Not eligible for clinical trials, looking for other options - conventional or alternative

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  • annalexandria
    annalexandria Member Posts: 2,571 Member
    #22
    serenity101 said:

    Iowa / Minnesota

    I live near the center of the border between Minnesota and Iowa.

    I will text her today and ask.

    Btw, I always love to see your flower avatar.  So pretty!

  • annalexandria
    annalexandria Member Posts: 2,571 Member
    #23
    She got back to me and said to check

    for someone on the following website:

    www.oncanp.org

     

    If you have questions after you look at that, let me know and I'll see if I can get them answered for you.  She's a prof at the naturopathic university in this area, and also head of alt med at the Seattle Public Health dept., so I think her info is pretty good.

  • tanstaafl
    tanstaafl Member Posts: 1,313 Member
    #24
    off label experiements

    My favorite oral chemo tegafur-uracil isn't available in North Am; more so in Europe, So Am and Asia.  Most people here at CSN have to use xeloda for oral chemo.

    Some have made progress with off label oral adjuncts like celecoxib, cimetidine, metformin, aspirin or PSK/proteo betaglucans and many other natural extracts like Life Extension Foundation, added to xeloda, earlier in the CRC journey.   IV vitamin C + oral vitamin C + vitamin K as menaquinone-4 or else K3 has also been used with chemo.   Hovever, documented experience with these oral regimes, for patients heavily pretreated with std chemo,  is thin.   

    Support is typically between CAM oriented MD/DOs and naturopathic doctors.

     

  • thxmiker
    thxmiker Member Posts: 1,278 Member
    #25
    I have a friend Shanon whom

    I have a friend Shanon whom had great results at New Hope unlimited in Scottsdale.  http://www.newhopemedicalcenter.com/

     

    This is not an ad from me.  I knew her husband in High School. (We all grew up in Simi Valley, California.) Shannon was given a poor diagnosis for the future.  Many helped raise the funds to help her get help.  She has a vidieo about her cancer journey on their web site.

     

    Worst case New Hope has a lot of FREE nutrition information. They will also answer questions.  I have asked several and have always received a positive response. I have not used them yet other then for information. I do not use New Hope, nor do I get anything for recomending them. 

     

    Best Always,  mike

  • AN
    AN Member Posts: 4
    #26
    serenity101 said:

    eligibility

    All of the clinical trials I have seen require a platelet count of at least 100,000, and right now my platelets are only 51,000. They have mostly been under 100,000 since shortly after I started chemo.

    Try papaya leaves.  Over here

    Try papaya leaves.  Over here in the east, we use them to treat low platelets due to dengue (Caused by mosquito Bites).  It is effective. The other thing that people here use is porcupine dates which is also good for low platelets, dont think you can get it in US?  

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