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Keytruda

funshine
funshine CSN Member Posts: 26
in Colorectal Cancer #1

Has anyone else had experience with taking Keytruda, immune therapy?

 

 

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Comments

  • guitarlovingTC
    guitarlovingTC CSN Member Posts: 1
    edited September 2016 #2
    Yes, I have taken Keytruda since June 2016

    Yes, I have taken Keytruda since June 2016.  I had colon Cancer stage 2 in July of 2015 and had 2/3 of my colon taken out.  I was doing ok until April of 2016, and then in May I was diagnosed with Stage 4 that had metastisized to my liver.  Its a huge tumor, and after being part of a clinical trial for four months the tumor has not changed in size.  It is very frustrating and I'm not sure what my next step should be.  I sure hope that it works for you!

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  • funshine
    funshine CSN Member Posts: 26
    #3
    Keytruda

    thanks for the response.

    They just took me off of Keytruda. It attacked my Thryroid and the cancer is growing faster than before...

    They had me take a bloodtest checking for mutations in my blood to see if there is a targeted therapy I can take. If not im assuming they will release me to hospice. I will find out the results on thursday.

     

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  • funshine
    funshine CSN Member Posts: 26
    edited September 2016 #4
    update

    Keytruda is done for me. DNA test of my blood shows i have at least 10 mutations. They have targeted therapies so were on to the next saga. I dont know what they are going to try on me next. Its a trial so I might need a lung biopsy. The last one I had was years ago and it was painfull as hell. I felt like a pin cushion. The doctor wouldnt give me more pain meds. I seriously feel like didnt give me anything for the pain. I dont look forward to that at all.

     

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  • JanJan63
    JanJan63 CSN Member Posts: 2,478 Member
    edited October 2016 #5
    I'm sorry it didn't work for

    I'm sorry it didn't work for you. I'm not familiar with it at all and it's disappointing to hear that something new ( Iassume it's new?) didn't work. You're brave to try something different, rather than the standard therapies. Good luck! 

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  • funshine
    funshine CSN Member Posts: 26
    #6
    JanJan63 said:

    I'm sorry it didn't work for

    I'm sorry it didn't work for you. I'm not familiar with it at all and it's disappointing to hear that something new ( Iassume it's new?) didn't work. You're brave to try something different, rather than the standard therapies. Good luck! 

    brave

    I dont know if its brave or fear of dieing that keeps me trying something else. Sometimes I tell myself im ready to die to keep off everything they throw at me, then I see the grandkids and want to try everything until the end.

     

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  • Kimrmoore
    Kimrmoore CSN Member Posts: 7
    #7
    funshine said:

    Keytruda

    thanks for the response.

    They just took me off of Keytruda. It attacked my Thryroid and the cancer is growing faster than before...

    They had me take a bloodtest checking for mutations in my blood to see if there is a targeted therapy I can take. If not im assuming they will release me to hospice. I will find out the results on thursday.

     

    Keytruda Question

    My husband is about to start this - Were you MSI H?  Or MSS?  

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  • Kimrmoore
    Kimrmoore CSN Member Posts: 7
    #8
    Keytruda Question

    My husband is going to start this - He is MSI H and the cancer is now in the Peritoneal Cavity and we have multiple obstructions.  Other Chemo is not working - Has this worked for anyone with this advanced type of cancer?

     

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  • sky22
    sky22 CSN Member Posts: 9 Member
    #9
    https://csn.cancer.org/discussion/comment/1647041#Comment_1647041
    https://csn.cancer.org/discussion/comment/1647041#Comment_1647041

    Is Keytruda working for your husband?

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  • sky22
    sky22 CSN Member Posts: 9 Member
    #10
    https://csn.cancer.org/discussion/comment/1647043#Comment_1647043

    Has your husband tried Keytruda? did it work for him? please let me know

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