Folfiri: Hospitalized and losing hair after 1 treatment

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  • plsletitrain
    plsletitrain Member Posts: 252 Member
    #22
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    I hope all the issues get sorted

    Wishing you well and hopefully your issues get resolved soon. I was just reading your post and it must have been tough, you are such a strong woman.  

  • Joan M
    Joan M Member Posts: 409 Member
    #23
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    Thank you all for the support!

    I've been really tired for the last month.  Haven't been doing much of anything.  The folfiri must still be in my system.  It's hard to get any housework done.  I got really tired shopping with my sister on Saturday, and we were only at the store for about an hour.   I haven't shaved my head because my doctor said he's not putting me back on Folfiri, so I fugured it should start growing back in anytime.  I won't be getting chemo until the problem with my gallbladder is finally resolved.   

    I'm heading back to Mayo on March 7th for a procedure on my bile ducts to help open the cystic duct so my gall bladder will operate normally.  It's called ERCP and is guided by EUS Endoscopic Ultra Sound 

    He will do it endoscopically, going through my esophagus to stomach and duodenum then up throught the common bile duct to the cystic duct.  If that doesn't work, he surgeon will place an internal tube from my gallbladder to my duodenum.  That one will require surgery and more recovery time.   Either way, I won't have to worry about my gall bladder rupturing anymore

    God Bless you all!

    I'll let you know how the procedure goes. 

  • Ruthmomto4
    Ruthmomto4 Member Posts: 708 Member
    #24
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    Joan M said:

    Thank you all for the support!

    I've been really tired for the last month.  Haven't been doing much of anything.  The folfiri must still be in my system.  It's hard to get any housework done.  I got really tired shopping with my sister on Saturday, and we were only at the store for about an hour.   I haven't shaved my head because my doctor said he's not putting me back on Folfiri, so I fugured it should start growing back in anytime.  I won't be getting chemo until the problem with my gallbladder is finally resolved.   

    I'm heading back to Mayo on March 7th for a procedure on my bile ducts to help open the cystic duct so my gall bladder will operate normally.  It's called ERCP and is guided by EUS Endoscopic Ultra Sound 

    He will do it endoscopically, going through my esophagus to stomach and duodenum then up throught the common bile duct to the cystic duct.  If that doesn't work, he surgeon will place an internal tube from my gallbladder to my duodenum.  That one will require surgery and more recovery time.   Either way, I won't have to worry about my gall bladder rupturing anymore

    God Bless you all!

    I'll let you know how the procedure goes. 

    Good luck Joan!

    my husband  had 4 ERCP’s last year, they were non invasive for the most part and other than the last one he was in and out very quickly. The last one the dr got biopsies of his tumors and placed a stent so it took a long time. I hope you are finally able to feel better when this is done you have been through so much! 

  • Joan M
    Joan M Member Posts: 409 Member
    edited February 2018 #25
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    Ruthmomto4 said:

    Good luck Joan!

    my husband  had 4 ERCP’s last year, they were non invasive for the most part and other than the last one he was in and out very quickly. The last one the dr got biopsies of his tumors and placed a stent so it took a long time. I hope you are finally able to feel better when this is done you have been through so much! 

    Thank you Ruth!

    I was nervous, and feel much better hearing that your husband did well even with 4 ERCP's.  I hope one will be all I need.  The doctor is supposed to place a stent in the cystic duct.  I sure hope he doesnt see any cancer.  So far it's been limited to a colon tumor which disappeared after chemo, liver tumors that were killed off by Y90 and ablations, and some lung tumors only 1 was large enough to ablate, and the others are still pretty small. 

    I'll defnitely let you know how this goes for me. 

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