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Scanxiety

Sal0101's picture
Sal0101
Posts: 123
Joined: Sep 2015

We all have it!  Its  8months and 13 days since my SCT and I had a CT scan Yesterday.  Appt with the oncologist is Tuesday.  The waiting as we all know is excrutiating.  When the phone rang last night around supper time and I recognized the  phone number my stomach dropped.  The nurse was on the other end, and of course I'm thinking "damn it, they want me to come in" I've had a very productive cough for about 3+ weeks and thought for sure there was something going on. 

But she quickly said that even though they know I have a appointment Tuesday to go over the report and for labs, they wanted me to know the CT showed no sign of Lymphoma, and to have a great weekend! Yeah!!!!!  Now the wait for the next one! 

Sharon

po18guy
Posts: 973
Joined: Nov 2011

...of a clean scan! Worry is useless, yet we still do it. It is always about the future, which we may never possess. It is always negative, which affects those around us. Notice that leaving the appointment after a clean scan, we are already preoccupied with the next one? As we become more near-sighted, our worry becomes more far-sighted! Realisitically, isn't this irrational on our parts? A productive cough is a clear sign of allergies or infection. Let us ponder the worst case scenario: You have fought this already and are an experienced warrior. Do you want to fight again? No! But, like a soldier, you can fight if called upon.

Consider: Your greatest danger is driving to and from the scan! Live today - which is why a gift is called the present.

dana-mihaela's picture
dana-mihaela
Posts: 39
Joined: Sep 2016

I don't know your real name but I read your story and I have to say that I am totally IMPRESSED by your knowledge and your survival against all odds. I think I need an appointment 101 with you to give me some of your courage and commun sense that you have. I am one of the worst worriors of all times in the fact that I suffered with anxiety and OCD for all my live. The fact that I got lymphoma is probably set up by my negative thoughts and fears if you are to believe in this. I am the type of person that if I have a headache I got brain tumor so you know my type already. I am having very bad anxiety issues now after the cancer and I just wanted to let you know that I always enjoy your posts and admit that you are so very right in what you say. Each day is a present and the future actually nobody has it for sure.

Good luck,

Dana

po18guy
Posts: 973
Joined: Nov 2011

You are very kind. I am not Superman - I have received tons of spiritual and physical help. As to worry: Get a spiral bound notebook and keep it with you. Each time something worries you, write it down. Once per week - more if needed - go back through it and cross off those worries that never came to pass. That would most likely be all of them, since worry is not exactly a rational activity, right? After several weeks of noticing this pattern, it may provide some perspective, if not comfort. At some point, you may worry less just to avoid writer's cramp!

GSP2's picture
GSP2
Posts: 103
Joined: Feb 2015

for the nurse who called you on Friday so you wouldn't have to sweat it.

Much more pleasurable when there is good news to convey.

Really sucks when it's the opposite and is accompanied by warnings and instructions

Rocquie's picture
Rocquie
Posts: 825
Joined: Mar 2013

Congratulations on your lymphoma-free scan!! What great news. How sweet for your nurse to call and let you know before the weekend.

Cheers,

Rocquie

 

illead's picture
illead
Posts: 831
Joined: Aug 2012

I agree that it was so thoughtful for the nurse to call and no doubt the doctor was in on it too.  The doctors and nurses in oncology and specialized medicines are truly dedicated and compassionate.

Becky

Evarista
Posts: 247
Joined: May 2017

5 weeks out from my last round of R-EPOCH for DLBCL and had my first PET scan (skull-to-thigh) this AM.  2.5 hrs after getting home, message from my doc with the radiologist's result:  "There is no abnormal FDG avid lesion to suggest metabolically active residual disease by this examination technique".  Very happy with this result and grateful to my doc for taking the time to forward it.  

Now, if I could only do something about this miserable fatigue...

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 3181
Joined: May 2012

It was thoughtful of your doctor to make that call, Evarista.

Heavy fatigue can linger after long-term chemo for a long time.  Do not anticipate springing back to your pre-cancerous energy levels any time soon, if ever.  I have never recovvered my energy after Stage III HL , Stage II Prostate Cancer, and having been run over by a car decades ago.  I guess me being fatigued is reasonable, at 61 now. 

Eat lite, healthy stuff:  salads, vegtables.   I take a Super-B complex multivitamin daily, which helps me a lot with energy; the main ingredient is B-12, which is the main ingredient in many "energy drinks."  Because B-vitamins are water soluble, there is no fear of getting "too much" in a daily supplement.

max

 

lindary's picture
lindary
Posts: 624
Joined: Mar 2015

Last year I was frustrated with the constant fatigue. I asked my primary DR if hse thought it would be ok to start taking extra B-12and B-6. She gave me the go-ahead. Within about 2 or 3 weeks I felt a lot better. Earlier this year I decided to stop taking them. One reason I had run out and didn't have time to get more. Since I still felt ok I didn't buy any more. Lately I've been dragging again and thought it was because of teh extra hours I've been putting in at work. Then it dawned on me about the B-12 & B-6. I have added that back into my pill case and hopefully I will be better in a couple of weeks. 

For anyone with fatigue ask your Dr (primary and/or onc) first.

 

Sandy Ray's picture
Sandy Ray
Posts: 97
Joined: May 2017

So glad to hear the scan is clear! I just finished my last Chemo July 3. Now I am like you ready to get rid of the fatigue. I know Max is right it will take a while and some never get back to full strength. However, I am going to do the best I can and plan on getting there over time. My Oncologist says 6-8 weeks I will be feeling better and 6 months to a year to get to my expected new normal.  I am hoping then to be close to my old normal.

Keep us posted on how yoUr progress! Very excited for you.

Sandy Ray

po18guy
Posts: 973
Joined: Nov 2011

Worry is not a rational thought process. It is uniformly about a future which we do not directly control. It is universally negative. It corrodes hope. We do not need negatives at this time, or ever, really. I expected cancer, but did not worry about it. I expect it again, but that has no effect upon my life right here, right now. I choose to be delighted to be anywhere. If cancer happens, I fight, even though I am not a natural fighter. We all have been in training, like soldiers awaiting deployment. Do we want to fight? No! Will we? That is the $64,000 question...    

Samhoward's picture
Samhoward
Posts: 2
Joined: Jun 2018

Have a scan tomorrow for primary mediastinal B cell lymphoma.  I’m pretty sure it’s a relapse, but as the song says, the waiting is the hardest part.

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