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CT Scan Results

JanJan63's picture
JanJan63
Posts: 2482
Joined: Sep 2014

I got them today. Nothing exciting. My lung mets are a bit bigger since the last scan in October. My CEA came down a tiny bit, whatever. Unfortunately, the adhesions continue to be a problem and now both kidneys are being pinched off by adhesions that have encircled them. So I guess I'll have to have another stent put in. Which was vey painful. Not the getting it in, the living with it. Spasms off pain that would shoot up into my tummy. Awesome... 

I start back on Panitumumab next Friday. Hopefully this time I can make it through without getting sepsis again. 

Jan

ron50's picture
ron50
Posts: 1729
Joined: Nov 2001

I've had three kidney biopsies. Anything involving kidneys is very painful and very invasive. I hope you start catching a few breaks very soon , Hugs ron.

beaumontdave's picture
beaumontdave
Posts: 1062
Joined: Aug 2013

Hard to know what to say when someone's path is a rocky one. Nothing rah-rah to be sure. I've gotten used to the harder stuff in life, but I can't tell you what I was thinking during the worst moments. I don't remember. Distraction, maybe. I suppose I was just trying to put one foot in front of the other. What gets me through a thing, doesn't seem to easily translate to anyone else, as we're all different. The thing this group brings, besides info, is empathy. For whatever it's worth, know you have ours.................................................Dave

lizard44's picture
lizard44
Posts: 409
Joined: Apr 2015

As Ron said,  I, too, hope you catch a few breaks soon- you have had a really rough road. If you do have to have the stents for the kidney adhesions, do you have  access to a pain managment doctor who might be able to help with the pain?

Grace/lizard44

Joan M's picture
Joan M
Posts: 411
Joined: Oct 2016

Jan, Sorry to hear about your kidney problems.  Hope the panitumumab works for you this time.  Is your doctor reducing the dose?  

Slow-runner
Posts: 55
Joined: Oct 2017

Keeping you in my prayers. Mary

Trubrit's picture
Trubrit
Posts: 5193
Joined: Jan 2013

I'm sorry to hear this. You are always so upbeat about it, but I know you're hurting. It sucks the life out of you to hear bad news. 

But, you know the road, you've travelled it long enough with too many bumps. Keep on keeping on, thats about all you can do. 

Good luck with the chemo, again. 

Tru

Sestra17's picture
Sestra17
Posts: 54
Joined: Jan 2018

Sorry to hear this Jan, you have sure been through the ringer and back again. Keeping you in my thoughts. PS, love your photo with the horses:)

Ruthmomto4's picture
Ruthmomto4
Posts: 659
Joined: May 2013

i guess the fact that the lung mets only got a little bigger is good. I wish they could help with the adhesions, and I really hope the chemo does not get you sick again. I have been thinking of you.

Annabelle41415's picture
Annabelle41415
Posts: 6528
Joined: Feb 2009

Sorry that it's not the results you wanted.  Can't say what it's like to have the kidney situation as I've never been in it but sorry that you have to go through that again.  I'm wishing you the best.  You've been through so much and just wishing you less pain and better news going forward.

Kim

Canadian Sandy's picture
Canadian Sandy
Posts: 630
Joined: Jul 2016

What can I say. Wish the results would have been better. Thinking of you and hoping for better news next time.

abita's picture
abita
Posts: 815
Joined: Dec 2017

I am so sorry.

JanJan63's picture
JanJan63
Posts: 2482
Joined: Sep 2014

Thanks for the support everyone. It was a good news, bad news thing. The chemo should work for the mets again but the idea of having to have a stent again is really upsetting. Every time I sat down it was like having a stick shoved up through me. The pain would make me gasp. When they took it out the doctor said they'd used a really big one so maybe they can use a small one and it won't be so bad. I pray so, anyway. If I have to live with that pain I'll never ride my horse again.

Jan

JanJan63's picture
JanJan63
Posts: 2482
Joined: Sep 2014

I forgot to mention that Ive had a partial blockage since Saturday so haven't been feeling well all week. Makes me miserable. Dehydrated, cramps, weak, fatigued. All thanks to me eating spinach. 

Jan

Annabelle41415's picture
Annabelle41415
Posts: 6528
Joined: Feb 2009

So sorry about the blockage.  People with colo/rectal cancer seem to have much more to deal with after the initial diagnosis/surgery/chemo/radiation due to all the side effects that it all causes.  We have to watch what we eat, how much we eat, how to chew, etc. and still we have trouble.  Wishing you the best - this has to be so hard to deal with. 

Kim

BRHMichigan's picture
BRHMichigan
Posts: 368
Joined: Jul 2017

You look so beautiful and upbeat in your picture. It's so hard to imagine all that you have endured and what you are faced with now. I remember you posted about having good days, and good weeks, and sometimes good months! I understand that now. And I'm hopeful you'll get through these new challenges and enjoy good years ahead! Praying, -Beth

SophDan2's picture
SophDan2
Posts: 145
Joined: Jul 2017

All one can do is imagine what you are going through, as you have been a rcok on this forum and we all feel for what you have to deal with.

I hope that is ends up being the least of all evils for you.

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