Still in Shock--Wife Just Diagnosed w/ Non-Hodgkins B-Cell Follicular Lymphoma Stage IV

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  • lindary
    lindary Member Posts: 711 Member
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    friendm7 said:

    Small World
    Kelly,

    Wow, guess it's a small world. I'll definitely look up your sister. Need as many in my support network as I can possibly get.

    Trina did round one of chemo on Mon and Tue this week. Still no side effects. I took the week off work to help her get through her first session and we are both surprised that she is still feeling good.

    Man up above must be looking down on us.

    Wishing you the best on this long roller coaster ride we are both on. With your permission, we can get through this together and learn from each other.

    Mark

    treatments

    So how is your wife doing? Hopefully still avoiding most side effects.

    I got through the R-Chop fairly easy. Now doing RICE in prep for SCT since, in my case, the R-CHOP did not get all of the cancer. No side effects from RICE except for hari lose, not that it had grown back much. I am hoping that when I do the SCT the side effects are still minimal.

  • jpsterling
    jpsterling Member Posts: 4
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    I'm so sorry to hear this.  I

    I'm so sorry to hear this.  I was recently diagnosed (I'm older than your dear wife at 61) and my husband seemed to facillate between denial and panic.  It's a hard pill to swallow especially when one looks healthy on the outside. I would encourage you to talk to your wife honestly about how you feel.  The diagnosis is yours too.  Also, as a Christian, I've found reading the promises of God and talk to Christian friends helps tremendously. 

    For me, being diagnosed with FL was life changing.  It made me look at my own mortality and evaluate what is important and what is not.

    From what I'm being told by my care team, FL is very treatable even in stage 3 and 4 (I'm stage 3).  I'm about start rixtuan and bendamustine and my prayer is that it will put me in remission for a very long time.  I will be praying for you and for wife and your precious children.