New need advice / update

Max57
Max57 Member Posts: 177 Member
edited April 2015 in Kidney Cancer #1

Update 

 

14/04/2015 is the date of the surgery  toumer was removed send to the lab so far what I know it's gread1 satge 2 I leaft the hospital today I was have sleep... So I really don't know what's that mean all I remember the doctor was happy.... I will keep you posted... God bless you all 

 

CT scan MRI  confirm 2.5 cm cancer both test says every thing around the kidney look normal the gland look normal... My question does that mean cancer has not spread... I need advice and comfort the stress is overwhelming thanxxxxxx all

Tuesday going to see spshlist 

«13

Comments

  • icemantoo
    icemantoo Member Posts: 3,361 Member
    Welcome

    Max57,

    Back in the days each of us was told out of the blue that we have Cancer. And who ever even heard ok Kidney Cancer? And then they want you to have major surgery right out of the gate to remove the tumor and all or part of your kidney. All of us went thru that. Pretty overwhelming to say the least.

    The good news for you is that at 2.5 cm it rarely spreads. The surgery and recovery are anything but fun. Mine was almost 13 years ago.

     

    You will be fine. Others will chime in to tell you how lucky you are. If you are going to have kidney Cancer the smaller the better and 2.5 cm puts you on the small size. Some of our members would almost die for a tumor as small as yours.

     

     

    Icemantoo

     

     

     

  • Max57
    Max57 Member Posts: 177 Member
    icemantoo said:

    Welcome

    Max57,

    Back in the days each of us was told out of the blue that we have Cancer. And who ever even heard ok Kidney Cancer? And then they want you to have major surgery right out of the gate to remove the tumor and all or part of your kidney. All of us went thru that. Pretty overwhelming to say the least.

    The good news for you is that at 2.5 cm it rarely spreads. The surgery and recovery are anything but fun. Mine was almost 13 years ago.

     

    You will be fine. Others will chime in to tell you how lucky you are. If you are going to have kidney Cancer the smaller the better and 2.5 cm puts you on the small size. Some of our members would almost die for a tumor as small as yours.

     

     

    Icemantoo

     

     

     

    Thanks

    Icman

    Thanks for your fast reply... I went To ER for pain on the right side kidney with blood in urinte they found 2 stons in the right kidney on the left they found  a so called leion on MRI they confirm 2.5 cm cancer they said it's inside the kidney... My question what options do I have remove the hole kidney  my feelings is mix I had no pain on the left side at all am so confused is this the end is there a hope to take care of it so many questions no answers... It was a schok finding what they found by accident 

  • shaval123
    shaval123 Member Posts: 9
    Max57 said:

    Thanks

    Icman

    Thanks for your fast reply... I went To ER for pain on the right side kidney with blood in urinte they found 2 stons in the right kidney on the left they found  a so called leion on MRI they confirm 2.5 cm cancer they said it's inside the kidney... My question what options do I have remove the hole kidney  my feelings is mix I had no pain on the left side at all am so confused is this the end is there a hope to take care of it so many questions no answers... It was a schok finding what they found by accident 

    You will be ok!

    Many of us have been surprised to find out that we had tumors. I never had pain or symptoms until one night when I tried to clear my bladder before going to bed and nothing happened. I called my doc in the morning who sent me to the emergency and then to a Urologist. He sent me for a CT scan looking for kidney stones  (I thought I might have had a UTI) but they found a 12 cm tumor I through my kidney. I had an open radical nephrectomy 3 months ago. Thank God the surgery got everything so I don't need chemo or radiology treatment. The healing process is slow going . You are going to be ok.

     The main thing to have is trust in your doctor. Keep a list of questions for him/her and make sure they are answered fully. I had an awesome doctor who explained everything and was very encouraging.

     

     

  • icemantoo
    icemantoo Member Posts: 3,361 Member
    Max57 said:

    Thanks

    Icman

    Thanks for your fast reply... I went To ER for pain on the right side kidney with blood in urinte they found 2 stons in the right kidney on the left they found  a so called leion on MRI they confirm 2.5 cm cancer they said it's inside the kidney... My question what options do I have remove the hole kidney  my feelings is mix I had no pain on the left side at all am so confused is this the end is there a hope to take care of it so many questions no answers... It was a schok finding what they found by accident 

    Options

    Max57,

     

    When you meet with the specialist on Tuesday he will discus the various options with you. Typically these options include whether they take the whole or only part of the jidney and whether the surgery is open or laproscopic. Where the tumor is located and the expertice of your surgeon sometimes dictate one approch or the other. All of that technical stuff is above my paygrade. Being indicative of Cancer and 2.5cm means somethng has to come out.

     

    Icemantoo

  • Max57
    Max57 Member Posts: 177 Member
    shaval123 said:

    You will be ok!

    Many of us have been surprised to find out that we had tumors. I never had pain or symptoms until one night when I tried to clear my bladder before going to bed and nothing happened. I called my doc in the morning who sent me to the emergency and then to a Urologist. He sent me for a CT scan looking for kidney stones  (I thought I might have had a UTI) but they found a 12 cm tumor I through my kidney. I had an open radical nephrectomy 3 months ago. Thank God the surgery got everything so I don't need chemo or radiology treatment. The healing process is slow going . You are going to be ok.

     The main thing to have is trust in your doctor. Keep a list of questions for him/her and make sure they are answered fully. I had an awesome doctor who explained everything and was very encouraging.

     

     

    Thanks

    shaval123 

    I was speech less when I was told 3 days ago you have 2.5 cm toumer in the leaft kidney and you I was told over the phone..!!  2 minutes didn't know what to say... I was told they  made an appointment to me to see 

    Urologist next Tuesday no idea what's going to talk about.... 

  • Max57
    Max57 Member Posts: 177 Member
    icemantoo said:

    Options

    Max57,

     

    When you meet with the specialist on Tuesday he will discus the various options with you. Typically these options include whether they take the whole or only part of the jidney and whether the surgery is open or laproscopic. Where the tumor is located and the expertice of your surgeon sometimes dictate one approch or the other. All of that technical stuff is above my paygrade. Being indicative of Cancer and 2.5cm means somethng has to come out.

     

    Icemantoo

    hey

    Icemantoo

    Thanks you so rich of knowledge 

  • butterfly wings
    butterfly wings Member Posts: 28
    Max57 said:

    hey

    Icemantoo

    Thanks you so rich of knowledge 

    Good luck with the

    Good luck with the urologist.

     

    Mine was found by accident.  I was told a 6cm mass was found on a ultrasound scan on my gallbladder, then result from ct scan was  5.5cm tumor ..50/50 chance it was cancer.  Told them to just remove the whole thing so had keyhole surgery nearly 3 weeks ago....a few days after the removal it was confirmed that it was clear cell carcinoma with clear margins.  All I believe is good news.  I'm recovering well and feeling good.

  • Max57
    Max57 Member Posts: 177 Member

    Good luck with the

    Good luck with the urologist.

     

    Mine was found by accident.  I was told a 6cm mass was found on a ultrasound scan on my gallbladder, then result from ct scan was  5.5cm tumor ..50/50 chance it was cancer.  Told them to just remove the whole thing so had keyhole surgery nearly 3 weeks ago....a few days after the removal it was confirmed that it was clear cell carcinoma with clear margins.  All I believe is good news.  I'm recovering well and feeling good.

    butterfly wings fast recovery

    butterfly wings

    Thanks and I will pray for fast recovery wish you all the best 

    it was so fast to have a big family to caer for each other 

  • jason.2835
    jason.2835 Member Posts: 337 Member
    Chill

    Max,

    The scan showed a 2.5 cm mass; that's VERY good news. Smaller the better. The main option for treatment of kidney cancer is surgery. The doctors will want to do it ASAP. The only real option comes in to whether they want to take the whole kidney or just the diseased part of it. Originally I was to be a partial but safety reasons forced my surgeon into a radical (or full) removal of the kidney. As far as chances of spread; while the doctors NEVER deal in absolutes, a tumor that small has a VERY VERY VERY small chance that it is had spread. My tumor was 2.8 cm at it's biggest point. Usually after surgery there is no further treatment needed. Depending on the prognosis you probably will not need chemo, radiation or other treatment. But remember there are no absolutes. Your BEST course of action is to GET IT OUT OF YOUR BODY.

    Good luck, keep us posted.

    - Jay

  • Allochka
    Allochka Member Posts: 1,060 Member

    Chill

    Max,

    The scan showed a 2.5 cm mass; that's VERY good news. Smaller the better. The main option for treatment of kidney cancer is surgery. The doctors will want to do it ASAP. The only real option comes in to whether they want to take the whole kidney or just the diseased part of it. Originally I was to be a partial but safety reasons forced my surgeon into a radical (or full) removal of the kidney. As far as chances of spread; while the doctors NEVER deal in absolutes, a tumor that small has a VERY VERY VERY small chance that it is had spread. My tumor was 2.8 cm at it's biggest point. Usually after surgery there is no further treatment needed. Depending on the prognosis you probably will not need chemo, radiation or other treatment. But remember there are no absolutes. Your BEST course of action is to GET IT OUT OF YOUR BODY.

    Good luck, keep us posted.

    - Jay

    Yep, you are very-very

    Yep, you are very-very lucky!!! As all others have said,at this size it is almost impossible for it to spread. Especially if scans are not indicative of this.

    it is fine to freak out at first. But stick to this board, you'll see that early stage kidney cancer is veeeery far from death sentence!

    plan a surgery and try to look at the positive side - at the great chance to discover and treat it before it had spread.

  • Jojo61
    Jojo61 Member Posts: 1,309 Member
    Allochka said:

    Yep, you are very-very

    Yep, you are very-very lucky!!! As all others have said,at this size it is almost impossible for it to spread. Especially if scans are not indicative of this.

    it is fine to freak out at first. But stick to this board, you'll see that early stage kidney cancer is veeeery far from death sentence!

    plan a surgery and try to look at the positive side - at the great chance to discover and treat it before it had spread.

    Hey....
    Welcome to our board.

    Hey....

    Welcome to our board. You will learn lots about your condition. I know it is scary, but you are going to be okay! When you see the specialist, ask lots of questions and be vigilant in follow up monitoring.

    Hugs

    Jojo

  • Jan4you
    Jan4you Member Posts: 1,330 Member
    Welcome Max, you have come to

    Welcome Max, you have come to a great place for information and support!

     

    I too had NO pain or indication I had a a tumor specious for a neoplasm either. My primary doc called me and gave me a name of a Urologist who is also the surgeon. Before she told me, I already had the copy of the radiologist's report and came on here to gather information to ask at my Urology appointment.  I was well prepared by folks on here!

    First my primary doc ordered the wrong test, an MRI when I learned on here, most Urologists

    want a CT. So had to pay for a test I didn't need at first.

     

    They found this tumor while doing an ultrasound for my liver. When the U.S. tech moved toward the back on my left side, I got this feeling there was "something" there. The Tech then began to measure it. So I was NOT surprised when I got the news. My tumor was 4.3cm, stage 1, so very lucky, NO problems or NED (No evidence of Disease) for over a year now. I was never worried, honestly. The only thing I was concerned about was an "open" incision vs a laproscopic/robatic incisions which are several tiny ones to get the robatic instruments through. so make sure you ASK the surgeon if you are a candidate for robatic surgery.

     

    I did have to have my whole kidney removed because it sat between the renal artery and renal vein. It was just safer to take the whole kidney. I even watched a video online that shows how they bag the kidney and remove it. They may only do a "partial" surgery in YOUR case due to it being small.

    My only disappointment is that you can no longer have NSAID (ibruprofin type meds) if you only have 1 kidney. I totally depended on one NSAID for another condition I have. My 1 kidney cannot metabolize my other meds as well either. But Its doable.

    And yes you wll be followed by surgeon/Urologist for awhile with scans and blood tests which would show if there is can level of cancer in your blood. Your chances are really good that they will get it all, with no chemo/radiation necessary. That is used when they find "mets" or cancer signs that have spread to other places. Again, your chances are pretty good I'd say.

    I also used a velcro lumbar wrap around my abdomen for my last two abdominal surgeries. ( you get them at any drug store). Both surgeons approved of it. That way the sore muscles/tissues/nerve endings can heal and not have gravity make the pain worse. Some use a pillow over the abdomen whenever you get up from sitting or sleeping. Many sleep in recliners at first. Again, I got up slowly but honestly had little pain with it. Each person is different, esp if this is your first surgery ever.

    Instead of needing many pain pills, I mostly used dry ice packs inside my lumbar wrap right over the larger incision area. Most of the laproscopic incisions were barely an inch and the bigger one they pulled the kidney through was about 3 -4 inches. Useing ice truly brought me relief.

    I can honestly say, I did not have that much pain, EXCEPT for the trapped gas that seems to settle in the shoulder following surgery. That lasted about 5-7 days for me to get out of my body.  That gas is pumped inside to make the abdomen larger for the surgeon to be able to SEE what he's doing inside. VERY IMPORTANT!

    ALSO Robatic surgery affords quicker healing, as it is less invasive. Anyone having any abdominal surgery will have that gas pumped into their abdomen and it has to go somewhere. Pain killers do not get to it the same as they find the best way to get this gas OUT is walking, or arm/shoulder movements that move it along and out your body.

    You will not work for a few weeks or more. I was not allowed to exercise (except walking) for 1 month!! Stick to that rule or you could get hernias around the incision sites and you don't want that! So DO NOT rush your recovery and rush back to work.

    Stay with us, ask away, as you find you'll have more and more questions. I have a really good feeling about your situation. Make sure you take someone with you to the Urologist appointment. You'd be surprised at things you miss otherwise. There is not that a big of rush as these tumors grow so slowly most of the time.

    So.. keep us informed if you want. I will be cheering you onward!

    Warmly, Jan

     

  • jason.2835
    jason.2835 Member Posts: 337 Member
    Jan4you said:

    Welcome Max, you have come to

    Welcome Max, you have come to a great place for information and support!

     

    I too had NO pain or indication I had a a tumor specious for a neoplasm either. My primary doc called me and gave me a name of a Urologist who is also the surgeon. Before she told me, I already had the copy of the radiologist's report and came on here to gather information to ask at my Urology appointment.  I was well prepared by folks on here!

    First my primary doc ordered the wrong test, an MRI when I learned on here, most Urologists

    want a CT. So had to pay for a test I didn't need at first.

     

    They found this tumor while doing an ultrasound for my liver. When the U.S. tech moved toward the back on my left side, I got this feeling there was "something" there. The Tech then began to measure it. So I was NOT surprised when I got the news. My tumor was 4.3cm, stage 1, so very lucky, NO problems or NED (No evidence of Disease) for over a year now. I was never worried, honestly. The only thing I was concerned about was an "open" incision vs a laproscopic/robatic incisions which are several tiny ones to get the robatic instruments through. so make sure you ASK the surgeon if you are a candidate for robatic surgery.

     

    I did have to have my whole kidney removed because it sat between the renal artery and renal vein. It was just safer to take the whole kidney. I even watched a video online that shows how they bag the kidney and remove it. They may only do a "partial" surgery in YOUR case due to it being small.

    My only disappointment is that you can no longer have NSAID (ibruprofin type meds) if you only have 1 kidney. I totally depended on one NSAID for another condition I have. My 1 kidney cannot metabolize my other meds as well either. But Its doable.

    And yes you wll be followed by surgeon/Urologist for awhile with scans and blood tests which would show if there is can level of cancer in your blood. Your chances are really good that they will get it all, with no chemo/radiation necessary. That is used when they find "mets" or cancer signs that have spread to other places. Again, your chances are pretty good I'd say.

    I also used a velcro lumbar wrap around my abdomen for my last two abdominal surgeries. ( you get them at any drug store). Both surgeons approved of it. That way the sore muscles/tissues/nerve endings can heal and not have gravity make the pain worse. Some use a pillow over the abdomen whenever you get up from sitting or sleeping. Many sleep in recliners at first. Again, I got up slowly but honestly had little pain with it. Each person is different, esp if this is your first surgery ever.

    Instead of needing many pain pills, I mostly used dry ice packs inside my lumbar wrap right over the larger incision area. Most of the laproscopic incisions were barely an inch and the bigger one they pulled the kidney through was about 3 -4 inches. Useing ice truly brought me relief.

    I can honestly say, I did not have that much pain, EXCEPT for the trapped gas that seems to settle in the shoulder following surgery. That lasted about 5-7 days for me to get out of my body.  That gas is pumped inside to make the abdomen larger for the surgeon to be able to SEE what he's doing inside. VERY IMPORTANT!

    ALSO Robatic surgery affords quicker healing, as it is less invasive. Anyone having any abdominal surgery will have that gas pumped into their abdomen and it has to go somewhere. Pain killers do not get to it the same as they find the best way to get this gas OUT is walking, or arm/shoulder movements that move it along and out your body.

    You will not work for a few weeks or more. I was not allowed to exercise (except walking) for 1 month!! Stick to that rule or you could get hernias around the incision sites and you don't want that! So DO NOT rush your recovery and rush back to work.

    Stay with us, ask away, as you find you'll have more and more questions. I have a really good feeling about your situation. Make sure you take someone with you to the Urologist appointment. You'd be surprised at things you miss otherwise. There is not that a big of rush as these tumors grow so slowly most of the time.

    So.. keep us informed if you want. I will be cheering you onward!

    Warmly, Jan

     

    Jan - NSAID question

    Jan,

    I have read several of your posts regarding NSAIDs and I have a question. 

    My docs haven't mentioned anything about not being able to take ibuprofen or naproxen. It hasn't really come up, but now that I have had another surgery and am recovering from it, I was told ibuprofen was ok for breakthrough pain. They also prescribed percocet (which is acetaminophen). What did your doctors say specifically about NSAIDs? I am actually seeing my urologist tomorrow (the surgeon who did the work) and I'd like to ask him about it.

    Thanks!

    - Jay 

  • NanoSecond
    NanoSecond Member Posts: 653

    Jan - NSAID question

    Jan,

    I have read several of your posts regarding NSAIDs and I have a question. 

    My docs haven't mentioned anything about not being able to take ibuprofen or naproxen. It hasn't really come up, but now that I have had another surgery and am recovering from it, I was told ibuprofen was ok for breakthrough pain. They also prescribed percocet (which is acetaminophen). What did your doctors say specifically about NSAIDs? I am actually seeing my urologist tomorrow (the surgeon who did the work) and I'd like to ask him about it.

    Thanks!

    - Jay 

    NSAIDs

    Jay - Ibuprofen and Naproxen are metabolized by the kidneys and it can potentially damage them.  That is why they are prohibited when you only have one kidney.  Acetaminophen (Tylenol) is metabolized by the liver so it is OK to use (if necessary) but not while consuming any alcohol.

  • Max57
    Max57 Member Posts: 177 Member
    Jan4you said:

    Welcome Max, you have come to

    Welcome Max, you have come to a great place for information and support!

     

    I too had NO pain or indication I had a a tumor specious for a neoplasm either. My primary doc called me and gave me a name of a Urologist who is also the surgeon. Before she told me, I already had the copy of the radiologist's report and came on here to gather information to ask at my Urology appointment.  I was well prepared by folks on here!

    First my primary doc ordered the wrong test, an MRI when I learned on here, most Urologists

    want a CT. So had to pay for a test I didn't need at first.

     

    They found this tumor while doing an ultrasound for my liver. When the U.S. tech moved toward the back on my left side, I got this feeling there was "something" there. The Tech then began to measure it. So I was NOT surprised when I got the news. My tumor was 4.3cm, stage 1, so very lucky, NO problems or NED (No evidence of Disease) for over a year now. I was never worried, honestly. The only thing I was concerned about was an "open" incision vs a laproscopic/robatic incisions which are several tiny ones to get the robatic instruments through. so make sure you ASK the surgeon if you are a candidate for robatic surgery.

     

    I did have to have my whole kidney removed because it sat between the renal artery and renal vein. It was just safer to take the whole kidney. I even watched a video online that shows how they bag the kidney and remove it. They may only do a "partial" surgery in YOUR case due to it being small.

    My only disappointment is that you can no longer have NSAID (ibruprofin type meds) if you only have 1 kidney. I totally depended on one NSAID for another condition I have. My 1 kidney cannot metabolize my other meds as well either. But Its doable.

    And yes you wll be followed by surgeon/Urologist for awhile with scans and blood tests which would show if there is can level of cancer in your blood. Your chances are really good that they will get it all, with no chemo/radiation necessary. That is used when they find "mets" or cancer signs that have spread to other places. Again, your chances are pretty good I'd say.

    I also used a velcro lumbar wrap around my abdomen for my last two abdominal surgeries. ( you get them at any drug store). Both surgeons approved of it. That way the sore muscles/tissues/nerve endings can heal and not have gravity make the pain worse. Some use a pillow over the abdomen whenever you get up from sitting or sleeping. Many sleep in recliners at first. Again, I got up slowly but honestly had little pain with it. Each person is different, esp if this is your first surgery ever.

    Instead of needing many pain pills, I mostly used dry ice packs inside my lumbar wrap right over the larger incision area. Most of the laproscopic incisions were barely an inch and the bigger one they pulled the kidney through was about 3 -4 inches. Useing ice truly brought me relief.

    I can honestly say, I did not have that much pain, EXCEPT for the trapped gas that seems to settle in the shoulder following surgery. That lasted about 5-7 days for me to get out of my body.  That gas is pumped inside to make the abdomen larger for the surgeon to be able to SEE what he's doing inside. VERY IMPORTANT!

    ALSO Robatic surgery affords quicker healing, as it is less invasive. Anyone having any abdominal surgery will have that gas pumped into their abdomen and it has to go somewhere. Pain killers do not get to it the same as they find the best way to get this gas OUT is walking, or arm/shoulder movements that move it along and out your body.

    You will not work for a few weeks or more. I was not allowed to exercise (except walking) for 1 month!! Stick to that rule or you could get hernias around the incision sites and you don't want that! So DO NOT rush your recovery and rush back to work.

    Stay with us, ask away, as you find you'll have more and more questions. I have a really good feeling about your situation. Make sure you take someone with you to the Urologist appointment. You'd be surprised at things you miss otherwise. There is not that a big of rush as these tumors grow so slowly most of the time.

    So.. keep us informed if you want. I will be cheering you onward!

    Warmly, Jan

     

    Jan
    thanks so much for your

    Jan

    thanks so much for your time your comfort words it did make me feel better.. now after the ultrasound and the CT scan and the IMR I have now appointment with urologist now is he/she going to decide what to do?  my other question since I start having all these tests until now I don't want eat I sweet when it's not hot tired is this normal? 

  • Jan4you
    Jan4you Member Posts: 1,330 Member
    Max57 said:

    Jan
    thanks so much for your

    Jan

    thanks so much for your time your comfort words it did make me feel better.. now after the ultrasound and the CT scan and the IMR I have now appointment with urologist now is he/she going to decide what to do?  my other question since I start having all these tests until now I don't want eat I sweet when it's not hot tired is this normal? 

    Well, Max glad I could help

    Well, Max glad I could help some. When you see your Urologist he'll go over the CT scan results and tell you your options if you need surgery. Make sure you bring someone along with you. You want to ask if he/she does Robatic surgery. And approximately how long it will be before you can return to work, exercise.

    Not sure why your appetite has changed. Could it be nerves? No one likes to hear the "C" word.  But again, you have an excellent shot at a complete recovery with no other treatment needed.

    Keep us informed! You'll be fine.

    Jan

  • Max57
    Max57 Member Posts: 177 Member
    Jan4you said:

    Well, Max glad I could help

    Well, Max glad I could help some. When you see your Urologist he'll go over the CT scan results and tell you your options if you need surgery. Make sure you bring someone along with you. You want to ask if he/she does Robatic surgery. And approximately how long it will be before you can return to work, exercise.

    Not sure why your appetite has changed. Could it be nerves? No one likes to hear the "C" word.  But again, you have an excellent shot at a complete recovery with no other treatment needed.

    Keep us informed! You'll be fine.

    Jan

    thanks a lot it has been very

    thanks a lot it has been very difficult week not knowing why... What's going on something I have never expected it came from no were from looking at a stone to this... Thanks so much 

  • foroughsh
    foroughsh Member Posts: 779 Member
    Take a deep breathe and relax

    I know it's impossible during first days, weeks or even months but do your best, remember, the worst days are the first days, you'll feel better in near future,. It's no way to know it for sure that it hasn't spread until you do the surgery done and have the pathology report but a 2.5 cm tumor doesn't seem to be able spread

  • Max57
    Max57 Member Posts: 177 Member
    Update... help

    So tomorrow  iam going to see my Urologist 

    can someone guide me what to aske him

    after I meet him what kind of decisions he

    going to make

  • Max57
    Max57 Member Posts: 177 Member
    So tomorrow  iam going to see

    So tomorrow  iam going to see my Urologist

    can someone guide me what to aske him

    after I meet him what kind of decisions he

    going to make