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Scanticipation

APny's picture
APny
Posts: 1987
Joined: Mar 2014

Getting a bit anxious. My 3 ½ year follow up scans and x-ray are on Thursday then I see the doc on Friday to discuss scan results. Leaving for NY tomorrow. I wish it was next week already. Hate this edgy nervous feeling.

Wehavenotimeatall
Posts: 489
Joined: Aug 2017

Fear is terrible so head high and best of luck

lobbyist0724's picture
lobbyist0724
Posts: 418
Joined: Sep 2016

Same here, had my first year x-ray and Ab US last month but the urologist vist to see the report is today... Have been anxious for the whole month, finally call the office and ask the nurse do I need to come in earlier and she said there is no note on your report, so I try to tell myself that is a good news!

Best wishes on yours!

Optimisticgirl's picture
Optimisticgirl
Posts: 82
Joined: Aug 2017

to you! Hoping your scan goes smoothly! 

APny's picture
APny
Posts: 1987
Joined: Mar 2014

Thank you so much. And Lobbyist, I would take that as good news too. Did you go see urologist?

lobbyist0724's picture
lobbyist0724
Posts: 418
Joined: Sep 2016

Waiting for over an hour at his office, but it is worth it, turns out to be my first NED Anniversary!I wish you the same!!!

daisybud's picture
daisybud
Posts: 490
Joined: Jan 2016

Wishing you only good  news with your scans! 

Kim

 

 

APny's picture
APny
Posts: 1987
Joined: Mar 2014

Thank you kim. Lobbyist, that's terrific news! Yay you.

Scottie22's picture
Scottie22
Posts: 76
Joined: Apr 2013

A couple of months ago I was in the same place you are now.  You sent me good wishes and a pick me up message which helped a lot. Mine turned out just fine.  I am now returning the favor and wishing the same good news for you.  All the best!

APny's picture
APny
Posts: 1987
Joined: Mar 2014

Thanks so much, Scottie. So glad all went well for you.

AnnissaP's picture
AnnissaP
Posts: 632
Joined: Sep 2017

I wish you all the best!! Easy for me to say relax and that worrying doesn't change anything.....but I hope peace comes over you!!!

icemantoo's picture
icemantoo
Posts: 3279
Joined: Jan 2010

APNY,

 

I hear Uncle Ned is following you.

 

 

Icemantoo

APny's picture
APny
Posts: 1987
Joined: Mar 2014

Anissa, thank you. I hope so too! Iceman, now that's one stalker I would welcome for the rest of my life Smile

Retcenturion's picture
Retcenturion
Posts: 240
Joined: Mar 2017

Hope you have positive results on your scans and are able to enjoy a little time in NYC.

love_of_my_life
Posts: 77
Joined: Jul 2012

We were in the same boat a couple of weeks ago.  

Good luck with the results!  Praying for you!

stub1969's picture
stub1969
Posts: 864
Joined: Jul 2016

Wishing you only the best.  Good luck!

Stub

foxhd's picture
foxhd
Posts: 3183
Joined: Oct 2011

Who is afrraid of scans? The latest and greatest info available to lead to a long healthy life. Apny, I had mine a couple weeks back. I'll talk with doc on fri. about new plan. I already know the my results. I'm thrilled I made it this far. The important thing is that after 6 1/2 years I'm still only stage 4. Stay strong. The long term goal despite minor bumps is to avoid stage autopsy. I believe you will recieve wonderful inspiration and will begin to focus on your dreams and will never be afraid again.

rhominator's picture
rhominator
Posts: 233
Joined: Nov 2015

I'll echo what Fox said. 

hardo718's picture
hardo718
Posts: 853
Joined: Jan 2016

May the NED force be with you no matter where you roam.

Donna~

APny's picture
APny
Posts: 1987
Joined: Mar 2014

Thank you so much everyone. Foxy, you made me cry. Youre one of my greatest heroes. I'm sure whatever plan they have for you you'll do with flying colors. Scan and X-ray this afternoon. Hate the waiting. Best to all!!

RickToo
Posts: 2
Joined: Feb 2017

Hope all goes well for you.

Just passed my 1 year mark. Very psyched.

APny's picture
APny
Posts: 1987
Joined: Mar 2014

Ok so kidney scan fine but they saw a nodule on my lung on the X-ray and want a CT scan. Naturally stressing my butt off. He said he was unconcerned and at first said we'll do it next year along with other tests but then called me after I left and thought we should do it sooner. I'm going to do it back home since I can't fly to NY again in two weeks. So I'm happy about kidney but concerned about that nodule. 

Scottie22's picture
Scottie22
Posts: 76
Joined: Apr 2013

Great news on the kidney scan but sorry you have to go through another scan on your lung.  From what you say it would appear that your doctor is using an abundance of caution in having it checked now rather than later.  I know the stress that comes along with this and feel for you but hang in there it will all work out.. Wishing you well!

Joan

Allochka's picture
Allochka
Posts: 922
Joined: Nov 2014

Oh Apny, sorry to hear about new worry. I would worry like hell too.

But as we know, nodules can be on lungs due to many-many things, they pop up after chest infection or smth and never change. And remember recent Donna's case, her lung growth appeared to be ņothing!

I hope you'll be able to wait for scans more or less calmly, and that they turn out allright!

Alla 

lobbyist0724's picture
lobbyist0724
Posts: 418
Joined: Sep 2016

It must be stressful to here the news, but I think it is because the doctor knows that your are worry and rather do the test earlier to ease your mind instead of waiting for another year!!!  (my doctor knows that I am the anxious type, so he always wanna to reassure me). With the primary tumor that size, I believe you will just be fine!

hardo718's picture
hardo718
Posts: 853
Joined: Jan 2016

Please keep us posted.

Donna~

APny's picture
APny
Posts: 1987
Joined: Mar 2014

Thanks guys. It's just so disappointing after being told it can wait then wham, get a call that it can't. And I'm not in NY anymore so I flew up for the tests. If he told me right away while in the office I'd have extended my trip and insisted on a CT scan right away. But he let me go back to hotel and then I get the call. Now I either have to done it down in Florida or go back up. I really don't know what to do. And I'm worried why he changed his mind. I guess stressing is not going to do any good but I can't help it. He even said it's most likely nothing to do with kidney but then there's always the chance that it's another primary.

Wehavenotimeatall
Posts: 489
Joined: Aug 2017

I hope you don’t not think I didn’t sound sympathetic. I was trying to gee you up for the good news I thought you were going to get.  Sorry (lession learned)

You are no doubt panicking as is understandable

when do you think you will get the test done

 

I am praying like crazy that this is nothing or something very treatable

what size of nodule is it  it must be very small if they were originally going to wait six months

it sounds like surgeon has spoke to someone else after you left and they decided to reschedule which is what you no doubt wanted in the first place

 

I am Holding your hand all the way from uk

 

Annie

 

 

 

APny's picture
APny
Posts: 1987
Joined: Mar 2014

Oh no, of course I don't think that, Annie. Never for a second. I think he may have spoken to somene else too. Why else the change of mind? At first he said next year! (I go for yearly now since everything was clear). I've no idea of size because the report hasn't been uploaded to my portal yet. He was so nonchalant discussing it at first. Like, no worries, he's not concerned, blah blah. We'll CT it a year from now. I've no idea when we'll do it because I'm back in Florida and they need to send me the CT request. Then I have to find a place to do it. Thank you so much for concern.

Optimisticgirl's picture
Optimisticgirl
Posts: 82
Joined: Aug 2017

You can do the chest ct in Florida and the results can be uploaded by Dr in NY, correct?  Perhaps he is being supercautious and wanting you to get results asap.  

Hoping whatever it is turns out to be nothing serious.  

 

APny's picture
APny
Posts: 1987
Joined: Mar 2014

Thank you. Yes, I hope it can just be uploaded to NY. Or I may go back and do it there. I don't know what to do and what would be best. Hope it's nothing too.

Allochka's picture
Allochka
Posts: 922
Joined: Nov 2014

Spoken to someone or simply thought about it again and quite prudently decided to cover his back. Imagine - a nodule is discovered on the lung of a patient with cancer history, and he does nothing for a year! Too dangerous for him, of course he decided to be too cautious and check now. 

I know that advise to stress less won't help. But even in the worst case scenario ( a met or a new primary) it would be very treatable in both cases (I've googled today. Don't do that yourself please!) And I also read that nodules are very common and majority is benign. So first docs reaction shows that he is pretty confident it's nothing.

Can you call him and ask if OK to have a scan at home and then upload? I find that having a clear "plan of attack" always helps me not to stress.

And I'll say it again - think of Donna's lung tumor, they almost biopsied her, and it appeared to be nothing!

APny's picture
APny
Posts: 1987
Joined: Mar 2014

Allochka, you're right of course. And the sane part of my mind says the same thing: that to wait for a year with someone who has a cancer history would be negligent. But the crazy part of me wishes we did wait. I know, stupid sticking my head in the sand. I keep telling myself it's probably nothing but when the last 7 x-rays showed nothing and then sudenly there's something I can't help obsessing that it's a met or a primary.

He did say I can do it down here in Florida but I don't know what would be smartest. Do it where they always did it (Sloan Kettering) or in a new place.

I'm sorry I'm going on and on about this but it's very scary especially since nothing showed up on all those 7 prior checkups since my surgery in 2014. I really appreciate everyone's patience, help, and support.

daisybud's picture
daisybud
Posts: 490
Joined: Jan 2016

Apny,  I can't imagine what you're going through.  The stress of these scans are awful.  Just want you to know I am thinking about you and saying a prayer for you. 

Kim 

foroughsh's picture
foroughsh
Posts: 779
Joined: Oct 2014

Apny, I think it's best to stay vigilant and do all need to be done as soon as possible, imagine the report states it's nothing serious a week or two from now. In this case why would you remain worried for almost a year to receive such good news. In worst case scenario and if it turns out to be something we don't hope for, it's again good to know it and treat it sooner.

My 3 1/2 year check up is next sunday and I've already had nightmares all related to Mets. I'm doing my best to stay calm but we all know it's easier said than done.

You're in my mind and prayers.

Allochka's picture
Allochka
Posts: 922
Joined: Nov 2014

Apny, no need to be sorry, we are here for you!

I've heard that  if you started the scans in a certain facility it is better to continue them in the same one (same equipment, same techs, same radiologists, etc) . But you have never had chest CT before right? Then perhaps it doesn't matter where to make it? Can you have them in Florida, reviewed by local radiologist, and then upload for your NY doc, where he can show them to his radiologists? Thus you'll get 2 opinions.

I wish it turns out nothing!

APny's picture
APny
Posts: 1987
Joined: Mar 2014

You guys are the best. I'm so appreciative I can't even say. Foroughsh, wishing you the very best results on your upcoming checkup. It's so true that staying calm is easier said than done.

I'm still undecided on where to do it. No, I haven't had a chest CT since 2004 when they did find a harmless nodule. Maybe this is the same one. I've no idea. Thank you again for all the good wishes and understanding. Friends and family are of course supportive and loving but honestly, only you on this forum truly get it.

Allochka's picture
Allochka
Posts: 922
Joined: Nov 2014

Do you have old records? Can tou compare x-ray results? Like same lung, same lung segment.. Perhaps it is really the same, and all worry is for nothing? previous x-rays could have missed it, and the last one did see it...

APny's picture
APny
Posts: 1987
Joined: Mar 2014

Like I said, I have had seven x-rays as follow up after my surgery and none showed anything. And the latest one that does has not been uploaded to my portal yet so I can't compare it to the ancient one I had in 2004 that sent me for the CT scan back then. But yes, it's possible that they missed it before; what's scaring me is that perhaps it grew fast to this size that they can finally see it. My last one in October 2016 showed nothing. As soon as it's posted I'll compare it to that old 13 year old x-ray/CT scan and see if it's even in the same location.

Allochka's picture
Allochka
Posts: 922
Joined: Nov 2014

That would be great! But I won’t be surprised if it is the same one, just not mentioned on previous x-rays. My husband has some lung fibrosis from pneumonias. Sometimes it is mentioned on his x-rays, sometimes not. But it is always there.

please keep us posted!

APny's picture
APny
Posts: 1987
Joined: Mar 2014

Thanks so much Allochka. You're so supportive and make me feel better!

sandy23
Posts: 143
Joined: Jan 2017

I just wanted you to know that we are here for you.  Have you had any type of allergy or virus?  I'm pretty sure any of those sort of things can cause a lung nodule.  If your doctor was originally willing to wait a year, he must feel pretty confident that it's nothing.

APny's picture
APny
Posts: 1987
Joined: Mar 2014

Sandy, thank you so much. No, I haven't had any illness, not even a cold for ages. I'm just hoping too that if he was originally willing to wait a year it couldn't have looked that bad. Can't wait till they post the report so I'll know more about where it is and how big.

foroughsh's picture
foroughsh
Posts: 779
Joined: Oct 2014

Apny, I remembed once something was written in my x-ray repot. I don't remember what it was, my urologist looked at x-ray himself and showed me the shape of that thing and explained rcc mets shape aren't like that. He guessed it was something from old time infection but suggested to have it checked by CT to make sure it was what we thought it was. I got anxious because it was few weeks post my surgery i was almost dying of crying and sleepless nights but it turned out to be nothing serious. The point is it is never mentioned on my CT reports but it is mentioned on some  X-ray reports.

APny's picture
APny
Posts: 1987
Joined: Mar 2014

Froughsh, thank you. That makes me feel better. I'm hoping he could tell from the shape that it's benign and that's why he wasn't concerned at first. It's just that this whole nightmare with RCC started with a CT scan for what they thought was a UTI so it's like de ja vu. I finally got off Xanax a few months ago and now I'm trying hard not to go back on it but this doesn't help.

Hope your upcoming checkups are all NED!

hardo718's picture
hardo718
Posts: 853
Joined: Jan 2016

Small nodules will show up on CT and don't typically on a chest x-ray.  So, please forgive me, did you say this showed up recently on a scan or x-ray?

I'm hoping and praying it was a scan, and you can take comfort in that it is probably small and nothing to be concerned over.

Prayers,

Donna~

APny's picture
APny
Posts: 1987
Joined: Mar 2014

No, unfortunately it showed up on the x-ray. That's why he wants the CT scan.

hardo718's picture
hardo718
Posts: 853
Joined: Jan 2016

Whatever you decide, as far as travels, please know you are in my thoughts & prayers.

Donna~

JerzyGrrl's picture
JerzyGrrl
Posts: 760
Joined: Jun 2016

If you do go back to NYC for the CT scan, I'd recommend immersing yourself in some of the beauty and awe of the City -- art, music, science, dance, history, natural history, ride a ferry, etc. There are even some great bicycle trips around Brooklyn and other unexpected activities. If you DON'T go back to NYC for the CT scan, I'd recommend immersing yourself in some of the beauty and awe of where you live.

Way healing for scanticipation or anything else that ails your body and spirit. 

APny's picture
APny
Posts: 1987
Joined: Mar 2014

Thank you, Donna. Much appreciated! Jerzy, thanks. So true about NY. I lived there for most of my life just about. Unfortunately since I moved going back for checkups is so stressful that I'm finding it hard to enjoy anything about the city and just want to get it over with and get out as soon as possible. Not a great mindset, I know, but hard to change. I'm still so torn about where to do this damn CT scan.

foxhd's picture
foxhd
Posts: 3183
Joined: Oct 2011

my first comment.

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