Any long-time Stage 3 survivors?

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Confused39
Confused39 Member Posts: 14
edited February 2018 in Kidney Cancer #1

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  • foroughsh
    foroughsh Member Posts: 779
    #2
    I know some members since 3 1

    I know some members since 3 1/2 years ago who are stage four, they are not active anymore because of busy life. The good news is they are NED.

  • foxhd
    foxhd CSN Member Posts: 3,181 Member
    edited February 2018 #3
    Lots of

    long term  survivors since immunotherapies and  effective TKIs. Remaining stable is the goal. Keeping cancer in check is a reality for many. And some of us are getting pretty good at it.

  • donna_lee
    donna_lee CSN Member Posts: 1,059 Member
    #4
    How about long term stage IV.

    AT the time of original of surgery, June 2006, I had R. kidney, left lobe of liver, and set of nodes adjacent to and behind the kidney with 2 of 11 nodes positive.  A year later, a single node in that same region was found to be enlarging (on comparative CT's) and it was removed surgically.  The folloing year, the same situation, a node in the low pelvis was removed.

    I have had "scares" with follow up procedures on my thyroid (CT found an enlargement, ultrasound, nuclear thyroid test, and a biopsy), all to say that it was negative for any type of cancer.

    Take care of yourself and don't look for statistics that will make you stress out.  Regular life comes with enough stress.

    Hugs,

    donna_lee

  • Jobie123
    Jobie123 Member Posts: 32 Member
    #5
    I’m not a long term survivor

    I’m not a long term survivor but am stage 3  Ta No Mo !! What was your pathology report ??? I know there are many people on here that are such an inspiration to me and are true warriors at stage 4! As I am often told each cancer us different so who knows what are future holds x

  • amandac2018
    amandac2018 Member Posts: 26
    #6
    long term stage 4 survivor-my dad

    Dad is 76, he had a radical nephrectomy in 2011, after 18 months his scan showed mestatasis to liver, pancreas and lungs. He was started on Sunitinib, after a tough beginning with side effects, his dosage was adjusted and he will have been a 5 year survivor this June. He is my inspiration in my journey with RCC

  • todd121
    todd121 CSN Member Posts: 1,448 Member
    edited February 2018 #7
    Long Term Stage 3

    I was diagnosed with Stage 3/Grade 3 RCC in December of 2012. I had a recurrence in February of 2015 (made me Stage 4). Still here.

    So, yes. I'd say there are quite a few of us Stage 3 or 4 here.

    Todd

  • Deanie0916
    Deanie0916 CSN Member Posts: 628 Member
    #8
    Stage 3 survivor

    I don't consider myself long term yet. It has been 17 months and I am still here! NED and just returned from a trip to India! Hope and clarity wished for you...

  • DAC677
    DAC677 Member Posts: 59
    #9
    Deanie0916 said:

    Stage 3 survivor

    I don't consider myself long term yet. It has been 17 months and I am still here! NED and just returned from a trip to India! Hope and clarity wished for you...

    Stage 3C 10/2016

    My tumor was large and had a ratical nephrectomy October 2016. I like to get busy with life and work and trying to publish my first book next month so i dont come here often. But I ride horses and work and travel and do all the normal things

  • Jojo61
    Jojo61 CSN Member Posts: 1,310 Member
    #10
    Stage 3 here. Had a 13 cm

    Stage 3 here. Had a 13 cm tumor...right nephrectomy in December 2013 and I have had NED reports since then! Am approaching my 5 year mark with no recurrences! 

     

  • Lisa7610
    Lisa7610 Member Posts: 11
    edited February 2018 #11
    I will be celebrating 10

    I will be celebrating 10 years on March 25th.

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