Scanxiety

todd121
todd121 Member Posts: 1,448 Member

I'm feeling a little guilty that I haven't popped in for awhile and now it's scan time so my cancer is really on my mind (even though I don't want it to be). I had my scans on Wednesday.

Funny. They've changed the procedure on the CT scans. They used to do 3 scans: one for chest, one for abdomen, and one for pelvis. It meant holding my breath three times. This time they did all three in one pass. At first I panicked because the last time I only held my breath once, the doctor's order was messed up and they'd forgotten my other scans so I ended up having to run up to the doctor's office and get them to correct the order. I'm so used to the procedure that I realized something was wrong right away. I panicked because the drive to/from the cancer center is a good 1-2 hours each way and I'd already taken off work a day and was worried I was going to have to come back another day. So when I only held my breath once, I thought, Oh no! Not again. But then when I asked, they said that they're trying this to reduce radiation exposure. There was some overlap before and that ended up with extra radiation. I'm glad for that!

The other big news (haha) was that I was offered the contrast for the first time in 4 years (since my nephrectomy). The cutoff is creatinine of 1.5. I had 1.55 this time. I said, no thanks. My kidney doctor has a protocol for them to give me the contrast but radiology and my oncologist aren't interested in her protocol. That's a bit annoying. I think she's a great doctor and I really like her. I've tried to share what she thinks with my oncologist but he's never been very interested in what she thinks.

My anxiety is still pretty high this time. I had a lymph node slightly enlarged (a mediastinal) on the last scan so I'm nervous to find out if it's enlarged again. If so, I may be up for a biopsy, which, I'm not sure how easy that is to do. The lymph node is in a place very hard to reach (near my spine among my heart/lungs). My big worry is progression and what that would mean at this point. They said if it progressed within a year they wouldn't do surgery again. However, it's been well over 1 1/2 years so I'm guessing if that's the only tumor they might remove it or zap it. I'm not too excited about the prospect of taking any of their drugs.

The only health issue I'm having at the moment is an issue with my hands. They swell for no apparent reason and are hard to close. I've had this since my nephrectomy. It gets better and worse. Right now it's more frequent and more bothersome. The doctors have no idea what it is. It causes me a great deal of anxiety because I wonder if it's related to a tumor somewhere. It might be as simple as my age and/or weight. Still struggling with weight. I've put on more. Frustrated about that too.

I'm glad to see familiar faces. I'm going to try and catch up on reading up on the goings on with the new people and the old (no insult intended) people.

I get my results this next Wednesday. I'll post when I know.

Wishing you all well,

Todd

«13

Comments

  • Footstomper
    Footstomper Member Posts: 1,237 Member
    Todd

    Well, good luck with your results

  • Jan4you
    Jan4you Member Posts: 1,330 Member
    Sweet Todd, it is so good to

    Sweet Todd, it is so good to hear from you. I can appreciate what you are going through, so know i am sending you healing vibes and serenity~

    If it were me and my hands would swell up as you described, I am sure a MD would order a diuretic. However I would see my Chiropractor who knows how to "read' the body and know what is trapped, nerves, vertebrae etc and if it is, KNOWS how to untrap such impediments.

    Good luck, I am on your side hon!

    Hugs, Jan

  • hardo718
    hardo718 Member Posts: 853 Member
    edited September 2016 #4
    So nice to see your smiling face Todd

    I've missed you!!  Praying for good results on your scan.  Not sure what to make of your hands swelling, but then I'm no doctor, so I lack the wisdom. 

    Can't wait to hear about your results and I hope the anxiety doesn't get the best of you.

    Donna~

  • daisybud
    daisybud Member Posts: 541 Member
    edited September 2016 #5
    Hi Todd

    Sending you good Karma! 

    Kim

  • todd121
    todd121 Member Posts: 1,448 Member
    edited September 2016 #6
    Jan4you said:

    Sweet Todd, it is so good to

    Sweet Todd, it is so good to hear from you. I can appreciate what you are going through, so know i am sending you healing vibes and serenity~

    If it were me and my hands would swell up as you described, I am sure a MD would order a diuretic. However I would see my Chiropractor who knows how to "read' the body and know what is trapped, nerves, vertebrae etc and if it is, KNOWS how to untrap such impediments.

    Good luck, I am on your side hon!

    Hugs, Jan

    Thanks Jan!

    It's really odd. It's not generalized swelling. It seems to be in the connective tissue/joints and it comes and goes. Sometimes it's so bad it's even in my wrists and it's painful when I put pressure on them. It doesn't seem to be generalized edema.

    Anyways, thanks and so glad to "see" you.

    Hugs,

    Todd

  • todd121
    todd121 Member Posts: 1,448 Member
    edited September 2016 #7
    hardo718 said:

    So nice to see your smiling face Todd

    I've missed you!!  Praying for good results on your scan.  Not sure what to make of your hands swelling, but then I'm no doctor, so I lack the wisdom. 

    Can't wait to hear about your results and I hope the anxiety doesn't get the best of you.

    Donna~

    Appreciate the response Donna. I'll post when I know. One of the things with this diagnosis, I find when I have a visit like this looming over my head I start practicing my response if it's negative and start to think out the possibilities of what will happen. I'm trying not to do that. I know it's not helpful. Anyways, sometimes it just happens. I put an end to it as soon as I'm aware what I'm doing. I do believe that our thinking affects our reality.

    Take care.

    Todd

  • todd121
    todd121 Member Posts: 1,448 Member
    edited September 2016 #8
    daisybud said:

    Hi Todd

    Sending you good Karma! 

    Kim

    Thanks Kim!

    Good to see you. How are you healing up?

    Todd

  • Jan4you
    Jan4you Member Posts: 1,330 Member
    todd121 said:

    Thanks Jan!

    It's really odd. It's not generalized swelling. It seems to be in the connective tissue/joints and it comes and goes. Sometimes it's so bad it's even in my wrists and it's painful when I put pressure on them. It doesn't seem to be generalized edema.

    Anyways, thanks and so glad to "see" you.

    Hugs,

    Todd

    Is it painful? Maybe its gout

    Is it painful? Maybe its gout related? What happens if you hold your hand up for awhile?

    Feel better soon Todd!

    Jan

  • todd121
    todd121 Member Posts: 1,448 Member
    edited September 2016 #10
    Jan4you said:

    Is it painful? Maybe its gout

    Is it painful? Maybe its gout related? What happens if you hold your hand up for awhile?

    Feel better soon Todd!

    Jan

    Doesn't help

    Holding my hands up doesn't help. It's in between the joints. Perhaps it is gout. But I thought gout is not usually widespread and symmetric? I'm seeing a rheumatologist on Friday. Maybe they can get to the bottom of it. My family care doctor did a test a couple of years ago, but it was inconclusive for gout. However, it's worse now so maybe they can tell now.

    That's the beauty of cancer. I actually hope it's gout. Lol. :) I just want to know so I can put it to rest. Unknown symptoms make me the most nervous. That's because of my history. I had an episode of severe hematuria a year before my diagnosis and a PA didn't really follow through with looking into it. I later had another doctor tell me that I should've had a CT scan then. Severe bleeding with no UTI and no other symptoms is serious, so this other doc said, and should be investigated until a cause is found.

    Now when doctor's shrug, it makes me nervous. They're only human, though. After all. I think the getting used to the unknown comes with this disease. It's not up to me, after all. Some things are just out of my control. Many things. Most things even. :)

    Todd

  • Allochka
    Allochka Member Posts: 1,062 Member
    edited September 2016 #11
    Fingers crossed for good

    Fingers crossed for good results!

  • APny
    APny Member Posts: 1,995 Member
    edited September 2016 #12
    I'm hoping for good news for

    I'm hoping for good news for you. The scanxiety truly sucks. I think the issue  with your hand may be water retention. Or it could be mild arthritis. Seeing the rheumatologist is a good thing. Hopefully it's something that can be easily treated. Wishing you all the very best. Hugs xx

  • stub1969
    stub1969 Member Posts: 966 Member
    Waiting

    I'm only about a month out of my surgery and I'm already thinking about my first set of scans.  I try not to let it consume me, but it is always there.  I'm not sure who posted the analogy of thinking about cancer is like a bad song that is stuck in your head, but it is so true.  Todd, I do hope your scans go well on Wednesday with good results AND you get some answers to your swelling issue.  You'll be in my prayers.

    Stub

  • Footstomper
    Footstomper Member Posts: 1,237 Member
    edited September 2016 #14
    a bad song that is stuck in your head

    I believe that is a Fox original, and very accurate it is too

  • daisybud
    daisybud Member Posts: 541 Member
    edited September 2016 #15
    todd121 said:

    Thanks Kim!

    Good to see you. How are you healing up?

    Todd

    Thanks

    I'm healing up good. Thanks for asking :)

    Kim

     

  • Jan4you
    Jan4you Member Posts: 1,330 Member
    edited September 2016 #16
    Sending you healing, calming

    Sending you healing, calming vibes my dear Todd! Why? Just cuz!

    Here for you!

    Hugs, Jan

  • todd121
    todd121 Member Posts: 1,448 Member
    edited September 2016 #17
    stub1969 said:

    Waiting

    I'm only about a month out of my surgery and I'm already thinking about my first set of scans.  I try not to let it consume me, but it is always there.  I'm not sure who posted the analogy of thinking about cancer is like a bad song that is stuck in your head, but it is so true.  Todd, I do hope your scans go well on Wednesday with good results AND you get some answers to your swelling issue.  You'll be in my prayers.

    Stub

    Bad song

    As Foostomper said, that was Fox I'm pretty sure.

    I sing in my church choir. Often times the anthem from the previous Sunday is stuck in my head all week. Even songs I like bug me when they stick around like that!

    There's good news, though. I can tell you from experience that at least I don't wake up thinking about my cancer anymore. I did for the first several months/couple of years. It was the very first thought when I'd wake up. Even in the middle of the night. I'd wake up, and the first thought would be "Damn. I've got cancer. This really, really sucks." Might even be a "poor me" in there somewhere.

    I don't wake up with that anymore. I haven't in a couple of years. So, if you're new and you have this, I'm pretty sure it'll ease up.

    Best wishes,

    Todd

  • foxhd
    foxhd Member Posts: 3,181 Member
    Lately it's

    been a Frank and Nancy Sinatra song. Hey, And as I type, I've forgotten it! Holy cow! The cure is using a keyboard. Damn, I hated that tune. glad it's out of my head. Sometimes I choose diferent song to concentrate on but it never remains. My wife has been whistling a Tom Petty song for a month. Before that we were stuck on Janis Ian and her song 17. Great tune. I liked singing it in my head for a couple months. She was awesome.

  • Footstomper
    Footstomper Member Posts: 1,237 Member
    Hey Fox!

    Its got to be Boots or Jackson

  • hardo718
    hardo718 Member Posts: 853 Member
    I think they refer to that

    as an "ear worm"....when you can't get a song out of your head.  Gross huh?  lol 

    They also say replace it with the Happy Birthday song and it'll disappear, but then who wants to hear that?....other than a kid that is.  haha

    Donna~

  • Allochka
    Allochka Member Posts: 1,062 Member
    Todd, in my part of the world

    Todd, in my part of the world Wednesday is already over. Have you got your results ? Or maybe Wednesday just starting for you...