CT AND PET RESULTS TOMORROW

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Nana b
Nana b CSN Member Posts: 3,030 Member
in Colorectal Cancer #1

I hate the nervousness of waiting to hear results.    Need a miracle.  CEA is over 400. 

 

Comments

  • Trubrit
    Trubrit CSN Member Posts: 5,805 Member
    #2
    *Deep cleansing breaths*

    I will be thinking of you tomorrow, Nana b.  I will also pray for that miracle. 

    I hope that you are happy with your team, and know that they will do all in their power to knock this beast on its head. 

    Cyber hugs.

    SUE

  • Hopeful0524
    Hopeful0524 Member Posts: 22
    #3
    Thinking of you

    Just read your post.  We are here if you need to vent, good news or bad news, doesn't matter.  Hope you are well.

  • Nana b
    Nana b CSN Member Posts: 3,030 Member
    #4
    Hopeful0524 said:

    Thinking of you

    Just read your post.  We are here if you need to vent, good news or bad news, doesn't matter.  Hope you are well.

    Thank you. 
     
    Well everything

    Thank you. 

     

    Well everything still growing.  Liver met size of a quarter. Lungs growing, double in size, one had no growth.  2 small one in lymp nodes.  Surprise. No chemo today   Changing it again, need insurance approval. Said go ahead and try canabis oil. But still have options. Oh, well.  Off Erbitux and going on zaltrap and staying on Folfri.  

     

     

    What can I say, Stay Strong.  Second opinion on Friday. Going to get the Cannabis. Tried finding the Indica strain on my own but couldn't so going to a dispensary.  

  • LindaK.
    LindaK. Member Posts: 506 Member
    #5
    Nana b said:

    Thank you. 
     
    Well everything

    Thank you. 

     

    Well everything still growing.  Liver met size of a quarter. Lungs growing, double in size, one had no growth.  2 small one in lymp nodes.  Surprise. No chemo today   Changing it again, need insurance approval. Said go ahead and try canabis oil. But still have options. Oh, well.  Off Erbitux and going on zaltrap and staying on Folfri.  

     

     

    What can I say, Stay Strong.  Second opinion on Friday. Going to get the Cannabis. Tried finding the Indica strain on my own but couldn't so going to a dispensary.  

    Oh crap (literally and figuratively)

    So sorry to read this update.  I was thinking of you this morning and hoping you were getting some good news.  I think you were on a similar path as my husband.  He had 12 rounds of Folfox in 2013, finished in July.  In November and December of 2013 he had many pain issues, many tests where nothing showed up.  Finally ended up in the ED in early January with another large tumor in his small intestines this time.  Horrific 17 day hospitalization and next ct scan about 6 weeks later showed distant lymph node involvement.  Time for us to get the heck out of Dodge - went to a large much more professional cancer center in our city and never looked back.  I just feel sorry for the people that still go to that place we used to go to.  He's had a PET scan and another CT where things are looking better after only 4 Folfiri treatments.  I would highly recommend a 2nd or even 3rd opinion.  This kind of news sure takes the winds out of your sails, but as long as there are options you have to keep trying.  Good luck with the Cannabis, let us know if and how that helps.

    Linda

  • Nana b
    Nana b CSN Member Posts: 3,030 Member
    #6
    LindaK. said:

    Oh crap (literally and figuratively)

    So sorry to read this update.  I was thinking of you this morning and hoping you were getting some good news.  I think you were on a similar path as my husband.  He had 12 rounds of Folfox in 2013, finished in July.  In November and December of 2013 he had many pain issues, many tests where nothing showed up.  Finally ended up in the ED in early January with another large tumor in his small intestines this time.  Horrific 17 day hospitalization and next ct scan about 6 weeks later showed distant lymph node involvement.  Time for us to get the heck out of Dodge - went to a large much more professional cancer center in our city and never looked back.  I just feel sorry for the people that still go to that place we used to go to.  He's had a PET scan and another CT where things are looking better after only 4 Folfiri treatments.  I would highly recommend a 2nd or even 3rd opinion.  This kind of news sure takes the winds out of your sails, but as long as there are options you have to keep trying.  Good luck with the Cannabis, let us know if and how that helps.

    Linda

    I will. Thanks for the

    I will. Thanks for the support. 

  • herdizziness
    herdizziness CSN Member Posts: 3,624 Member
    #7
    Nana b said:

    Thank you. 
     
    Well everything

    Thank you. 

     

    Well everything still growing.  Liver met size of a quarter. Lungs growing, double in size, one had no growth.  2 small one in lymp nodes.  Surprise. No chemo today   Changing it again, need insurance approval. Said go ahead and try canabis oil. But still have options. Oh, well.  Off Erbitux and going on zaltrap and staying on Folfri.  

     

     

    What can I say, Stay Strong.  Second opinion on Friday. Going to get the Cannabis. Tried finding the Indica strain on my own but couldn't so going to a dispensary.  

    CRAP

    here's to the second opinion (fingers, toes crossed) coming up with something, or else the new chemo works.  Sending nothing but good vibes and wishes your way Raquel!!!

    Winter Marie

  • UncleBuddy
    UncleBuddy Member Posts: 1,019 Member
    #8
    Yes! Yes!

    Please get another opinion. I am sending postive thoughts your way!

    Lin

  • janderson1964
    janderson1964 CSN Member Posts: 2,215 Member
    #9
    Sorry about the bad news but

    Sorry about the bad news but i admire your spunk. Keep fighting.

  • Nana b
    Nana b CSN Member Posts: 3,030 Member
    #10
    janderson1964 said:

    Sorry about the bad news but

    Sorry about the bad news but i admire your spunk. Keep fighting.

    Thank you  

    Thank you   Winter you are looking Fab, but don't lose too much weight. Ensure is a good idea.   I've lost 40 lbs, good thing I'm off Oxy, although, ONC said I may need to go back on FOLFOX, as it worked the first time. He said he wants to save it as a last resort, wonder why....  I didn't ask. I'll ask Dr Yen on Friday. 

  • Trubrit
    Trubrit CSN Member Posts: 5,805 Member
    #11
    Darn it!

    I know you must have been expecting something like this, though wishing it otherwise. I know when I got my two CEA jumps, I still wanted so bad for the Oncologist to tell me that it was a fluke. Of course I knew that something was up, but figured it didn't hurt to think a miracle might happen. 

    Good luck with your second opinion. It never hurts. I pray for good news. You know we're always here for you.

    Blessings.

  • Trubrit
    Trubrit CSN Member Posts: 5,805 Member
    #12
    Nana b said:

    Thank you. 
     
    Well everything

    Thank you. 

     

    Well everything still growing.  Liver met size of a quarter. Lungs growing, double in size, one had no growth.  2 small one in lymp nodes.  Surprise. No chemo today   Changing it again, need insurance approval. Said go ahead and try canabis oil. But still have options. Oh, well.  Off Erbitux and going on zaltrap and staying on Folfri.  

     

     

    What can I say, Stay Strong.  Second opinion on Friday. Going to get the Cannabis. Tried finding the Indica strain on my own but couldn't so going to a dispensary.  

    Weight

    Once, and only once, did I lose some serious weight, and even though I knew I had reached an ideal (for me) weight, I still wanted to lose more. Its good to be able to know when to stop. 

    Winter, you look great. Stick with it and stay where you are. 

    Now, if only I could use you as an example. 

  • UncleBuddy
    UncleBuddy Member Posts: 1,019 Member
    #13
    Trubrit said:

    Darn it!

    I know you must have been expecting something like this, though wishing it otherwise. I know when I got my two CEA jumps, I still wanted so bad for the Oncologist to tell me that it was a fluke. Of course I knew that something was up, but figured it didn't hurt to think a miracle might happen. 

    Good luck with your second opinion. It never hurts. I pray for good news. You know we're always here for you.

    Blessings.

    Trubrit

    How are you doing? I love your new Pic!!

    Lin

  • Trubrit
    Trubrit CSN Member Posts: 5,805 Member
    #14
    UncleBuddy said:

    Trubrit

    How are you doing? I love your new Pic!!

    Lin

    Feeling real good

    Thanks Lin, for asking. I feel good. This pic was taken last week, so living proof. 

    Should get CEA results this week. See if I'm as healthy as I feel. 

  • Cathleen Mary
    Cathleen Mary CSN Member Posts: 827 Member
    #15
    Trubrit said:

    Feeling real good

    Thanks Lin, for asking. I feel good. This pic was taken last week, so living proof. 

    Should get CEA results this week. See if I'm as healthy as I feel. 

    Oh, Nana b, so sorry that you

    Oh, Nana b, so sorry that you are going thought so much.  I can still read the fight in you...so glad for that and that you are getting a second opinion. Keep your eyes on the prize...NED.  you are in my heart and prayer.

    CM

  • herdizziness
    herdizziness CSN Member Posts: 3,624 Member
    #16
    Nana b said:

    Thank you  

    Thank you   Winter you are looking Fab, but don't lose too much weight. Ensure is a good idea.   I've lost 40 lbs, good thing I'm off Oxy, although, ONC said I may need to go back on FOLFOX, as it worked the first time. He said he wants to save it as a last resort, wonder why....  I didn't ask. I'll ask Dr Yen on Friday. 

    Dr. Yen

    I truly think you will really like him and I'm sure he'll be able to answer that question for you.  Again wish I wasn't getting surgery so we could meet and lunch.

    And yes, I went and got coupons from his office today so I started the Ensure to get a bit of weight back :)!!

    Winter Marie

  • Helen321
    Helen321 CSN Member Posts: 1,460 Member
    #17
    I can hear the fight in you

    I can hear the fight in you too. Second and third opinions should be a part of the norm. Chanting NED into yhe atmosphere. 

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