CA 125 going up

namedropper
namedropper Member Posts: 102
edited April 2016 in Uterine Cancer #1

Hi, My CA 125 numbers have been going up.  8.9.9.13.17.30. I am 18 months NED with MMMT uterine cancer. The Dr. said I have to wait a month to repeat the blood test and if it keeps going up another Cat scan to see if I might be having a recurrence. I feel great except for my RA.  They said that because it almost doubled they are concerned. YUK. Since it has been a while they said if anything shows up they can hit it with chemo again. I had  5 taxol/carbo treatments. Did anyone else ever had this happen to them.   I don't post very much but I do read other posts everyday. Everybody on this post is really helpful.    thanks, Sue

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Comments

  • bluehyacinth
    bluehyacinth Member Posts: 51 Member
    I am having this happen right

    I am having this happen right now as well. I am UPSC stage 3CII. Mine went from 17, 35, 35. One doc said well still within range and the other yes a bit concerned as I was on chemo when it went from 17, 35. I am going on a trip for a month, but will have a pet/ct when I get back and a repeat ca125. It never ends.....until it does.

  • TeddyandBears_Mom
    TeddyandBears_Mom Member Posts: 1,811 Member

    I am having this happen right

    I am having this happen right now as well. I am UPSC stage 3CII. Mine went from 17, 35, 35. One doc said well still within range and the other yes a bit concerned as I was on chemo when it went from 17, 35. I am going on a trip for a month, but will have a pet/ct when I get back and a repeat ca125. It never ends.....until it does.

    CA125 levels going up and

    CA125 levels going up and down within the normal range is "mostly" normal from what I have been told. It is a guide for us to at least get things checked out but doesn't mean a recurrence just because of a jump. Mine was within normal range BEFORE my surgery - 21.7. Then after surgery and during chemo it jumped to 90. Then back down to 35 for the next several.  I just had one done last week and for the first time it was in the teens... 14. It is scary when that darn number goes up. But, even a cold can make that happen.

    I hope you both find yours to be nothing but normal!

    Love and Hugs,

    Cindi

  • bluehyacinth
    bluehyacinth Member Posts: 51 Member

    CA125 levels going up and

    CA125 levels going up and down within the normal range is "mostly" normal from what I have been told. It is a guide for us to at least get things checked out but doesn't mean a recurrence just because of a jump. Mine was within normal range BEFORE my surgery - 21.7. Then after surgery and during chemo it jumped to 90. Then back down to 35 for the next several.  I just had one done last week and for the first time it was in the teens... 14. It is scary when that darn number goes up. But, even a cold can make that happen.

    I hope you both find yours to be nothing but normal!

    Love and Hugs,

    Cindi

    Once past meno pause and a

    Once past meno pause and a radical hystorectomy it does not bob up and down that much as there is nothing in there anymore, it rises if one has an infection in there, cyst, fibroid etc It is more useful for ovarian cancer. Mine was over 100 before surgery, I also had a serous tube and ovary and one does not want it to double while on chemo even though it is within range. My gyno like it to be under 20 for menopausal women. It is useful for some and therefore I have one every month. Does not sound like it is useful for you since it was normal before surgery.

  • Kvdyson
    Kvdyson Member Posts: 789
    Not a good marker for me

    Hi Sue, I'm battling MMMT uterine cancer, too. My gyn-onc told me that CA-125 is not a good marker for me. I've read other posts that many things - like infections, etc. - can cause it to rise. I hope that is the case for you this time. Hang in there!

  • namedropper
    namedropper Member Posts: 102
    CA 125 going up

    It went up a little again so I am getting a scan on Tues. to see what is going on. The Dr. said because it has been going up they want to see what is going on.  I will know that afternood he said.   I was just starting to feel really good again.   I will keep you posted.   thanks for the support.     Sue

  • takingcontrol58
    takingcontrol58 Member Posts: 264 Member

    CA 125 going up

    It went up a little again so I am getting a scan on Tues. to see what is going on. The Dr. said because it has been going up they want to see what is going on.  I will know that afternood he said.   I was just starting to feel really good again.   I will keep you posted.   thanks for the support.     Sue

    CA125 going up - other blood tests to get

     Namedropper,

    You should ask your doctor to test for HE4 as well as CA125.  They say HE4 is a better marker. I get tested
    for both.  You also may want to test for Ferritin (measures iron reserves- cancer loves iron and glucose).
    Mine were very high when I was diagnosed with cancer. They are now very normal and I am NED. This test
    is often used to tell if your cancer treatment is working. Most doctors do not test all the relevant markers.
    I am also tested for Insulin Growth Factor-1 (IGF-1)- it is one of the main fertilizers for endometrial cancer.

    Good luck.
    Takingcontrol58

    Good luck.

  • namedropper
    namedropper Member Posts: 102

    CA125 going up - other blood tests to get

     Namedropper,

    You should ask your doctor to test for HE4 as well as CA125.  They say HE4 is a better marker. I get tested
    for both.  You also may want to test for Ferritin (measures iron reserves- cancer loves iron and glucose).
    Mine were very high when I was diagnosed with cancer. They are now very normal and I am NED. This test
    is often used to tell if your cancer treatment is working. Most doctors do not test all the relevant markers.
    I am also tested for Insulin Growth Factor-1 (IGF-1)- it is one of the main fertilizers for endometrial cancer.

    Good luck.
    Takingcontrol58

    Good luck.

    CA 125 going up

    Thank you so much. I was low on iron  even before cancer and now take a pill and eat more beef .   I also have had low blood sugar and have to eat every 3 hours or my sugar drops. It is called reactive hypoglycemia and I have had it for a lot of years.    I first had breast cancer in 2012  and didn't need chemo and then uterine MMMT cancer.  They were not related.  I will ask the DR. on Tues after he gives me my scan results. I also have Celiac since 2008 and that is when they also found the low blood sugar.    I am going to be 75 years young and I am still working.  Thanks again   I learn so much from everyone.  All I can do is hang in there.

  • Abbycat2
    Abbycat2 Member Posts: 644
    Sue and Blue I am hoping that

    all goes well with your Ca 125 blood tests. My gyn onc told me that if it starts to double then that would raise an eyebrow. With that said, any infection can cause it to rise. A sure bet is to have a pet or cat scan. I hope for the very best for both of you.

    Cathy

     

  • namedropper
    namedropper Member Posts: 102
    I will have my scan on the

    I will have my scan on the 24th at 9am est. They should have the results by afternoon. Always something.  I have had so many cat scans that I have lost count in the last 12 years.   I will post when I know something.  I know the waiting is the worst.  Thanks to all of you for being there for me and all of others.

  • TeddyandBears_Mom
    TeddyandBears_Mom Member Posts: 1,811 Member
    Sue, The wait really is the

    Sue, The wait really is the worst! I'll be thinking about you in the morning. I hope all goes well and that you get good news on the other side of the test. We are here for you to celebrate or hold you up!

    Love and hugs,

    Cindi

  • Editgrl
    Editgrl Member Posts: 903
    Will be thinking of you, Sue

    And hoping for the best. The good thing is that you will have the results the same day.  We'll be waiting along with you.

    Chris

  • brissance
    brissance Member Posts: 192
    Just Sending Positive Vibes

    Sue, I know tomorrow is the big day.  My own doctor places little to no confidence in CA 125 for Uterine Cancer.  I had to ask for the test to be taken during blood test after reading it on this board.  I trust him and so I have not paid attention to the results one way or another.  Just one more added stresser.  I am not saying it is a good test or bad test, don't know but at best it is only an indicator to follow up.  I feel sure you will have great results tomorrow.  Many hugs of comfort and prayers for healing and happiness are coming your way!

  • EZLiving66
    EZLiving66 Member Posts: 1,476 Member
    brissance said:

    Just Sending Positive Vibes

    Sue, I know tomorrow is the big day.  My own doctor places little to no confidence in CA 125 for Uterine Cancer.  I had to ask for the test to be taken during blood test after reading it on this board.  I trust him and so I have not paid attention to the results one way or another.  Just one more added stresser.  I am not saying it is a good test or bad test, don't know but at best it is only an indicator to follow up.  I feel sure you will have great results tomorrow.  Many hugs of comfort and prayers for healing and happiness are coming your way!

    CA125 is not a good cancer

    CA125 is not a good cancer marker for me either.  Mine was 8 when I had my surgery and the cancer was already Stage II, Grade 3.  After surgery it went to 11.  I have not had it test again.  I'm hoping for the best today!

    Love,

    Eldri

  • Lou Ann M
    Lou Ann M Member Posts: 996
    edited May 2016 #15

    CA 125 going up

    It went up a little again so I am getting a scan on Tues. to see what is going on. The Dr. said because it has been going up they want to see what is going on.  I will know that afternood he said.   I was just starting to feel really good again.   I will keep you posted.   thanks for the support.     Sue

    Prayers for the best

    hope everything goes well with the scan today.  I have stage 4 high grade serous pappillary edndometrial andocarsinoma  my CA 125 seems to be very accurate.  It was even very predictive while I was on Doxil.  But remember everyone is different as you see on here.  It is not a good predictor for many.  Hoping for the very best for you .  Hugs and prayers, Lou Ann

  • namedropper
    namedropper Member Posts: 102
    Great news. Still Ned 18

    Great news. Still Ned 18 months later.    Even though my CA 125 went up I am still NED.   Yeah.   They think that my gerd might have caused the rise.   Thank you for your thoughts and prayers and hugs.  I will now do a happy dance.

  • Editgrl
    Editgrl Member Posts: 903
    Yay!

    SO happy to hear this!  Been thinking about you since I woke up this morning. What great news!

  • Abbycat2
    Abbycat2 Member Posts: 644
    Sue, that's wonderful news!


    Congratulations, namedropper! I am glad that you can now breathe a sigh of relief!

    Hugs,

    Cathy 

  • TeddyandBears_Mom
    TeddyandBears_Mom Member Posts: 1,811 Member
    Sue, YES!!! That is wonderful

    Sue, YES!!! That is wonderful news. Thank you for reporting back so quickly too.

    We are all doing the happy dance with you!

    Love and Hugs,

    Cindi

  • ConnieSW
    ConnieSW Member Posts: 1,613 Member
    Enjoy

    pleased for you.

  • EZLiving66
    EZLiving66 Member Posts: 1,476 Member

    Great news. Still Ned 18

    Great news. Still Ned 18 months later.    Even though my CA 125 went up I am still NED.   Yeah.   They think that my gerd might have caused the rise.   Thank you for your thoughts and prayers and hugs.  I will now do a happy dance.

    I'm doing the happy dance

    I'm doing the happy dance with you, Sue!!!  That is WONDERFUL news!!!

    Love,

    Eldri