Adult Medulloblastoma
I am just looking for anymore information or stories that anyone can share. This cancer is so rare in adults that it is hard to find much.
Thank you
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Adult medulloblastoma
My husband was diagnosed in June 2014 with medulloblastoma (he was 36), and had a partial resection of tumor. He had numerous tumors in his spine (also medulloblastoma) He had 30 sessions of radiation as well as 6 rounds of chemo (cisplatin and etoposide). We are 5 years out and the scans are coming back stable (and the tumors in spine have disappeared).
I'm interested in talking to any other adults with medulloblastoma and sharing information.
Thanks!
Mary (NYC)
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