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  • Allochka
    Allochka Member Posts: 1,062 Member
    #22
    Not a quitter, no way! Just a

    Not a quitter, no way! Just a man wanting to exit decently. But too early to think about exiting, as other Stage 4 guys have confirmed above.

    What did your docs suggested re bones mets?

  • mrou50
    mrou50 Member Posts: 389 Member
    edited October 2016 #23
    Meds

    They have suggested a medication for reboning but it comes with some issues that could effect the jaw bone I told them I did not want anymore meds at this point.

  • foxhd
    foxhd Member Posts: 3,181 Member
    edited October 2016 #24
    meds

    mark, me too. I say no more! I'll figure out my nausea, poor appetite, etc, myself. I tell them that if I can learn the new me from all the physiological changes in me that I prefer that. At least I want to try. If they suggested zometa, it is a 15 minute infusion once a month. It is nothing. Can be done before or after other infusions. So you really don't notice anything.

  • hardo718
    hardo718 Member Posts: 853 Member
    #25
    mrou50 said:

    Meds

    They have suggested a medication for reboning but it comes with some issues that could effect the jaw bone I told them I did not want anymore meds at this point.

    Good for you Mark

    Those meds for "reboning" as you call it are really bad news.  You can read the horror stories of these meds if you search the warnings and side effects.  Part of my career I worked as a Hyperbaric Tech and some of the patients we treated suffered from the very effect you mention. Horrible and very sad.  I actually refer to those meds as "deboning".  Why these pharmaceuticals exist is beyond me.

    Donna~

  • marosa
    marosa Member Posts: 334 Member
    #26
    Mark, you are in my thoughts

    It saddens me to hear what you have and are going thru. We all so very much would love to just hear that everyone is doing fine!  I have trouble finding words to say... But I so much wanted just to say I feel for you and have you in my thoughts.

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