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Do you prefer results face to face?

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Comments

  • GSP2
    GSP2 Member Posts: 103
    Trubrit said:

    Welcome to the forum, GSP2

    I like your avatar. Is is a Red-tail Hawk? 

     

     

    Thanks tru

    exactly so. 

  • Helen321
    Helen321 Member Posts: 1,425
    I prefer instant results.  My

    I prefer instant results.  My doctor had a no over the phone policy but I told her that I can't deal with that and to get over it, I want the results as soon as they hit.  Of course, the one time she didn't call me, I was in a panic.  Turned out she just had a very busy day.  I think the problem becomes cell phones.  She never calls me on my cell, only at home or work (I gave her permission).  You don't want to call and say "so I have bad news" when someone is in their child's school, driving, at a job interview or the supermarket.  Now that I am two years out, I have much more confidence that my scans with be NED.  I didn't even worry a little at my last colonoscopy.  The scans are a bit scarier.

  • NewHere
    NewHere Member Posts: 1,346 **
    Waiting Now

    Had PET scan today.  Would have liked something right then and there.  I can get the whole thing later, but tell me is something looks like it is a problem or nothing like that showed.  Waiting game now.  Do not want to wait until next week.

  • Steve444
    Steve444 Member Posts: 105
    NewHere said:

    Waiting Now

    Had PET scan today.  Would have liked something right then and there.  I can get the whole thing later, but tell me is something looks like it is a problem or nothing like that showed.  Waiting game now.  Do not want to wait until next week.

    Same here

    I'm in the same boat...  Today I had my first pet scan since July.  I asked for the disc so I could look at it myself when I got home, but they said they don't burn them on the spot anymore in the mobile scanning station on site due to outdated software.  Ah well, waiting it is...

  • NewHere
    NewHere Member Posts: 1,346 **
    Steve444 said:

    Same here

    I'm in the same boat...  Today I had my first pet scan since July.  I asked for the disc so I could look at it myself when I got home, but they said they don't burn them on the spot anymore in the mobile scanning station on site due to outdated software.  Ah well, waiting it is...

    So It Goes

    Yup.  I am prepared for whatever at this point.  It is what it is.  But being in this, knowing there is something or not is fine.  And if it is overestimated as being worse then I get good news later, that is fine.  Not that I can read it, but tell me if something off.  Good luck with your scan today.  Just part of the things we face, hopefully we both get some good news shortly.

  • jen2012
    jen2012 Member Posts: 1,607
    NewHere said:

    So It Goes

    Yup.  I am prepared for whatever at this point.  It is what it is.  But being in this, knowing there is something or not is fine.  And if it is overestimated as being worse then I get good news later, that is fine.  Not that I can read it, but tell me if something off.  Good luck with your scan today.  Just part of the things we face, hopefully we both get some good news shortly.

    Yes good luck to both of

    Yes good luck to both of you!

    my husband was supposed to have his pet scan tomorrow, but he was admitted last night and now they won't do the pet until he's been out of the hospital 3 days.  Ugh, the waiting never ends.

    interestingly the hospital just started a new service and we get the email last night. They set up a patient portal for patients to view their scans, reports, etc.  Now Im not sure that will be more info than we want...I'm kind of nervous about it.

  • BillO60
    BillO60 Member Posts: 72
    Not the most Patient person in the world

    I personally would rather have the results as quickly as possible but I can understand why some Doctors would want to do a face-to-face. Seeing the results in an email might come off a bit impersonal for some people. Plus, you can't quiz the email and I think most Doctors who are working with cancer patients want to make sure the news (good or not so good) is understood by the patient and might want to give the patient a chance to ask questions. 

    In my case, I had a colonoscopy on February 26 where they discovered a mass which they biopsied. My primary doctor pushed through getting me on the schedule for a CT scan the next week and he asked me to come by his office after the scan was complete. My 1st question was about the biopsy and he gave me the news. He asked if I received anything in the mail regarding the biopsy results and at that point I hadn't which he said he was glad because he didn't think receiving the results in the mail was the best way to break the news that someone had cancer.  Of course, when I got home that afternoon and checked my mail sure enough there was a one page letter telling me that I had adenocarcinoma high-grade, etc.

    I'm being seen at the VA Medical Center and sending letters regarding the results of certain types of tests seems to be routine and I don't think the doctors have any control over that practice. For me I was okay with that because I understand the terminology and know it's not the end of the world.  But I can only imagine the panic someone might feel that doesn't understand and opens up that type of a letter at the end of the day when no one is around for them to talk to.

    Personally, I think Doctor's should be conservative in how they communicate life alterning news to patients but then they should tailor how they communicate news based on feedback from the patient.  Like someone else said, some Doctor's can come off as being "paternalistic" so the patient might have to nudge them a bit (I do believe in arguing with the Doctor if I think it's for a good reason).

    I do like the idea of the portals although the one the V.A. has doesn't appear to display lab or scan results. I've used it to reorder meds or to do "secure" emails to the Doctor.  I'll have to ask about their ability to post results in my next appointment.  I've got a PET scan tomorrow and according to the instruction sheet I received the results are supposed to be available within 24 hours.  When I had the endoscopy/colonoscopy they gave me a 4 page document (with pictures that are not suitable for framing) and a summary of the results and their recommendations within 30 minutes after the procedure. I got the results of the CT scan 2 days after the scan when I went for a surgical consult. I had a lower endoscopic ultrasound on Tuesday and got a call from one of the folks in the surgical group within an hour after the procedure was complete.  Unfortunately, I don't remember much of the conversation other than I think she said it showed some lymph node involvement so it was probably Stage 3 but since they sedated me for the procedure and I was running on 4 hours sleep I don't recall many details about the conversation.  I figured I'd wait for the PET scan results and my ONC consult next week for the final decision about the treatment plan.

    So far I've been pleasantly surprised about how quick they've been in scheduling me for consults, procedures, and scans. There's been a few minor bureaucratic bumps here and there but nothing that didn't get resolved quickly. I'm not the most positive person in the world but I'm going to be an optimist and hope the forward motion continues.

     

  • NewHere
    NewHere Member Posts: 1,346 **
    jen2012 said:

    Yes good luck to both of

    Yes good luck to both of you!

    my husband was supposed to have his pet scan tomorrow, but he was admitted last night and now they won't do the pet until he's been out of the hospital 3 days.  Ugh, the waiting never ends.

    interestingly the hospital just started a new service and we get the email last night. They set up a patient portal for patients to view their scans, reports, etc.  Now Im not sure that will be more info than we want...I'm kind of nervous about it.

    Portal Is Good

    I have the patient portal also.  It is good to see the items, though for some reason only outpatient, not inpatient.  Unfortunately there is a delay before some things get posted.

     

    Right now I am going crazy, the report from my PET scan is complete but my Dr. is not in and the report not posted.  So they will not tell me until next week.  I already know I have Stage III C cancer and if it is somewhere else I get bumped to IV, though the initial treatment is going to be the same.  (We had gone through this already on meeting.)  All I want is a simple answer.  Is it someplace else or not?  I can get the details next week.  Grrrrrrrrrrrrrrrrrrrrrrrr.  For me the stress of waiting for 3 more days is a lot more upsetting and unsettling than being told it is somewhere else, even without details or prognosis.  I get it.  I have cancer.  I am going on chemo.  I may need more surgery.  I doubt anything they say at this point is going to really be that bad, for the most part Laughing

  • Steve444
    Steve444 Member Posts: 105
    NewHere said:

    Portal Is Good

    I have the patient portal also.  It is good to see the items, though for some reason only outpatient, not inpatient.  Unfortunately there is a delay before some things get posted.

     

    Right now I am going crazy, the report from my PET scan is complete but my Dr. is not in and the report not posted.  So they will not tell me until next week.  I already know I have Stage III C cancer and if it is somewhere else I get bumped to IV, though the initial treatment is going to be the same.  (We had gone through this already on meeting.)  All I want is a simple answer.  Is it someplace else or not?  I can get the details next week.  Grrrrrrrrrrrrrrrrrrrrrrrr.  For me the stress of waiting for 3 more days is a lot more upsetting and unsettling than being told it is somewhere else, even without details or prognosis.  I get it.  I have cancer.  I am going on chemo.  I may need more surgery.  I doubt anything they say at this point is going to really be that bad, for the most part Laughing

    My results are in - no longer NED

    I checked online, no results so I called the radiology office and was told the report had been sent to my doctor but could come pick it up if I'd like.  Before walking out the door I checked again and the report was posted.  Anyway, I'm no longer NED.  There are 5 active areas in the liver again, but sizes are under 20mm each.  I've enjoyed my chemo break and at least have some time to chew on things over the weekend before I visit the cancer center next week.

  • NewHere
    NewHere Member Posts: 1,346 **
    Steve444 said:

    My results are in - no longer NED

    I checked online, no results so I called the radiology office and was told the report had been sent to my doctor but could come pick it up if I'd like.  Before walking out the door I checked again and the report was posted.  Anyway, I'm no longer NED.  There are 5 active areas in the liver again, but sizes are under 20mm each.  I've enjoyed my chemo break and at least have some time to chew on things over the weekend before I visit the cancer center next week.

    Ah Man

    Sorry to hear that.  Hope the next round goes smoothly for you and they get gone from the chemo.

    My chest x-rays only had one non-cancer thing since 2008.  Recent round indicated 3-4 things of indeterminate type.  Could be that the chest x-rays and other tests were either not sensitive enough or not done in the correct areas.  But prepared for otherwise based on the PET scan.