Anyone taken cisplatin chemo?

Donna Faye
Donna Faye Member Posts: 427

Just want to know if anyone has taken and results thereof. Not sure I want to risk it.

Comments

  • derMaus
    derMaus Member Posts: 558
    I had it

    I had it and had no discernable results other than an overall feeling of ickyness - but I was have pelvic and abdominal radiation at the same time.

  • Donna Faye
    Donna Faye Member Posts: 427
    derMaus

    Was this for when you had a recurrance?  I talk to the oncologist on Tues. She wants me to take with the external radiation. I only had brachy with the 3 carbo/toxol and now have 2 tiny lesions just below where the brachy was before.  SO now 5 weeks of external and 5 more brachy.  So, wondering what to do. 

  • derMaus
    derMaus Member Posts: 558
    edited March 2018 #4
    Yes it was for the recurrence

    Yes it was for the recurrence. I can't say that it made any difference one way or the other; it didn't seem to cause any additional side effects that I could tell.

  • ncg007
    ncg007 Member Posts: 136 Member
    Cisplatin

    I had 2 rounds of Cisplatin concurrent with 28 external rounds of radiation.  This was followed by 4 rounds carbo/taxol.  As far as results, NED for two years from stage IIIC1 high grade mixed UPSC/EAC.

  • Donna Faye
    Donna Faye Member Posts: 427
    Thanks

    Thanks derMaus and ncg007. I will listen carefully on Tues. to the oncologist as she tells me about ciaplatin. Does this cause hair loss ?  Start radiation March 7!

  • derMaus
    derMaus Member Posts: 558
    No hair loss, no real side

    No hair loss, no real side effects that I could tell. It was vey low-dose.

  • pinky104
    pinky104 Member Posts: 574
    Cisplatin

    I had Cisplatin, but only one time.  I'd developed an allergy to Carboplatin after having it in 2010 and again last year for a total of 11 times when I developed the allergy.  In 2010, I had Carboplatin and Taxol.  Last year, I had Carboplatin and Gemzar.  I only had one round of chemo to go when I had the allergic reaction.  The doctor gave me Cisplatin and Gemzar for the last round and I had no problems with the Cisplatin.  I have been NED since then.

  • ncg007
    ncg007 Member Posts: 136 Member

    Thanks

    Thanks derMaus and ncg007. I will listen carefully on Tues. to the oncologist as she tells me about ciaplatin. Does this cause hair loss ?  Start radiation March 7!

    No hair loss

    no hair loss from Cisplatin...wishing you all the best!

  • survivingsu
    survivingsu Member Posts: 134
    Cisplatin

    Cisplatin was one of the chemos I had.  That was eight years ago now.  I'm sorry, I cannot distinguish what affected me, as I had chemo and radiation simultaneously.  I was and am very glad they had ways to treat my cancer.

    Wishing you the very best,

    Susan

  • lonecougar
    lonecougar Member Posts: 5
    edited March 2018 #11
    6 months

    My wife just completed 6 months of Cispaltin and Gemzar. Other than low platelet counts she did very well on it. Since it was a combo chemo it is hard to say which one was to blame for the low counts. The key is to make sure they (and you) pay close attention to your blood tests.

     

  • Sameh shaaban
    Sameh shaaban Member Posts: 11
    edited July 2018 #12

    Cisplatin

    Cisplatin was one of the chemos I had.  That was eight years ago now.  I'm sorry, I cannot distinguish what affected me, as I had chemo and radiation simultaneously.  I was and am very glad they had ways to treat my cancer.

    Wishing you the very best,

    Susan

    hi susan

    glad to hear that u are ok, i read that cisplatin affect hearing , really i would happy to hear from your ex

     

  • derMaus
    derMaus Member Posts: 558

    hi susan

    glad to hear that u are ok, i read that cisplatin affect hearing , really i would happy to hear from your ex

     

    Yes it affects hearing

    My hearing was affected by Cisplatin. The effects wore off a couple of months after treatment ended and haven't recurred.