31 year old Stage 2A.

For me (which means, we all respond differently) the fatigue was THE MOST dibilitating part of treatment.  By the end of my nine sessions, I felt like a deflated balloon. 

At first, I was able to make myself get up and do things. As treatment progressed the fatigue got steadily worse. I ended up with a walker (old folks walker, you hold on to and push along). When the fatigue hit, I would sit on its little seat. I could only walk up and down our little road. By the end, I could no longer go out for my walks, as the fatigue would hit, and if I were, say, in the kitchen, I could not even make it back to the couch in the living room on my feet, but would crawl on my hands and knees.

That is the extreme version. Others here had less fatigue and were able to continue going to work and everything.  You are so very young, I bet you will feel tired for sure, but probably not 'crashed out can't move' kind of tired - at least that is my hope for you -

One does not know how it is going to affect you until you go through it. 

My advice, eat a good healthy diet and excercise, even if its a little walk around the block. And DON'T feel bad when you have to rest. I felt like I was lazy, but its not the case. 

Welcome to the forum. 

SUE

I'm sorry you're here but glad they caught it at an early stage. It sounds like they're really on top of it, too, that's great! For fatigue I just laid in bed. Sorry, I have no magic bullet for that. I love reading but I'd be so lacking in energy that thinking about what the words said was too much effort. I used to tell people I felt like those milk commercials where the people are doing something like dancing and then they flatten out and droop onto the floor. That's how little energy I had. It goes away, though, eventually. Some people are able to work through chemo and others are knocked on their butts. The oxyplatin is a tough one, it really makes life difficult while you're on it. I don't know anything about Xeloda, sorry. Don't push yourself. You're in treatment for cancer, don't try to push hard when you're not doing well, you don't need that extra burden.

Jan

NancyJN said:

My Boyfriend Has Colon Cancer & I need Tips for Coping

My 47 year old boyfriend was diagnosed with colon cancer a month ago. He is stage 2, so that is good news. But the treatments are going to be grueling. He in in week 1 of chemo & radiation and will be for 6 weeks, then a surgery. This has been a whirlwind of course, we have had to ride the rollercoaster of tests, bad news, some good and then bad. It has been very hard on us, of course.

As his girlfriend and now caretaker, I am having a tough time adjusting to my new role and his reaction to all of this. He is very withdrawn and moody after week 1 of treatments. He is not fully sharing with me what he is feeling, and I feel I am saying the wrong thing and not giving him what he needs. We have a very strong relationship for 6 years, but his cancer diagnosis is hard on us. I just feel very alone and unless you are a caretaker, you don't know what others are going through. My friends are great to talk to, but I came to this website to find out how other caretakers are going through and to get some ideas on how to do this more gracefully, and be of service to my boyfriend in the most supportive way possible... Thank you!

Sorry for the reason you're here. You might get more replies f you start your own thread, by the way. Anyway, I've said it before and I'll say it again, I think it might be harder to be the caretaked than the person with the cancer.

Are they using chemo and radiation to shrink the tumour before surgery? That's what happened with me. I was on 5FU with a pump. Then they removed the tumour about two months after I was done as the radiation actually enlarges the tumour before it shrinks it. I was so fatigues I could barely function. I spent a lot of time in bed staring out of the window. As an active person it was an odd feeling to be that inactive and not care. I found I was in an emotional fugue. I wasn't sad, I wasn't happy, I just didn't really care about anything. The fatigue takes several weeks after the treatments end to go away.

I can't speak for your boyfriend and men likely react differently than women and we all react differently to everything. The only thing I can suggest is just to listen to anything he wants to say. Even if he gets very dark and talks about death or anything else morbid, give him the opportunity to talk about his thoughts and feelings. Never say 'oh don't talk like that, you're going to be fine' or be dismissive of his concerns in any way. Don't always try to be positive so he feels he can't confide in you. Ask him how he feels about it, ask him if he wants to talk about it and then let him say whatever he wants. He might rail against it, he might feel that he's letting you down as a man who's supposed to look after everything, he might be scared, he might feel like he's going to kick cancer's butt and he might fel many different conflicting emotions in a very short period of time. You can ask him what he needs from you, what you can do to make his day better, let him know you're open to discuss anything no matter how uncomfortable it makes you. Receiving a cancer diagnosis can bring out all kinds of thoughts and feelings we don't expect. One of mine was to feel aplogetic. I felt like I'd let my family down in some way. And I knew I'd unintentionally brought upset, fear, and heartache to them. I knew it wasn't my fault but I still felt like I'd let them down.

I hope some of this helps. You're probably already doing these things anyway but maybe, if so, it helps to hear someone confirm what you're doing.

All the best,

Jan