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Clean Scans

Bay Area Guy's picture
Bay Area Guy
Posts: 521
Joined: Jun 2016

I had a partial neph almost 13 months ago, so I just had my second round of monitoring tests.  Chest x-ray on July 3rd was "unremarkable" (a lovely word to read on an x-ray).  I had my CT scan yesterday and my surgeon just sent the results - everything looked great.  Since it was an abdominal scan (and since I've had other abdmonial problems in my life), I was also happy to see that no other issues in any other body parts they could see were noted.

I go to see them next Tuesday to, I assume, hear that I'll get a scan or an ultrasound in another six months.

I'm, of course, very grateful that the scans have turned out fine, but my joy is rather muted because of what my 90 year old mother-in-law is going through.  She was diagnosed in March with micro-polyangitis.  It's a form of vasculitis that attacks the kidneys and/or the lungs.  In her case, it went after her kidneys.  Her only hope of a recovery was a treatment with high doses of prednisone (a steroid) and a very dilluted dose of a drug, rituximab, that in 100% strength is used as a chemotherapy treatment for cancer patients.  Unfortunately, the treatment didn't work and has left her in dialysis and severely weakened to such a degree that she pretty much requires 24/7 assistance for everything.  Very, very sad.

The only lesson that can be learned from this is to make sure that you review the results of every single test you get and, if you don't understand something or if something is out of the normal range for the test you've taken, ask.....ask.....ask.

donna_lee's picture
donna_lee
Posts: 1020
Joined: Feb 2009

We like to hear that.

Sorry your m-i-l is going thru sad times. It is always difficult to hear about anyone Dx'd wtih a disease that I'd never heard of, let alone the age.  But it also makes me realize that the ability to diagnose it and offer a treatment or palliative care have come such a long way in 10-20 and even 30 years.

Take care of yourself, your spouse, and give the m-i-l a hug from me.

donna_lee

stub1969's picture
stub1969
Posts: 931
Joined: Jul 2016

The news is kind of bitter sweet.  I'm very happy about your clear scans but sorry to hear about your mother-in-law.  Try to enjoy your scan news.

Take care,

Stub

Bay Area Guy's picture
Bay Area Guy
Posts: 521
Joined: Jun 2016

Thanks folks.  I really am happy that the results came in the way that they did.  Donna_lee, the fact that they could even diagnose what was wrong with her was amazing in and of itself.  My kidney issue was first uncovered by a hospital that my primary care physician is associated with.  For treatment, he said my insurance would cover treatment by a urologist associated with that hospital, with a larger hospital group in San Francisco, or with Stanford University Hospital.  It took a nano-second to choose Stanford.  Ironically, her primary is associated with the same hospital that my primary is.  However, with MediCare, she could choose any hospital we wanted for her.  We initially thought Stanford again, but because the majority of her children and grand-children live close to San Francisco, we chose UC San Francisco.  The level of medical there has been absolutely amazing and I seriously doubt she would be alive today if we had taken her to the small hospital.  There wasn't a snowball's chance they would have had the diagnosticians to figure this one out.

Consider your hug delivered.

Positive_Mental_Attitude's picture
Positive_Mental...
Posts: 454
Joined: Jul 2014

Congrats on the results.  May you continue to see NED.  Sorry about your mother-in-law. 

foroughsh's picture
foroughsh
Posts: 779
Joined: Oct 2014

I'm very happy for you, looking forwards for many years of NED report.

I'm very sorry for what your mother in low is going through.

She's in my prayers

Bay Area Guy's picture
Bay Area Guy
Posts: 521
Joined: Jun 2016

Met with the nurse practitioner in lieu of the surgeon, as he had an emergency the day of my appointment.  She said the doc has put me on a one year schedule for a CT/chest x-ray now.  While I would have preferred an unltrasound, I don'tmind the CT as it covers a greater area of my innards and since I've had non-cancer related intenstinal issues in the past, a periodic look-see doesn't hurt.

On the mother-in-law front, all of your good wishes seem to have worked.  She's doing marginally better and getting a little more strength as her dose of prednisone is tapered.

adman's picture
adman
Posts: 338
Joined: Jul 2012

Great news; God Bless!

 

daisybud's picture
daisybud
Posts: 521
Joined: Jan 2016

Happy for you 

hardo718's picture
hardo718
Posts: 853
Joined: Jan 2016

God Bless,

Donna~

Deanie0916
Posts: 439
Joined: Nov 2016

Hope your mother in law is getting better each day.

Deanie0916
Posts: 439
Joined: Nov 2016

Hope your mother in law is getting better each day.

JerzyGrrl's picture
JerzyGrrl
Posts: 761
Joined: Jun 2016

... Your great test results. UCSF is a good place, especially with the bonus of having family around. All the best to your MIL and family. May you be able to use this season in your lives to celebrate and share your stories and blessings.

Bay Area Guy's picture
Bay Area Guy
Posts: 521
Joined: Jun 2016

She seems to be improving on a steady basis, with a few steps back once in a while.  As the prednisone has tapered (from as high as 50mg to 4mg as of today), she's gotten stronger, but also feistier.  she has no appetite, so feeding her is a challenge.  But today, with assistance, she walked from her bed to the living room sofa.

She does seem like "Contrary Woman" though.  How many people actually come out of a dialysis session MORE energized than when they went in?  Well, she does.  But my wife and I have a wonderful sense of accomplishment seeing her improvement.

JerzyGrrl's picture
JerzyGrrl
Posts: 761
Joined: Jun 2016

This woman needs a cape (What's YOUR super power?)!

Bay Area Guy's picture
Bay Area Guy
Posts: 521
Joined: Jun 2016

LOL.  About my only super power is being super dumb!

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