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Oct 15, 2016 - 10:36 am
For the last few chemo treatments I 've sometimes needed an injection of Alteplase to unclot my PowerPort catheter. the port hasn't worked for withdrawing blood but they have been able, after the unclotting med works, to go ahead with the infusion. Yesterday was different. When they began the infusion it caused a nasty pain in my right arm and shoulder that traveled up my neck (the port is on the left side). Concerned, they stopped the infusion and sent me down to radiology for a fluoroscopy with contrast. The fluoroscopy showed a complete occlusion due to a fibrin sheaf, so I was unable to get chemotherapy yesterday. The plan is to remove the port and catheter and replace them. I'm waiting now to hear to hear when the surgeon can schedule the procedure (Fridays are not good days to have things go wrong :-) since so many clinics seem to close at noon). My question, for those of you who might have had this done, is do they put the replacement port in roughly the same place as the old one? I am very thin and bony and my port has always stuck out a mile and any pressure on it is quite uncomfortabe. Wearing a seat belt is a very unpleasant experience, even with a padded cover. Since the port is on the left side, I haven't driven for quite a while and my husband had become my driver. So I'm wondering about requesting that the surgeon put the new port on the opposite side. Does anyone know if this is feasible, or is there a particular reason for placing it on one side rather than another? Grace/lizard44 |
Joined: Jan 2013
I can't answer your question...
but I can say how sorry I am that you have this added problem. Its bad enough having Cancer and having Chemo without adding other problems on top.
I know the port can be placed in differing areas, and I think (but don't know 100%) that a friend of mine in England has it on his right side. I'm sure someone else here can tell you for sure.
Having Chemo cancelled is a huge downer. Even though it means you might be in your 'good days' a little longer, it also means putting the date back for when its over. Yeah, I had my chemo cancelled three times, and it stunk.
HUGS!
SUE
Joined: Sep 2016
Right side port
Hi Grace,
Sorry to hear that you have this port complication- that's frustrating. My port is on my right side. So far it hasn't given me any trouble. It gets a little sensitive after having the 5Fu pump on for 2 days. The seatbelt doesn't irritate it.
I hope that you can get a new port soon and that it works better than the previous one!
Joined: Apr 2015
Thanks!
I've had this port in for 17 months now; it's survived a lot of chemo treatments, scans, blood tests and such so I can't complain too much, although it would have been nice for it to have held out a while longer. I have no idea how much more chemo I'll get, right now I'm on a clean-up regimen I think, after the ablation, and then will probably get maintenance chemo, so it could be a long haul.
I noticed that almost everyone in the infusion room also seem to have the port on the left. I wondered if it had anythng to do with most people being right handed and there would be less movement on the left side. If that's the case, maybe mine should be on the right side, since I'm left handed. I'll have to ask the surgeon why next time I see him, which I hope will be very soon so we can move on.
Thanks for the kind words.
Grace
Joined: Sep 2014
Mine was on my right side. I
Mine was on my right side. I never thought to wonder why, I just asumed that's where it went. I hated mine. I'd cringe every time someone gave me a hug and it was so sensitive. When it started coming out through my skin they took it out.
Good luck!
Jan
Joined: Aug 2014
port replacement
i just had my 3rd port put in the 1st got the fiber sheft and they could not unclog it so i told them to put a new on in was put in the same place in the right shoulder year or so later the 2nd got cloged to i said replace it again this time surgon decied to put on left side to see if it makes a diffrence i dont see why this would change anything as the tube still goes down towards the heart just the input part is moved to the other shoulder i also had pain afther port a gram it was backing up and leaking in the shoulder that caused pain
Joined: Aug 2015
My husband's port is on the
My husband's port is on the left side, however he has a double port. He does say that there are a good many folks that have port on the right side.