My Story of Cervical Cancer, hope it helps someone.

24

Comments

  • Noggin
    Noggin Member Posts: 4
    Noggin said:

    Denisa's story
    Thank-you for posting your story, my wife Denisa has gone through some of the same things as you and the other women on this board. Her story starts like this.

    Pap showed some abnormal cells so she was told they needed to do a LEEP. Leep was done and we were told that all was fine and nothing to worry about. Some spotting was noticed by her and off we went back to doc, colo was done 2 months after LEEP and was told that now we need to get biopsy done. OBGYN Onc came in during biopsy and said it was cancer and we could not wait for results from biopsy to start PET scans.

    PET scan showed Stage IIb with lymph nodes up to kidneys positive for cancer.

    Six rounds of chemo with cysplatin, six weeks of external radiation and six treatments of internal radiation. Just completed treatments on DEC 2nd 2012. CT scan and visual exam showed no sign of cancer remaining. Her radiation Onc told her about a study in Australia where they give 2 more rounds of chemo after all treatments have been completed. Her OBGYN Onc was not aware of study and looked into it and gave her the option if she wanted to do the 2 more treatments, it is with a different chemo drug than the cysplatin. We are going to do it to give the best chance possible to beat this thing.

    I admire all of you ladies that are fighting this and will pray for each and every one of you. Thank-you again for posting your stories. I will update this when we get our first post treatment scan

    Up-date
    The chemo that we will try is Taxol and Carboplatin, this is a study that is ongoing in Australia. Denisa did not qualify for the study due to the fact that she had a partial hysterectomy back in 2005. When we get our next scan I will update again, but all signs show that my beautiful wife is kicking cancer's butt!!!!!!!
  • Chel
    I have the same symptoms

    Chel

    I have the same symptoms to A T, I went to the dr's last wens. and was told i have abnormal pap..we r waiting on tax paperwork as we dont have insurance, my husband is self-employed, Im so scared i cant sleep i cry all the time and feel angry, i go back next week....i just turned 43 and feel my life just came to a stop..I have a quine rescue and normally im out with all my horses ALL day and cant or dont want to at this point, i feel so selfish, i barrel race and have nowant to..i need a friend i dont know anybody who has been through this

    cindy

  • SmplyChel
    SmplyChel Member Posts: 9 Member
    Almost 1 Year out -Update

    It's encouraging to read so many responses. Next month will be 12 months for me since treatment stopped. I will have a petscan to make sure it's still gone in April. My last two cervical exams showed no cancer.  I've been back to work since June of last year. I'm not back to 100% yet. I've been very anemic and been through some more test. The radiation damaged my colon and was causing me lots of stomach problems and bleeding issues. I had a colonoscopy in Feb 2013, the doctor said the radiation damaged capillaries and when they grew back they grew back at the surface and just bled constantly. Doctor said he fixed about 80% of them. I've notice the bleeding stop immediatly and my stomach issues whent away as well. I'm still anemic but hopefully that just take sometime to work it self out.

    One thing I'm having some issues with is I'm still so tired. My legs hurt from my hips down, all the time. Walking is an issue for me. I'm overweight and have been my whole life, but they weren't like this before the cancer. I wasn't tired like this before either. It's really all I can do to get through the day. Even at night my legs ache. I talked to my family doctor and the oncologist and they really don't think it's from the treatment. However the PA at the Oncologist office told me she was a radiation nurse for years and it doesn't suprise her. They can't stop damage of the good stuff and she's seen lots of nerve damage. Any one else having this issue? I hope and pray that I can get back to before the cancer. Getting through one day without pain would be great too. But I'm not ungreatful for where I'am. I'm happy I beat this, and so glad to be alive and still able to work.

    Those of you just starting your journey, you can get through it. The path may look ruff and unbeatable but stand strong and beat it! I still look back and can't believe I did all that I did to get me where I'am today. My family, friends and personal relationship with God are what got me through it.

  • ccfighter
    ccfighter Member Posts: 476
    SmplyChel said:

    Almost 1 Year out -Update

    It's encouraging to read so many responses. Next month will be 12 months for me since treatment stopped. I will have a petscan to make sure it's still gone in April. My last two cervical exams showed no cancer.  I've been back to work since June of last year. I'm not back to 100% yet. I've been very anemic and been through some more test. The radiation damaged my colon and was causing me lots of stomach problems and bleeding issues. I had a colonoscopy in Feb 2013, the doctor said the radiation damaged capillaries and when they grew back they grew back at the surface and just bled constantly. Doctor said he fixed about 80% of them. I've notice the bleeding stop immediatly and my stomach issues whent away as well. I'm still anemic but hopefully that just take sometime to work it self out.

    One thing I'm having some issues with is I'm still so tired. My legs hurt from my hips down, all the time. Walking is an issue for me. I'm overweight and have been my whole life, but they weren't like this before the cancer. I wasn't tired like this before either. It's really all I can do to get through the day. Even at night my legs ache. I talked to my family doctor and the oncologist and they really don't think it's from the treatment. However the PA at the Oncologist office told me she was a radiation nurse for years and it doesn't suprise her. They can't stop damage of the good stuff and she's seen lots of nerve damage. Any one else having this issue? I hope and pray that I can get back to before the cancer. Getting through one day without pain would be great too. But I'm not ungreatful for where I'am. I'm happy I beat this, and so glad to be alive and still able to work.

    Those of you just starting your journey, you can get through it. The path may look ruff and unbeatable but stand strong and beat it! I still look back and can't believe I did all that I did to get me where I'am today. My family, friends and personal relationship with God are what got me through it.

    Thanks for the update

    Thanks for the update Smplychel.  I hope the pet scan keeps you all clear and that your pain and fatigue continue to improve and disappera all together.  Keep us updated.  We really need to keep hearing success stories!  Hugs.

  • adri1493
    adri1493 Member Posts: 4
    SmplyChel said:

    Almost 1 Year out -Update

    It's encouraging to read so many responses. Next month will be 12 months for me since treatment stopped. I will have a petscan to make sure it's still gone in April. My last two cervical exams showed no cancer.  I've been back to work since June of last year. I'm not back to 100% yet. I've been very anemic and been through some more test. The radiation damaged my colon and was causing me lots of stomach problems and bleeding issues. I had a colonoscopy in Feb 2013, the doctor said the radiation damaged capillaries and when they grew back they grew back at the surface and just bled constantly. Doctor said he fixed about 80% of them. I've notice the bleeding stop immediatly and my stomach issues whent away as well. I'm still anemic but hopefully that just take sometime to work it self out.

    One thing I'm having some issues with is I'm still so tired. My legs hurt from my hips down, all the time. Walking is an issue for me. I'm overweight and have been my whole life, but they weren't like this before the cancer. I wasn't tired like this before either. It's really all I can do to get through the day. Even at night my legs ache. I talked to my family doctor and the oncologist and they really don't think it's from the treatment. However the PA at the Oncologist office told me she was a radiation nurse for years and it doesn't suprise her. They can't stop damage of the good stuff and she's seen lots of nerve damage. Any one else having this issue? I hope and pray that I can get back to before the cancer. Getting through one day without pain would be great too. But I'm not ungreatful for where I'am. I'm happy I beat this, and so glad to be alive and still able to work.

    Those of you just starting your journey, you can get through it. The path may look ruff and unbeatable but stand strong and beat it! I still look back and can't believe I did all that I did to get me where I'am today. My family, friends and personal relationship with God are what got me through it.

    Thank You!

    Hi SmplyChel!

    First off, congrats on being cancer free as of today and hoping n praying that your next petscan comes out clean as well.

    I was diagnosed with cervical cancer in Aug 2012. After getting over the initial shock, I found this site and it helped me a lot knowing I was not alone.  I’m 40 years old and had gone thru the same symptoms as you did.  I, too, had not been with someone for a long time (over 8 years for me) and for the same reasons (as you did), I went to check myself out.  I was also a big baby when it came to doctors and as well, didn’t get regular paps.  I had a similar diagnosis staged at 2a and same 6 rounds of chemo/ 28 ext radiations.  I did have interstitial brachytherapy (the one with the needles left in me).  My mom (the strongest most loving woman I know) was also the one helping me out through all of this.  So after going thru some really brave stories on this board, I ran into your initial post on 04/29/2012… and it really helped me TREMENDOUSLY.  When I read it, it was like I was living a parallel life with you.  

    I felt so connected to your story that I even saved it on my iphone referring back to it on occasions (usually my bad days) because it was written in such a positive manner that it would remind me: “this too shall pass”.  I had so many questions I wanted to ask you at the time but as you and others may know, you’re just overwhelmed with Dr apptmts, chemo sessions, daily radiations, etc etc that at least with me, when you do have the time, I just wanted to be left alone.  I did read a lot of other stories on this site and there are so many courageous women on here but I just didn’t know how to ask, comment or respond to you or any of them without bursting into tears (because of my own problems).

    However, my last chemo/external radiation was on 12/10/2012; my last brachy was 01/16/2013 and I have been cancer free as of 02/13/2013! My energy level is still not what it used to be but I’m working on that.  I just wanted you to know Chel that of all of the posts I searched through, yours was the one I kept referring back to thru my treatment process and for that reason, I felt compelled to finally write my first post when I saw you back on the board and tell you that from the bottom of my heart, I THANK YOU FOR YOUR BEAUTIFUL STORY!  Your positive attitude then and even now, has made me go thru this with a smile and I wanted you to know that.  The subject title was perfect… “My Story of Cervical Cancer, hope it helps someone”… well let me tell you, IT HELPED ME A WHOLE LOT!

    I hope that your energy level continues to improve and that your pains soon go away.  I didn’t share any details of my physical symptoms because this was more of a thank you letter to you Chel.  But if I can be of any help to any women out there, I will be more than happy to share my story with any of you. I am kinda of a private person and for that reason too, I never asked or commented on this site however, I've changed in many many ways and if I can help one person just like Chel helped me, then I will be more than willing to share my experiences.  It was a rough road but thanks to the women on this site like SmplyChel, I have maintained positive thru this ordeal.   

  • SmplyChel
    SmplyChel Member Posts: 9 Member
    adri1493 said:

    Thank You!

    Hi SmplyChel!

    First off, congrats on being cancer free as of today and hoping n praying that your next petscan comes out clean as well.

    I was diagnosed with cervical cancer in Aug 2012. After getting over the initial shock, I found this site and it helped me a lot knowing I was not alone.  I’m 40 years old and had gone thru the same symptoms as you did.  I, too, had not been with someone for a long time (over 8 years for me) and for the same reasons (as you did), I went to check myself out.  I was also a big baby when it came to doctors and as well, didn’t get regular paps.  I had a similar diagnosis staged at 2a and same 6 rounds of chemo/ 28 ext radiations.  I did have interstitial brachytherapy (the one with the needles left in me).  My mom (the strongest most loving woman I know) was also the one helping me out through all of this.  So after going thru some really brave stories on this board, I ran into your initial post on 04/29/2012… and it really helped me TREMENDOUSLY.  When I read it, it was like I was living a parallel life with you.  

    I felt so connected to your story that I even saved it on my iphone referring back to it on occasions (usually my bad days) because it was written in such a positive manner that it would remind me: “this too shall pass”.  I had so many questions I wanted to ask you at the time but as you and others may know, you’re just overwhelmed with Dr apptmts, chemo sessions, daily radiations, etc etc that at least with me, when you do have the time, I just wanted to be left alone.  I did read a lot of other stories on this site and there are so many courageous women on here but I just didn’t know how to ask, comment or respond to you or any of them without bursting into tears (because of my own problems).

    However, my last chemo/external radiation was on 12/10/2012; my last brachy was 01/16/2013 and I have been cancer free as of 02/13/2013! My energy level is still not what it used to be but I’m working on that.  I just wanted you to know Chel that of all of the posts I searched through, yours was the one I kept referring back to thru my treatment process and for that reason, I felt compelled to finally write my first post when I saw you back on the board and tell you that from the bottom of my heart, I THANK YOU FOR YOUR BEAUTIFUL STORY!  Your positive attitude then and even now, has made me go thru this with a smile and I wanted you to know that.  The subject title was perfect… “My Story of Cervical Cancer, hope it helps someone”… well let me tell you, IT HELPED ME A WHOLE LOT!

    I hope that your energy level continues to improve and that your pains soon go away.  I didn’t share any details of my physical symptoms because this was more of a thank you letter to you Chel.  But if I can be of any help to any women out there, I will be more than happy to share my story with any of you. I am kinda of a private person and for that reason too, I never asked or commented on this site however, I've changed in many many ways and if I can help one person just like Chel helped me, then I will be more than willing to share my experiences.  It was a rough road but thanks to the women on this site like SmplyChel, I have maintained positive thru this ordeal.   

    Adri

    You don't know how much your post means to me and to read it today of all days. I've been having a bad week, stressful at work, still hurting. I cried today and thought to myself why? I was having a poor me pitty party and I was the only one invited. So here I sat surfing and thought I'd check the boards. I dont' come here as much as I should but I come when I need it. Today I needed it. I personally want to thank you for your post at just the right time. How amazing, weird and funny that our stories are so similar. I'm so thankful my story did help someone. That makes me smile. It's a tough road for sure. I still look back and think about what I did and think, how did I do all that? It makes me think I can do alot more now without being so afraid. I'm so happy to hear your cancer is GONE too, that's wonderful news. I wonder what the needles were like? I hated the internal radiations, even though they put me under, I woke up in such intense pain it was unbelievable. I was taking 2 percocets about every 3 hours...the whole month of April last year. I thank god that was available for me.  I hope you continue to get stronger everyday and keep fighting everyday. We beat this nasty stuff and now I know it's to help other people because of you. I now know there was a reason. I thank you for the bottom of my heart for your heartfelt post. It's something I'll treasure always. Keep in touch and I'll do the same.

    Michele

    I'm a Survivor!

  • SmplyChel
    SmplyChel Member Posts: 9 Member
    adri1493 said:

    Thank You!

    Hi SmplyChel!

    First off, congrats on being cancer free as of today and hoping n praying that your next petscan comes out clean as well.

    I was diagnosed with cervical cancer in Aug 2012. After getting over the initial shock, I found this site and it helped me a lot knowing I was not alone.  I’m 40 years old and had gone thru the same symptoms as you did.  I, too, had not been with someone for a long time (over 8 years for me) and for the same reasons (as you did), I went to check myself out.  I was also a big baby when it came to doctors and as well, didn’t get regular paps.  I had a similar diagnosis staged at 2a and same 6 rounds of chemo/ 28 ext radiations.  I did have interstitial brachytherapy (the one with the needles left in me).  My mom (the strongest most loving woman I know) was also the one helping me out through all of this.  So after going thru some really brave stories on this board, I ran into your initial post on 04/29/2012… and it really helped me TREMENDOUSLY.  When I read it, it was like I was living a parallel life with you.  

    I felt so connected to your story that I even saved it on my iphone referring back to it on occasions (usually my bad days) because it was written in such a positive manner that it would remind me: “this too shall pass”.  I had so many questions I wanted to ask you at the time but as you and others may know, you’re just overwhelmed with Dr apptmts, chemo sessions, daily radiations, etc etc that at least with me, when you do have the time, I just wanted to be left alone.  I did read a lot of other stories on this site and there are so many courageous women on here but I just didn’t know how to ask, comment or respond to you or any of them without bursting into tears (because of my own problems).

    However, my last chemo/external radiation was on 12/10/2012; my last brachy was 01/16/2013 and I have been cancer free as of 02/13/2013! My energy level is still not what it used to be but I’m working on that.  I just wanted you to know Chel that of all of the posts I searched through, yours was the one I kept referring back to thru my treatment process and for that reason, I felt compelled to finally write my first post when I saw you back on the board and tell you that from the bottom of my heart, I THANK YOU FOR YOUR BEAUTIFUL STORY!  Your positive attitude then and even now, has made me go thru this with a smile and I wanted you to know that.  The subject title was perfect… “My Story of Cervical Cancer, hope it helps someone”… well let me tell you, IT HELPED ME A WHOLE LOT!

    I hope that your energy level continues to improve and that your pains soon go away.  I didn’t share any details of my physical symptoms because this was more of a thank you letter to you Chel.  But if I can be of any help to any women out there, I will be more than happy to share my story with any of you. I am kinda of a private person and for that reason too, I never asked or commented on this site however, I've changed in many many ways and if I can help one person just like Chel helped me, then I will be more than willing to share my experiences.  It was a rough road but thanks to the women on this site like SmplyChel, I have maintained positive thru this ordeal.   

    Adri

    You don't know how much your post means to me and to read it today of all days. I've been having a bad week, stressful at work, still hurting. I cried today and thought to myself why? I was having a poor me pitty party and I was the only one invited. So here I sat surfing and thought I'd check the boards. I dont' come here as much as I should but I come when I need it. Today I needed it. I personally want to thank you for your post at just the right time. How amazing, weird and funny that our stories are so similar. I'm so thankful my story did help someone. That makes me smile. It's a tough road for sure. I still look back and think about what I did and think, how did I do all that? It makes me think I can do alot more now without being so afraid. I'm so happy to hear your cancer is GONE too, that's wonderful news. I wonder what the needles were like? I hated the internal radiations, even though they put me under, I woke up in such intense pain it was unbelievable. I was taking 2 percocets about every 3 hours...the whole month of April last year. I thank god that was available for me.  I hope you continue to get stronger everyday and keep fighting everyday. We beat this nasty stuff and now I know it's to help other people because of you. I now know there was a reason. I thank you for the bottom of my heart for your heartfelt post. It's something I'll treasure always. Keep in touch and I'll do the same.

    Michele

    I'm a Survivor!

  • Lorinda32
    Lorinda32 Member Posts: 1
    SmplyChel said:

    Adri

    You don't know how much your post means to me and to read it today of all days. I've been having a bad week, stressful at work, still hurting. I cried today and thought to myself why? I was having a poor me pitty party and I was the only one invited. So here I sat surfing and thought I'd check the boards. I dont' come here as much as I should but I come when I need it. Today I needed it. I personally want to thank you for your post at just the right time. How amazing, weird and funny that our stories are so similar. I'm so thankful my story did help someone. That makes me smile. It's a tough road for sure. I still look back and think about what I did and think, how did I do all that? It makes me think I can do alot more now without being so afraid. I'm so happy to hear your cancer is GONE too, that's wonderful news. I wonder what the needles were like? I hated the internal radiations, even though they put me under, I woke up in such intense pain it was unbelievable. I was taking 2 percocets about every 3 hours...the whole month of April last year. I thank god that was available for me.  I hope you continue to get stronger everyday and keep fighting everyday. We beat this nasty stuff and now I know it's to help other people because of you. I now know there was a reason. I thank you for the bottom of my heart for your heartfelt post. It's something I'll treasure always. Keep in touch and I'll do the same.

    Michele

    I'm a Survivor!

    Finally some insight

    It has been such a relief to read these posts and see that there are people that can relate to the way I have felt!

    I was diagnosed Stage 2a cervical cancer in March of 2012, had a radical hysterectomy with bilateral lymphadenectomy. I was told before the surgery that it should take care of the problem, but afterwards he was concerned with the amount of cancer cells they found outside of the initial tumor so I ended up having to do 28 external and 2 internal radiation treatments. I luckily did not have to any chemo. For me, the radiation was fairly easy, at least physically, until the end and the diarrhea kicked in (and still hasn't really went away 6 months post treatment). Emotionally, it was horrible. I have three young children and my mind was on major rollercoaster ride imagining every worst case scenario imaginable. Which Im sure is typical! I have swelling on the left side of the groin area when I am on my feet for any amount of time that gets very uncomfortable. I too also have the stiffness and achiness through my hips, lower back and the top parts of my legs, and also my right thigh is still pretty numb and tingly. I was told this is from the surgery and so much work having to be done around the nerves in that area. And this may sound strange, but my bladder is very achy. I can't hold my pee for any amount of time, it will hurt so bad I want to cry. I was told this is a side effect from the radiation, that it can make the muscles lose their elasticity. Which is the same thing causing the achiness and stiffness in my hips, legs and back. And then of course there is the matter of since part of the vagina was removed, sex will never be quite the same....  Most days, I wake up just thankful to be alive and I pray that I can live to see my children grow up and have children of their own. But I'm not gonna lie, there are a few that I feel angry, and above all.... worried. I don't want to live in fear that every little ache and pain is cancer coming back. I push past the fear though. I make myself live my life like I will be here forever. Not too long after my diagnosis, I enrolled in college. I had been putting it off, saying I would wait until my kids were older to finish my degree, but I definitely realized, we aren't promised tomorrow! I can honestly say, that although this has not necessarily been a positive experience, it has certainly helped me put things in perspective. Ya'lls stories have made me feel a little more normal than I have for the last year. I can relate to everything that you say, and I can put into words what my experience has been like and know that more than likely you will understand me also! Its hard to talk about it to other people, they tend to look at you like you are either already dying or like it isn't a big deal at all. When the fact of the matter is, besides the birth of my children, this is the hugest thing I have ever gone through! BUT I vowed to not let my life revolve around cancer, and I haven't. I have continued my regular every day life of working, college, soccer, church.... my treatments were just another appointment to throw in there. I hope that this has in some way helped someone else, I know it was wonderful for me to read these posts. I pray that each and every one of you have many healthy, peaceful, CANCER FREE years ahead of you!

  • GoodVibe123
    GoodVibe123 Member Posts: 1
    Thanks for sharing

      Thanks for sharing your story. I also have undergone the same treatments that you have. Here in Canada, I was diagnosed as a Stage 3b because the cancer had gone to my lymph nodes. I had been sick for two years and was told by others that I was going through the changes of life also. I went through 3 different specialists here before I found the one who kind of listened to me. I agreed to let him go in to cauterize my uterine lining, even though I wasn't convinced it was a solution because it was a symptom, and a symptom is our bodies way of communicating to us. I wanted him to go in and see for himself that something was wrong. He found it. I was releived I wasn't crazy. That was March 10th, 2010 and I am still here kicking today. Some days I really struggle with energy levels and fatigue. But mornings are my peak time of day. I saw that you are going through some pain and wondered if you are open to eastern medical practises like acupuncture and reiki. They might be able to help you with pain management. They are the same tools I used for pain management to get through my brachytherapy. I was awake for my 5 brachy treatments. Anyway, I hope you are feeling better these days and am so glad that you shared your story. Take great care,

  • mommiesadie2
    mommiesadie2 Member Posts: 1
    Wow such amazing stories

    I am so grateful I found this, I to am shocked and scared out of my mind. I'm 34 been with only one man in 14 years. back in 2010 I had a pap done and they told me they had found cancer cell in my cervixs and uterus. I was send for colospy and was told only a few cystic was found nothing major just will need another pap in 3 years. I have suffer from what the docs said is IBS for 4 years now. I have major pain durning my periods and for maybe 3 days after. I'm always constapated and low back pain.This past Thursday I was in so much pain I went to the ER. They did a pap and found 3 nodules (no clue what this means never had a doc say that) so I am freaking out. He did say yes I do have HPV and need a new round of test. I am like most I care more about my kids and family than my own health. I don't go to doctors unless Im in enough pain or dying :/ I knew they found cancer cells back in 2010 but my doctor said no big deal it's normal you will be fine. Now I'm scared not sure what to think. Cysit I'm use to,they hurt so bad when they pop but nodules and the way the doc kept saying this is a big deal you should see a doctor at least ever year. So I'm not sure what to think but your stories gives me hope it will all be fine. <3

  • MellieB63
    MellieB63 Member Posts: 1
    Hi SmplyChel

    Thank you so much for sharing your story.  I was wondering if you could tell me more about your experience after being diagnosed with cervical cancer?  How has your life changed after being diagnosed and going trhough treatment?

    Warm Regards

    Mel

  • DianaG13M
    DianaG13M Member Posts: 1

    Wow such amazing stories

    I am so grateful I found this, I to am shocked and scared out of my mind. I'm 34 been with only one man in 14 years. back in 2010 I had a pap done and they told me they had found cancer cell in my cervixs and uterus. I was send for colospy and was told only a few cystic was found nothing major just will need another pap in 3 years. I have suffer from what the docs said is IBS for 4 years now. I have major pain durning my periods and for maybe 3 days after. I'm always constapated and low back pain.This past Thursday I was in so much pain I went to the ER. They did a pap and found 3 nodules (no clue what this means never had a doc say that) so I am freaking out. He did say yes I do have HPV and need a new round of test. I am like most I care more about my kids and family than my own health. I don't go to doctors unless Im in enough pain or dying :/ I knew they found cancer cells back in 2010 but my doctor said no big deal it's normal you will be fine. Now I'm scared not sure what to think. Cysit I'm use to,they hurt so bad when they pop but nodules and the way the doc kept saying this is a big deal you should see a doctor at least ever year. So I'm not sure what to think but your stories gives me hope it will all be fine. <3

    Hi

    Im 16 yrs old i had a baby 6 mnths ago n i got the depo shot 3 months ago . Since then i skipped a period and afterwards i started getting it almost the whole month now i have a lot of pelvic pain and lower back pain do you think i should go yo the dr. Or what should i do you think there is a probability of me having some kind of cancer please help ne im only 16 n scared. I need help 

  • monicarose86
    monicarose86 Member Posts: 1
    Thank you...

    I just want to say thank you for sharing your story with everyone. I also wanted to share my story. It's not quite cancer, but I am very scared that, that is going to be the next step in my story.

    I had never had an abnormal pap until just over six months ago. When my pap came back abnormal my doctor did a biopsy and said it was low grade changes and we would monitor it, and to come back for a follow up in 6 months. Well my follow up was just about two weeks ago. When I went for the biopsy the doctor said it usually goes away by itself and not to worry. So, at my 6 month follow up, I was expecting everything to be fine. Then I get a phone call a week later, from my doctor, saying that it has gotten worse not better. She said, what she could tell from the pap, is that I was in stage 2, and that stage 4 in cancer. She said I need to come back in for another biopsy, to be sure that I am at stage 2. Well, she called me back on Tuesday saying that I am at high grade changes, and she recommends having the cells removed. I have to say that I have been so scared, I am only 27, just got married in July, and thinking about starting a family someday soon. I have also had other health issues going on in my life in the last couple of years. Like a tumor that took over my left ovary and was the size of a grapefruit. They had to remove the ovary and the tumor, thankfully it came back benign. Then I had a nodule in my breast that they did a biopsy on, and they want to monitor that as well for every six months. Now this too...... I feel like it never ends. I try to tell myself that there is someone out there that has it worse and to not feel so bad for myself. But it's hard. I have had so many sleepless nights the last couple of weeks. I feel like I'm walking in a daze each day. Does it get better? Am I being stupid for feeling this way?

     

  • tondelea
    tondelea Member Posts: 5
    cervical cancer

    really scared so glad u shared ur story i have stage 2b cervical cancer could not be removed through radical histo it is on my walls so i must start chemo and radiation really scared when u were put to sleep for the internal radatiion was it painful im a big baby too never thought i would be the one with cancer my mon had throat cancer 6 years ago she is in remission i took her to every treatment it was so hard now its me really need someone to talk to who has this same problem

  • ccfighter
    ccfighter Member Posts: 476
    tondelea said:

    cervical cancer

    really scared so glad u shared ur story i have stage 2b cervical cancer could not be removed through radical histo it is on my walls so i must start chemo and radiation really scared when u were put to sleep for the internal radatiion was it painful im a big baby too never thought i would be the one with cancer my mon had throat cancer 6 years ago she is in remission i took her to every treatment it was so hard now its me really need someone to talk to who has this same problem

    Tondelea,
    im sorry you are

    Tondelea,

    im sorry you are going through this.  I know that it is scary But you will be ok.  I was diagnosed with 2a cervical cancer in 2011 and had a radical hysterectomy, chemo and radiation.  It is a long road but doable.  It was not as bad as I had imagined it to be.  I made it through treatments plus a recurrence and am feeling good today.  You will make it through too.  Hugs and healing thoughts for you.  Let me know if you have any more questions or just want to talk.  We are here for you.

  • juliam
    juliam Member Posts: 1
    Hi my mom was diagnosed with

    Hi my mom was diagnosed with squamous cell carcinoma of the ovaries stage 2c we are very scared and are wondering how are you doing after treatment I hope you are now cancer free would you be willing to call me and tell me a little more about ur cancer if so please let me know and I'll give u my number if not can you tell me on here thank u

  • kwest001
    kwest001 Member Posts: 1
    ccfighter said:

    Tondelea,
    im sorry you are

    Tondelea,

    im sorry you are going through this.  I know that it is scary But you will be ok.  I was diagnosed with 2a cervical cancer in 2011 and had a radical hysterectomy, chemo and radiation.  It is a long road but doable.  It was not as bad as I had imagined it to be.  I made it through treatments plus a recurrence and am feeling good today.  You will make it through too.  Hugs and healing thoughts for you.  Let me know if you have any more questions or just want to talk.  We are here for you.

    Radical hysterectomy

    How was the radical hysterectomy to deal with andhHow are you doing? Thanks

  • ccfighter
    ccfighter Member Posts: 476
    kwest001 said:

    Radical hysterectomy

    How was the radical hysterectomy to deal with andhHow are you doing? Thanks

    I'm doing well.  The radical

    I'm doing well.  The radical hysterectomy hurt more then I anticipated, but pain meds kept things under control and things improved tremendously at two weeks.  Pain meds and anesthesia causes constipation so that was one one the more difficult and unanticipated issues.  Today all is well on that front.  Are you scheduled for a hysterectomy?

  • Rebecca 25
    Rebecca 25 Member Posts: 1

    Thank you...

    I just want to say thank you for sharing your story with everyone. I also wanted to share my story. It's not quite cancer, but I am very scared that, that is going to be the next step in my story.

    I had never had an abnormal pap until just over six months ago. When my pap came back abnormal my doctor did a biopsy and said it was low grade changes and we would monitor it, and to come back for a follow up in 6 months. Well my follow up was just about two weeks ago. When I went for the biopsy the doctor said it usually goes away by itself and not to worry. So, at my 6 month follow up, I was expecting everything to be fine. Then I get a phone call a week later, from my doctor, saying that it has gotten worse not better. She said, what she could tell from the pap, is that I was in stage 2, and that stage 4 in cancer. She said I need to come back in for another biopsy, to be sure that I am at stage 2. Well, she called me back on Tuesday saying that I am at high grade changes, and she recommends having the cells removed. I have to say that I have been so scared, I am only 27, just got married in July, and thinking about starting a family someday soon. I have also had other health issues going on in my life in the last couple of years. Like a tumor that took over my left ovary and was the size of a grapefruit. They had to remove the ovary and the tumor, thankfully it came back benign. Then I had a nodule in my breast that they did a biopsy on, and they want to monitor that as well for every six months. Now this too...... I feel like it never ends. I try to tell myself that there is someone out there that has it worse and to not feel so bad for myself. But it's hard. I have had so many sleepless nights the last couple of weeks. I feel like I'm walking in a daze each day. Does it get better? Am I being stupid for feeling this way?

     

    Cervical Cancer

    Monica, You have every right to be afraid.  Cancer is the most terrifying word in the English language for me.  1 1/2 years ago I started feeling tired.  I also started bleeding very heavy, I was just starting menopause, so I thought it was that or else I thought maybe I needed a D & C.  Its been several years since I had one.  The bleeding got very bad all at once and my boyfriend took me to the hospitol  ER.  I was literally bleeding to death.  I was admitted and the next day tests were run.  I had not been to the doctor in nearly twenty years.  Shame on me, but I am an RN and I just always took care of myself.  It had been ten years since I had a Pap Smear.  Well the bleeding was caused by a very large tumor, they said about the size of a grapefruit.  They were afraid to operate on it, as they thought it would again start bleeding.  I was told I had cancer.  I started radiation treatments two weeks later.  This has been a nightmare, it has lasted since one year ago in April.  April 1, 2014.  The doctors have given me all they can do for me.  I quit all treatment one year ago today.  I am now trying all types of nutritional therapy.  I am doing better since my radiation ended.  But I was burned very bad from the radiation.  I lost one kidney, and I have a nephrostomy tube in the other kidney.  The external radiation was not that bad, but the internal radiation.  I would never attempt that again.  It was the worst pain in my life.  Ten times worse than having my babies.  That is when I stopped treatments is when they attempted to insert twenty needles up through my vagina.  They were to stay in place five days while I received internal radiation.  I could only tolerate the pain for one day.  It was just awful.  I have been back at home for the last year.  I don't know how much the cancer has grown.  I take baking soda three times a day to keep my uring alkaline.  I also eat aspargus twice daily.  I have a doctor that comes once a month to my home to check on me.  I have gained forty pounds.  The doctor keeps telling me that I am doing so good, they can't believe it.  I think positive thinking and nutritional therapy can do wonderful things.  I will keep up a good fight till the end, who knows there might be a miracle out there for us all!  Only good thoughts and well wishes to us all. Rebecca

  • Nanato3
    Nanato3 Member Posts: 1
    my daughter

    Thank you Chel for sharing your story.  I pray you are doing well.  My daughter's last pap smear came back abnormal and blood tests showed high creatinine levels in her Kidneys. She had a biopsy and she was notified yesterday that they said it was positive and she is now being sent for another biopsy to her obtain a larger piece of her Cervix.  They wouldn't tell her what positive means until she went back into their office.  Do you know if this means Cancer?  I need to be prepared if it is Cervical Cancer.  I, as her Mother, am scared to death.  She's my only child and my world.  She's a mother to 3 children, aged 4, 7 and 14.  Did your Kidneys show high creatinine levels?  If so, did the Doctors say this was normal with Cervical Cancer?  She is so scared and I need to know how to comfort her now and how to be her source of strength if the outcome of the 2nd biopsy does diagnose her with Cancer.  Thank you for your time.