A new path forward...

2»

Comments

  • derMaus
    derMaus Member Posts: 558 Member
    Not the right words, but...

    I haven't responded to your post because I keep waiting for the right words to come, but they just wouldn't. I'm so sorry. These are my un-right words: to H*LL with scans. There's nothing actionable and your liver is behaving itself, so those miscrscopic bits of fairy dust are just that - dust - until something more substantial comes up. No wonder you have the heebie jeebies; who wouldn't? Given the havoc those scans wreck on our mental health, I often wonder about the spillover on our physical health. It almost makes me nostalgic for the days when the doctor doled out information on a need-to-know basis. As it is now, we have TMI and nothing we can do about it, which is the height of anxiety.  I hope that by now you have more energy and are able to look forward to Thanksgiving in the way you deserve. Of course you're down but you're far from OUT, and there are still options ahead of you so please try to focus on that. You said you're not eligible for immunotherapy, but they're finding that combining two kinds of therapy at once can result in a response where none existed before so I have hope for you in that area. Please know you are in my prayers, best always, B

  • henhill
    henhill Member Posts: 123
    every hope

    I have every hope you will be on a different, better track.  My last experiment didn't pan out either. At the end I was in awful pain. lost 20 lbs and my appetite, but the new treatment caused this to reverse itself.  Hard, but working.   Hugs to you