having open partial nephrectomy on Monday

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Comments

  • APny
    APny Member Posts: 1,995 Member
    edited May 2016 #22
    That is wonderful news about

    That is wonderful news about it being benign. Sorry you went through a bit of rough time there but I think the diagnosis made it a lot easier to bear. Wishing you a speedy recovery and do discuss your anemia with your doc. I take Slo Fe for chronic iron deficiency anemia but at first it can constipate you. So wait until you're regular to take it and do discuss it with your doctor first. Too much iron is dangerous too so if you're not iron deficient you shouldn't be taking it. All the best!

  • mrou50
    mrou50 Member Posts: 389 Member
    edited May 2016 #23
    pappy1264 said:

    I am back home

    It was rough.  They said 'until we get it out, it is considered cancer.  You have about 15% chance it is benign.  Well, guess what, IT WAS BENIGN!!!  I beat the odds!  That being said, I had a very rough time.  Two days of blood pressure so low (I normally do run low), they were really panicking.  It was because of the epidural that was put in for pain, so after a day, it was shut off.  Then on the second night, I got the worse pain on the RIGHT side, under my ribs, so bad I could barely breath.  Ultrasound did not show anything.  Took me four days before I was even able to get out of bed!  But on that fourth day, things started to change dramatically, as the pain in the right side (it was so much worse then the left was) began to subside.  I finally got to eat solid foods on Friday, and went home Friday evening.  I am not doing bad, although lot of gas build up and cannot go the bathroom (have been on colace all week  and they did give me an enema in hospital on day three, although had nothing in me then!  Sorry if that is tmi...but figure here there really is no such thing.)  I am doing well painwise (well, the gas/pressure is getting to me, but its not really painful, again messing with the breathing more then anything).  Hubby just went and got me dulcolax suppositories...party on a Saturday night...lol  Just want to get things moving and some relief.  Honestly, I am surprised how little pain I have in my left side.  They 'reused' my incision (doc said it was tough but they were able to do it), but extended it about 4" more around the front.  I do have low RBC, Hemogloblin and Hematocrit, but they did not say anything about taking anything for that.  I will call primary this week just to touch base regarding that.  Again, I tend to run borderline normally.  I have good energy, although am resting as I feel needed.  I have only taken 1 5mg oxycontin today so far along with my colace, and have been fine.  Even in hospital, I was not taking a lot of pain meds (it was as I requested it, and I didn't need it alot, mostly at night.)  I do have staples, and go back on the 18th for follow up.  I also had central line in neck but thankfully did not need chest tube!  Only time I got nausea was in recovery, and again later that night but did breathing exercises and it passed.  My doctore said I am very lucky, as they do not see it being benign very often.  Oh, I my tumor was an oncocytoma  Thank you everyone.  If I can get my insides moving, I would be doing fantastic!  lol

    Pappy

    Great news congratulations

  • Footstomper
    Footstomper Member Posts: 1,237 Member
    pappy1264 said:

    I am back home

    It was rough.  They said 'until we get it out, it is considered cancer.  You have about 15% chance it is benign.  Well, guess what, IT WAS BENIGN!!!  I beat the odds!  That being said, I had a very rough time.  Two days of blood pressure so low (I normally do run low), they were really panicking.  It was because of the epidural that was put in for pain, so after a day, it was shut off.  Then on the second night, I got the worse pain on the RIGHT side, under my ribs, so bad I could barely breath.  Ultrasound did not show anything.  Took me four days before I was even able to get out of bed!  But on that fourth day, things started to change dramatically, as the pain in the right side (it was so much worse then the left was) began to subside.  I finally got to eat solid foods on Friday, and went home Friday evening.  I am not doing bad, although lot of gas build up and cannot go the bathroom (have been on colace all week  and they did give me an enema in hospital on day three, although had nothing in me then!  Sorry if that is tmi...but figure here there really is no such thing.)  I am doing well painwise (well, the gas/pressure is getting to me, but its not really painful, again messing with the breathing more then anything).  Hubby just went and got me dulcolax suppositories...party on a Saturday night...lol  Just want to get things moving and some relief.  Honestly, I am surprised how little pain I have in my left side.  They 'reused' my incision (doc said it was tough but they were able to do it), but extended it about 4" more around the front.  I do have low RBC, Hemogloblin and Hematocrit, but they did not say anything about taking anything for that.  I will call primary this week just to touch base regarding that.  Again, I tend to run borderline normally.  I have good energy, although am resting as I feel needed.  I have only taken 1 5mg oxycontin today so far along with my colace, and have been fine.  Even in hospital, I was not taking a lot of pain meds (it was as I requested it, and I didn't need it alot, mostly at night.)  I do have staples, and go back on the 18th for follow up.  I also had central line in neck but thankfully did not need chest tube!  Only time I got nausea was in recovery, and again later that night but did breathing exercises and it passed.  My doctore said I am very lucky, as they do not see it being benign very often.  Oh, I my tumor was an oncocytoma  Thank you everyone.  If I can get my insides moving, I would be doing fantastic!  lol

    Benign

    Congratulations! I reckon you've just won the lottery we've all been enrolled in.

  • foxhd
    foxhd Member Posts: 3,181 Member
    Congrats!!

    I would recommend routine follow ups anyway because you have proven to be prone to kidney dysfunction. Make sure you do your part to stay well.

  • hardo718
    hardo718 Member Posts: 853 Member
    Congratulations Pappy

    You're a lucky one.

    God Bless and rest easy.

    Donna~

  • todd121
    todd121 Member Posts: 1,448 Member
    pappy1264 said:

    I am back home

    It was rough.  They said 'until we get it out, it is considered cancer.  You have about 15% chance it is benign.  Well, guess what, IT WAS BENIGN!!!  I beat the odds!  That being said, I had a very rough time.  Two days of blood pressure so low (I normally do run low), they were really panicking.  It was because of the epidural that was put in for pain, so after a day, it was shut off.  Then on the second night, I got the worse pain on the RIGHT side, under my ribs, so bad I could barely breath.  Ultrasound did not show anything.  Took me four days before I was even able to get out of bed!  But on that fourth day, things started to change dramatically, as the pain in the right side (it was so much worse then the left was) began to subside.  I finally got to eat solid foods on Friday, and went home Friday evening.  I am not doing bad, although lot of gas build up and cannot go the bathroom (have been on colace all week  and they did give me an enema in hospital on day three, although had nothing in me then!  Sorry if that is tmi...but figure here there really is no such thing.)  I am doing well painwise (well, the gas/pressure is getting to me, but its not really painful, again messing with the breathing more then anything).  Hubby just went and got me dulcolax suppositories...party on a Saturday night...lol  Just want to get things moving and some relief.  Honestly, I am surprised how little pain I have in my left side.  They 'reused' my incision (doc said it was tough but they were able to do it), but extended it about 4" more around the front.  I do have low RBC, Hemogloblin and Hematocrit, but they did not say anything about taking anything for that.  I will call primary this week just to touch base regarding that.  Again, I tend to run borderline normally.  I have good energy, although am resting as I feel needed.  I have only taken 1 5mg oxycontin today so far along with my colace, and have been fine.  Even in hospital, I was not taking a lot of pain meds (it was as I requested it, and I didn't need it alot, mostly at night.)  I do have staples, and go back on the 18th for follow up.  I also had central line in neck but thankfully did not need chest tube!  Only time I got nausea was in recovery, and again later that night but did breathing exercises and it passed.  My doctore said I am very lucky, as they do not see it being benign very often.  Oh, I my tumor was an oncocytoma  Thank you everyone.  If I can get my insides moving, I would be doing fantastic!  lol

    Congratulations!

    Good news. After 3 1/2 years here, I can't remember it being this 10-15% number they mention. That's just great. We're glad to see people be able to leave here fully cured.

    Good luck to you.

    Todd