Question about Symptoms

2

Comments

  • MeinMississippi
    MeinMississippi Member Posts: 39
    ConnieSW said:

    I'm so glad

    the two of you linked up. This board is a wonderful place and I'll always be grateful to Linda P. for getting it started. 

    Me too!  It seems so

    Me too!  It seems so therapeutic to learn about what other people are going through and letting them know they have support. It definitely takes my mind off the anxieties I have about things. This board is a blessing to so many!!  

  • MeinMississippi
    MeinMississippi Member Posts: 39
    HorseLvr said:

    Thank you. I really like this

    z

    Be careful with estrogen.

    Be careful with estrogen. Being bigger women as we are, uterine cancer can be caused by an overproduction of estrogen. Estrogen is stored in fat cells.  My mother developed breast cancer due to being prescribed large amounts of estrogen (she was not overweight). I would wait and find out more about what you have going on and see what your doc says if you're given the all clear. You even have to kind of be careful with natural forms of estrogen as well. But like I said, your doc can give you better advice. 

  • NoTimeForCancer
    NoTimeForCancer Member Posts: 3,351 Member
    HorseLvr said:

    I've done some reading on it,

    z

    To add to MeinMississippi's

    To add to MeinMississippi's comment, as someone who had UPSC I was told specifically I could have nothing with hormones as it feeds this particular cancer.  I think that is why one of the warnings seen on tv with the ads states, "have had uterine cancer".  

  • TeddyandBears_Mom
    TeddyandBears_Mom Member Posts: 1,811 Member
    HorseLvr said:

    From what I've read, the

    z

    Try vitamin E suppositories.

    Try vitamin E suppositories. They are inexpensive and really help. I get mine on Amazon. Also, drink a lot of water.

    Love and Hugs,

    Cindi

  • TeddyandBears_Mom
    TeddyandBears_Mom Member Posts: 1,811 Member
    edited November 2017 #26
    Good update HorseLvr. It

    Good update HorseLvr. It sounds like you found a great doctor. That is priceless! Please come back and let us know how the US goes.

    Love and Hugs,

    Cindi

  • MeinMississippi
    MeinMississippi Member Posts: 39
    edited November 2017 #27
    HorseLvr said:

    I saw the gyn today, and he

    z

    Thanks for letting us know

    Thanks for letting us know what happened. It does sound like you have a good doctor. I'm glad you were able to get on the exam table fairly easily. Now you have to give us the update after your ultrasound. I wish you the best my friend!!

  • leeangelau
    leeangelau Member Posts: 13
    edited November 2017 #28
    So glad you are now getting

    So glad you are now getting some answers. Sometimes it just seems like getting past the first step is the hardest. Now everything you need to do will hopefully fall in sync and you will feel comfortable dealing with.I saw you commented on my post, thank you. I havent gotten around to answering yet. It's been a hectic few days. I cant believe as I look at the date that its the 1st Decemeber already. Wow right? There goes 2017 in a heartbeat. 
    When are you having the Trans Vaginal Ultrasound? At least now you can get that over and done with and move on to whatever stage you need to. 
    I will keep checking in to see how you go xInnocent

     

  • HorseLvr
    HorseLvr Member Posts: 102
    If anyone knows how to delete

    If anyone knows how to delete your profile, please let me know. I thought I had seen that option a while ago, but cannot find it anymore.

  • MAbound
    MAbound Member Posts: 1,168 Member
    edited December 2017 #30
    Wishing you peace with your decision

    It breaks my heart to read your words, but ultimately it's your right to choose the path you want to take. I'm so sorry we couldn't find a way to help you overcome your extreme fear. I feel like such a failure and dread what the future holds for you, but ultimately it's in your hands. I won't forget you and will always be praying that you find some peace and comfort as time goes on.

  • ckdgedmom
    ckdgedmom Member Posts: 166 Member
    I agree MAbound

    As MAbound said I hope you will find some peace and get some relief from the ailments you have...no one wants to be uncomfortable or in pain...

    please don't let fear compromise your health....find a doctor you trust and feel safe with....most of us here have looked death in the eye with our cancer and I'm pretty sure all the ladies who are surviving would agree that we wouldn't wish this disease on anyone. IF you do have cancer please know that although the treatments can be rough that it is so worth it to live...and living with the consequences can be far worse than some nausea for a few days or aching body for a week. I know I was surprised by how much easier it was compared to how much I feared it would be. And to me my life is worth a bit of struggle for.

    I totally understand if you want to leave this forum (sorry I don't know how to delete an account) but I pray you will talk more with your doctor (or find another) before you decide not to find some answers to your bleeding and issues...

     

  • HorseLvr
    HorseLvr Member Posts: 102
    Thank you for the replies and

    z

  • HorseLvr
    HorseLvr Member Posts: 102
    He told me the biopsy would

    z

  • HorseLvr
    HorseLvr Member Posts: 102
    Editgrl said:

    Everyone is different

    It's possible a biopsy would feel like a cramp.  Mine did.  However, other women have had much more painful experiences.  Quite honestly, in your situation, I think I would opt for the D&C.  As others have said, it is not unusual for a biopsy to miss the spot where the cancer is, while the D&C is pretty definitive and with all of your symptoms, definitive is what you need.

    Please work with your doctor to come up with a plan that can address your anxieties and fears.  I am so sorry that anesthesia is such a trigger for you. You really do need to have these procedures done.  They may put your mind at ease. And if it does turn out to be cancer, then you and your doctors can come up with a plan to treat it.  

    Thank you. I don't know why I

    z

  • HorseLvr
    HorseLvr Member Posts: 102
    ConnieSW said:

    Famous last words

    My gyn looked me in the eye at my initial visit and told me, " You do not have cancer."  Lucky for me my body shed cells that were picked up on my Pap smear or I would have gone my way and been later diagnosed at a more advanced stage than 1a. It is  nearly 6 years later and without that lucky fluke I might not be here now. 

    If you do have cancer and choose to have it treated, you will have to face anesthesia.  Let your doctor help you through your fears and do the best diagnostic workup he can. 

     

    We once had a well liked member on here  who kept postponing treatment and picking and choosing which recommended procedures she would accept.   She died. This is serious business. 

    Yes, I've been thinking about

    z

  • HorseLvr
    HorseLvr Member Posts: 102

    I understand being scared. I

    I understand being scared. I wasn't scared of the biopsy, but that hurt. I was a little nervous about the hysterectomy as I had never had surgery before, but it wasn't bad at all. After having a reaction to my first chemo drug, I am a little scared of trying again, but I have to. As a friend of mine, and a two time cancer survivor likes to say it's better than pushing up daisies and having your husband have to mow over you. She always makes me laugh, but she's right. None of this is fun or easy, and it's often scary, but sometimes we just have to do it or face worse consequences. 

    I hope it's not cancer, and all goes well!

    Thank  you. I'm hoping it's 

    z

  • HorseLvr
    HorseLvr Member Posts: 102
    I meant to mention this, but

    z

  • HorseLvr
    HorseLvr Member Posts: 102
    hopeful56 said:

    I am staged 1a with

    I am staged 1a with microcscopic cancer.  If I had the biopsy done in the office more than likely would not have been picked up.  Talk to you doctor about your fears of anesthesia.  There is a lot they can give you.  During the hysterscopy procedure, the surgeon was able to see on the wall the spot that did not look right.  That is where the cells were. I then had to have a hysterectomy. 

    It is your choice, but you have to weigh what will be the best procedure to find, if any, evidence of cancer or to rule it out. 

    Good luck with your decision.

    Sandra

    Thank you for your response.

    z

  • HorseLvr
    HorseLvr Member Posts: 102
    edited December 2017 #39

    I'm a big girl too, and I

    I'm a big girl too, and I also suffer from sleep apnea. I had ultrasounds that did not show anything wrong, but ultimately I did have cancer. Maybe you could ask the doctor to give you an anti-anxiety pill before your procedure. I'm not a medical professional, but I most definitely think you need that D&C. If you have just the biopsy and you have a bad experience I feel like that would bring your anxieties to an even higher level. 

    Before my D&C I talked to the nurse anesthetist who happened to be a friend of mine. He said when you go under general anesthesia it's a lot easier for them to control your airway and breathing. I have horrible obstructive  sleep apnea and have never experienced a problem with them getting my airway  Also, the Propofol will not erase your memory. At least that's my experience. I've had 13 surgeries. The propofol just helps put you under. I remember everything before I was put to sleep and after I woke up. Please get that D&C. You'll make us all feel better!!  You can do this!!  

    Thank you so much for the

    z

  • HorseLvr
    HorseLvr Member Posts: 102

    I'm so glad your doctor is

    I'm so glad your doctor is going to sit down with you and address your concerns. When I talked to my gynecologic oncologist before my hysterectomy I wrote down all my questions and she answered them beautifully. It eased my mind so much. I think with your mobility issues you need to be able to be relaxed and I feel like they can control that through IV medication. Again, I'm no medical professional, I just know what I experienced. The medical team will also know how to address your diabetes and sleep apnea. The pre op bed should be easy to get on to so that should be helpful. Also, not to freak you out, but definitely get the doctor to address your vulvar issues because that could be a serious health issue as well. Please let me and all of us know how it goes. I go Thursday to have my bladder mass removed, and I'm very nervous, so I'm right there with knowing how you feel. However, we can do this. There are so many sweet ladies on this board that have been through so much more than I, and they give me the inspiration to keep going. We're all going through this together. I will keep you in my prayers and I pray that your anxieties will be calmed. 

    Thank you. I really like this

    z

  • HorseLvr
    HorseLvr Member Posts: 102
    edited December 2017 #41

    Be careful with estrogen.

    Be careful with estrogen. Being bigger women as we are, uterine cancer can be caused by an overproduction of estrogen. Estrogen is stored in fat cells.  My mother developed breast cancer due to being prescribed large amounts of estrogen (she was not overweight). I would wait and find out more about what you have going on and see what your doc says if you're given the all clear. You even have to kind of be careful with natural forms of estrogen as well. But like I said, your doc can give you better advice. 

    I've done some reading on it,

    z