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and now...enter breast cancer

BC Brady's picture
BC Brady
Posts: 70
Joined: May 2015

On my last CT, the eagle eyes at Roswell in Buffalo, NY, discovered that "something looked different in my left breast". It has been known that I have PET scan activity "in the mammary chain from metastisized uterine cancer". But low and behold, this small mass was found right next to a uterine metz mass turns out to be a new breast cancer. The second primary cancer has kicked me out of the MATCH Trial that I was up for - but curiously, the entry medical tests for the trial was why I had the CT in the first place - so it's the ealiest of days for the breast cancer. I will have a lumpectomy Oct 11th. It was also discovered that the affected axillary uterine metz cells are showing brCA2 mutation - also a test result that would not have been done if I hadn't been applying for the trial.

So - now that I have been found to have the mutation, that has put me in line for this relatively new targeted oral chemo called Lynparza (olifarib). Divine intervention. I've been on the drug for 1 month. It has some pretty profound side effects - namely diarhea and nausea - but who hasn't lived with that their entire life since cancer? I can live with it - as long as I can LIVE with it! 

1. Did anyone get a second primary cancer after uterine?

2. Is anyone out there on the Lynparza? (8 capsules, twice a day - 16 total!)

Thanks in advance, xoxox my warriors,

Billie

Kvdyson's picture
Kvdyson
Posts: 789
Joined: Jan 2016

Billie, wow, you are such an inspiration to see the silver lining in what you just experienced. Uterine cancer is my second primary cancer and I have no experience with Lynparza but wanted to wish you all the best of luck on this new journey you are facing. If you feel up to it, please keep us updated on how the Lynparza is working for you. Wishing you strength and continued hope, Kim

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2483
Joined: Mar 2013

I agree with you, Kim.  Billie and Lou Ann are truly an inspiration to me!

Billie, I am so sorry to hear about the breast cancer. As you said, it was caught very early, so I hope it gets knocked out quick

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1445
Joined: Jun 2015

Billie, So glad they caught the breast cancer early! You are an amazing fighter and your attitude will get you through this next battle. I hope your side effects level off and you don't get any new ones to deal with. Please keep us updated on your progress!

Love and Hugs,

Cindi

Lou Ann M's picture
Lou Ann M
Posts: 996
Joined: Feb 2015

So sorry to hear this, but so glad it was caught early.  It's funny how things work out,sometimes. Good you were having the test or it may not have been caught so early. 

Hugs and prayers, Lou Ann

janaes
Posts: 703
Joined: May 2016

Uterine cancer is my second primary cancer.   I am glad your breast cancer was caught early and love love love you attitude.

Editgrl's picture
Editgrl
Posts: 903
Joined: Jun 2015

No one should have to fight this war on more than two fronts!  Though as everyone has said, it appears you caught it early.  And now you are on the forefront of new treatment with the Lynparza.  You have my utmost admiration and continue to inspire.  Fight on!

Double Whammy's picture
Double Whammy
Posts: 2823
Joined: Jun 2010

Billie - My uterine and breast cancers were diagnosed 4 days apart.  I have no idea which one came first but I was told that it is not unusual for a woman to have both breast and endometrial cancers over the course of her life.  My endometrial cancer was early stage low grade endometroid adenocarcinoma.  I have a really good friend who also got the 2-fer.  Like me, both of her cancers were diagnosed early.  In hindsight, I guess there are some silver linings to getting them both diagnosed at the same time.  I can't imagine being in your shoes and being treated for one and then having to face another.  Arghhh.   My best wishes to you as you deal with this. 

Suzanne

brissance's picture
brissance
Posts: 192
Joined: May 2016

It is so unfair.  I am thrilled, however, you caught it so early.  No words of wisdom as you seem to have your act together and ready to fight the beast.  God bless you, dear lady.  We are here for you.  

Patty

EZLiving66's picture
EZLiving66
Posts: 1285
Joined: Oct 2015

I'm so sorry,  Billie,  but talk about making lemonade out of lemons.   I hope this new treatment has positive results.   Please keep us updated!  (((Billie))) 

Love, 

Eldri 

BC Brady's picture
BC Brady
Posts: 70
Joined: May 2015

Thank you all - will update after Tuesday.

DrienneB's picture
DrienneB
Posts: 186
Joined: Aug 2013

So glad this was discovered early, Billie. Strange how all of this stuff plays out.

Though I don't conribute much to this site, you have been an inspiration to me too. May God carry you in his pinions throughout your surgery and in the coming weeks.  (Please don't feel like you need to respond!)

best,

j

Soup52's picture
Soup52
Posts: 867
Joined: Jan 2016

My mamo appointment is scheduled for the day after my oncologist appointment. Praying I don't have breast cancer too. So very sorry for your breast cancer diagnosis, but glad it is early!

takingcontrol58
Posts: 233
Joined: Jan 2016

Billie,

I'm so sorry about your diagnosis of breast cancer. I am sure it is quite frightening, but I know you can beat it.
God works in mysterious ways.  Now you are getting the targeted therapy that you had hoped to receive.
It has shown promising results for BRCA mutations.

Keep us updated on your progress.

Takingcontrol58

 

 

 

BC Brady's picture
BC Brady
Posts: 70
Joined: May 2015

I cant recall if I shared this about the targeted chemo? I'm still hoping for immunotherapy to catch up to our disease - - but in the meantime, maybe this is working:

http://www.curetoday.com/articles/lynparza-increases-survival-for-subset-of-patients-with-ovarian-cancer?p=2

LindyLu
Posts: 72
Joined: Sep 2016

So sorry to hear about your newest diagnosis.  What a bummer, but so glad it was caught early.   Your attitude is amazing.  Sending hugs galore!!                                                                                                                                                     

daylady's picture
daylady
Posts: 122
Joined: Dec 2014

Billie, I am sending healing energy your way and hoping this works for you.  Hugs - Helen

Nellasing
Posts: 529
Joined: Oct 2016

Sending prayers for your proceedure today.  Blessings as you continue to live each day.  I have found I have to keep readjusting my course but the goal is still the same- to really LIVE each day- the day we have- and bounce back as soon as I can from unexpected info to get right back to LIVING and looking for each blessing, each miracle in every day.  (((HUGS)))

ncg007
Posts: 130
Joined: Nov 2015

Billie, So sorry for your breast cancer diagnosis, but what a great attitude you have!  I hope all went well today with the lumpectomy.

Nancy

rcdeman
Posts: 256
Joined: Aug 2016

You're a strong woman, Billie. I admire your strength and perserverance.

Praying that your treatment yields good results and minimal side effects,
Rebecca

cindy0519
Posts: 173
Joined: Nov 2015

I too have two primary cancers -  breast (IDC Stage II) and USPC (Stage IIIC1).  I was diagnosed with breast cancer in May 2015 and USPC in Sept. 2015.  Certainly was a gut punch!

Have they mentioned mastectomy rather than lumpectomy because of the BRCA2 mutation?  Just curious as it seems most with this mutation (either 1 or 2) go the double mastectomy route.   Though it does also seem to me that they try very hard these days to lead you to lumpectomy so as much breast tissue as possible can be preserved.

You certainly have a fantastic attitude and amazing strength!  Many prayers for you!

BC Brady's picture
BC Brady
Posts: 70
Joined: May 2015

Hi Cindy,

I was actually the one that asked for the double mastectomy - all doctors involved thought it was overkill - even with the mutation. I was willing to go for it. I'm an A cup so it hardly makes a difference. Breast surgeon said that it's a bigger operation - longer under anesthesia more chance of infection - etc. Plus they would not be able to do the reconstruction for the same reasons - would have to wait until I'm healthier and less of a risk. Her thought was - fast - in and out - see what the pathology says, already know I'm hormone receptor negative, so likely will not have any follow up therapy since I'm treating with the Lynparza for endometrial. Hopefully that drug will supress any future breast tumors as well. The next step will be a blood genetics test to see if I carry the brCA2 mutation naturally and not just in the cancer - apparently it can be separate. Hope to understand that better in the future. Can I ask, what route did you go?

Mmpeterson
Posts: 119
Joined: Sep 2016

Praying your lumpectomy was a success and the new drug will be extremely effective for you.  Keeping you in my prayers! Maryanne

cindy0519
Posts: 173
Joined: Nov 2015

Billie,

I had a unilateral (L) mastectomy last June. I had a large cyst (benign) removed from the same breast in the 1982 and while my breast surgeon recommended a lumpectomy, I would have still faced reconstrution as most of the left breast would have been gone as the tumor that was present in June was 5.5-7cm, plus I wasn't about to give it a third attempt at killing me.   My BCRA test was negative and I was overwhelmed by the thought of bilateral at the time so I decided to do just the left and have immediate reconstruction with a tissue expander and Alloderm for the mammory fold.  Long story short - I had 4 months of healing and infection (which ended with my mastectomy scar coming open and exposing the expander) it was replaced in a surgery on a Monday and I had an infection again on Tuesday so the expander was removed in late Aug 2015 and I have been flat or wearing a prosthetic since.  My oncotype score was a big fat zero (first time my oncologist had seen a zero) so I needed nothing more than the mastectomy and 5 years of Tamoxifen... or so we thought until I was diagnosed with Stage IIIC1 USPC at the end of Sept 2015.

I was told to immediately stop taking Tamoxifen when diagnosed with USPC and have been on Letrozole since my chemo for USPC ended in May 2016.  I met with my current Plastic surgeon about my reconstruction options a couple weeks ago and am meeting with the only team of plastic surgeons who do DEIP flap reconstruction in my area on the 28th of Oct.  My plastic surgeon only does latissimus doris and tram flap reconstruction and I am really most interested in DEIP as it does not take muscle but does require micro surgery to reconnect blood vessels.  My plastic surgeon however believes that the external radiation I received as part of my USPC treatment may make DEIP no longer possible. Guess we will see on the 28th when I meet with the DEIP team....

Do you know yet what stage your breast cancer is?  I looked at Lynparza and found that it is being used in a couple of clincial trials for metastatic breast cancer (OlympiAD study) and early stage breast cancer (OlympiA) for those who are BRCA positive.  Maybe looking at these trials would be helpful??

Hope your doing ok and recovering well! 

EZLiving66's picture
EZLiving66
Posts: 1285
Joined: Oct 2015

She fought so hard and was also so upbeat. She was ready to try anything to live.  After she wrote this post, she found out she didn't have breast cancer but the uterine cancer had spread.  She sent me this message on 10-18-16:

"No primary breast cancer after all. And a whole lot of uterine disease taken out. Back to battling one kind of cancer - who knew that would make me so gloriously happy!"

Love,

Eldri

SandyD's picture
SandyD
Posts: 130
Joined: Oct 2015

to lose another fighter to cancer. From her posts it was clear Billie was fighting a brave and valiant battle to the end.

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1445
Joined: Jun 2015

Eldri, So sorry to hear this. She was such an inspiration to many.

Thanks for coming back in to let us know. I hope you are finding peace in your life these days.

Love and Hugs,

Cindi

Soup52's picture
Soup52
Posts: 867
Joined: Jan 2016

Thank you Eldri for the further information about Billie's cancer findings and untimely passing. So very sad:( May she Rest In Peace.

namedropper
Posts: 102
Joined: Dec 2014

 HI, I am now fighting stage 4 breast cancer. I had a mastectomy in 2012 and didn't have to do anything else. I did have the BCRA test because my Mom died from breast cancer and it was neg.  I got MMMT uterine in 2014 and had chemo and internal radiation.  I am now on Faslodex shots and Ibrance chemo pills and I also have to get a bone scan on Weds to see if it spread to the bones..   Oh my.  Cancer just keeping giving and giving.  I hope everyone stays well. The people in this uterine group are the very best.  I went on the breast cancer board but didn't get any answers.

Lou Ann M's picture
Lou Ann M
Posts: 996
Joined: Feb 2015

i am so sorry that you have to go through this.  Hang in there you are stronger than you think.  Hugs and prayers, Lou Ann

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2483
Joined: Mar 2013

oh namedropper, I am so sorry to hear this.  Cancer is such a beast.  My heart and prayers go out to you.  

Nellasing
Posts: 529
Joined: Oct 2016

my heart hurts for you- I am so very sorry to hear that this is happening!  You will be in my thoughts and prayers as you go forward- especially with your scan on Wed.  Know that we will be pressing in and holding you in our thoughts!  Tight Tight (((HUGS)))  <3 <3

nateandkatesmom
Posts: 40
Joined: Jan 2017

I am so sorry that you are on such a neverending roller coaster ride.

The ladies on this board are amazing, as I have found in the last few weeks.

I will make a note to remember to pray for you and your scan on Wed.

Dorothy

henhill's picture
henhill
Posts: 123
Joined: Aug 2016

My Heart Hurts to lose another friend to Cancer.  RIP

Best wishes and prayers for you, namedropper.

 

Kvdyson's picture
Kvdyson
Posts: 789
Joined: Jan 2016

namedropper, I am so very sorry to hear this news. As you're getting your scan on Wednesday, look up at the lights and notice the energy that is being generated. Picture that energy as the positive, hopeful vibes coming from all of us to you and know that we are there with you in spirit. You can do this! 

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1445
Joined: Jun 2015

Namedropper, as the others have said... we are here for you. So sorry about your recurrence. I hope the scans come back with no spread. Darn cancer!

Please come back and let us know your results. We are all interested!

Love and Hugs,

Cindi

namedropper
Posts: 102
Joined: Dec 2014

Hi, I moved the bone scan to March 1st. I don't feel up to it now. I will keep you posted.  thanks for all of your hugs and prayers.

DrienneB's picture
DrienneB
Posts: 186
Joined: Aug 2013

Know that you are being supported in so many ways.

Nellasing
Posts: 529
Joined: Oct 2016

I'm joining DrienneB in remembering that next Wed. you will be having your scan- hope you are feeling more up to it by that time.  Sending tons of love and prayers are you go in (((HUGS)))

rcdeman
Posts: 256
Joined: Aug 2016

My prayers are with you Namedropper. How did your bone scan go?

Hugs,
Rebecca

Nellasing
Posts: 529
Joined: Oct 2016

She hasn't been on since Feb. 26 before that scan on March 1st :(   Just wondering if anyone is in direct contact?  It's so hard when people just drop away- still missing our Peppermint Patty :'(  (((HUGS))) and prayers for all those who go silent for whatever reason <3 <3

namedropper
Posts: 102
Joined: Dec 2014

Hi, everyone. I had the bone scan on the 23rd of Feb. but is was inconclusive. IT showed maybe breast cancer in the head and right thigh but it also went on to say that it might be something else or nothing. . I was in the hospital on March10.11, and 12th. They thought I had a clot in my lungs. I told them that I didn't want the dye for the ct scan  since my blood pressure dropped and I had to get rushed to the ER in May while the were checking my MMMT uterine cancer but they didn't listen and said I  would be fine since I didn't have to drink anything. I got through the test and fainted. They had a hard time bringing my blood pressure up and called a rapid response code. I woke up so scared. They had that thing over my mouth and were pushing oxygen with the thing that looks like a football. They also pushed a lot of fluids. The Dr that ordered it came down to the ct room with the other 16 people that showed up and stayed with me all the time until I was taken up to my room and I told her to please call my son to come to the hospital.  She did. She put no more dye on my chart.  The ct scan showed that the largest node in my lung was gone and that the second one was half the size and that the others smaller ones were there and there was no clot.    I am on Faslodex shots once a month  and one Ibrance pill a day for 3 weeks and 1 week off. I am going to call my Uterine Dr. this week and let them know what happened. I see them in May. I hope everyone is doing good. Sorry I didn't write for a while.

Nellasing
Posts: 529
Joined: Oct 2016

What an ordeal you went through!  I sure do wonder why they don't listen to people when they tell them things?!  I'm SO GLAD you made it through their mistake and surely hope they offered to PAY for your hospital stay as a result....lol  too much to ask?  I'm SO SORRY you had to go through that!  Sounds like they at least got to see some good views for all that trouble.  Hope you are recouping well - praying and sending big ole (((HUGS)))

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1445
Joined: Jun 2015

Namedropper - Wow! I can't blame you for being afraid. I think anyone would have been. So sorry that happened to you.

It sounds like the medicine is working on reducing or eliminating the cancer. Glad to hear it.

How are you feeling now? I'm sending loads of hope and support your way for continued healing.

Love and Hugs,

Cindi

Kvdyson's picture
Kvdyson
Posts: 789
Joined: Jan 2016

Namedropper, I am so very sorry to hear that you had to endure all of that! How very scary and so very preventable, too. If only doctors would listen to their patients! I hope you are beginning to recuperate from the ordeal. I guess the good news to come from all of that is that the treatment is working - but, boy oh boy, there has got to be a better way to find that out!

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