Cold Sensitivity

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Comments

  • airborne72
    airborne72 Member Posts: 295 Member
    Me, too.

    I am on the last day of my second cycle of adjuvant chemo (Oxy and 5Fu) and my reaction has been worse, just not tenfold worse.  With this limited amount of adjuvant experience I can easily say that the adjuvant is much more impacting than was the neoadjuvant treatment.

    My reaction to cold definitely intensified this second cycle and has lasted the entire period of time since infusion.  But, it did gradually lessen as the days passed.  I also experienced the muscle cramping in my hands and forearms.  This was initiated when I was sweeping or using the vacuum/rug shampooer.

    My daily "how do I feel" log for my adjuvant chemo has twice indicated that my best days are the last three of each two-week cyle.  What I have done is prioritize my tasks and reserved the physically active tasks for that time.  Yesterday I was a whirlwind for about 4 hours proudly displaying the "ant" mentality by working as hard as I could while I could, knowing that beginning tomorrow I will once again slide back into the depths of fatigue and nausea for a week or so when I begin my third cycle.

    Jim 

  • Nazareth
    Nazareth Member Posts: 88 Member
    [[I can easily say that the

    [[I can easily say that the adjuvant is much more impacting than was the neoadjuvant treatment.]]

     

    Same with me- I'm on treatment 2 folfox and 5FU- and the cold sensitivity really increased on this one- I woudl say yeah- probably 7 fold- Feet- hands, nose- eyes but not throat so far-

     

    My doc gave me Emend for the nausea ($600 for 3 pills taken on all three days) and it works tremendously- no nausea whatsoever- and they gave me Dexamethasone (sterooid i beleive) for combating several things like mouth inflamations/sores, energy level drain, and soem other htigns UI can't remember now- and i have to say it's helping with the energy quite a bit *(I take 2 pills per day for the two days I'm on the 5 FU)

     

    My nurse that comes and hooks me up went through all this and she said it is just going to gradualyl get worse- and she hoped I could go through with it all- she ended up with permanent peripheral nueropathy in foot- I'm really really hoping to avoid that- this cold sensitivity is fairly brutal already at threatment 2

     

    A wierd thing happened to me- I always cramp up with my treatments- legs, hands, neck etc- probably due to soem dehydration- I've been tryign to bulk up on water/gatoraid etc- plus taking magnesium and potasium, and drinking carnation drinks etc- but for soem reason my calf muscles got injured at soem point and i had a real tough time walking- not sure what's goi9ng on here- Seems to me if i cramped up bad enough to injure the muscles during sleep i shoudl have woken up from the pain- but nothign liek that happened- I didn't do anythign strenuous to injure the muscles either- so no idea what happened there- Still walking gingerly on day 3 now)

     

    nyway- it;s a long journey- hopefulyl we can all get through it without too much unbeartablness-

     

    (Sorry for typos- between brain fog, chemo brain, and some kind of neurological issue- My spelling is terrible and htere's no spelling correcion here that i can see?)

  • Trubrit
    Trubrit Member Posts: 5,792 Member
    Nazareth said:

    [[I can easily say that the

    [[I can easily say that the adjuvant is much more impacting than was the neoadjuvant treatment.]]

     

    Same with me- I'm on treatment 2 folfox and 5FU- and the cold sensitivity really increased on this one- I woudl say yeah- probably 7 fold- Feet- hands, nose- eyes but not throat so far-

     

    My doc gave me Emend for the nausea ($600 for 3 pills taken on all three days) and it works tremendously- no nausea whatsoever- and they gave me Dexamethasone (sterooid i beleive) for combating several things like mouth inflamations/sores, energy level drain, and soem other htigns UI can't remember now- and i have to say it's helping with the energy quite a bit *(I take 2 pills per day for the two days I'm on the 5 FU)

     

    My nurse that comes and hooks me up went through all this and she said it is just going to gradualyl get worse- and she hoped I could go through with it all- she ended up with permanent peripheral nueropathy in foot- I'm really really hoping to avoid that- this cold sensitivity is fairly brutal already at threatment 2

     

    A wierd thing happened to me- I always cramp up with my treatments- legs, hands, neck etc- probably due to soem dehydration- I've been tryign to bulk up on water/gatoraid etc- plus taking magnesium and potasium, and drinking carnation drinks etc- but for soem reason my calf muscles got injured at soem point and i had a real tough time walking- not sure what's goi9ng on here- Seems to me if i cramped up bad enough to injure the muscles during sleep i shoudl have woken up from the pain- but nothign liek that happened- I didn't do anythign strenuous to injure the muscles either- so no idea what happened there- Still walking gingerly on day 3 now)

     

    nyway- it;s a long journey- hopefulyl we can all get through it without too much unbeartablness-

     

    (Sorry for typos- between brain fog, chemo brain, and some kind of neurological issue- My spelling is terrible and htere's no spelling correcion here that i can see?)

    No problem

    Don't worry about the typos. We read it like a second language here. I doubt any of us who are going through or have gone through chemo, come out with fingers and brains that have not been impaired. 

    Tru

  • lizard44
    lizard44 Member Posts: 409 Member
    I mix up letters,too.

    But rather than blaming it on chemo brain I think of it as my brain thinking faster than my fingers can type Cool

    I had eight adjuvant treatments with Folfox and Avastin and avoided cold sensitivity problems by not eating, drinking, or touching anything cold for the entire treatment time. I wore socks at all times and wore gloves whenever I reached in the fridge or went grocery shopping. It was summer in the Deep South so I didn't have to worry about cold weather but wore a sweater in air conditioned places.

    I may have looked eccentric but that's one of the perks of being elderly, people expect you to be a little odd, Wink

    Grace/lizard 44

  • Nazareth
    Nazareth Member Posts: 88 Member
    I'm not dislexic, just my

    I'm not dislexic, just my fingers are lol- the neuor issue causes me to see the word correctly, but my fingers mix up the letters on their own lol-  you'll note over time they are mostly the same words, like thouhg htis htat, havign etc- with spell correctors I spend a lot of time correcting lol- funniest part is that once upon a time i was the editor for school newspaper- I miss my brain-

  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    lizard44 said:

    I mix up letters,too.

    But rather than blaming it on chemo brain I think of it as my brain thinking faster than my fingers can type Cool

    I had eight adjuvant treatments with Folfox and Avastin and avoided cold sensitivity problems by not eating, drinking, or touching anything cold for the entire treatment time. I wore socks at all times and wore gloves whenever I reached in the fridge or went grocery shopping. It was summer in the Deep South so I didn't have to worry about cold weather but wore a sweater in air conditioned places.

    I may have looked eccentric but that's one of the perks of being elderly, people expect you to be a little odd, Wink

    Grace/lizard 44

    Odd

    I've blamed a lot on chemo brain.  And yes sometimes your brain doesn't work like it should but my fingers mean the right writing and my mouth means the right words it just doesn't always seem to come out right LOL.  We just have to deal with it.  Plus, like you said, I'm getting older and even my kids say "you told me that already."  Oh well.

    Kim

  • Mikenh
    Mikenh Member Posts: 777
    lizard44 said:

    I mix up letters,too.

    But rather than blaming it on chemo brain I think of it as my brain thinking faster than my fingers can type Cool

    I had eight adjuvant treatments with Folfox and Avastin and avoided cold sensitivity problems by not eating, drinking, or touching anything cold for the entire treatment time. I wore socks at all times and wore gloves whenever I reached in the fridge or went grocery shopping. It was summer in the Deep South so I didn't have to worry about cold weather but wore a sweater in air conditioned places.

    I may have looked eccentric but that's one of the perks of being elderly, people expect you to be a little odd, Wink

    Grace/lizard 44

    I think that people are

    I think that people are making more mistakes in general but moreso because of auto-correct. The effects are that it makes us lazy in spelling and that it also can make usage errors. There's also typing on mobile devices or keyboards that aren't so great.