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My Story of Cervical Cancer, hope it helps someone.

SmplyChel
Posts: 9
Joined: Apr 2012

I'm Chel,41 year old femaie and hope my story can help someone going through the same thing, Here's my story:

In early summer 2011 I started having some right side back pain, I had visited my family doctor and some test were done and it was decided it was a bladder / kidney infection. I was given antibiotics and sent on ny way. My periods in August 2011 started getting weird, they were very heavy and would last a long time or short and I'd have 2 a mnth somtimes. I also started passing huge clots. I talked to friends and my mom about it and it seemed normal, like maybe I was starting the change.

I was dating someone and hadn't been with anyone in 7 years sexually and the first time I slept with my boyfriend I bled durring and after, I again just thought it was because I hadn't been with anyone in a long time. But it happened everytime and my periods got heavier and the clots got huge, during this time I still had the right side back pain. Finally I decided I better do a little bit more and find out whats going on.

My family doctor sent me to a gyno. He did a pap smear and several other blood tests in December 2011. He also ordered a transvaginal ultrasound. My papsmear came back abnormal and doctor ordered a coloposcopy, the transvaginal ultrasound showed a cyst on a ovary but he wasn't concerned about it, he said its the type that come and go, and I knew from history I had them when I was in my teens. The doctor told me the pathologist said just from the papsmear he was sure it was cancer and it if wasn't it was the worst case he had seen, I had the Colposcopy Jan 9, 2012. On 1/13/12 I was told I had Invasive Squamous Cell Carcinoma. The biospy they took was all cancer, I remember bleeding so bad they werent sure they could get it stopped, they used this mustard coffee ground substance for my cervix, it stopped the bleeding, but was painful the next few days.

The gyno sent me to an Oncologist, she is wonderful. I saw her at the end of January 2012. She's always been so positive that we can treat this. At this point I was told it was 2B. She sent me to get a PetScan. Early Feb 2012. The scan showed a little bit more advanced and now I was told it was 3b. Tumor was on my ureter to my right kidney, why I had been having the back pain. I also had 2 very small lymph nodes that showed some signs of cancer, one more than the other. She immediatly said we have to save your kidney, I had to have stent put in to open up the ureter. The immediatly stopped my back pain.

My oncologist ordered 6 rounds of Chemo, 28 rounds of external radiation and 5 internal radiations. I have just finished my last treatment April 24th of internal. Now I'm waiting for everything to settle and I'll see the oncologist and radiologist at the end of May. I didnt loose my hair with the chemo, the chemo I got is something that helps the radiation, it's not the strong kind. It made me sick, I lost my taste buds, but found a few things I could eat, like peanut butter and jelly and eggs and toast. External radiation was fairly easy the first few weeks, then with that and the chemo I became very tired. Then the internal radiation started, my radiologist puts you under general, just like surgery, they radiation takes 20 mins but he said it's so uncomfortable for women that its easier to be put under. This part of the treatment I think is the hardest and the worst. I'm a big baby and a worry wart and I'm still not sure how I made it thought but I did. My faith in God and family and friends have helped so much. I could not have made it as I did without my mom, she's been there every step. After my treatment Tuesday 4/24 while I was in recovery, they told my mom that they couldn't see the tumor anymore. My mom texted and called everyone she knew while I was in recovery, me, I'm still in shock and I'm hoping that my scans I'll get in the coming weeks show that the cancer is gone.

i know i've fogotten details and I hope this helps someone, please feel free to ask me questions and If I can can be of help let me know, this journey is tuff and scary and the one thing I want to share is to help others, I was scared going into this and realized there wasn't alot of "people" that I knew that went through this to help me. I'm still recovering, still very tired, but everyday I get better.

ccfighter
Posts: 476
Joined: Jan 2012

Julie,

im so sorry that you have had this diagnosis.  I know it's hard to wrap your head around it all.  I was diagnosed with stage 2 cervical cancer in 2011, when I was 32.  I have three beautiful kids that were my reason to keep fighting.  You can do this.  Let us know if you have any questions or just want to vent.  We are here.  Hugs.

TBURKE15
Posts: 1
Joined: May 2016

has anyone had issues with redness and soreness when they get tired or after theyve been sick?  this started happening after my treatments.  when i get super tired or after ive been sick, the upper thigh area on one or both legs gets very red and very sore.  MY doctor looked at me like I was crazy when i described it.

Kimmy1003
Posts: 1
Joined: Jul 2016

Hi,  

My mother just recieved the news that she has cervical cancer that has spread into the uterus.  At first her Dr. just did a uterine biopsy; and it came back cancer.  Then she did a pap smear and it came back cervical cancer.  We are currently going to a Gyno Oncologist.  She just had her first appointment on Monday the 25, of July.  She had colon cancer 30 years ago and she does not have a large intestine or orvaries.  The Gyno Oncologist said that her uterus is prolapsed down into her abdomin.  That robotic surgery is not an option.  She is going in for a CT scan on Friday the 29th.  I wonder what approach he is going to take.  I guess it all depends on if it has spread anywhere else.  Has anyone elses Mother gone thru this?

moesers
Posts: 1
Joined: Jul 2016

This is my first time posting in something like this, something I never thought I'd be doing. Kimmy1003, my mother also just received the same news on the same day. She's at least stage 3 but they have yet to do the cat scan or chest xrays. Those will be completed on August 5th and I feel like I want to throw up just thinking about it. I've been reading posts about how to deal with learning your mother has cancer and it's helping a little, but there's nothing anyone can do. I want to yell, I sit at work fighting back tears, I break down at night. The only relief I get is when I sleep. But waking up and remembering is the worst. It has only been 2 days since I found out about everything - maybe it gets easier? Probably not. How do you watch the person you love most in the world go thru something as awful as this? Kimmy, I will be thinking of you and will pray for good news for your mom. Please do the same for mine. I don't wish this upon anyone.

ccfighter
Posts: 476
Joined: Jan 2012

Moesers and Kimmie,

im sorry that your mothers have received this diagnosis.  I know it is hard to deal with watching a loved one deal with a devastating diagnosis and facing a grueling treatment.  But please don't feel helpless or hopeless.  As scared as u are, she is too.  Let her know u are there to help however you can.  Also know that treatments can be curative, and they sound worse then they are.  Many of us here have survived the gamut of treatments, from surgery to radiation and chemo, and some of us multiple times.  Bring her comforting meals, movies to enjoy together, call often and find reasons to laugh and enjoy life.  Believe in the future...there is a future.  Hugs to you  both.

Rubyshoes
Posts: 19
Joined: Feb 2017

Thanks for sharing your story. It helps me.

Dan4523
Posts: 1
Joined: Feb 2017

My wife Susan went through pretty much the same treatments for her stage 2b cervical cancer. The treatments were very rough, but when I see her playing these days with our grandchildren and the huge smiles on her face as well as our grandchildren. Those are priceless times. I feel so lucky to have my prayers answered and have my wife cancer free now for about 4 months since her last treatment. There were times during those final radiations and chemos where she would be in bed 22 out of 24 hours per day. Now, her strength is at about 60percent of where she was at before the cancer. Her doctor said it is not uncommon for her to spend the next 6 months continuing to increase her strength. Other than being a little weak at times, her life is pretty much back to normal. Those days when she laughs and smiles so big are absolutely priceless. These posts on the board helped give us the optimism to fight this battle. I hope my words help someone beat the battle too.

Ophelia5150's picture
Ophelia5150
Posts: 1
Joined: Apr 2017

This has been one of the hardest trials I have ever been through. I do not have anybody who truly understands. My symptoms and story is very similar to yours. Even in age range...The new boyfriend...Etc. Etc. The only difference is that I had just started the depo shot. It has been a year since last treatment. I was so strong the whole entire time and then when all was said and done...I broke down. It started when I returned to work and I was no longer "super multi-tasking" woman. I was treated poorly. It has been a long haul getting use to my new "normal". I have noticed as of recently, my energy is coming back. I have less bad days...And the energy....I was struggling working crazy hours while trying to raise 3 kids not knowing I had this growing in me. I pushed through it all until one day the bleeding was so bad...I passed out at work. 

 

Anita m
Posts: 3
Joined: Apr 2017

Thank you for your story I'm trying to find someone who has a understand of what I'm about to go threw

Anita m
Posts: 3
Joined: Apr 2017

Can anyone tell me about. Stage1  cervical cancer and treatment of chemotherapy and radiation

Anita m
Posts: 3
Joined: Apr 2017

Please help I'm starting my treatment this Friday

Cervical2017
Posts: 1
Joined: Jul 2017

How are you doing now?

Anichols
Posts: 4
Joined: Sep 2017

I also am cancer free, for now, but suffer from many bowel issues due to radiation.  So embarrassing, but better than having to write my will.  Anyone else w chronic diahrrea and intermittent bleeding w clots?  (UGH! I know.  Sorry.)    Has anyone had to use medicated enemas to coat the bowels?  Does it ever end?  Or just get worse n worse?  Thanks for any comments.

Hokulani44
Posts: 2
Joined: Aug 2018

Aloha Chel, 

I am 35 years old and just had an appointment with my obgyn. I’ve been bleeding heavily for three months now Accompanied with lower flank back pain. Right and left aide. My doc sent me to get labs, and has scheduled a transvaginal ultrasound for a few days from now. I’m feeling quite terrified. My question is, your bleeding and back pain. Was it all of a sudden, achey or sharp pains... My mind is racing and google has become my worst enemy. 

Anyhkw, thank you so much for sharing your story! its truly inspiring! Lots of Aloha, 

 

Gabby 

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2616
Joined: Mar 2013

Hokulani, it looks like Chel has not been logged in to CSN since Feb 2016.  I don't know if she still logins or not, but I am a visitor from the Uterine board, checking on our fellow gyn sisters, and wanted to give you some advice.

You are doing everything you are supposed to do to find out just what the heck is going on.  I know it is scary, and you are right that Google is your worst enemy - Dr. Google did not go to any med school - so you need to avoid going there.  Try to take a breath, getting the testing is the first step, just push your doctor for answers.  IF, and you don't have any results yet, if it turns out to be cancer, you want to be working with a gynecologic oncologist.  First things first.  Tests and results - and that is exactly what you are working on. 

Hokulani44
Posts: 2
Joined: Aug 2018

Good Morning, 

I just wanted to thank you for responding. The assurance that I am taking the right steps forward in figuring this out is encouraging. I have yet to receive pap results however I did receive my blood work. The only thing flagged was my RDW: low. Ultrasound is in two days and I’ll follow up in one week with my OB if she can’t get me in earlier. Anyhow, thanks again. I appreciate you taking time to write. 

Aloha, 

 

gabby 

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