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Failed both Votrient and Opdivo

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Comments

  • Jan4you
    Jan4you CSN Member Posts: 1,330 Member
    #22
    Will take every little bit of

    Will take every little bit of hope!

    Hugs to you! We're hear for you all the way!

    Jan

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  • mattva
    mattva CSN Member Posts: 2
    #23
    I am in the same boat. Got my

    I am in the same boat. Got my results today. Mine has spread to back, lymph nodes, liver and exploded into over 35 in my lungs.

    I got 5 months from Votrient. I start Opdivo this Friday.

    I am very sick and scared right now as my Onc said if they cant get it under control soon It is only a matter of a few mos. 

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  • Footstomper
    Footstomper CSN Member Posts: 1,237 Member
    edited June 2016 #24
    mattva said:

    I am in the same boat. Got my

    I am in the same boat. Got my results today. Mine has spread to back, lymph nodes, liver and exploded into over 35 in my lungs.

    I got 5 months from Votrient. I start Opdivo this Friday.

    I am very sick and scared right now as my Onc said if they cant get it under control soon It is only a matter of a few mos. 

    Good luck to you both

    Mattva, you may find Opdivo works very well for you as, thankfully, is has for me and others

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  • hardo718
    hardo718 CSN Member Posts: 853 Member
    edited June 2016 #25
    Best wishes to both of you

    I'm not sure how to respond, other than to say I will pray for both of you.  I'm saddened but hopeful that someone can can guide you to some good options.

    Donna~

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  • BellaBinksMom
    BellaBinksMom CSN Member Posts: 78
    #26
    mattva said:

    I am in the same boat. Got my

    I am in the same boat. Got my results today. Mine has spread to back, lymph nodes, liver and exploded into over 35 in my lungs.

    I got 5 months from Votrient. I start Opdivo this Friday.

    I am very sick and scared right now as my Onc said if they cant get it under control soon It is only a matter of a few mos. 

    I am so sorry to hear this.

    I am praying for an adequate response for you to the Opdivo.  We have to stay positive and remember - we do not have an expiration date stamped on us - and everyone is different.  Please visualize being here for your loved ones as you fight this spread - because we have to make our own destiny.  Hugs to you my friend.

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  • mrou50
    mrou50 CSN Member Posts: 389 Member
    #27
    BBM

    I am sorry for your bad news I will remember you in my prayers.

    Mark

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  • sledhead
    sledhead CSN Member Posts: 11
    #28
    Ipi Combo

    What about adding Ipi (Yervoy) with the Nivo? I have just been recently approved for Ipi through the BMS Patient Assistance Program. My local oncologist clinic worked with BMS and faxed the papperwork to me which I signed and returned. After insurance denial it was about a week for BMS to approve me. Also I have heard of some patients combining Cabo with Nivo or SBRT with Nivo to achieve an apscopal effect. Best of luck to you and sending prayers.

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  • BellaBinksMom
    BellaBinksMom CSN Member Posts: 78
    edited June 2016 #29
    sledhead said:

    Ipi Combo

    What about adding Ipi (Yervoy) with the Nivo? I have just been recently approved for Ipi through the BMS Patient Assistance Program. My local oncologist clinic worked with BMS and faxed the papperwork to me which I signed and returned. After insurance denial it was about a week for BMS to approve me. Also I have heard of some patients combining Cabo with Nivo or SBRT with Nivo to achieve an apscopal effect. Best of luck to you and sending prayers.

    I will ask my Oncologist

    I am staying on Opdivo until I am able to go to UCSF to discuss clinical trials.  I will have SRT on the brain mets within the next week.  Thank you for the information sledhead, I will ask my Onc about this combination.  

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  • danbren2
    danbren2 CSN Member Posts: 311
    edited June 2016 #30
    Prayers and Hugs!

    Bella,

         I am praying that your Dr. starts you on something else ASAP.  I will be praying that everything is going to be ok, or at least get stablized with a lot of shrinkage!

                    Love and prayers for good health!

                    Brenda

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  • JerzyGrrl
    JerzyGrrl CSN Member Posts: 760 Member
    #31
    Hugs, prayers, referrals...

    Keeping you all in my thoughts and prayers, sending hugs, and hoping for those referrals...!

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