of like jumping off a high diving board.  Smile

MAbound
Posts: 888
Joined: Jun 2016

In God's hands with a doctor you feel comfortable with is a good place to be CT or no CT. I understand your need to get this surgery behind you to get some pain relief! 

As you can see from other's comments: doctors seem to differ in practice and philosophy from each other. Though we share a common fight, I don't think any two of us have had the exact same experience with what we go through battling the beast.

The other thing to remember is that there is no such thing as a doctor who knows everything, so its important to learn as much as you can as you go through this so that you can know what questions to ask and advocate for yourself as you go along. There's been so many changes in treating this particular cancer in recent years that you shouldn't assume that your doctor has had the time to keep up with it all.

It's a lot to deal with, but you've come to a great place to get a lot of information and moral support from others in the same boat. You can pick and choose what works best for your circumstances and ignore the rest as you see fit. It's all meant with the best of intentions. It's amazing how much one comes to care for people we haven't and may never meet.

Best of luck with your coming surgery; it's always such a relief to get definitive answers to type and staging and get that plan of  action for dealing with it!

EZLiving66's picture
EZLiving66
Posts: 1363
Joined: Oct 2015

No CT scan prior to surgery for me either.  My surgeon also did not remove any lymph nodes because he said they all looked good - nothing suspicious.  After surgery, I was diagnosed with Stage II, Grade 3 UPSC. I did have a CT scan after surgery along with a chest x-ray.  Last fall, he also "fired" me as a patient since I am no longer in active treatment, two years had gone by without a recurrence and he was confident that he got it all.  He told me I should have my follow-ups every six months with my GP. If my GP didn't feel competent to do it, then find a gynecologist who did.  I only made it through three chemos too.  

Who knows what the future will bring?  I sure don't!

Love,

Eldri

grace_of_god's picture
grace_of_god
Posts: 31
Joined: May 2018

Hey EZ!  I got a good laugh at your being fired after two years!  So you say you only made it through 3 chemos... can you explain?

EZLiving66's picture
EZLiving66
Posts: 1363
Joined: Oct 2015

I really had a hard time with the chemo.  I think it was because I was overdosed.  Chemo is based on weight but I am super sensitive to medication (a quarter of a Percoset knocked me out). After the second one, they couldn't control the side effects. I was so week I could barely walk and the nausea was horrible. After the third one, my liver started to fail, I lost control of my bladder and bowels, my eyesight was effected, my finger and toenails fell off, my skin, especially on my left side, started to peal and I could only walk a few steps without falling. 

My GP thought I had a small stroke with some bleeding in my brain when my blood pressure went to 220/140.  The day before my fourth scheduled chemo, we stopped it.  My GP and I both believed another chemo could be fatal.  She pointed out to me that this chemo was preventative; not curative and it was HER job to keep me alive while my oncologist/gynecologist's job was to kill the cancer. I agreed with her 100%. 

That was two and a half years ago.  So far, knock on wood, the UPSC (Stage II, Grade 3) has not returned.  I still have severe neuropathy in my feet which is especially painful at night, my left foot still drops and I have trouble walking on uneven surfaces, my eyesight constantly changes (I've had to change glasses six times in the last couple of years) and my finger and toenails are only partially attached. On a lighter note, my left eyebrow never grew back while my right eyelashes keep growing and I have to trim them.  I had Carboplatin and Taxotere. The Taxotere is now known to affect hair regrowth.

But, I'm still alive!  I went through physical and occupational therapy.  I can read again and although I still have memory problems, it has gotten much better as time has gone by.  The other night, I walked almost half a mile without a walker or cane. I see an acupressurist every other week which has helped the neuropathy.  The feeling has come back in both my hands except for the index finger and thumb on my right hand but at least I can write and type again.  Prior to cancer, I took one pill a day - levothyroxine for my thyroid that I had taken since I was seven.  Now I take 14 (which is down from 18) every day.  

We sold our business last August and retired to Florida.  Just being able to relax and enjoy this beautiful weather has made life so much better.

Love,

Eldri

oldbeauty
Posts: 197
Joined: May 2012

Hi Eldri, I am curious about the benefit you report from acupressure treatment for neuropathy.  I too still suffer from neuropathy in my feet.  I did gain benefit from time away from chemo and I did go thru twice a week physical therapy that focused on retraining my brain to interpret the defective signals from my feet to aid stability and balance and also core strength.  I take R Lipoic Acid and do my PT exercises every day.  I am on vacation now and need to use my hiking sticks for walking any distance.  I do massage once per week mainly for how good it feels.  But I don't really know what acupressure treatment means.  Can you educate us?  Thank you.  Best wishes, Oldbeauty

Armywife's picture
Armywife
Posts: 325
Joined: Feb 2018

I am just reading this harrowing detail of your chemo experience with the two drugs I had also.  Bless you!  You are truly a warrior!!!

It happened to Me's picture
It happened to Me
Posts: 206
Joined: Apr 2014

My gyn onc met with me initially, then he did my surgery, then he met with me for the results and the "plan".  I went to the University of Iowa Gyn Oncologists.  After that, I would see him in the halls, they pass the patients to ARNP's who do the exam's from that point on unless something happens.  The ARNP's told me that the plan is: from the end of chemo, that I would be seen every 3 months for 2 years, then I would graduate to every 6 months for 3 years. I would have a pap test once a year and a chest x-ray once a year. If I had symptoms at any point, they wouldn't hesitate to do a CT scan at any time.  I did have a couple of those because of a cough that had no reason and some shortness of breath and pelvic pain unexplained.  Everything came out fine each time the CT scan was done.   At 5 years, the UofI considers me cured.  At that point, I can go back to my regular gyn or stay with the onc. ARNP.  I am sticking with my ARNP as we have a very good relationship and she is very caring and concscious about my concerns and situations.  It still amazes me what different doctors or establishments and their protocols entail.  We have to be our own advocates for sure.

Donna Faye's picture
Donna Faye
Posts: 267
Joined: Jan 2017

One thing I have learned from this site is that the protocol is different in many places. I have had so many CT scans that I am on a first name basis with the entire staff thereSmile  The one I had after my last chemo saved my life as I had 3 blood clots in my lungs and many more in legs!!! Scared the staff so bad they walked me to oncology and started Lovenox shots right then!!  Like someone said, get a doctor you feel comfotable with and ask all the questions you need to ask. My onc/gyn learned that I was one who wanted to know everything and once she knew that we got on great. I also was very clear that we needed to move fast. Thankfully I have sons and inlaws in medicine and they also advocated for me. Now am feeling really good after my second round for a recurrence.  Hang in there! 

christine8822
Posts: 38
Joined: Mar 2016

Hi, good luck on your surgery. Even if believed it is stage 1, if you have grade 2, I would think they definitely would take lymph nodes. I had 17 out and 3 were positive. It was a bad surprise since docs told me ahead of time that CT scan was clear, that I was stage 1 and all likely would be fine, no big deal. Only after the pathology report came did they find the cancer in the lymph nodes - and that boosted me to stage IIIC, grade 2, with chemo/radiation. So hopefully the doc will take a look at the lymph nodes. It could save your life.

All the best, and everyone on this board is on your side. 

 

grace_of_god's picture
grace_of_god
Posts: 31
Joined: May 2018

Hi ladies!  Well here I am 2 days post op and while it was pretty tough the first night (really messed that up not getting scripts ahead of time)  so I was extremely uncomforable.  Plus even if I'd had them I was not even able to keep water down,  so don't think I'd have kept a pill down.  I started throwing up a few hours after finishing the prep and never stopped till 24 hours post surgery in spite of an ear patch and meds in the IV.  The robotic assisted surgery took about 4 hours and they did take lymph nodes (not sure how many) and my recovery room was rough.  I have fibromyalgia and am bipolar type 2.  My pain register is way up high and I was very wimpy.  The nurses were really yelling at me and I'm sound sensitive so that was freaking me out.   If I'd known how hard of a time I was going to have the first night I would have stayed till next day... they did offer me the choice.  I have had really bad pain while peeing but that is a little easier today.  I took advice from post on here to get a belly band and am glad to have it!  It makes turning over or getting up and down a lot easier.  Post op report to family was that he thought he had gotten everything and we'll see what the reports say at the follow up visit.  I'm glad to have found this support system here with others on similar trips...  it was a gold mine of info while I waited for surgery (that wait was an emotional rollercoaster) and I read and reread a lot of posts.  So all in all I'm glad I did not have to have the big incision of regular surgery.  Only other thing I just remembered is I had a really bad headache up till this morning and I'm guessing that was from the head down position they put you in for this robitic surgery.  I was told my face and eyes could be very puffy.  I didn't puff up but I figure the headache was from that pressure.  Better today! 

MugsBugs
Posts: 110
Joined: Jan 2018

Rest and take care of yourself.  The meds after surgery do help.  I wasn't going to take them and only take tylenol - that didn't last long.  It probably would have been o.k. with tylenol but Percoset was like a miracle drug.  My face was really really puffy after surgery too.  I also gained 14 lbs between the time I left home and returned home.  It was a little disheartening.  However, it came off fast and at my 3 week checkup I had lost 13 lbs from my first visit to the GYN/ONC.  I was also a little depressed which was disturbing to me because I normally have a sunny disposition but that has passed too!  

Give yourself time to heal and I will be praying for you!!!

 

Good luck!

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2609
Joined: Mar 2013

grace_of_god, be kind to yourself.  You just had major surgery and need to take it easy.  Remember, rest is restorative so take as many naps as you need.

Northwoodsgirl
Posts: 559
Joined: Oct 2009

Great to hear you have gotten through surgery. In addition to lots of rest it helps to drink plenty of water to clear the body of anasthesia. Take care. Peace to you...

grace_of_god's picture
grace_of_god
Posts: 31
Joined: May 2018

Had another concern but have read enough now to feel OK... my urine since surgery was very dark and had me worried that there was blood in it, but I see that anesthetics and other meds coming out of your system can cause this.  I no longer have pain on urination now so that's a relief!

 

grace_of_god's picture
grace_of_god
Posts: 31
Joined: May 2018

My post op appointment was dandy all the way through till we got to what the reports showed and they didn't have them.  Not in the system yet.  One hour twenty minutes each way to look at my incisions which are fine.   Deep sigh.  Scheduled again for next thursday to hear the news.  I couldn't believe it.  The sleepless night before and the stress of waiting to hear the important words.  Using all the techniques and activities to get my mind off it but it's very hard not to keep thinking about it.  I am 9 days post op and feeling fairly well.  I could tell the ride and walking for the appointment was a lot of pressure on the sore insides so today I rested.  Kind of achey now but not bad.  I wish all you ladies a wonderful Memorial Weekend.  I'll check back in when I finally learn what my results are! 

CheeseQueen57's picture
CheeseQueen57
Posts: 820
Joined: Feb 2016

That’s awful that they didn’t have. Your pathology report. 

Northwoodsgirl
Posts: 559
Joined: Oct 2009

Oh no! All the anticipation and travel and no results? We all deserve better healthcare than that! It doesn’ t take pathology lab that long to analyze. They should not charge you for that visit. I am sorry you had to go through that. Try to enjoy the holiday weekend and not think too much about pathology report (lack of).  

Lori

Tamlen's picture
Tamlen
Posts: 207
Joined: Jan 2018

I agree with Northwoodsgirl -- I would challenge getting charged for two visits on this. Shame on them for not alerting you the path report wasn't in.

grace_of_god's picture
grace_of_god
Posts: 31
Joined: May 2018

Ya I'm not happy about this follow up. The really baffling part is when I originally scheduled the appointment I was told the doctor had vacation next week so lets get you in friday.  Then I didn't even see him but his PA who I am now rescheduled with.  I'm not happy about the fact that my postsurgical discussion was and will not be with the actual surgeon.  I suppose I could tell them to schedule me with him on his return but it seems like that far out how will he even remember his impressions from my particular case.  This experience has been full of problems like this.  Kind of feels as if I can't depend on some of the basics going right.  Yikes.  The first doc I saw for pelvic, vaginal sonogram and endo biopsy was a old old guy who pushed me right over the edge.  When he called me with the biopsy results he proceeded to say "well your ultrasounds shows some thickening and what I want to do is a biopsy as soon as possible where I'll take..."  I cut in "what the H*!! kind of doctor are you?!  You already did that and you really hurt me."!  I couldn't believe it.  I never swore at a doctor before but you all know the stress of waiting to hear the words it is or it isn't cancer.  Now an elusive surgeon.  Do any of you take this process as a series of tests to see how much you can take while keeping it together and positive?

    

grace_of_god's picture
grace_of_god
Posts: 31
Joined: May 2018

2 weeks post surgery and I am feeling very well.   The first 5 days were hard mainly because of a lot of dry heaving but once that settled down I began to feel a lot better.  Only good part of the bad naseaue is I lost a few pounds which is always welcome for me.  The pain inside is much much better too!  I can really get around and get up or down from sitting or lying with little discomfort.  So later today in about 12 hours I go back to get the labs from surgery.  I'm praying for the "all clear"!  

EZLiving66's picture
EZLiving66
Posts: 1363
Joined: Oct 2015

I sure am hoping for that "all clear" too!!

Please let us know what happens.

Love,

Eldri

grace_of_god's picture
grace_of_god
Posts: 31
Joined: May 2018

I must have extra good prayer warriors on my side because I heard the miraculous words that I was as good as it gets!  Stage 1 Grade 1 no need for any treatment just a 3 month visit for two years etc.  The feeling is amazing and I feel like about the luckiest person on the planet.  The seriousness of my "brush" with cancer will stay with me always.  It has been, without a doubt,  the scariest thing I've ever been through!  I want to reach out and hug you all who are still on that tightrope walk.  What I learned from the shared info and support here is that you all are really, really brave! 

Pages

Subscribe to Comments for "Adenocarcinoma late diagnosis  "