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Cystic Renal Cell Carcinomas: Do They Grow, Metastasize, or Recur?

lobbyist0724's picture
lobbyist0724
Posts: 471
Joined: Sep 2016

Hi all, I am new here and I have read a lot of papers claiming Cystic Renal Cell Carcinomas (CRCC) has better prognosis, have we seen anyone recurr/met with CRCC? 

<a href="http://www.ajronline.org/doi/pdf/10.2214/AJR.12.9414">Cystic Renal Cell Carcinomas: Do They Grow, Metastasize, or Recur?</a>

Also, I have seem quite a number of people here having pT1aN0M0 tumor (Stage 1 and less than 4 cm in diameter) and they seems worried about it. In fact, I haven't seen anyone from here or other forum have a relapse or met with a pT1a tumour after their surgery. 

Does anyone have a case to share? Was it related to necrosis/microvacular invasion/others?

icemantoo's picture
icemantoo
Posts: 3354
Joined: Jan 2010

Lobbyist,

 

Of course your doctor should have the best answer. From googling it appears you are no worse off than the majority of us with regular RCC. So if its under 4 cm your prognosis should be excellent for no recurrance. I am at 14 years so far so good with a 4.2 cm ittle sucker.

 

Icemantoo

lobbyist0724's picture
lobbyist0724
Posts: 471
Joined: Sep 2016

Thank you Iceman for your reply! I have been reading your posts for awhile and has been amazed with your effort to help new comers to this club! With your positive energy, that little sucker will have nowhere to live :)

My doctor told me that I am cured, but I am sure there is always a chance it will come back.  The pathology report says it is a Renal Cell Carcinoma with Cystic Component/Change, Clear Cell type. It is pT1a, grade 2, 3.2cm. No lymph node, no met, no necrosis, no vascular invasion are mentioned. The tumor was deeper then he thought but he was able to remove it with negative margins, but the clearance is very small at the bottom.

He wants me to do abdominal ultrasound, chest X-ray and blood work every 3 months for the first year, he is not considering CT in my future follow up at this point.

It is just hard not to think about it and I guess it takes some time to get use to it :)

Footstomper's picture
Footstomper
Posts: 1238
Joined: Dec 2014

Sounds like youre doing fine. They taking the precautions of monitoring your progress. Often the word 'Cancer' is scarier than the diease itself these days.

lobbyist0724's picture
lobbyist0724
Posts: 471
Joined: Sep 2016

Thank you FS, I have to agree the word cancer is very scary and hopefully we can soon make it a chronic disease or even cure.

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