Newly Found Lung Mass

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Comments

  • kfs52
    kfs52 Member Posts: 31
    Bronchosocopy

    Meggie,

    I dont know about you, but I just had my bronch this morning and I feel icy and I am coughing up alot of blood.

    When I left the hospital, they gave me a report. It is long, but the important parts go like this:

    Findings:

    Sharp main carina

    Enfobronchial mass occuding 100% of RUL bronchus and compressing bronchus intermeduis as well. Unable to pass bronchoscope through bronchus intermeduis. Mass is friable.

    Summary:

    Lung mass suspiciuos for cancer vs carcinoid

    Recommendations

    Follow results of cultures, cytology and pathology.

    Then a bunch of do's and don't for the day.

    If anyone has any imput on what the above means, let me know. They just handed me this report. It sounds like he is saying my whole right side is 100% blocked with something that may be cancer.

    Meggie - maybe these are the intial report that you were expecting, did you get something like this?

     

  • Meggie1984
    Meggie1984 Member Posts: 14
    edited August 2017 #43
    kfs52 said:

    Bronchosocopy

    Meggie,

    I dont know about you, but I just had my bronch this morning and I feel icy and I am coughing up alot of blood.

    When I left the hospital, they gave me a report. It is long, but the important parts go like this:

    Findings:

    Sharp main carina

    Enfobronchial mass occuding 100% of RUL bronchus and compressing bronchus intermeduis as well. Unable to pass bronchoscope through bronchus intermeduis. Mass is friable.

    Summary:

    Lung mass suspiciuos for cancer vs carcinoid

    Recommendations

    Follow results of cultures, cytology and pathology.

    Then a bunch of do's and don't for the day.

    If anyone has any imput on what the above means, let me know. They just handed me this report. It sounds like he is saying my whole right side is 100% blocked with something that may be cancer.

    Meggie - maybe these are the intial report that you were expecting, did you get something like this?

     

    So Sorry

    Kimberly

    It was only this morning that I realized that I had been given a needle biopsy and that possibly you were having the biopsy that puts a tube down your throat.   All I know about your kind is what I learned from reading on this site.  I am so sorry that it was so unpleasant   As far as your report goes, I am amazed----dumbfounded!----that you were handed  a written report with no explanation whatsoever.  As for me, my pulmonologist sent me to a radiologist in a different hospital than the one he is affiliated with.  I have to get my results from my pulmonologist and they have not received the report yet from the other hospital.  It's been eight days of waiting now---no fun but I'm thinking I would rather wait and have the results explained to me by a sympathetic and caring doctor-----to whom I could ask any question I wished to----than to have a  report handed to me after the procedure which might as well be written in Russian for all I could get out of it.  I have read your report five times.   What is a "carcinoid'  ?Is that what you might have?  Because all the report says is "suspicious for cancer".  Maybe there are people who will read your post and be able to explain it.  But it is far beyond my mental efforts.  Sorry again for wrong news on biopsy

  • kfs52
    kfs52 Member Posts: 31
    Meggie

    I have an appoinment with the pulmonlogist (he is the one who perfromed the procedure) Thursday, he wants one more test done before we review all the test restuls from the last week (3 tests, the spiro whatever, this biopsy, and Quantitative V/Q lung scan). Then he will review where we are at on Thursday.

    BUT, nothing means anything until the biopsy results come back. AND, that is what we wait a couple weeks for.

    They also gave me a whole list of pictures of the bronch procedure so I can see the mass for myself. Actually it looked quiet there until he started messing with it, 30 minutes later it was inflammed.

    Now I feel like given the night I just might be able to cough it out myself - or choke on it, who knows.

    I think I should have asked for drugs for when I came home!

  • Meggie1984
    Meggie1984 Member Posts: 14
    kfs52 said:

    Meggie

    I have an appoinment with the pulmonlogist (he is the one who perfromed the procedure) Thursday, he wants one more test done before we review all the test restuls from the last week (3 tests, the spiro whatever, this biopsy, and Quantitative V/Q lung scan). Then he will review where we are at on Thursday.

    BUT, nothing means anything until the biopsy results come back. AND, that is what we wait a couple weeks for.

    They also gave me a whole list of pictures of the bronch procedure so I can see the mass for myself. Actually it looked quiet there until he started messing with it, 30 minutes later it was inflammed.

    Now I feel like given the night I just might be able to cough it out myself - or choke on it, who knows.

    I think I should have asked for drugs for when I came home!

    Waiting

    Kimberly

    So it really is a few weeks wait for the biopsy results.  Well, you certainly have had a lot of tests lately.  Bad luck for you that they need so many tests to figure out what is gong on.  The waiting is almost impossible to contemplate. And youre right---you should have asked for drugs when you came home.  That way maybe you could have zoned out for the next few weeks.  I will let you know my news whenever I hear it.  

  • kfs52
    kfs52 Member Posts: 31
    Tests

    Meggie, yes the results are what they are. We just have to wait. I think the doctor can guess, but I have looked at pictures online of what they saw in the bronch and it is still anyone's guess what it is - util that biopsy comes back. So I think what you think you should have gotten is the report and the review of the bronch report. You should see if you can get them to fax or email it to you. 

    Only Clacla proceeded to surgery without a biopsy first and those results, and thank goodness it sounds like she is recovering well. 

    Yes we just wait and find a way to get this off our mind!

  • ClaCla
    ClaCla Member Posts: 136 Member
    edited August 2017 #47
    Kimberly and Meggie

    Kimberly, how frustrating for you have to endure these wait times!  You two, Meg, although you could be getting yours this week finally if I understood correctly.  I need to go back to sleep right now, but wanted you to know I'm thinking about you both, and how frustrated I am for Kimberly.  Chat with you very soon. XXXXX.

  • kfs52
    kfs52 Member Posts: 31
    edited August 2017 #48
    Whew

    Clacla - you are right! I have another test today, I guess a lung test. I just feel so sick, tired and defeated. Since the bronch, I feel like my pnueomia has come back - coughing until my sides hurt, mucus, blood and just out of breath. Now to have to do another test - well I just feel like this has to be the last thing I do because evertime they do more to me - I just feel worse. AND they still have not diagnosed me - so it isn't even like  any of this is a cure. I know I just have to make it through one more day of this - sorry for dumping on everyone today.....

  • ClaCla
    ClaCla Member Posts: 136 Member
    Kimberly, I am so concerned

    Kimberly, I am so concerned about you.  Have you told your doctor that after each test, you are sicker?  Can they give you anything to control symptoms while you're waiting to get a diagnosis?  So sorry.  Hang in there.  I'm praying help comes very soon for you.  You mentioned you only have to hang in there for one  more day of this.  Are you expecting to hear a dx tomorrow?

    Tomorrow may be a big day for Meg and me as well, since Meg and I expect biopsy/pathology reports this week.

    Am probably going home today, which is a day earlier than expected.  But may have to go home with oxygen for a little while, as my oxygen sats are not staying up very well without oxygen yet.

    Waiting for news from both of you.  And of course I'll keep you posted.  Kimberly, I hope you can at least get some rest while you're waiting.

    Hugz to both of you.

  • kfs52
    kfs52 Member Posts: 31
    Oh Clacla

    So sorry. I didn't mean to sound so disturbing. I just feel terrible. All I meant was I finished the test the morning now and I have one more visit with the pulmonlogist this afternoon on the books.

    Then I am done - until someone gives me some answers - no one elese can touch me because it feels like each time they keep doing something - I feel worse.

    I am wheezing and coughing up chunky blood - it is gross. Even the lady at the drug store when I went for some 'breath easier' stuff said to me 'are you all right!!', now of course it did not help that I have bandages on from IV's and a hospital band, I am wheezing and coughing - well it is clear I can go no where else until someone fixes me without looking like an idiot. 

    Anyway, I am going to make this doctor give me some drugs - I have done what he has asked - now he needs to make me feel better - seems like an easy trade.

    Clacla I am so glad you are getting out of hospital maybe today or tommorrow. It always feels like those hospital people are holding you hostage, but when they say your stats are not up, you need to wait until they come up. I really forced my way out of the hospital and it was very difficult coming home. But, I know you are going to feel so much better when you get home!!

     

     

  • ClaCla
    ClaCla Member Posts: 136 Member
    Leaving Hospital

    No, I'm really not rushing things; I am at the accepted part of the healing process to leave the hospital.  If a chest xray comes out clear in the next hour, then I'm ready.  But I will need to use oxygen for a while longer.

    Good luck this afternoon; I hope they give you something along with a diagnosis to give you some relief until you begin real treatment!

  • kfs52
    kfs52 Member Posts: 31
    edited August 2017 #52
    Clacla

    It sounds like you are doing really well! I am so happy!! I bet you cannot wait to get home.

    I saw the doctor, he says results not in yet, but need to prepare for a diagnosis that involves surgery. So guess its good he said that - so I can get my head around it. All the test results will be in next week - including the one that tells him - if he does the surgery can I survive without that part of my lung.

    BUT, he gave me a steriod shot into the kester, I don't know why they didn't go straight for the lung, they sent me home with steriods for the weekend - so I can breathe comfortably. AND, yes, pain killers, thank you, there is someone looking out for me. 

    Hugs and good thoughts to both you and Meggie, we seem to have lost some people on this path over the last month or so (when I say lost - I don't mean they passed away, we just stopped hearing from them), but we will see this through together!

    Night all. 

  • kfs52
    kfs52 Member Posts: 31
    edited August 2017 #53
    Friday

    Hey everyone, I hope everyone is doinng okay today!

    Clacla - I hope you are finally home or going home today - i know you must miss it and being at home will almost feel like you are normal again! Yeah!

    Meggie - I hope you got your results this week and they were good! Please share - we could all use some good news.

    I am just bearing with it until next week when all the roosters come home to crow - I think that is how that old saying goes. 

    Until then, Happy Friday Everyone.

  • Meggie1984
    Meggie1984 Member Posts: 14
    ClaCla and Kimberly

    Hello Clala and Kimberly

    I have not heard anything yet and since it is the weekend, I have to wait for Monday at the soonest That means it's two weeks since I had the biopsy.  Kimberly, I remember writing to you that I would hear in a couple of days and you had been told to wait a  few weeks.   I commented that I couldn't imagine having to wait a few weeks  for this kind of news.  But once the whole week had passed with no call, i entered into a new fatalistic zone.  It's like now I don't really expect the phone to ring at all.  I know that's weird but now I fins myself thinking:  well, maybe i won't hear next week ----or even the week after.  And my mind just shuts down at the idea that I have to be on edge every moment of every day for the foreseeable future,waiting for the phone to ring.My heart goes out to you Kimberly. It iis difficult for me to believe that you are weak, in pain,cooughing up blood constnatly and are still in a waiting zone---with nothing going on

     

     

    to help you deal with the dreadful condition you are in, cancer or not.

    ClaCla, if that X ray came out clear, you are home from the hospital and beginning the healing process.   What a good place to be.  Bad things are going to happen to all of us, but your bad thing  seems to have had good things going for it---treatable cancer with positive outlook for the future,  good care, good doctors and everything necessary done in a timely fashion.  I dont expect you are feeling too well at this point.  Removal of a lobe of the lung, however it's done is major surgery, but at least you are on the road to recovery.  I will post when---or if---I ever get a call.  Hugs to you both

  • kfs52
    kfs52 Member Posts: 31
    Meggie

    I am on drugs now. I don't feel great, but I feel a little better.

    Meggie what you might want to check out - this time I signed up for the hospital online access - so when test results are availble, I have the same access the doctor has. I may not know exactly what the results mean - but I will have access to see them and know they are availble instead of waiting for a call. I signed up for this same access at the doctors office. 

    I go into the doctor on Weds. Supposedly test results are supposed to be in. Not sure if that means biopsy results or just the other tests results. 

    Clacla - you take care and heal honey. Your body went through a major shock last week, you just take it easy and heal and I will catch up with you later this week. Just know I am thinking and sending good thoughts your way.

     

  • ppensom
    ppensom Member Posts: 5
    pet scan

    Pet scan will light up not only cancer but infections and some scar tissues. Biopsy is the only way to know if it's cancer. even then sometimes not conclusive. Pet scan lit up my throat cancer but also my prostrate. Only the throat was cancer. The prostrate was infection. Biopsies proved this out.