CAt scan results 3 months after SBRT

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Comments

  • Ro10
    Ro10 Member Posts: 1,561 Member
    #22
    elpasorudy said:

    Thinking of You

    You don't need the frustration. Take it a day at a time. Wishing you the best.

     

    Cough continues, unfortunately

    My cough was better while I was on the "medrol- dose pack".  But after I was off of it my cough returned very frequently again, especially at night.  I still have wheezing when I lay on my right side, too.    I called my onocologist in Illinois.  He reordered my codeine cough syrup, but recommended I go to ambulatory care to make sure nothing else was going on.  So Saturday I was at Ambulatory care for 3 hours.  At least the doctor did order a much higher dose of Steroids.  He ordered  Prednisone 60mg for 5 days, then 40 mg for 5 days and then 20 mg for 5 days.  He said that medrol dose pack was like putting out a camp fire with a squirt bottle.  He also ordered an inhaler for the wheezing.  He also gave me an antibiotic in case I start having green drainage.  I felt  he gave me what I needed.  I just hope it works.  He said if it does no work, they should do another CAT scan to see how it compares to the one the first of January.  I am thinking of seeing a lung doctor if it does not help.  This doctor mentioned that the radiation pneumonitis can lead to pulmonary fiborosis which is not curable.  I had read that on the internet, too. 

    I went to my onocologist down here.  He said my cancer was progressing slowly because of the slight increase in the CA 125, and the increase in the size of the para aortic lymph node.  He recommended a repeat CA 125 in 3 months.   He said he did not think I needed a CAT scan, but the radiation onocologist wanted another CAT scan 6 months after I finished the radiation.  I have a CAT scan scheduled in IL on April 8th, so we will return to Quincy the first part of April. 

    My husband asked if there was anything new for UPSC since I had my last treatment.  He mentioned Avastin as not being as harsh a chemo as some of the others.  But he said it increases the risk of blood clots.    Then he asked if I ever had any blood clots, and I said yes I had multiple bilateral blood clots in my lungs.  Then he remembered that.  So that is not an option for me.  so he said the taxol/cisplatin would be the drugs of choice for me. 

    Have had two of my sisters visiting for a week, and have a friend coming for a week, so I have not been posting.  You all remain in my prayers every night.  You are a special group of ladies.  In peace and caring.

     

  • AWK
    AWK Member Posts: 364 Member
    #23
    Ro10 said:

    Cough continues, unfortunately

    My cough was better while I was on the "medrol- dose pack".  But after I was off of it my cough returned very frequently again, especially at night.  I still have wheezing when I lay on my right side, too.    I called my onocologist in Illinois.  He reordered my codeine cough syrup, but recommended I go to ambulatory care to make sure nothing else was going on.  So Saturday I was at Ambulatory care for 3 hours.  At least the doctor did order a much higher dose of Steroids.  He ordered  Prednisone 60mg for 5 days, then 40 mg for 5 days and then 20 mg for 5 days.  He said that medrol dose pack was like putting out a camp fire with a squirt bottle.  He also ordered an inhaler for the wheezing.  He also gave me an antibiotic in case I start having green drainage.  I felt  he gave me what I needed.  I just hope it works.  He said if it does no work, they should do another CAT scan to see how it compares to the one the first of January.  I am thinking of seeing a lung doctor if it does not help.  This doctor mentioned that the radiation pneumonitis can lead to pulmonary fiborosis which is not curable.  I had read that on the internet, too. 

    I went to my onocologist down here.  He said my cancer was progressing slowly because of the slight increase in the CA 125, and the increase in the size of the para aortic lymph node.  He recommended a repeat CA 125 in 3 months.   He said he did not think I needed a CAT scan, but the radiation onocologist wanted another CAT scan 6 months after I finished the radiation.  I have a CAT scan scheduled in IL on April 8th, so we will return to Quincy the first part of April. 

    My husband asked if there was anything new for UPSC since I had my last treatment.  He mentioned Avastin as not being as harsh a chemo as some of the others.  But he said it increases the risk of blood clots.    Then he asked if I ever had any blood clots, and I said yes I had multiple bilateral blood clots in my lungs.  Then he remembered that.  So that is not an option for me.  so he said the taxol/cisplatin would be the drugs of choice for me. 

    Have had two of my sisters visiting for a week, and have a friend coming for a week, so I have not been posting.  You all remain in my prayers every night.  You are a special group of ladies.  In peace and caring.

     

    Keeping you in my prayers.

    Ro, I wish your journey would ease up for you and am sending you prayers for that.  I also wish you were a candidate for Avastin, in my case it keeps me stable which is my new normal.  And it is very manageable compared to chemo.  I am off to my 8th round tomorrow of it and now my goal is to live with this and fully live.  I am glad you are having visitors and hope you have a relaxing time with them.  And that your coughing subsides so you can get some much needed rest.  

    Sending many hugs, prayer and love to you and all.  Anne

  • molimoli
    molimoli Member Posts: 514
    #24
    Ro10 said:

    Cough continues, unfortunately

    My cough was better while I was on the "medrol- dose pack".  But after I was off of it my cough returned very frequently again, especially at night.  I still have wheezing when I lay on my right side, too.    I called my onocologist in Illinois.  He reordered my codeine cough syrup, but recommended I go to ambulatory care to make sure nothing else was going on.  So Saturday I was at Ambulatory care for 3 hours.  At least the doctor did order a much higher dose of Steroids.  He ordered  Prednisone 60mg for 5 days, then 40 mg for 5 days and then 20 mg for 5 days.  He said that medrol dose pack was like putting out a camp fire with a squirt bottle.  He also ordered an inhaler for the wheezing.  He also gave me an antibiotic in case I start having green drainage.  I felt  he gave me what I needed.  I just hope it works.  He said if it does no work, they should do another CAT scan to see how it compares to the one the first of January.  I am thinking of seeing a lung doctor if it does not help.  This doctor mentioned that the radiation pneumonitis can lead to pulmonary fiborosis which is not curable.  I had read that on the internet, too. 

    I went to my onocologist down here.  He said my cancer was progressing slowly because of the slight increase in the CA 125, and the increase in the size of the para aortic lymph node.  He recommended a repeat CA 125 in 3 months.   He said he did not think I needed a CAT scan, but the radiation onocologist wanted another CAT scan 6 months after I finished the radiation.  I have a CAT scan scheduled in IL on April 8th, so we will return to Quincy the first part of April. 

    My husband asked if there was anything new for UPSC since I had my last treatment.  He mentioned Avastin as not being as harsh a chemo as some of the others.  But he said it increases the risk of blood clots.    Then he asked if I ever had any blood clots, and I said yes I had multiple bilateral blood clots in my lungs.  Then he remembered that.  So that is not an option for me.  so he said the taxol/cisplatin would be the drugs of choice for me. 

    Have had two of my sisters visiting for a week, and have a friend coming for a week, so I have not been posting.  You all remain in my prayers every night.  You are a special group of ladies.  In peace and caring.

     

    Thinking of You RO10

    Ro10  You are in my thoughts.When I converse with the creator [or the idea of a creator] I ask for devine intervention  for all of us, I hope such a thing is possible, if not,  I took the liberty of letting the creator know that  we will settle for strength,courage  and the will to keep on fighting and living the best possible life now.    I  am sorry you are currently  on such a bumpy road, please Imagine us there behind you bracing  against the wind. Close your eyes and feel us there Ro. 'cause we are.

    We all  LOVE and THANK YOU  for  your warm welcome  and info. when we  rolled into this site  as NEWBY TUMBLE WEEDS. I thank you for the stability your informitive postings  brought to my pained soul.  my heart was bleeding then , I am ok now  Thank You and all the other ladies that saved me from  myself .

    Much luck with the new meds.                                                                              NUFF NUFF LOVE. moli

    A pleasant and healing week to all.

     

     

  • nempark
    nempark Member Posts: 681
    #25
    LOVE YOU RO!

     ITHINK OF YOU ALL THE TIME.  MAY YOU HAVE PEACE!!!!

  • nempark
    nempark Member Posts: 681
    #26
    molimoli said:

    Thinking of You RO10

    Ro10  You are in my thoughts.When I converse with the creator [or the idea of a creator] I ask for devine intervention  for all of us, I hope such a thing is possible, if not,  I took the liberty of letting the creator know that  we will settle for strength,courage  and the will to keep on fighting and living the best possible life now.    I  am sorry you are currently  on such a bumpy road, please Imagine us there behind you bracing  against the wind. Close your eyes and feel us there Ro. 'cause we are.

    We all  LOVE and THANK YOU  for  your warm welcome  and info. when we  rolled into this site  as NEWBY TUMBLE WEEDS. I thank you for the stability your informitive postings  brought to my pained soul.  my heart was bleeding then , I am ok now  Thank You and all the other ladies that saved me from  myself .

    Much luck with the new meds.                                                                              NUFF NUFF LOVE. moli

    A pleasant and healing week to all.

     

     

    NUFF, NUFF MOLI

    Nuff is a word we used when I was growing up in one of the British countries.  I love it. I wish you nuff, nuff success and nuff peace in your journey.  You always bring a smile to my face.

  • Abbycat2
    Abbycat2 Member Posts: 644 Member
    #27
    nempark said:

    LOVE YOU RO!

     ITHINK OF YOU ALL THE TIME.  MAY YOU HAVE PEACE!!!!

    Thinking of you, Ro

    Ro, you are in my prayers as well.  I am pleased to hear how much shrinkage as happened to the lymph node.  I hope the new meds will help with your wheezing and coughing.  Enjoy the visit with your sisters and friend! 

    Warmly,

    Cathy    

  • Ro10
    Ro10 Member Posts: 1,561 Member
    #28
    Abbycat2 said:

    Thinking of you, Ro

    Ro, you are in my prayers as well.  I am pleased to hear how much shrinkage as happened to the lymph node.  I hope the new meds will help with your wheezing and coughing.  Enjoy the visit with your sisters and friend! 

    Warmly,

    Cathy    

    Finally my cough is better

    I have had four nights where the cough did not wake me up.  My wheezing is almost gone now, too.  I havenot needed the inhaler for several days.   I have only taken my codiene cough syrup at bedtime.  Have not had the cough pill for those nights either.  I am half way through my prednisone prescription.  I hope the cough stays away when I get off the prednisone.  

    Have been enjoying the company.  The gift of friendship is quite a gift.  It has been in the 60's and 70's, much nicer than the snow in the Midwest....and the Northeast!

    hope you all had a good weekend.  Thanks again for the thoughts and prayers.  They are much appreciated.  In peace and caring.

  • Kaleena
    Kaleena Member Posts: 2,088 Member
    #29
    Ro10 said:

    Finally my cough is better

    I have had four nights where the cough did not wake me up.  My wheezing is almost gone now, too.  I havenot needed the inhaler for several days.   I have only taken my codiene cough syrup at bedtime.  Have not had the cough pill for those nights either.  I am half way through my prednisone prescription.  I hope the cough stays away when I get off the prednisone.  

    Have been enjoying the company.  The gift of friendship is quite a gift.  It has been in the 60's and 70's, much nicer than the snow in the Midwest....and the Northeast!

    hope you all had a good weekend.  Thanks again for the thoughts and prayers.  They are much appreciated.  In peace and caring.

    So glad to hear that your

    So glad to hear that your cough is subsiding.  Also that you are enjoying your company.   I am from the Northeast so we have been having snowy and wet weather here.

    Will continue to keep you in my thoughts and prayers.

    My best to you.

    Kathy

  • Abbycat2
    Abbycat2 Member Posts: 644 Member
    #30
    Kaleena said:

    So glad to hear that your

    So glad to hear that your cough is subsiding.  Also that you are enjoying your company.   I am from the Northeast so we have been having snowy and wet weather here.

    Will continue to keep you in my thoughts and prayers.

    My best to you.

    Kathy

    How are you doing , Kathy ?

    I have gotten to know many of the women here and feel that you are part of my extended family. How are you doing , Kathy? How extensive is the surgery to get your stent replaced? Darn, I hate what cancer treatment does to us. Hopefully , the cars each family member owns are in good shape. How is your Mom? I have noticed that you are posting on other ACS boards. I , too , have branched out and read/post on other boards as well.

     I hope you are doing well, Kathy!

    Cathy

     

     

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